Skip to main content
Top
Published in: BMC Palliative Care 1/2016

Open Access 01-12-2016 | Research article

Comfort experience in palliative care: a phenomenological study

Authors: Adriana Coelho, Vitor Parola, Miguel Escobar-Bravo, João Apóstolo

Published in: BMC Palliative Care | Issue 1/2016

Login to get access

Abstract

Background

Palliative care aims to provide maximum comfort to the patient. However it is unknown what factors facilitate or hinder the experience of comfort, from the perspective of inpatients of palliative care units. This lack of knowledge hinders the development of comfort interventions adjusted to these patients. The aim of this research is to describe the comfort and discomfort experienced by inpatients at palliative care units.

Methods

A phenomenological descriptive study was undertaken. Ten inpatients were recruited from a Spanish palliative care unit and seven from a Portuguese palliative care unit. Data were collected using individual interviews and analysed following the method of Giorgi.

Results

Four themes reflect the essence of the lived experience: The Palliative Care as a response to the patient’s needs with advanced disease, attempt to naturalize advanced disease, confrontation with their own vulnerability, openness to the spiritual dimension.

Conclusions

Informants revealed that they experience comfort through humanized care, differentiated environment, symptomatic control, hope and relationships. The discomfort emerges from the losses and powerlessness against their situation. Even if such findings may seem intuitive, documenting them is essential because it invites us to reflect on our convictions about what it means to be comfortable for these patients, and allows incorporating this information in the design of focused interventions to maximize the comfort experience.
Appendix
Available only for authorised users
Literature
1.
go back to reference Worldwide Palliative Care Alliance. Global Atlas of Palliative Care at the End of Life. London: Worldwide Palliative Care Alliance; 2014. Worldwide Palliative Care Alliance. Global Atlas of Palliative Care at the End of Life. London: Worldwide Palliative Care Alliance; 2014.
2.
go back to reference Tomás-Sábado J, Benito J. Variables relacionadas con la ansiedad ante la muerte. Rev Psicol Gen Apl. 2003;56(3):257–79. Tomás-Sábado J, Benito J. Variables relacionadas con la ansiedad ante la muerte. Rev Psicol Gen Apl. 2003;56(3):257–79.
3.
go back to reference Twycross RG. Palliative Care: An international necessity. J Pain Palliat Care Pharmacother. 2002;16(1):61–79.CrossRefPubMed Twycross RG. Palliative Care: An international necessity. J Pain Palliat Care Pharmacother. 2002;16(1):61–79.CrossRefPubMed
4.
go back to reference Currow DC, Ward AM, Plummer JL, Bruera E, Abernethy AP. Comfort in the last 2 weeks of life: relationship to accessing palliative care services. Support Care Cancer. 2008;16(11):1255–63.CrossRefPubMed Currow DC, Ward AM, Plummer JL, Bruera E, Abernethy AP. Comfort in the last 2 weeks of life: relationship to accessing palliative care services. Support Care Cancer. 2008;16(11):1255–63.CrossRefPubMed
5.
go back to reference Novak B, Kolcaba K, Steiner R, Dowd T. Measuring comfort in caregivers and patients during late end-of-life care. Am J Hosp Palliat Care. 2001;18(3):170–80.CrossRefPubMed Novak B, Kolcaba K, Steiner R, Dowd T. Measuring comfort in caregivers and patients during late end-of-life care. Am J Hosp Palliat Care. 2001;18(3):170–80.CrossRefPubMed
6.
go back to reference Printz LA. Is withholding hydration a valid comfort measure in the terminally ill? Geriatrics. 1988;43(11):84–8.PubMed Printz LA. Is withholding hydration a valid comfort measure in the terminally ill? Geriatrics. 1988;43(11):84–8.PubMed
7.
go back to reference LeGrand SB, Walsh D. Comfort Measures: Practical Care of the Dying Cancer Patient. Am J Hosp Palliat Med. 2010;27(7):488–93.CrossRef LeGrand SB, Walsh D. Comfort Measures: Practical Care of the Dying Cancer Patient. Am J Hosp Palliat Med. 2010;27(7):488–93.CrossRef
8.
9.
go back to reference Kamal AH, Gradison M, Maguire JM, Taylor D, Abernethy AP. Quality Measures for Palliative Care in Patients With Cancer: A Systematic Review. J Oncol Pract. 2014;10(4):281–7.CrossRefPubMedPubMedCentral Kamal AH, Gradison M, Maguire JM, Taylor D, Abernethy AP. Quality Measures for Palliative Care in Patients With Cancer: A Systematic Review. J Oncol Pract. 2014;10(4):281–7.CrossRefPubMedPubMedCentral
11.
go back to reference Morse JM. An ethnoscientific analysis of comfort: a preliminary investigation. Nurs Pap. 1983;15(1):6–20.PubMed Morse JM. An ethnoscientific analysis of comfort: a preliminary investigation. Nurs Pap. 1983;15(1):6–20.PubMed
12.
13.
go back to reference Neves Arruda EN, Larson PJ, Meleis AI. Comfort. Immigrant Hispanic cancer patients’ views. Cancer Nurs. 1992;15(6):387–94.PubMed Neves Arruda EN, Larson PJ, Meleis AI. Comfort. Immigrant Hispanic cancer patients’ views. Cancer Nurs. 1992;15(6):387–94.PubMed
15.
go back to reference Waldrop DP, Kirkendall AM. Comfort measures: a qualitative study of nursing home-based end-of-life care. J Palliat Med. 2009;12(8):719–24.CrossRefPubMed Waldrop DP, Kirkendall AM. Comfort measures: a qualitative study of nursing home-based end-of-life care. J Palliat Med. 2009;12(8):719–24.CrossRefPubMed
16.
go back to reference Fleming C, Scanlon C, D’Agostino NS. A study of the comfort needs of patients with advanced cancer. Cancer Nurs. 1987;10(5):237–43.CrossRefPubMed Fleming C, Scanlon C, D’Agostino NS. A study of the comfort needs of patients with advanced cancer. Cancer Nurs. 1987;10(5):237–43.CrossRefPubMed
17.
go back to reference Bottorff JL, Gogag M, Engelberg-Lotzkar M. Comforting: exploring the work of cancer nurses. J Adv Nurs. 1995;22(6):1077–84.CrossRefPubMed Bottorff JL, Gogag M, Engelberg-Lotzkar M. Comforting: exploring the work of cancer nurses. J Adv Nurs. 1995;22(6):1077–84.CrossRefPubMed
18.
go back to reference Searle C, Mcinerney F. Creating comfort: Nurses’ perspectives on pressure care management in the last 48 hours of life. Contemp Nurse. 2008;29(2):147–58.CrossRefPubMed Searle C, Mcinerney F. Creating comfort: Nurses’ perspectives on pressure care management in the last 48 hours of life. Contemp Nurse. 2008;29(2):147–58.CrossRefPubMed
19.
go back to reference Addington-Hall J, McPherson C. After-Death Interviews with Surrogates/Bereaved Family Members. J Pain Symptom Manage. 2001;22(3):784–90.CrossRefPubMed Addington-Hall J, McPherson C. After-Death Interviews with Surrogates/Bereaved Family Members. J Pain Symptom Manage. 2001;22(3):784–90.CrossRefPubMed
20.
go back to reference Lynn J, Teno JM, Phillips RS, Wu AW, Desbiens N, Harrold J, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med. 1997;126(2):97–106.CrossRefPubMed Lynn J, Teno JM, Phillips RS, Wu AW, Desbiens N, Harrold J, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med. 1997;126(2):97–106.CrossRefPubMed
21.
go back to reference Lobchuk MM, Degner LF. Symptom experiences: Perceptual accuracy between advanced-stage cancer patients and family caregivers in the home care setting. J Clin Oncol. 2002;20(16):3495–507.CrossRefPubMed Lobchuk MM, Degner LF. Symptom experiences: Perceptual accuracy between advanced-stage cancer patients and family caregivers in the home care setting. J Clin Oncol. 2002;20(16):3495–507.CrossRefPubMed
22.
go back to reference McMillan SC, Moody LE. Hospice patient and caregiver congruence in reporting patients’ symptom intensity. Cancer Nurs. 2003;26(2):113–8.CrossRefPubMed McMillan SC, Moody LE. Hospice patient and caregiver congruence in reporting patients’ symptom intensity. Cancer Nurs. 2003;26(2):113–8.CrossRefPubMed
23.
go back to reference Redinbaugh EM, Baum A, DeMoss C, Fello M, Arnold R. Factors associated with the accuracy of family caregiver estimates of patient pain. J Pain Symptom Manage. 2002;23(1):31–8.CrossRefPubMed Redinbaugh EM, Baum A, DeMoss C, Fello M, Arnold R. Factors associated with the accuracy of family caregiver estimates of patient pain. J Pain Symptom Manage. 2002;23(1):31–8.CrossRefPubMed
24.
go back to reference Jones JM, McPherson CJ, Zimmermann C, Rodin G, Le LW, Cohen SR. Assessing agreement between terminally ill cancer patients’ reports of their quality of life and family caregiver and palliative care physician proxy ratings. J Pain Symptom Manage. 2011;42(3):354–65.CrossRefPubMed Jones JM, McPherson CJ, Zimmermann C, Rodin G, Le LW, Cohen SR. Assessing agreement between terminally ill cancer patients’ reports of their quality of life and family caregiver and palliative care physician proxy ratings. J Pain Symptom Manage. 2011;42(3):354–65.CrossRefPubMed
25.
go back to reference Field D, Douglas C, Jagger C, Dand P. Terminal illness: views of patients and their lay carers. Palliat Med. 1995;9(1):45–54.CrossRefPubMed Field D, Douglas C, Jagger C, Dand P. Terminal illness: views of patients and their lay carers. Palliat Med. 1995;9(1):45–54.CrossRefPubMed
26.
go back to reference Milne DJ, Mulder LL, Beelen HCM, Schofield P, Kempen GIJM, Aranda S. Patients’ self-report and family caregivers’ perception of quality of life in patients with advanced cancer: How do they compare? Eur J Cancer Care (Engl). 2006;15(2):125–32.CrossRef Milne DJ, Mulder LL, Beelen HCM, Schofield P, Kempen GIJM, Aranda S. Patients’ self-report and family caregivers’ perception of quality of life in patients with advanced cancer: How do they compare? Eur J Cancer Care (Engl). 2006;15(2):125–32.CrossRef
27.
go back to reference Spiller JA, Alexander DA. Domiciliary care: a comparison of the views of terminally ill patients and their family caregivers. Palliat Med. 1993;7(2):109–15.CrossRefPubMed Spiller JA, Alexander DA. Domiciliary care: a comparison of the views of terminally ill patients and their family caregivers. Palliat Med. 1993;7(2):109–15.CrossRefPubMed
28.
go back to reference Vendlinski S, Kolcaba K. Comfort care: A framework for hospice nursing. J Hosp Palliat Care. 1997;14(6):271–6.CrossRef Vendlinski S, Kolcaba K. Comfort care: A framework for hospice nursing. J Hosp Palliat Care. 1997;14(6):271–6.CrossRef
29.
go back to reference Kolcaba K. Comfort Theory and Practice: A Vision for Holistic Health Care and Research. New York: Springer Publishing Company; 2003. Kolcaba K. Comfort Theory and Practice: A Vision for Holistic Health Care and Research. New York: Springer Publishing Company; 2003.
30.
go back to reference Giorgi A. The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure. J Phenomenol Psychol. 1997;28(2):235–60.CrossRef Giorgi A. The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure. J Phenomenol Psychol. 1997;28(2):235–60.CrossRef
32.
go back to reference Rubiales AS, Del Valle ML, Flores LA, Hernansanz S, Gutiérrez C. ¿Cómo podemos adaptar la metodología de la investigación clínica a los Cuidados Paliativos? Med Paliativa. 2007;14(4):243–9. Rubiales AS, Del Valle ML, Flores LA, Hernansanz S, Gutiérrez C. ¿Cómo podemos adaptar la metodología de la investigación clínica a los Cuidados Paliativos? Med Paliativa. 2007;14(4):243–9.
33.
go back to reference Seymour J, Clark D. Phenomenological approaches to palliative care research. Palliat Med. 1998;12(2):127–131.CrossRefPubMed Seymour J, Clark D. Phenomenological approaches to palliative care research. Palliat Med. 1998;12(2):127–131.CrossRefPubMed
34.
go back to reference Giorgi A. Concerning the application of phenomenology to caring research. Scand J Caring Sci. 2000;14(1):11–5.CrossRefPubMed Giorgi A. Concerning the application of phenomenology to caring research. Scand J Caring Sci. 2000;14(1):11–5.CrossRefPubMed
35.
go back to reference Giorgi A. Concerning Variations in the Application of the Phenomenological Method. Humanist Psychol. 2006;34(4):305–19.CrossRef Giorgi A. Concerning Variations in the Application of the Phenomenological Method. Humanist Psychol. 2006;34(4):305–19.CrossRef
36.
go back to reference Jack B, Hillier V, Williams A, Oldham J. Hospital based palliative care teams improve the symptoms of cancer patients. Palliat Med. 2003;17(6):498–502.CrossRefPubMed Jack B, Hillier V, Williams A, Oldham J. Hospital based palliative care teams improve the symptoms of cancer patients. Palliat Med. 2003;17(6):498–502.CrossRefPubMed
37.
go back to reference Jack B, Hillier V, Williams A, Oldham J. Improving cancer patients’ pain: The impact of the hospital specialist palliative care team. Eur J Cancer Care (Engl). 2006;15(5):476–80.CrossRef Jack B, Hillier V, Williams A, Oldham J. Improving cancer patients’ pain: The impact of the hospital specialist palliative care team. Eur J Cancer Care (Engl). 2006;15(5):476–80.CrossRef
38.
go back to reference Kolcaba KY. A taxonomic structure for the concept comfort. Imagen J Nurs Sch. 1991;23(4):237–40.CrossRef Kolcaba KY. A taxonomic structure for the concept comfort. Imagen J Nurs Sch. 1991;23(4):237–40.CrossRef
39.
go back to reference Kolcaba KY. Holistic comfort: Operationalizing the construct as a nurse- sensitive outcome. Adv Nurs Sci. 1992;15(1):1–10.CrossRef Kolcaba KY. Holistic comfort: Operationalizing the construct as a nurse- sensitive outcome. Adv Nurs Sci. 1992;15(1):1–10.CrossRef
40.
go back to reference Ingleton C. The views of patients and carers on one palliative care service. Int J Palliat Nurs. 1999;5(4):187–95.CrossRef Ingleton C. The views of patients and carers on one palliative care service. Int J Palliat Nurs. 1999;5(4):187–95.CrossRef
41.
go back to reference Mckinlay EM. Within the circle of care: Patient experiences of receiving palliative care. J Palliat Care. 2001;17(1):22–9.PubMed Mckinlay EM. Within the circle of care: Patient experiences of receiving palliative care. J Palliat Care. 2001;17(1):22–9.PubMed
42.
go back to reference Hamilton J. Comfort on a Palliative Care Unit: The cliente’s Perception. Toronto, Canada: McGill University; 1985. Hamilton J. Comfort on a Palliative Care Unit: The cliente’s Perception. Toronto, Canada: McGill University; 1985.
43.
go back to reference Kübler-Ross E. On death and dying: What the Dying Have to Teach Doctors, Nurses, Clergy and Their Own Families. New York: Scribner; 2014. Kübler-Ross E. On death and dying: What the Dying Have to Teach Doctors, Nurses, Clergy and Their Own Families. New York: Scribner; 2014.
44.
go back to reference Quill T, Norton S, Shah M, Lam Y, Fridd C, Buckley M. What is Most Important for You to Achieve?: An Analysis of Patient Responses When Receiving Palliative Care Consultation. J Palliat Med. 2006;9(2):382–8.CrossRefPubMed Quill T, Norton S, Shah M, Lam Y, Fridd C, Buckley M. What is Most Important for You to Achieve?: An Analysis of Patient Responses When Receiving Palliative Care Consultation. J Palliat Med. 2006;9(2):382–8.CrossRefPubMed
45.
go back to reference Benzein E, Norberg A, Saveman BI. The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliat Med. 2001;15(2):117–26.CrossRefPubMed Benzein E, Norberg A, Saveman BI. The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliat Med. 2001;15(2):117–26.CrossRefPubMed
46.
47.
go back to reference Broggi MA. Por una muerte apropiada. Barcelona: Anagrama; 2013. Broggi MA. Por una muerte apropiada. Barcelona: Anagrama; 2013.
48.
go back to reference Charmaz K. ‘Discovering’ chronic illness: Using grounded theory. Soc Sci Med. 1990;30(11):1161–72.CrossRefPubMed Charmaz K. ‘Discovering’ chronic illness: Using grounded theory. Soc Sci Med. 1990;30(11):1161–72.CrossRefPubMed
49.
go back to reference Cassell E. The nature of suffering and the goals of Medicine. 2ath ed. Oxford: Oxford University Press; 2004.CrossRef Cassell E. The nature of suffering and the goals of Medicine. 2ath ed. Oxford: Oxford University Press; 2004.CrossRef
50.
go back to reference Williams C, Gardiner C. Preference for a single or shared room in a UK inpatient hospice: patient, family and staff perspectives. BMJ Support Palliat Care. 2015;5(2):169–74.CrossRefPubMed Williams C, Gardiner C. Preference for a single or shared room in a UK inpatient hospice: patient, family and staff perspectives. BMJ Support Palliat Care. 2015;5(2):169–74.CrossRefPubMed
51.
go back to reference Frankl VE. El hombre en busca de sentido. 12a edició. Barcelona: Editorial Herder; 1991. Frankl VE. El hombre en busca de sentido. 12a edició. Barcelona: Editorial Herder; 1991.
52.
go back to reference Prince-Paul M. Understanding the meaning of social well-being at the end of life. Oncol Nurs Forum. 2008;35(3):365–71.CrossRefPubMed Prince-Paul M. Understanding the meaning of social well-being at the end of life. Oncol Nurs Forum. 2008;35(3):365–71.CrossRefPubMed
53.
go back to reference Gott M, Barnes S, Parker C, Payne S, Seamark D, Gariballa S, et al. Dying trajectories in heart failure. Palliat Med. 2007;21(2):95–9.CrossRefPubMed Gott M, Barnes S, Parker C, Payne S, Seamark D, Gariballa S, et al. Dying trajectories in heart failure. Palliat Med. 2007;21(2):95–9.CrossRefPubMed
Metadata
Title
Comfort experience in palliative care: a phenomenological study
Authors
Adriana Coelho
Vitor Parola
Miguel Escobar-Bravo
João Apóstolo
Publication date
01-12-2016
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2016
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-016-0145-0

Other articles of this Issue 1/2016

BMC Palliative Care 1/2016 Go to the issue