Skip to main content
Top
Published in: BMC Public Health 1/2019

Open Access 01-12-2019 | Research article

What does it mean to conduct participatory research with Indigenous peoples? A lexical review

Authors: Ann Dadich, Loretta Moore, Valsamma Eapen

Published in: BMC Public Health | Issue 1/2019

Login to get access

Abstract

Background

To better understand and promote public health, participatory research with Indigenous peoples represents recommended practice, worldwide. However, due to the different ways such research is referred to, described, and used, it is unclear what might (and might not) warrant the term when collaborating with Indigenous peoples. As such, this article expands conceptual understandings of participatory research with Indigenous peoples, across timelines and regions.

Method

Following a systematic search of 29 academic databases in April 2018, a lexical analysis of the methods sections was conducted, which were sourced from 161 publications across 107 journals.

Results

The active involvement of Indigenous peoples in research that is expressly participatory is limited across all project phases. This might be because the ways in which Indigenous peoples were involved throughout were not reported – however, it might also be because Indigenous peoples were not involved in all project phases. Furthermore, descriptions differ by study location and publication timeframe – notably, studies in the region of the Americas chiefly refer to pandemics, surveyors, and art; and those published in the last two decades have given primacy to artifacts of interest.

Conclusions

Findings from this corpus of data suggest participatory research with Indigenous peoples is not always described across different project phases; furthermore, it differs according to study location and publication timeframe. This offers considerable opportunity to further this important research area via alternative methodologies that award primacy to Indigenous expertise and agency.
Appendix
Available only for authorised users
Literature
1.
go back to reference WHO (World Health Organization). Indigenous peoples & participatory health research. Geneva: WHO (World Health Organization); 2003. WHO (World Health Organization). Indigenous peoples & participatory health research. Geneva: WHO (World Health Organization); 2003.
3.
go back to reference Tuhiwai Smith L. Decolonizing methodologies: research and indigenous peoples, Second edn. London: Zed Books; 2012. Tuhiwai Smith L. Decolonizing methodologies: research and indigenous peoples, Second edn. London: Zed Books; 2012.
4.
go back to reference Delbanco T, Berwick DM, Boufford JI, Edgman-Levitan S, Ollenschläger G, Plamping D, Rockefeller RG. Healthcare in a land called PeoplePower: nothing about me without me. Health Expect. 2001;4(3):144–50.PubMedPubMedCentralCrossRef Delbanco T, Berwick DM, Boufford JI, Edgman-Levitan S, Ollenschläger G, Plamping D, Rockefeller RG. Healthcare in a land called PeoplePower: nothing about me without me. Health Expect. 2001;4(3):144–50.PubMedPubMedCentralCrossRef
5.
go back to reference Wilson S. What is an indigenous research methodology? Can J Nativ Educ. 2001;25(2):175–9. Wilson S. What is an indigenous research methodology? Can J Nativ Educ. 2001;25(2):175–9.
6.
go back to reference Cochran PA, Marshall CA, Garcia-Downing C, Kendall E, Cook D, McCubbin L, Gover RM. Indigenous ways of knowing: implications for participatory research and community. Am J Public Health. 2008;98(1):22–7.PubMedPubMedCentralCrossRef Cochran PA, Marshall CA, Garcia-Downing C, Kendall E, Cook D, McCubbin L, Gover RM. Indigenous ways of knowing: implications for participatory research and community. Am J Public Health. 2008;98(1):22–7.PubMedPubMedCentralCrossRef
7.
go back to reference Martin B. Methodology is content: indigenous approaches to research and knowledge. Educ Philos Theory. 2017;49(14):22–7.CrossRef Martin B. Methodology is content: indigenous approaches to research and knowledge. Educ Philos Theory. 2017;49(14):22–7.CrossRef
8.
go back to reference Pacheco LS, Hernández-Ontiveros DA, Iniguez-Stevens E, Brodine S, Garfein RS, Santibañez M, Fraga MA. Prevalence and correlates of diabetes and metabolic syndrome in a rural indigenous community in Baja California, Mexico. BMC Public Health. 2018;18(1):1–11.CrossRef Pacheco LS, Hernández-Ontiveros DA, Iniguez-Stevens E, Brodine S, Garfein RS, Santibañez M, Fraga MA. Prevalence and correlates of diabetes and metabolic syndrome in a rural indigenous community in Baja California, Mexico. BMC Public Health. 2018;18(1):1–11.CrossRef
9.
go back to reference Faridi Z, Grunbaum JA, Gray BS, Franks A, Simoes EC. Community-based participatory research: necessary next steps. Prev Chronic Dis. 2007;4(3):1–5. Faridi Z, Grunbaum JA, Gray BS, Franks A, Simoes EC. Community-based participatory research: necessary next steps. Prev Chronic Dis. 2007;4(3):1–5.
10.
go back to reference Windsor LC, Benoit E, Smith D, Pinto RM, Kugler KC, Newark community collaborative board (NCCB). Optimizing a community-engaged multi-level group intervention to reduce substance use: an application of the multiphase optimization strategy. Trials. 2018;19(1):1–15.CrossRef Windsor LC, Benoit E, Smith D, Pinto RM, Kugler KC, Newark community collaborative board (NCCB). Optimizing a community-engaged multi-level group intervention to reduce substance use: an application of the multiphase optimization strategy. Trials. 2018;19(1):1–15.CrossRef
11.
go back to reference Genuis SK, Willows N, Alexander first nation, Jardine CG. Partnering with indigenous student co-researchers: improving research processes and outcomes. International Journal of Circumpolar Health. 2015;74(27838):1–9. Genuis SK, Willows N, Alexander first nation, Jardine CG. Partnering with indigenous student co-researchers: improving research processes and outcomes. International Journal of Circumpolar Health. 2015;74(27838):1–9.
12.
go back to reference Denzin NK, Lincoln YS (eds.): Handbook of qualitative research, third edn. Thousand Oaks, CA: Sage Publications; 2005. Denzin NK, Lincoln YS (eds.): Handbook of qualitative research, third edn. Thousand Oaks, CA: Sage Publications; 2005.
13.
go back to reference Brunger F, Wall D. “what do they really mean by partnerships?” questioning the unquestionable good in ethics guidelines promoting community engagement in indigenous health research. Qual Health Res. 2016;26(13):1862–77.PubMedCrossRef Brunger F, Wall D. “what do they really mean by partnerships?” questioning the unquestionable good in ethics guidelines promoting community engagement in indigenous health research. Qual Health Res. 2016;26(13):1862–77.PubMedCrossRef
14.
go back to reference Kovach M: Emerging from the margins: indigenous methodologies. In: Research as resistance: Revisiting critical, Indigenous, and anti-oppressive approaches. Second edn. Edited by Strega S, Brown L. Thousand Oaks, CA: Sage Publications; 2015. Kovach M: Emerging from the margins: indigenous methodologies. In: Research as resistance: Revisiting critical, Indigenous, and anti-oppressive approaches. Second edn. Edited by Strega S, Brown L. Thousand Oaks, CA: Sage Publications; 2015.
15.
go back to reference Thompson J, Davis J, Mazerolle L. A systematic method for search term selection in systematic reviews. Res Synth Methods. 2014;5(2):87–97.PubMedCrossRef Thompson J, Davis J, Mazerolle L. A systematic method for search term selection in systematic reviews. Res Synth Methods. 2014;5(2):87–97.PubMedCrossRef
16.
go back to reference Metro North Hospital and Health Service: Procedure Metro North HHS-wide - Research: Partnership and collaboration. In. Brisbane, QLD: Queensland Government; 2017. Metro North Hospital and Health Service: Procedure Metro North HHS-wide - Research: Partnership and collaboration. In. Brisbane, QLD: Queensland Government; 2017.
17.
go back to reference Couzos S, Nicholson AK, Hunt JM, Davey ME, May JK, Bennet PT, Westphal DW, Thomas DP. Talking about the smokes: a large-scale, community-based participatory research project. Med J Aust. 2015;202(10):S13–9.PubMed Couzos S, Nicholson AK, Hunt JM, Davey ME, May JK, Bennet PT, Westphal DW, Thomas DP. Talking about the smokes: a large-scale, community-based participatory research project. Med J Aust. 2015;202(10):S13–9.PubMed
18.
go back to reference Couzos S, Lea T, Murray R, Culbong M. ‘We are not just participants - we are in charge’: the NACCHO ear trial and the process for aboriginal community-controlled health research. Ethn Health. 2015;10(2):91–111.CrossRef Couzos S, Lea T, Murray R, Culbong M. ‘We are not just participants - we are in charge’: the NACCHO ear trial and the process for aboriginal community-controlled health research. Ethn Health. 2015;10(2):91–111.CrossRef
19.
20.
go back to reference Bath J, Wakerman J. Impact of community participation in primary health care: what is the evidence? Australian Journal of Primary Health. 2015;21(1):2–8.PubMedCrossRef Bath J, Wakerman J. Impact of community participation in primary health care: what is the evidence? Australian Journal of Primary Health. 2015;21(1):2–8.PubMedCrossRef
21.
go back to reference Denzin NK, Giardina MD: Introduction: Ethical futures in qualitative research. In: Ethical futures in qualitative research: Decolonizing the politics of knowledge. edn. Edited by Denzin NK, Lincoln YS. Walnut Creek, CA: Left Coast Press; 2007: 9–43. Denzin NK, Giardina MD: Introduction: Ethical futures in qualitative research. In: Ethical futures in qualitative research: Decolonizing the politics of knowledge. edn. Edited by Denzin NK, Lincoln YS. Walnut Creek, CA: Left Coast Press; 2007: 9–43.
22.
go back to reference NHMRC (National Health and Medical Research Council): Ethical conduct in research with Aboriginal and Torres Strait Islander peoples and communities. In. Canberra, ACT: NHMRC (National Health and Medical Research Council); 2018. NHMRC (National Health and Medical Research Council): Ethical conduct in research with Aboriginal and Torres Strait Islander peoples and communities. In. Canberra, ACT: NHMRC (National Health and Medical Research Council); 2018.
23.
go back to reference FNIGC (First Nations Information Governance Centre): Ownership, control, access and possession (OCAP™): The path to first nations information governance. In. Ottawa, ON: FNIGC (First Nations Information Governance Centre); 2014. FNIGC (First Nations Information Governance Centre): Ownership, control, access and possession (OCAP™): The path to first nations information governance. In. Ottawa, ON: FNIGC (First Nations Information Governance Centre); 2014.
24.
go back to reference CIHR (Canadian Institutes of Health Research), NSERC (Natural Sciences and Engineering Research Council of Canada), SSHRC (Social Sciences and Humanities Research Council of Canada): Tri-council policy statement: ethical conduct for research involving humans. In. Ottawa, ON: Secretariat on Responsible Conduct of Research; 2014. CIHR (Canadian Institutes of Health Research), NSERC (Natural Sciences and Engineering Research Council of Canada), SSHRC (Social Sciences and Humanities Research Council of Canada): Tri-council policy statement: ethical conduct for research involving humans. In. Ottawa, ON: Secretariat on Responsible Conduct of Research; 2014.
25.
go back to reference Morton Ninomiya ME, Pollock NJ. Reconciling community-based indigenous research and academic practices: knowing principles is not always enough. Soc Sci Med. 2017;172:28–36.PubMedCrossRef Morton Ninomiya ME, Pollock NJ. Reconciling community-based indigenous research and academic practices: knowing principles is not always enough. Soc Sci Med. 2017;172:28–36.PubMedCrossRef
26.
go back to reference Thomas DP, Briggs VL, Couzos S, Davey ME, Hunt JM, Panaretto KS, van der Sterren AE, Stevens M, Nicholson AK, Borland R. Research methods of talking about the smokes: an international tobacco control policy evaluation project study with aboriginal and Torres Strait islander Australians. Med J Aust. 2015;202(10):S5–S12.PubMed Thomas DP, Briggs VL, Couzos S, Davey ME, Hunt JM, Panaretto KS, van der Sterren AE, Stevens M, Nicholson AK, Borland R. Research methods of talking about the smokes: an international tobacco control policy evaluation project study with aboriginal and Torres Strait islander Australians. Med J Aust. 2015;202(10):S5–S12.PubMed
27.
go back to reference Thomas DP, Davey ME, Briggs VL, Borland R. Talking about the smokes: summary and key findings. Med J Aust. 2015;202(10):S3–4.PubMed Thomas DP, Davey ME, Briggs VL, Borland R. Talking about the smokes: summary and key findings. Med J Aust. 2015;202(10):S3–4.PubMed
28.
go back to reference Bach M, Jordan S, Hartung S, Santos-Hövener C, Wright MT. Participatory epidemiology: the contribution of participatory research to epidemiology. Emerging Themes in Epidemiology. 2017;14(2):1–15. Bach M, Jordan S, Hartung S, Santos-Hövener C, Wright MT. Participatory epidemiology: the contribution of participatory research to epidemiology. Emerging Themes in Epidemiology. 2017;14(2):1–15.
29.
go back to reference Glover M, Kira A, Johnston V, Walker N, Thomas D, Chang AB, Bullen C, Segan CJ, Brown N. A systematic review of barriers and facilitators to participation in randomized controlled trials by indigenous people from New Zealand, Australia, Canada and the United States. Glob Health Promot. 2015;22(1):21–31.PubMedCrossRef Glover M, Kira A, Johnston V, Walker N, Thomas D, Chang AB, Bullen C, Segan CJ, Brown N. A systematic review of barriers and facilitators to participation in randomized controlled trials by indigenous people from New Zealand, Australia, Canada and the United States. Glob Health Promot. 2015;22(1):21–31.PubMedCrossRef
30.
go back to reference Baum FE. Power and glory: applying participatory action research in public health. Gac Sanit. 2016;30(6):405–7.PubMedCrossRef Baum FE. Power and glory: applying participatory action research in public health. Gac Sanit. 2016;30(6):405–7.PubMedCrossRef
31.
go back to reference Dankwa-Mullan I, Rhee KB, Williams K, Sanchez I, Sy FS, Stinson NJ, Ruffin J. The science of eliminating health disparities: Summary and analysis of the NIH summit recommendations. American Journal of Public Health. 2010;100(Supp. 1):S12–8.PubMedPubMedCentralCrossRef Dankwa-Mullan I, Rhee KB, Williams K, Sanchez I, Sy FS, Stinson NJ, Ruffin J. The science of eliminating health disparities: Summary and analysis of the NIH summit recommendations. American Journal of Public Health. 2010;100(Supp. 1):S12–8.PubMedPubMedCentralCrossRef
32.
go back to reference Parker WM, Becker-Benton A. Experiences in conducting participatory communication research for HIV prevention globally: translating critical dialog into action through action media. Front Public Health. 2016;4(28):1–10. Parker WM, Becker-Benton A. Experiences in conducting participatory communication research for HIV prevention globally: translating critical dialog into action through action media. Front Public Health. 2016;4(28):1–10.
33.
go back to reference Leung MW, Yen IH, Minkler M. Community based participatory research: a promising approach for increasing epidemiology's relevance in the 21st century. Int J Epidemiol. 2004;33(3):499–508.PubMedCrossRef Leung MW, Yen IH, Minkler M. Community based participatory research: a promising approach for increasing epidemiology's relevance in the 21st century. Int J Epidemiol. 2004;33(3):499–508.PubMedCrossRef
34.
go back to reference Snijder M, Shakeshaft A, Wagemakers A, Stephens A, Calabria B. A systematic review of studies evaluating Australian indigenous community development projects: the extent of community participation, their methodological quality and their outcomes. BMC Public Health. 2015;15(1154):1–16. Snijder M, Shakeshaft A, Wagemakers A, Stephens A, Calabria B. A systematic review of studies evaluating Australian indigenous community development projects: the extent of community participation, their methodological quality and their outcomes. BMC Public Health. 2015;15(1154):1–16.
35.
go back to reference Haijes HA, van Thiel GJMW. Participatory methods in pediatric participatory research: a systematic review. Pediatr Res. 2016;79(5):676–83.PubMedCrossRef Haijes HA, van Thiel GJMW. Participatory methods in pediatric participatory research: a systematic review. Pediatr Res. 2016;79(5):676–83.PubMedCrossRef
36.
go back to reference Moher D, Liberati A, Tetzlaff J, Altman DG, PRISMA group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097.PubMedPubMedCentralCrossRef Moher D, Liberati A, Tetzlaff J, Altman DG, PRISMA group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097.PubMedPubMedCentralCrossRef
37.
go back to reference Zuell C, Weber RP, Mohler P (eds.): Computer-assisted text analysis for the social sciences. Mannheim, Germany: Center for Surveys, Methods and Analysis (ZUMA); 1989. Zuell C, Weber RP, Mohler P (eds.): Computer-assisted text analysis for the social sciences. Mannheim, Germany: Center for Surveys, Methods and Analysis (ZUMA); 1989.
38.
go back to reference Young L, Denize S. Competing interests: the challenge to collaboration in the public sector. Int J Sociol Soc Policy. 2008;28(1/2):46–58.CrossRef Young L, Denize S. Competing interests: the challenge to collaboration in the public sector. Int J Sociol Soc Policy. 2008;28(1/2):46–58.CrossRef
39.
go back to reference Hewett DG, Watson BM, Gallois C, Ward M, Leggett BA. Intergroup communication between hospital doctors. Soc Sci Med. 2009;69(12):1732–40.PubMedCrossRef Hewett DG, Watson BM, Gallois C, Ward M, Leggett BA. Intergroup communication between hospital doctors. Soc Sci Med. 2009;69(12):1732–40.PubMedCrossRef
40.
go back to reference Hepworth N, Paxton SJ. Pathways to help-seeking in bulimia nervosa and binge eating problems: a concept mapping approach. Int J Eat Disord. 2007;40(6):493–504.PubMedCrossRef Hepworth N, Paxton SJ. Pathways to help-seeking in bulimia nervosa and binge eating problems: a concept mapping approach. Int J Eat Disord. 2007;40(6):493–504.PubMedCrossRef
41.
go back to reference Leximancer: Leximancer manual. In. Brisbane, QLD: Leximancer Pty Ltd; 2011. Leximancer: Leximancer manual. In. Brisbane, QLD: Leximancer Pty Ltd; 2011.
42.
go back to reference Dadich A, Doloswala N. What can organisational theory offer knowledge translation in healthcare? A thematic and lexical analysis. BMC Health Serv Res. 2018;18(351):1–20. Dadich A, Doloswala N. What can organisational theory offer knowledge translation in healthcare? A thematic and lexical analysis. BMC Health Serv Res. 2018;18(351):1–20.
43.
go back to reference Dadich A, Wyer M: Patient involvement in healthcare-associated infections research: A lexical review. Infect Control Hosp Epidemiol 2018, Epub-ahead-of-print:1–8. Dadich A, Wyer M: Patient involvement in healthcare-associated infections research: A lexical review. Infect Control Hosp Epidemiol 2018, Epub-ahead-of-print:1–8.
44.
go back to reference Gapp R, Stewart H, Harwood I, Woods P: Discovering the value in using Leximancer for complex qualitative data analysis. In: British Academy of Management Conference Liverpool; 2013: 1–6. Gapp R, Stewart H, Harwood I, Woods P: Discovering the value in using Leximancer for complex qualitative data analysis. In: British Academy of Management Conference Liverpool; 2013: 1–6.
45.
go back to reference Hyndman B, Pill S. What’s in a concept? A Leximancer text mining analysis of physical literacy across the international literature. Eur Phys Educ Rev. 2018;24(3):292–313.CrossRef Hyndman B, Pill S. What’s in a concept? A Leximancer text mining analysis of physical literacy across the international literature. Eur Phys Educ Rev. 2018;24(3):292–313.CrossRef
46.
go back to reference Muhlack E, Carter D, Braunack-Mayer A, Morfidis N, Eliott J. Constructions of alcohol consumption by non-problematised middle-aged drinkers: a qualitative systematic review. BMC Public Health. 2018;18(1):1–10.CrossRef Muhlack E, Carter D, Braunack-Mayer A, Morfidis N, Eliott J. Constructions of alcohol consumption by non-problematised middle-aged drinkers: a qualitative systematic review. BMC Public Health. 2018;18(1):1–10.CrossRef
47.
go back to reference Mackenzie K, Such E, Norman P, Goyder E. The development, implementation and evaluation of interventions to reduce workplace sitting: a qualitative systematic review and evidence-based operational framework. BMC Public Health. 2018;18(1):1–18.CrossRef Mackenzie K, Such E, Norman P, Goyder E. The development, implementation and evaluation of interventions to reduce workplace sitting: a qualitative systematic review and evidence-based operational framework. BMC Public Health. 2018;18(1):1–18.CrossRef
48.
go back to reference Brunton G, Thomas J, O’Mara-Eves A, Jamal F, Oliver S, Kavanagh J. Narratives of community engagement: a systematic review-derived conceptual framework for public health interventions. BMC Public Health. 2017;17(1):1–15.CrossRef Brunton G, Thomas J, O’Mara-Eves A, Jamal F, Oliver S, Kavanagh J. Narratives of community engagement: a systematic review-derived conceptual framework for public health interventions. BMC Public Health. 2017;17(1):1–15.CrossRef
49.
go back to reference Sotiriadou P, Brouwers J, Le T-A. Choosing a qualitative data analysis tool. Annals of Leisure Research. 2012;17(2):218–34.CrossRef Sotiriadou P, Brouwers J, Le T-A. Choosing a qualitative data analysis tool. Annals of Leisure Research. 2012;17(2):218–34.CrossRef
50.
go back to reference Smith AE, Humphreys MS. Evaluation of unsupervised semantic mapping of natural language with Leximancer concept mapping. Behav Res Methods. 2006;38(2):262–79.PubMedCrossRef Smith AE, Humphreys MS. Evaluation of unsupervised semantic mapping of natural language with Leximancer concept mapping. Behav Res Methods. 2006;38(2):262–79.PubMedCrossRef
51.
go back to reference Gurd B: Qualitative data analysis – could I use NVivo or Leximancer? In: ANZAM (Australian and New Zealand Academy of Management) Conference. Perth, WA; 2012. Gurd B: Qualitative data analysis – could I use NVivo or Leximancer? In: ANZAM (Australian and New Zealand Academy of Management) Conference. Perth, WA; 2012.
53.
go back to reference Ribière V, Walter C. 10 years of KM theory and practices. Knowledge Management Research & Practice. 2013;11:4–9.CrossRef Ribière V, Walter C. 10 years of KM theory and practices. Knowledge Management Research & Practice. 2013;11:4–9.CrossRef
54.
go back to reference Young L, Wilkinson I, Smith A. A scientometric analysis of publications in the journal of business-to-business marketing 1993-2014. J Bus Bus Mark. 2015;22(1–2):111–23.CrossRef Young L, Wilkinson I, Smith A. A scientometric analysis of publications in the journal of business-to-business marketing 1993-2014. J Bus Bus Mark. 2015;22(1–2):111–23.CrossRef
55.
go back to reference Bell E, Campbell S, Goldberg LR. Nursing identity and patient-centredness in scholarly health services research: a computational text analysis of PubMed abstracts 1986-2013. BMC Health Serv Res. 2015;15(3):1–16. Bell E, Campbell S, Goldberg LR. Nursing identity and patient-centredness in scholarly health services research: a computational text analysis of PubMed abstracts 1986-2013. BMC Health Serv Res. 2015;15(3):1–16.
56.
go back to reference Angus-Leppan T, Benn S, Young L. A sensemaking approach to trade-offs and synergies between human and ecological elements of corporate sustainability. Bus Strateg Environ. 2010;19(4):230–44. Angus-Leppan T, Benn S, Young L. A sensemaking approach to trade-offs and synergies between human and ecological elements of corporate sustainability. Bus Strateg Environ. 2010;19(4):230–44.
57.
go back to reference Stewart H, Gapp R. Achieving effective sustainable management: a small-medium enterprise case study. Corp Soc Responsib Environ Manag. 2014;21(1):52–64.CrossRef Stewart H, Gapp R. Achieving effective sustainable management: a small-medium enterprise case study. Corp Soc Responsib Environ Manag. 2014;21(1):52–64.CrossRef
58.
go back to reference Leximancer: Leximancer user guide: Release 4.5. In. Brisbane, QLD: Leximancer Pty Ltd; 2018. Leximancer: Leximancer user guide: Release 4.5. In. Brisbane, QLD: Leximancer Pty Ltd; 2018.
61.
go back to reference Kyoon-Achan G, Lavoie J, Avery Kinew K, Phillips-Beck W, Ibrahim N, Sinclair S, Katz A. Innovating for transformation in first nations health using community-based participatory research. Qual Health Res. 2018;28(7):1036–49.PubMedCrossRef Kyoon-Achan G, Lavoie J, Avery Kinew K, Phillips-Beck W, Ibrahim N, Sinclair S, Katz A. Innovating for transformation in first nations health using community-based participatory research. Qual Health Res. 2018;28(7):1036–49.PubMedCrossRef
62.
go back to reference McHugh T-LF, Kowalski KC. ‘A new view of body image’: a school-based participatory action research project with young aboriginal women. Action Res. 2004;9(3):220–41.CrossRef McHugh T-LF, Kowalski KC. ‘A new view of body image’: a school-based participatory action research project with young aboriginal women. Action Res. 2004;9(3):220–41.CrossRef
63.
go back to reference Mullany B, Barlow A, Neault N, Billy T, Jones T, Tortice I, Lorenzo S, Powers J, Lake K, Reid R, et al. The family spirit trial for American Indian teen mothers and their children: CBPR rationale, design, methods and baseline characteristics. Prev Sci. 2012;13(5):504–18.PubMedCrossRef Mullany B, Barlow A, Neault N, Billy T, Jones T, Tortice I, Lorenzo S, Powers J, Lake K, Reid R, et al. The family spirit trial for American Indian teen mothers and their children: CBPR rationale, design, methods and baseline characteristics. Prev Sci. 2012;13(5):504–18.PubMedCrossRef
64.
go back to reference Mooney-Somers J, Olsen A, Erick W, Scott R, Akee A, Maher L. Young indigenous Australians’ sexually transmitted infection prevention practices: a community-based participatory research project. J Community Appl Soc Psychol. 2012;22(6):519–32.CrossRef Mooney-Somers J, Olsen A, Erick W, Scott R, Akee A, Maher L. Young indigenous Australians’ sexually transmitted infection prevention practices: a community-based participatory research project. J Community Appl Soc Psychol. 2012;22(6):519–32.CrossRef
65.
go back to reference Datta R, Khyang NU, Prue Khyang HK, Prue Kheyang HA, Ching Khyang M, Chapola J. Participatory action research and researcher’s responsibilities: an experience with an indigenous community. Int J Soc Res Methodol. 2015;18(6):581–99.CrossRef Datta R, Khyang NU, Prue Khyang HK, Prue Kheyang HA, Ching Khyang M, Chapola J. Participatory action research and researcher’s responsibilities: an experience with an indigenous community. Int J Soc Res Methodol. 2015;18(6):581–99.CrossRef
66.
go back to reference SantoDomingo AF, Castro-Diaz L, Gonzalez-Uribe C. Ecosystem research experience with two indigenous communities of Colombia: the ecohealth calendar as a participatory and innovative methodological tool. EcoHealth. 2016;13(4):687–97.PubMedCrossRef SantoDomingo AF, Castro-Diaz L, Gonzalez-Uribe C. Ecosystem research experience with two indigenous communities of Colombia: the ecohealth calendar as a participatory and innovative methodological tool. EcoHealth. 2016;13(4):687–97.PubMedCrossRef
67.
go back to reference Roberts EB, Jette SL. Implementing participatory research with an urban American Indian community: lessons learned. Health Educ J. 2016;75(2):158–69.CrossRef Roberts EB, Jette SL. Implementing participatory research with an urban American Indian community: lessons learned. Health Educ J. 2016;75(2):158–69.CrossRef
68.
go back to reference Morris M. Inuit involvement in developing a participatory action research project on youth, violence prevention, and health promotion. Etudes Inuit Inuit Studies. 2016;40(1):105–25.CrossRef Morris M. Inuit involvement in developing a participatory action research project on youth, violence prevention, and health promotion. Etudes Inuit Inuit Studies. 2016;40(1):105–25.CrossRef
69.
go back to reference Mishra SI, Luce PH, Baquet CR. Increasing pap smear utilization among Samoan women: Results from a community based participatory randomized trial. J Health Care Poor Underserved. 2009;20(Supp. 2):85–101.PubMedPubMedCentralCrossRef Mishra SI, Luce PH, Baquet CR. Increasing pap smear utilization among Samoan women: Results from a community based participatory randomized trial. J Health Care Poor Underserved. 2009;20(Supp. 2):85–101.PubMedPubMedCentralCrossRef
70.
go back to reference Charania NA, Tsuji LJ. A community-based participatory approach and engagement process creates culturally appropriate and community informed pandemic plans after the 2009 H1N1 influenza pandemic: remote and isolated first nations communities of sub-arctic Ontario, Canada. BMC Public Health. 2012;12:268.PubMedPubMedCentralCrossRef Charania NA, Tsuji LJ. A community-based participatory approach and engagement process creates culturally appropriate and community informed pandemic plans after the 2009 H1N1 influenza pandemic: remote and isolated first nations communities of sub-arctic Ontario, Canada. BMC Public Health. 2012;12:268.PubMedPubMedCentralCrossRef
71.
go back to reference Mohindra K, Narayana D, Harikrishnadas C, Anushreedha S, Haddad S. Paniya voices: a participatory poverty and health assessment among a marginalized south Indian tribal population. BMC Public Health. 2010;10(149):1–9. Mohindra K, Narayana D, Harikrishnadas C, Anushreedha S, Haddad S. Paniya voices: a participatory poverty and health assessment among a marginalized south Indian tribal population. BMC Public Health. 2010;10(149):1–9.
72.
go back to reference Munro A, Shakeshaft A, Clifford A. The development of a healing model of care for an indigenous drug and alcohol residential rehabilitation service: a community-based participatory research approach. Health & justice. 2017;5(1):1–12.CrossRef Munro A, Shakeshaft A, Clifford A. The development of a healing model of care for an indigenous drug and alcohol residential rehabilitation service: a community-based participatory research approach. Health & justice. 2017;5(1):1–12.CrossRef
73.
go back to reference Josif C, Barclay L, Bar-Zeev S, Kildea S, Britten M. How participatory action research supported improvements to the postnatal discharge summary system used for remote dwelling aboriginal mothers and infants in the top end of Australia. Action Res. 2012;10(4):387–405.CrossRef Josif C, Barclay L, Bar-Zeev S, Kildea S, Britten M. How participatory action research supported improvements to the postnatal discharge summary system used for remote dwelling aboriginal mothers and infants in the top end of Australia. Action Res. 2012;10(4):387–405.CrossRef
75.
go back to reference Department of the Prime Minister and Cabinet: Closing the gap prime minister’s report 2018. In. Canberra, ACT: Commonwealth of Australia; 2018. Department of the Prime Minister and Cabinet: Closing the gap prime minister’s report 2018. In. Canberra, ACT: Commonwealth of Australia; 2018.
76.
go back to reference Dadich A. Citizen social science: a methodology to facilitate and examine workplace learning in continuing interprofessional education. Journal of Interprofessional Care. 2014;28(3):194–9.PubMedCrossRef Dadich A. Citizen social science: a methodology to facilitate and examine workplace learning in continuing interprofessional education. Journal of Interprofessional Care. 2014;28(3):194–9.PubMedCrossRef
77.
go back to reference Dadich A, Collier A, Hodgins M, Crawford G. Using POSH VRE to examine positive deviance to new public management in healthcare. Qual Health Res. 2018;28(8):1203–16.PubMedCrossRef Dadich A, Collier A, Hodgins M, Crawford G. Using POSH VRE to examine positive deviance to new public management in healthcare. Qual Health Res. 2018;28(8):1203–16.PubMedCrossRef
78.
go back to reference Wyer M, Jackson D, Iedema R, Hor SY, Gilbert GL, Jorm C, Hooker C, O'Sullivan MV, Carroll K. Involving patients in understanding hospital infection control using visual methods. J Clin Nurs. 2015;24(11–12):1718–2.PubMedCrossRef Wyer M, Jackson D, Iedema R, Hor SY, Gilbert GL, Jorm C, Hooker C, O'Sullivan MV, Carroll K. Involving patients in understanding hospital infection control using visual methods. J Clin Nurs. 2015;24(11–12):1718–2.PubMedCrossRef
79.
go back to reference Iedema R, Carroll K, Collier A, Hor S, Mesman J, Wyer M. Video reflexive ethnography in health research and healthcare improvement. Milton Park: Taylor & Francis; 2018.CrossRef Iedema R, Carroll K, Collier A, Hor S, Mesman J, Wyer M. Video reflexive ethnography in health research and healthcare improvement. Milton Park: Taylor & Francis; 2018.CrossRef
80.
go back to reference Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety. 2016;25(8):626–32.CrossRef Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety. 2016;25(8):626–32.CrossRef
81.
go back to reference Allen J, Mohatt GV, Rasmus SM, Hazel KL, Thomas L, Lindley S. The tools to understand: community as co-researcher on culture-specific protective factors for Alaska natives. Journal of Prevention & Intervention in the Community. 2006;32(1–2):41–59.CrossRef Allen J, Mohatt GV, Rasmus SM, Hazel KL, Thomas L, Lindley S. The tools to understand: community as co-researcher on culture-specific protective factors for Alaska natives. Journal of Prevention & Intervention in the Community. 2006;32(1–2):41–59.CrossRef
82.
go back to reference Whitewater S, Reinschmidt KM, Kahn C, Attakai A, Teufel-Shone NI. Flexible roles for American Indian elders in community-based participatory research. Prev Chronic Dis. 2016;13:E72.PubMedPubMedCentralCrossRef Whitewater S, Reinschmidt KM, Kahn C, Attakai A, Teufel-Shone NI. Flexible roles for American Indian elders in community-based participatory research. Prev Chronic Dis. 2016;13:E72.PubMedPubMedCentralCrossRef
Metadata
Title
What does it mean to conduct participatory research with Indigenous peoples? A lexical review
Authors
Ann Dadich
Loretta Moore
Valsamma Eapen
Publication date
01-12-2019
Publisher
BioMed Central
Published in
BMC Public Health / Issue 1/2019
Electronic ISSN: 1471-2458
DOI
https://doi.org/10.1186/s12889-019-7494-6

Other articles of this Issue 1/2019

BMC Public Health 1/2019 Go to the issue