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Published in: BMC Psychiatry 1/2021

Open Access 01-12-2021 | Research article

Loneliness in early psychosis: a qualitative study exploring the views of mental health practitioners in early intervention services

Authors: Theodora Stefanidou, Jingyi Wang, Nicola Morant, Brynmor Lloyd-Evans, Sonia Johnson

Published in: BMC Psychiatry | Issue 1/2021

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Abstract

Background

Loneliness is an important public health problem with established adverse effects on physical and mental health. Although people with psychosis often experience high levels of loneliness, relatively little is known about the relationship between loneliness and early psychosis. Potential interventions to address loneliness might be easier to implement early in the illness when social networks and social skills may be more intact than at a later stage. We investigated the views of mental health practitioners about the context and causes of loneliness in people with early psychosis, and about potential interventions.

Methods

Semi-structured face-to-face interviews were conducted with mental health practitioners (n = 20). Participants were purposively recruited from four early intervention services for first-episode psychosis in the UK. Interviews were transcribed verbatim and thematic analysis was conducted.

Results

Participants believed that the majority of service users with early psychosis experience feelings of loneliness. They often saw socially isolated and disconnected clients and believed them to be lonely, but rarely discussed loneliness explicitly in clinical interactions. A combination of symptoms, stigma and negative sense of self were believed to underpin loneliness. Participants could not identify any specific current interventions delivered by their services for tackling loneliness, but thought some routinely provided interventions, including social groups and psychological treatments, could be helpful. They favoured making a wider range of loneliness interventions available and believed that community agencies beyond mental health services should be involved to make these effective and feasible to deliver. They suggested social participation interventions without an explicit mental health focus as potentially promising and valued a co-produced approach to intervention development.

Conclusions

This study suggests that loneliness is not routinely discussed in early intervention services, and a targeted strategy for tackling it is lacking. Co-produced, individualised community approaches, and interventions that target symptoms, stigma and negative self-schemas might be beneficial in alleviating loneliness for people with early psychosis. Empirical research is needed to develop and test such interventions.
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Literature
1.
go back to reference Peplau LA, Perlman D. Loneliness: a sourcebook of current theory, research, and therapy. USA: Wiley Interscience; 1982. p. 1–18. Peplau LA, Perlman D. Loneliness: a sourcebook of current theory, research, and therapy. USA: Wiley Interscience; 1982. p. 1–18.
2.
go back to reference Cacioppo JT, Cacioppo S. Social relationships and health: the toxic effects of perceived social isolation. Soc Personal Psychol Compass. 2014;8(2):58–72.PubMedPubMedCentralCrossRef Cacioppo JT, Cacioppo S. Social relationships and health: the toxic effects of perceived social isolation. Soc Personal Psychol Compass. 2014;8(2):58–72.PubMedPubMedCentralCrossRef
3.
go back to reference Wang J, Lloyd-Evans B, Giacco D, Forsyth B, Nebo C, Mann F, et al. Social Isolation in Mental Health: A conceptual and methodological review. Scoping Review 14. 2016. Wang J, Lloyd-Evans B, Giacco D, Forsyth B, Nebo C, Mann F, et al. Social Isolation in Mental Health: A conceptual and methodological review. Scoping Review 14. 2016.
4.
go back to reference Weiss RS. Loneliness: the experience of emotional and social isolation. Cambridge: The MIT Press; 1973. Weiss RS. Loneliness: the experience of emotional and social isolation. Cambridge: The MIT Press; 1973.
5.
go back to reference Russell D, Cutrona CE, Rose J, Yurko K. Social and emotional loneliness: an examination of Weiss's typology of loneliness. J Pers Soc Psychol. 1984;46(6):1313–21.PubMedCrossRef Russell D, Cutrona CE, Rose J, Yurko K. Social and emotional loneliness: an examination of Weiss's typology of loneliness. J Pers Soc Psychol. 1984;46(6):1313–21.PubMedCrossRef
6.
7.
go back to reference Luo Y, Hawkley LC, Waite LJ, Cacioppo JT. Loneliness, health, and mortality in old age: a national longitudinal study. Soc Sci Med. 2012;74(6):907–14.PubMedPubMedCentralCrossRef Luo Y, Hawkley LC, Waite LJ, Cacioppo JT. Loneliness, health, and mortality in old age: a national longitudinal study. Soc Sci Med. 2012;74(6):907–14.PubMedPubMedCentralCrossRef
9.
go back to reference Holt-Lunstad J, Smith TB, Baker M, Harris T, Stephenson D. Loneliness and social isolation as risk factors for mortality: a meta-analytic review. Perspect Psychol Sci. 2015;10(2):227–37.PubMedCrossRef Holt-Lunstad J, Smith TB, Baker M, Harris T, Stephenson D. Loneliness and social isolation as risk factors for mortality: a meta-analytic review. Perspect Psychol Sci. 2015;10(2):227–37.PubMedCrossRef
10.
go back to reference Hawkley LC, Thisted RA, Masi CM, Cacioppo JT. Loneliness predicts increased blood pressure: 5-year cross-lagged analyses in middle-aged and older adults. Psychol Aging. 2010;25(1):132–41.PubMedPubMedCentralCrossRef Hawkley LC, Thisted RA, Masi CM, Cacioppo JT. Loneliness predicts increased blood pressure: 5-year cross-lagged analyses in middle-aged and older adults. Psychol Aging. 2010;25(1):132–41.PubMedPubMedCentralCrossRef
11.
go back to reference Smagula SF, Stone KL, Fabio A, Cauley JA. Risk factors for sleep disturbances in older adults: evidence from prospective studies. Sleep Med Rev. 2016;25:21–30.PubMedCrossRef Smagula SF, Stone KL, Fabio A, Cauley JA. Risk factors for sleep disturbances in older adults: evidence from prospective studies. Sleep Med Rev. 2016;25:21–30.PubMedCrossRef
12.
13.
go back to reference Flensborg-Madsen T, Tolstrup J, Sørensen HJ, Mortensen EL. Social and psychological predictors of onset of anxiety disorders: results from a large prospective cohort study. Soc Psychiatry Psychiatr Epidemiol. 2012;47(5):711–21.PubMedCrossRef Flensborg-Madsen T, Tolstrup J, Sørensen HJ, Mortensen EL. Social and psychological predictors of onset of anxiety disorders: results from a large prospective cohort study. Soc Psychiatry Psychiatr Epidemiol. 2012;47(5):711–21.PubMedCrossRef
14.
go back to reference Cacioppo JT, Hughes ME, Waite LJ, Hawkley LC, Thisted RA. Loneliness as a specific risk factor for depressive symptoms: cross-sectional and longitudinal analyses. Psychol Aging. 2006;21(1):140–51.PubMedCrossRef Cacioppo JT, Hughes ME, Waite LJ, Hawkley LC, Thisted RA. Loneliness as a specific risk factor for depressive symptoms: cross-sectional and longitudinal analyses. Psychol Aging. 2006;21(1):140–51.PubMedCrossRef
15.
go back to reference van Beljouw IMJ, Verhaak PFM, Cuijpers P, van Marwijk HWJ, Penninx BWJH. The course of untreated anxiety and depression, and determinants of poor one-year outcome: a one-year cohort study. BMC Psychiatry. 2010;10(1):86.PubMedPubMedCentralCrossRef van Beljouw IMJ, Verhaak PFM, Cuijpers P, van Marwijk HWJ, Penninx BWJH. The course of untreated anxiety and depression, and determinants of poor one-year outcome: a one-year cohort study. BMC Psychiatry. 2010;10(1):86.PubMedPubMedCentralCrossRef
16.
go back to reference Tilvis RS, Kähönen-Väre MH, Jolkkonen J, Valvanne J, Pitkala KH, Strandberg TE. Predictors of cognitive decline and mortality of aged people over a 10-year period. J Gerontol. 2004;59(3):M268–M74.CrossRef Tilvis RS, Kähönen-Väre MH, Jolkkonen J, Valvanne J, Pitkala KH, Strandberg TE. Predictors of cognitive decline and mortality of aged people over a 10-year period. J Gerontol. 2004;59(3):M268–M74.CrossRef
17.
go back to reference Wilson RS, Krueger KR, Arnold SE, Schneider JA, Kelly JF, Barnes LL, et al. Loneliness and risk of Alzheimer disease. Arch Gen Psychiatry. 2007;64(2):234–40.PubMedCrossRef Wilson RS, Krueger KR, Arnold SE, Schneider JA, Kelly JF, Barnes LL, et al. Loneliness and risk of Alzheimer disease. Arch Gen Psychiatry. 2007;64(2):234–40.PubMedCrossRef
18.
go back to reference Windle K, Francis J, Coomber C. Research briefing 3: preventing loneliness and social isolation: interventions and outcomes. London: Social Care Institute for Excellence; 2011. Windle K, Francis J, Coomber C. Research briefing 3: preventing loneliness and social isolation: interventions and outcomes. London: Social Care Institute for Excellence; 2011.
19.
go back to reference Goldberg RW, Rollins AL, Lehman AF. Social network correlates among people with psychiatric disabilities. Psychiatr Rehab J. 2003;26(4):393–402.CrossRef Goldberg RW, Rollins AL, Lehman AF. Social network correlates among people with psychiatric disabilities. Psychiatr Rehab J. 2003;26(4):393–402.CrossRef
20.
go back to reference Meltzer H, Bebbington P, Dennis MS, Jenkins R, McManus S, Brugha TS. Feelings of loneliness among adults with mental disorder. Soc Psychiatry Psychiatr Epidemiol. 2013;48(1):5–13.PubMedCrossRef Meltzer H, Bebbington P, Dennis MS, Jenkins R, McManus S, Brugha TS. Feelings of loneliness among adults with mental disorder. Soc Psychiatry Psychiatr Epidemiol. 2013;48(1):5–13.PubMedCrossRef
21.
go back to reference Stain HJ, Galletly CA, Clark S, Wilson J, Killen EA, Anthes L, et al. Understanding the social costs of psychosis: the experience of adults affected by psychosis identified within the second Australian national survey of psychosis. Aust New Zealand J Psychiatry. 2012;46(9):879–89.CrossRef Stain HJ, Galletly CA, Clark S, Wilson J, Killen EA, Anthes L, et al. Understanding the social costs of psychosis: the experience of adults affected by psychosis identified within the second Australian national survey of psychosis. Aust New Zealand J Psychiatry. 2012;46(9):879–89.CrossRef
22.
go back to reference Morgan VA, Waterreus A, Jablensky A, Mackinnon A, McGrath JJ, Carr V, et al. People living with psychotic illness in 2010: the second Australian national survey of psychosis. Aust New Zealand J Psychiatry. 2012;46(8):735–52.CrossRef Morgan VA, Waterreus A, Jablensky A, Mackinnon A, McGrath JJ, Carr V, et al. People living with psychotic illness in 2010: the second Australian national survey of psychosis. Aust New Zealand J Psychiatry. 2012;46(8):735–52.CrossRef
23.
go back to reference Michalska da Rocha B, Rhodes S, Vasilopoulou E, Hutton P. Loneliness in psychosis: a meta-analytical review. Schizophr Bull. 2018;44(1):114–25.PubMedCrossRef Michalska da Rocha B, Rhodes S, Vasilopoulou E, Hutton P. Loneliness in psychosis: a meta-analytical review. Schizophr Bull. 2018;44(1):114–25.PubMedCrossRef
24.
go back to reference Lim MH, Gleeson JFM, Alvarez-Jimenez M, Penn DL. Loneliness in psychosis: a systematic review. Soc Psychiatry Psychiatr Epidemiol. 2018;53(3):221–38.PubMedCrossRef Lim MH, Gleeson JFM, Alvarez-Jimenez M, Penn DL. Loneliness in psychosis: a systematic review. Soc Psychiatry Psychiatr Epidemiol. 2018;53(3):221–38.PubMedCrossRef
25.
go back to reference Sündermann O, Onwumere J, Kane F, Morgan C, Kuipers E. Social networks and support in first-episode psychosis: exploring the role of loneliness and anxiety. Soc Psychiatry Psychiatr Epidemiol. 2014;49(3):359–66.PubMedCrossRef Sündermann O, Onwumere J, Kane F, Morgan C, Kuipers E. Social networks and support in first-episode psychosis: exploring the role of loneliness and anxiety. Soc Psychiatry Psychiatr Epidemiol. 2014;49(3):359–66.PubMedCrossRef
26.
go back to reference Gayer-Anderson C, Morgan C. Social networks, support and early psychosis: a systematic review. Epidemiol Psychiatr Sci. 2013;22(2):131–46.PubMedCrossRef Gayer-Anderson C, Morgan C. Social networks, support and early psychosis: a systematic review. Epidemiol Psychiatr Sci. 2013;22(2):131–46.PubMedCrossRef
27.
go back to reference Wang J, Mann F, Lloyd-Evans B, Ma R, Johnson S. Associations between loneliness and perceived social support and outcomes of mental health problems: a systematic review. BMC Psychiatry. 2018;18(1):156.PubMedPubMedCentralCrossRef Wang J, Mann F, Lloyd-Evans B, Ma R, Johnson S. Associations between loneliness and perceived social support and outcomes of mental health problems: a systematic review. BMC Psychiatry. 2018;18(1):156.PubMedPubMedCentralCrossRef
28.
go back to reference Mann F, Bone JK, Lloyd-Evans B, Frerichs J, Pinfold V, Ma R, et al. A life less lonely: the state of the art in interventions to reduce loneliness in people with mental health problems. Soc Psychiatry Psychiatr Epidemiol. 2017;52(6):627–38.PubMedPubMedCentralCrossRef Mann F, Bone JK, Lloyd-Evans B, Frerichs J, Pinfold V, Ma R, et al. A life less lonely: the state of the art in interventions to reduce loneliness in people with mental health problems. Soc Psychiatry Psychiatr Epidemiol. 2017;52(6):627–38.PubMedPubMedCentralCrossRef
29.
go back to reference Ma R, Mann F, Wang J, Lloyd-Evans B, Terhune J, Al-Shihabi A, et al. The effectiveness of interventions for reducing subjective and objective social isolation among people with mental health problems: a systematic review. Soc Psychiatry Psychiatr Epidemiol. 2019. Ma R, Mann F, Wang J, Lloyd-Evans B, Terhune J, Al-Shihabi A, et al. The effectiveness of interventions for reducing subjective and objective social isolation among people with mental health problems: a systematic review. Soc Psychiatry Psychiatr Epidemiol. 2019.
30.
go back to reference Masi CM, Chen H-Y, Hawkley LC, Cacioppo JT. A meta-analysis of interventions to reduce loneliness. Personal Soc Psychol Rev. 2011;15(3):219–66.CrossRef Masi CM, Chen H-Y, Hawkley LC, Cacioppo JT. A meta-analysis of interventions to reduce loneliness. Personal Soc Psychol Rev. 2011;15(3):219–66.CrossRef
31.
go back to reference Fowler D, Hodgekins J, French P, Marshall M, Freemantle N, McCrone P, et al. Social recovery therapy in combination with early intervention services for enhancement of social recovery in patients with first-episode psychosis (SUPEREDEN3): a single-blind, randomised controlled trial. Lancet Psychiatry. 2018;5(1):41–50.PubMedPubMedCentralCrossRef Fowler D, Hodgekins J, French P, Marshall M, Freemantle N, McCrone P, et al. Social recovery therapy in combination with early intervention services for enhancement of social recovery in patients with first-episode psychosis (SUPEREDEN3): a single-blind, randomised controlled trial. Lancet Psychiatry. 2018;5(1):41–50.PubMedPubMedCentralCrossRef
32.
go back to reference Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.PubMedCrossRef Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.PubMedCrossRef
33.
go back to reference NICE. National Institute for health and care excellence. Guidance: Implementing the Early Intervention in Psychosis Access and Waiting Time Standard; 2016. NICE. National Institute for health and care excellence. Guidance: Implementing the Early Intervention in Psychosis Access and Waiting Time Standard; 2016.
34.
go back to reference Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment wih data saturatioon and variability. Field Methods. 2016;18(1):59–82.CrossRef Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment wih data saturatioon and variability. Field Methods. 2016;18(1):59–82.CrossRef
35.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef
36.
go back to reference Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exer Health. 2019;11(4):589–97.CrossRef Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exer Health. 2019;11(4):589–97.CrossRef
37.
go back to reference Lau S, Gruen GE. The social stigma of loneliness: effect of target Person's and Perceiver's sex. Personal Soc Psychol Bull. 1992;18(2):182–9.CrossRef Lau S, Gruen GE. The social stigma of loneliness: effect of target Person's and Perceiver's sex. Personal Soc Psychol Bull. 1992;18(2):182–9.CrossRef
38.
go back to reference Lau S, Kong C-K. The acceptance of lonely others: effects of loneliness and gender of the target person and loneliness of the perceiver. J Soc Psychol. 1999;139(2):229–41.PubMedCrossRef Lau S, Kong C-K. The acceptance of lonely others: effects of loneliness and gender of the target person and loneliness of the perceiver. J Soc Psychol. 1999;139(2):229–41.PubMedCrossRef
39.
go back to reference Gierveld JDJ, Tilburg TV. A six-item scale for overall, social and emotional loneliness. Res Ageing. 2006;28:582–98.CrossRef Gierveld JDJ, Tilburg TV. A six-item scale for overall, social and emotional loneliness. Res Ageing. 2006;28:582–98.CrossRef
40.
go back to reference Masi FD. Psychotic withdrawal and the overthrow of psychic reality. Int J Psychoanal. 2006;87(3):789–807.PubMedCrossRef Masi FD. Psychotic withdrawal and the overthrow of psychic reality. Int J Psychoanal. 2006;87(3):789–807.PubMedCrossRef
41.
go back to reference Giacco D, Palumbo C, Strappelli N, Catapano F, Priebe S. Social contacts and loneliness in people with psychotic and mood disorders. Compr Psychiatry. 2016;66:59–66.PubMedCrossRef Giacco D, Palumbo C, Strappelli N, Catapano F, Priebe S. Social contacts and loneliness in people with psychotic and mood disorders. Compr Psychiatry. 2016;66:59–66.PubMedCrossRef
42.
go back to reference Epley N, Akalis S, Waytz A, Cacioppo JT. Creating social connection through inferential reproduction: loneliness and perceived Agency in Gadgets, gods, and greyhounds. Psychol Sci. 2008;19(2):114–20.PubMedCrossRef Epley N, Akalis S, Waytz A, Cacioppo JT. Creating social connection through inferential reproduction: loneliness and perceived Agency in Gadgets, gods, and greyhounds. Psychol Sci. 2008;19(2):114–20.PubMedCrossRef
43.
go back to reference Perese EF, Wolf M. Combating loneliness among persons with severe mental illness: social network interventions' characteristics, effectiveness, and applicability. Issues Mental Health Nurs. 2005;26(6):591–609.CrossRef Perese EF, Wolf M. Combating loneliness among persons with severe mental illness: social network interventions' characteristics, effectiveness, and applicability. Issues Mental Health Nurs. 2005;26(6):591–609.CrossRef
44.
go back to reference Sheridan Rains L, Weich S, Maddock C, Smith S, Keown P, Crepaz-Keay D, et al. Understanding increasing rates of psychiatric hospital detentions in England: development and preliminary testing of an explanatory model. BJPsych Open. 2020;6(5):e88 e.PubMedPubMedCentralCrossRef Sheridan Rains L, Weich S, Maddock C, Smith S, Keown P, Crepaz-Keay D, et al. Understanding increasing rates of psychiatric hospital detentions in England: development and preliminary testing of an explanatory model. BJPsych Open. 2020;6(5):e88 e.PubMedPubMedCentralCrossRef
45.
go back to reference Pinfold V, Sweet D, Porter I, Quinn C, Byng R, Griffiths C, et al. Improving community health networks for people with severe mental illness: a case study investigation. Southampton (UK): NIHR Journals Library. (Health Services and Delivery Research, No. 3.5.); 2015. Pinfold V, Sweet D, Porter I, Quinn C, Byng R, Griffiths C, et al. Improving community health networks for people with severe mental illness: a case study investigation. Southampton (UK): NIHR Journals Library. (Health Services and Delivery Research, No. 3.5.); 2015.
46.
go back to reference Rao D, Elshafei A, Nguyen M, Hatzenbuehler ML, Frey S, Go VF. A systematic review of multi-level stigma interventions: state of the science and future directions. BMC Med. 2019;17(1):41.PubMedPubMedCentralCrossRef Rao D, Elshafei A, Nguyen M, Hatzenbuehler ML, Frey S, Go VF. A systematic review of multi-level stigma interventions: state of the science and future directions. BMC Med. 2019;17(1):41.PubMedPubMedCentralCrossRef
47.
go back to reference Haslam C, Cruwys T, Chang MXL, Bentley SV, Haslam SA, Dingle GA, et al. GROUPS 4 HEALTH reduces loneliness and social anxiety in adults with psychological distress: findings from a randomized controlled trial. J Consult Clin Psychol. 2019;87(9):787–801.PubMedCrossRef Haslam C, Cruwys T, Chang MXL, Bentley SV, Haslam SA, Dingle GA, et al. GROUPS 4 HEALTH reduces loneliness and social anxiety in adults with psychological distress: findings from a randomized controlled trial. J Consult Clin Psychol. 2019;87(9):787–801.PubMedCrossRef
48.
go back to reference Webber M, Morris D, Howarth S, Fendt-Newlin M, Treacy S, McCrone P. Effect of the connecting people intervention on social capital: a pilot study. Res Soc Work Pract. 2018;29(5):483–94.CrossRef Webber M, Morris D, Howarth S, Fendt-Newlin M, Treacy S, McCrone P. Effect of the connecting people intervention on social capital: a pilot study. Res Soc Work Pract. 2018;29(5):483–94.CrossRef
Metadata
Title
Loneliness in early psychosis: a qualitative study exploring the views of mental health practitioners in early intervention services
Authors
Theodora Stefanidou
Jingyi Wang
Nicola Morant
Brynmor Lloyd-Evans
Sonia Johnson
Publication date
01-12-2021
Publisher
BioMed Central
Published in
BMC Psychiatry / Issue 1/2021
Electronic ISSN: 1471-244X
DOI
https://doi.org/10.1186/s12888-021-03138-w

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