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Published in: BMC Psychiatry 1/2015

Open Access 01-12-2015 | Research article

The self-management of longer-term depression: learning from the patient, a qualitative study

Authors: Eleni Chambers, Sarah Cook, Anna Thake, Alexis Foster, Sue Shaw, Rebecca Hutten, Glenys Parry, Tom Ricketts

Published in: BMC Psychiatry | Issue 1/2015

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Abstract

Background

Depression is a common mental health condition now viewed as chronic or long-term. More than 50 % of people will have at least one further episode of depression after their first, and therefore it requires long-term management. However, little is known about the effectiveness of self-management in depression, in particular from the patients’ perspective. This study aimed to understand how people with longer-term depression manage the condition, how services can best support self-management and whether the principles and concepts of the recovery approach would be advantageous.

Methods

Semi-structured in depth interviews were carried out with 21 participants, recruited from a range of sources using maximum variation sampling. Interpretative Phenomenological Analysis was used by a diverse team comprised of service users, practitioners and academics.

Results

Four super-ordinate themes were found: experience of depression, the self, the wider environment, self-management strategies. Within these, several prominent sub-themes emerged of importance to the participants. These included how aspects of themselves such as hope, confidence and motivation could be powerful agents; and how engaging in a wide range of chosen activities could contribute to their emotional, mental, physical, social, spiritual and creative wellbeing.

Conclusions

Services in general were not perceived to be useful in specifically facilitating self-management. Increased choice and control were needed and a greater emphasis on an individualised holistic model. Improved information was needed about how to develop strategies and locate resources, especially during the first episode of depression. These concepts echoed those of the recovery approach, which could therefore be seen as valuable in aiding the self-management of depression.
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Literature
1.
go back to reference Marcus M, Yasamy MT, van Ommeren M, Chisholm D, Saxena S. Depression. A Global Public Health Concern. Edited by WHO. 2012. Marcus M, Yasamy MT, van Ommeren M, Chisholm D, Saxena S. Depression. A Global Public Health Concern. Edited by WHO. 2012.
2.
go back to reference Kupfer DJ. Long-term treatment of depression. J Clin Psychiatry. 1991;52(Suppl):28–34.PubMed Kupfer DJ. Long-term treatment of depression. J Clin Psychiatry. 1991;52(Suppl):28–34.PubMed
3.
go back to reference National Collaborating Centre for Mental Health: Depression. The Treatment and Management of Depression in Adults. Updatedth ed. Leicester and London: British Psychological Society and Royal College of Psychiatrists; 2010. National Collaborating Centre for Mental Health: Depression. The Treatment and Management of Depression in Adults. Updatedth ed. Leicester and London: British Psychological Society and Royal College of Psychiatrists; 2010.
4.
go back to reference Richards D. Prevalence and clinical course of depression: a review. Clin Psychol Rev. 2011;31:1117–25.CrossRefPubMed Richards D. Prevalence and clinical course of depression: a review. Clin Psychol Rev. 2011;31:1117–25.CrossRefPubMed
5.
go back to reference Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48:177–87.CrossRefPubMed Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48:177–87.CrossRefPubMed
6.
go back to reference Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet. 2004;364:1523–37.CrossRefPubMed Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet. 2004;364:1523–37.CrossRefPubMed
7.
go back to reference den Boer PC, Wiersma D, van den Bosch RJ. Why is self-help neglected in the treatment of emotional disorders? A meta-analysis. Psychol Med. 2004;34:959–71.CrossRef den Boer PC, Wiersma D, van den Bosch RJ. Why is self-help neglected in the treatment of emotional disorders? A meta-analysis. Psychol Med. 2004;34:959–71.CrossRef
8.
go back to reference van Grieken RA, Kirkenier AC, Koeter MW. Nabitz UW. Schene AH: Patients’ perspective on self-management in the recovery from depression. Health Expect; 2014 (online 2 Aug). van Grieken RA, Kirkenier AC, Koeter MW. Nabitz UW. Schene AH: Patients’ perspective on self-management in the recovery from depression. Health Expect; 2014 (online 2 Aug).
9.
go back to reference Houle J, Gascon-Depatie M, Belanger-Dumontier G, Cardinal C. Depression self-management support: A systematic review. Patient Educ Couns. 2013;91:271–9.CrossRefPubMed Houle J, Gascon-Depatie M, Belanger-Dumontier G, Cardinal C. Depression self-management support: A systematic review. Patient Educ Couns. 2013;91:271–9.CrossRefPubMed
10.
go back to reference Gillard S, Edwards C, White S, White R, Adams K, Davies L, et al. The barriers and facilitators of supporting self care in Mental Health NHS Trusts. Report for the NIHR SDO programme. London: HMSO; 2010. Gillard S, Edwards C, White S, White R, Adams K, Davies L, et al. The barriers and facilitators of supporting self care in Mental Health NHS Trusts. Report for the NIHR SDO programme. London: HMSO; 2010.
11.
go back to reference Davidson L. Recovery, self management and the expert patient - Changing the culture of mental health from a UK perspective. J Ment Health. 2005;14:25–35.CrossRef Davidson L. Recovery, self management and the expert patient - Changing the culture of mental health from a UK perspective. J Ment Health. 2005;14:25–35.CrossRef
13.
go back to reference Bower P, Richards D, Lovell K. The clinical and cost-effectiveness of self-help treatments for anxiety and depressive disorders in primary care: a systematic review. Br J Gen Pract. 2001;51:838.PubMedPubMedCentral Bower P, Richards D, Lovell K. The clinical and cost-effectiveness of self-help treatments for anxiety and depressive disorders in primary care: a systematic review. Br J Gen Pract. 2001;51:838.PubMedPubMedCentral
14.
go back to reference Gellatly J, Bower P, Hennessy S, Richards D, Gilbody S, Lovell K. What makes self-help interventions effective in the management of depressive symptoms? Meta-analysis and meta-regression. Psychol Med. 2007;37:1217–28.CrossRefPubMed Gellatly J, Bower P, Hennessy S, Richards D, Gilbody S, Lovell K. What makes self-help interventions effective in the management of depressive symptoms? Meta-analysis and meta-regression. Psychol Med. 2007;37:1217–28.CrossRefPubMed
17.
go back to reference Bonney S, Stickley T. Recovery and mental health: a review of the British literature. J Psychiatr Mental Health Nurs. 2008;15:140–53.CrossRef Bonney S, Stickley T. Recovery and mental health: a review of the British literature. J Psychiatr Mental Health Nurs. 2008;15:140–53.CrossRef
18.
go back to reference Deegan P. Recovery, Rehabilitation and the Conspiracy of Hope. In “There’s a Person In Here”: The Sixth Annual Mental Health Services Conference of Australia and New Zealand. Brisbane, Australia: Pat Deegan, PhD & Associates, LLC; 1996. Deegan P. Recovery, Rehabilitation and the Conspiracy of Hope. In “There’s a Person In Here”: The Sixth Annual Mental Health Services Conference of Australia and New Zealand. Brisbane, Australia: Pat Deegan, PhD & Associates, LLC; 1996.
19.
go back to reference Jorm AF, Griffiths KM. Population promotion of informal self-help strategies for early intervention against depression and anxiety. Psychol Med. 2006;36:3–6.CrossRefPubMed Jorm AF, Griffiths KM. Population promotion of informal self-help strategies for early intervention against depression and anxiety. Psychol Med. 2006;36:3–6.CrossRefPubMed
20.
go back to reference Lewis G, Anderson L, Araya R, Elgie R, Harrison G, Proudfoot J, et al. Self-help Interventions for Mental Health Problems. Expert Briefing. London: NIMHE; 2003. Lewis G, Anderson L, Araya R, Elgie R, Harrison G, Proudfoot J, et al. Self-help Interventions for Mental Health Problems. Expert Briefing. London: NIMHE; 2003.
21.
go back to reference Faulkner A, Wallcraft J. Strategies for Living. A summary report of user-led research into people’s strategies for living with mental distress. London: Mental Health Foundation; 1999. Faulkner A, Wallcraft J. Strategies for Living. A summary report of user-led research into people’s strategies for living with mental distress. London: Mental Health Foundation; 1999.
22.
go back to reference Holzinger A, Matschinger H, Angermeyer MC. What to do about depression? Self-help recommendations of the public. Int J Soc Psychiatry. 2012;58:343–9.CrossRefPubMed Holzinger A, Matschinger H, Angermeyer MC. What to do about depression? Self-help recommendations of the public. Int J Soc Psychiatry. 2012;58:343–9.CrossRefPubMed
23.
go back to reference Simco R, McCusker J, Sewitch M. Adherence to self-care interventions for depression or anxiety: A systematic review. Health Educ J. 2014, (online 21 Jan) Simco R, McCusker J, Sewitch M. Adherence to self-care interventions for depression or anxiety: A systematic review. Health Educ J. 2014, (online 21 Jan)
24.
go back to reference Morgan AJ, Jorm AF. Self-help strategies that are helpful for sub-threshold depression: A Delphi consensus study. J Affect Disord. 2009;115:196–200.CrossRefPubMed Morgan AJ, Jorm AF. Self-help strategies that are helpful for sub-threshold depression: A Delphi consensus study. J Affect Disord. 2009;115:196–200.CrossRefPubMed
25.
go back to reference Harwood TM, L’Abate L. Self-Help in Mental Health: A Critical Review. New York: Springer; 2009. Harwood TM, L’Abate L. Self-Help in Mental Health: A Critical Review. New York: Springer; 2009.
26.
go back to reference Aked J, Marks N, Cordon C, Thompson S. Five ways to well-being: The evidence. A report. London: Centre for Wellbeing, New Economics Foundation; 2008. Aked J, Marks N, Cordon C, Thompson S. Five ways to well-being: The evidence. A report. London: Centre for Wellbeing, New Economics Foundation; 2008.
27.
go back to reference Chew-Graham C, Kovandzic M, Gask L, Burroughs H, Clarke P, Sanderson H, et al. Why may older people with depression not present to primary care? Messages from secondary analysis of qualitative data. Health Soc Care Community. 2012;20:52–60.CrossRefPubMed Chew-Graham C, Kovandzic M, Gask L, Burroughs H, Clarke P, Sanderson H, et al. Why may older people with depression not present to primary care? Messages from secondary analysis of qualitative data. Health Soc Care Community. 2012;20:52–60.CrossRefPubMed
28.
go back to reference Marley E. Self-help strategies to reduce emotional distress: What do people do and why? A qualitative study. Counselling and Psychotherapy Research. 2011;11:317–24.CrossRef Marley E. Self-help strategies to reduce emotional distress: What do people do and why? A qualitative study. Counselling and Psychotherapy Research. 2011;11:317–24.CrossRef
30.
go back to reference Giorgi A, Giorgi B. Phenomenology. In: Smith JA, editor. Qualitative Psychology: A Practical Guide to Research Methods. London: Sage Publications; 2003. p. 25–50. Giorgi A, Giorgi B. Phenomenology. In: Smith JA, editor. Qualitative Psychology: A Practical Guide to Research Methods. London: Sage Publications; 2003. p. 25–50.
31.
go back to reference Smith JA, Flowers P, Larkin M. Interpretative Phenomenological Analysis: Theory, Method and Research. London: Sage; 2009. Smith JA, Flowers P, Larkin M. Interpretative Phenomenological Analysis: Theory, Method and Research. London: Sage; 2009.
32.
go back to reference Shaw R. Why use interpretative phenomenological analysis in Health Psychology? Health Psychology Update. 2001;10:48–52. Shaw R. Why use interpretative phenomenological analysis in Health Psychology? Health Psychology Update. 2001;10:48–52.
33.
go back to reference Smith JA, Osborn M. Interpretative phenomenological analysis. In: Smith JA, editor. Qualitative Psychology: A Practical Guide to Research Methods. London: Sage Publications; 2003. p. 51–80. Smith JA, Osborn M. Interpretative phenomenological analysis. In: Smith JA, editor. Qualitative Psychology: A Practical Guide to Research Methods. London: Sage Publications; 2003. p. 51–80.
34.
go back to reference Hanley B, Bradburn J, Barnes M, Evans C, Goodare H, Kelson M, et al. Involving the public in NHS, public health, and social care research: Briefing notes for researchers. Edited by Steel R. 2004. Eastleigh, INVOLVE. Hanley B, Bradburn J, Barnes M, Evans C, Goodare H, Kelson M, et al. Involving the public in NHS, public health, and social care research: Briefing notes for researchers. Edited by Steel R. 2004. Eastleigh, INVOLVE.
35.
go back to reference Allam S, Blyth S, Fraser A, Hodgson S, Howes J, Repper J, et al. Our experience of collaborative research: Service users, carers and researchers work together to evaluate an assertive outreach service. J Psychiatr Ment Health Nurs. 2004;11:368–73.CrossRefPubMed Allam S, Blyth S, Fraser A, Hodgson S, Howes J, Repper J, et al. Our experience of collaborative research: Service users, carers and researchers work together to evaluate an assertive outreach service. J Psychiatr Ment Health Nurs. 2004;11:368–73.CrossRefPubMed
36.
go back to reference Martindale S, Chambers E, Thompson A. Clinical psychology service users’ experiences of confidentiality and informed consent: A qualitative analysis. Psychol Psychother-T. 2009;82:355–68.CrossRef Martindale S, Chambers E, Thompson A. Clinical psychology service users’ experiences of confidentiality and informed consent: A qualitative analysis. Psychol Psychother-T. 2009;82:355–68.CrossRef
38.
go back to reference Sheehan DV, Lecrubier Y, Sheehan KH, Amorim P, Janavs J, Weiller E, et al. The Mini-International Neuropsychiatric Interview (MINI): the development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. J Clin Psychiatry. 1998;59:22–33.PubMed Sheehan DV, Lecrubier Y, Sheehan KH, Amorim P, Janavs J, Weiller E, et al. The Mini-International Neuropsychiatric Interview (MINI): the development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. J Clin Psychiatry. 1998;59:22–33.PubMed
40.
go back to reference Fossey E, Epstein M, Findlay R, Plant G, Harvey C. Creating a positive experience of research for people with psychiatric disabilities by sharing feedback. Psychiatr Rehabil J. 2002;25:369–78.CrossRefPubMed Fossey E, Epstein M, Findlay R, Plant G, Harvey C. Creating a positive experience of research for people with psychiatric disabilities by sharing feedback. Psychiatr Rehabil J. 2002;25:369–78.CrossRefPubMed
43.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.CrossRef
44.
go back to reference Larkin M, Thompson A. Interpretative Phenomenological Analysis in Mental Health and Psychotherapy Research. In: Harper D, Thompson A, editors. Qualitative Research Methods in Mental Health and Psychotherapy. Chichester, West Sussex: Wiley-Blackwell; 2012. p. 101–16. Larkin M, Thompson A. Interpretative Phenomenological Analysis in Mental Health and Psychotherapy Research. In: Harper D, Thompson A, editors. Qualitative Research Methods in Mental Health and Psychotherapy. Chichester, West Sussex: Wiley-Blackwell; 2012. p. 101–16.
45.
go back to reference Finlay L, Gough B. Reflexivity: A Practical Guide for Researchers in Health and Social Sciences. Oxford: Blackwell Science; 2003.CrossRef Finlay L, Gough B. Reflexivity: A Practical Guide for Researchers in Health and Social Sciences. Oxford: Blackwell Science; 2003.CrossRef
46.
go back to reference Pilling S, Anderson I, Goldberg D, Meader N, Taylor C. Depression in adults, including those with a chronic physical health problem: Summary of NICE guidance. BMJ. 2009;339:b4108.CrossRefPubMedPubMedCentral Pilling S, Anderson I, Goldberg D, Meader N, Taylor C. Depression in adults, including those with a chronic physical health problem: Summary of NICE guidance. BMJ. 2009;339:b4108.CrossRefPubMedPubMedCentral
47.
go back to reference Johnson C, Gunn J, Kokanovic R. Depression recovery from the primary care patient’s perspective: “Hear it in my voice and see it in my eyes”. Ment Health Fam Med. 2009;6:49–55.PubMedPubMedCentral Johnson C, Gunn J, Kokanovic R. Depression recovery from the primary care patient’s perspective: “Hear it in my voice and see it in my eyes”. Ment Health Fam Med. 2009;6:49–55.PubMedPubMedCentral
48.
go back to reference Pratt R, Halliday E, Maxwell M. Professional and service-user perceptions of self-help in primary care mental health services. Health Soc Care Community. 2009;17:209–15.CrossRefPubMed Pratt R, Halliday E, Maxwell M. Professional and service-user perceptions of self-help in primary care mental health services. Health Soc Care Community. 2009;17:209–15.CrossRefPubMed
49.
go back to reference Schrank B, Slade M. Recovery in psychiatry. Psychiatr Bull. 2007;31:321–5.CrossRef Schrank B, Slade M. Recovery in psychiatry. Psychiatr Bull. 2007;31:321–5.CrossRef
50.
go back to reference Stickley T, Wright N. The British research evidence for recovery, papers published between 2006 and 2009 (inclusive). Part One: a review of the peer reviewed literature using a systematic approach. J Psychiatr Ment Health Nurs. 2011;18:247–56.CrossRefPubMed Stickley T, Wright N. The British research evidence for recovery, papers published between 2006 and 2009 (inclusive). Part One: a review of the peer reviewed literature using a systematic approach. J Psychiatr Ment Health Nurs. 2011;18:247–56.CrossRefPubMed
51.
go back to reference Stickley T, Wright N. The British research evidence for recovery, papers published between 2006 and 2009 (inclusive). Part Two: a review of the grey literature including book chapters and policy documents. J Psychiatr Ment Health Nurs. 2011;18:297–307.CrossRefPubMed Stickley T, Wright N. The British research evidence for recovery, papers published between 2006 and 2009 (inclusive). Part Two: a review of the grey literature including book chapters and policy documents. J Psychiatr Ment Health Nurs. 2011;18:297–307.CrossRefPubMed
52.
go back to reference Shepherd G, Boardman J, Slade M. Making Recovery a Reality. London: Sainsbury Centre for Mental Health; 2008. Shepherd G, Boardman J, Slade M. Making Recovery a Reality. London: Sainsbury Centre for Mental Health; 2008.
53.
go back to reference Wallcraft J, Tew J, Griffiths R, Nicholls V. A common purpose: Recovery in future mental health services. London: Care Services Improvement Partnership (CSIP), Royal College of Psychiatrists (RCPsych), Social Care Institure for Excellence (SCIE); 2012. Wallcraft J, Tew J, Griffiths R, Nicholls V. A common purpose: Recovery in future mental health services. London: Care Services Improvement Partnership (CSIP), Royal College of Psychiatrists (RCPsych), Social Care Institure for Excellence (SCIE); 2012.
54.
go back to reference Kalathil J. Recovery and resilience: African, African-Caribbean and South Asian women’s narratives of recovering from mental distress. London: Mental Health Foundation; 2011. Kalathil J. Recovery and resilience: African, African-Caribbean and South Asian women’s narratives of recovering from mental distress. London: Mental Health Foundation; 2011.
55.
go back to reference Barney LJ, Griffiths KM, Banfield MA. Explicit and implicit information needs of people with depression: a qualitative investigation of problems reported on an online depression support forum. BMC Psychiatry. 2011;11:88–98.CrossRefPubMedPubMedCentral Barney LJ, Griffiths KM, Banfield MA. Explicit and implicit information needs of people with depression: a qualitative investigation of problems reported on an online depression support forum. BMC Psychiatry. 2011;11:88–98.CrossRefPubMedPubMedCentral
56.
go back to reference Rodgers M, Asaria M, Walker S, McMillan D, Lucock M, Harden M, et al. The clinical effectiveness and cost-effectiveness of low-intensity psychological interventions for the secondary prevention of relapse after depression: a systematic review. Health Technol Assess. 2012;16:1-130. Rodgers M, Asaria M, Walker S, McMillan D, Lucock M, Harden M, et al. The clinical effectiveness and cost-effectiveness of low-intensity psychological interventions for the secondary prevention of relapse after depression: a systematic review. Health Technol Assess. 2012;16:1-130.
57.
go back to reference Gili M, Vicens C, Roca M, Andersen P, McMillan D. Interventions for Preventing Relapse or Recurrence of Depression in Primary Health Care Settings: A Systematic Review. Prev Med. 2014, (online 3 Sep) Gili M, Vicens C, Roca M, Andersen P, McMillan D. Interventions for Preventing Relapse or Recurrence of Depression in Primary Health Care Settings: A Systematic Review. Prev Med. 2014, (online 3 Sep)
58.
go back to reference Biesheuvel-Leliefeld KE, Kok GD, Bockting CL, Cuijpers P, Hollon SD, van Marwijk HW, et al. Effectiveness of psychological interventions in preventing recurrence of depressive disorder: Meta-analysis and meta-regression. J Affect Disord. 2015;174:400–10.CrossRefPubMed Biesheuvel-Leliefeld KE, Kok GD, Bockting CL, Cuijpers P, Hollon SD, van Marwijk HW, et al. Effectiveness of psychological interventions in preventing recurrence of depressive disorder: Meta-analysis and meta-regression. J Affect Disord. 2015;174:400–10.CrossRefPubMed
59.
go back to reference Bellon JA, Moreno-Peral P, Motrico E, Rodriguez-Morejon A, Fernandez A, Serrano-Blanco A, et al. Effectiveness of psychological and/or educational interventions to prevent the onset of episodes of depression: a systematic review of systematic reviews and meta-analyses. Prev Med. 2014, (online 3 Nov) Bellon JA, Moreno-Peral P, Motrico E, Rodriguez-Morejon A, Fernandez A, Serrano-Blanco A, et al. Effectiveness of psychological and/or educational interventions to prevent the onset of episodes of depression: a systematic review of systematic reviews and meta-analyses. Prev Med. 2014, (online 3 Nov)
60.
go back to reference Lucock M, Gillard S, Adams K, Simons L, White R, Edwards C. Self care in mental health services: a narrative review. Health Soc Care Community. 2011;19:602–16.CrossRefPubMed Lucock M, Gillard S, Adams K, Simons L, White R, Edwards C. Self care in mental health services: a narrative review. Health Soc Care Community. 2011;19:602–16.CrossRefPubMed
61.
go back to reference Coulter A, Roberts S, Dixon A. Delivering better services for people with long-term conditions. Building the house of care. London: The King’s Fund; 2013. p. 1–28. Coulter A, Roberts S, Dixon A. Delivering better services for people with long-term conditions. Building the house of care. London: The King’s Fund; 2013. p. 1–28.
62.
go back to reference McDonald C. Patients in control: Why people with long-term conditions must be empowered. London: Institute for Public Policy Research (IPPR); 2014. McDonald C. Patients in control: Why people with long-term conditions must be empowered. London: Institute for Public Policy Research (IPPR); 2014.
Metadata
Title
The self-management of longer-term depression: learning from the patient, a qualitative study
Authors
Eleni Chambers
Sarah Cook
Anna Thake
Alexis Foster
Sue Shaw
Rebecca Hutten
Glenys Parry
Tom Ricketts
Publication date
01-12-2015
Publisher
BioMed Central
Published in
BMC Psychiatry / Issue 1/2015
Electronic ISSN: 1471-244X
DOI
https://doi.org/10.1186/s12888-015-0550-6

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