Skip to main content
Top
Published in: BMC Primary Care 1/2021

01-12-2021 | Care | Research article

Organizational attributes of interprofessional primary care for adults with intellectual and developmental disabilities in ontario, Canada: a multiple case study

Authors: Nicole Bobbette, Rosemary Lysaght, Hélène Ouellette-Kuntz, Joan Tranmer, Catherine Donnelly

Published in: BMC Primary Care | Issue 1/2021

Login to get access

Abstract

Background

Access to high-quality primary care has been identified as a pressing need for adults with intellectual and developmental disabilities (IDD). Adults with IDD live with complex physical and mental health conditions, use health services differently than the general population and continue to face challenges when accessing health services. Interprofessional primary care teams offer comprehensive and coordinated approaches to primary care delivery and are well-positioned to address the needs of adults with IDD and other vulnerable populations. Although interprofessional primary care teams are recommended, there is currently limited understanding of how interprofessional care is delivered and how access to a team of providers improves the health of this population. The aim of this paper is to describe the organizational attributes of interprofessional primary care for adults with IDD within and across models of team-based care in one local health service context.

Methods

A multiple case study was conducted with five interprofessional primary care teams in Ontario, Canada. Multiple methods were used to generate data including: a survey, document review, electronic medical record report and qualitative interviews. Pattern matching was the primary analytic approach for the within and across case analysis.

Results

Adults with IDD were found to be a small part of the patient population served and this group was poorly identified in three of five teams. Key organizational attributes that support the delivery of interprofessional primary care for adults with IDD were identified. Two examples of targeted programs of care for this group were also found. Despite the presence of interprofessional health providers in all teams, there were limited organizational processes to engage a wide-range of interprofessional services in the care of this group. There was no consistent reporting of outcomes or processes in place to measure the impact of interprofessional services for this population.

Conclusions

This study provides important insights into the current state of interprofessional primary care for adults with IDD in Ontario and highlight a critical need for further work in the field to develop organizational structures and processes to engage in team-based care and demonstrate the value of the approach for this population.
Appendix
Available only for authorised users
Footnotes
1
Rural practices typically support a community of < 30,000 and are greater than 30 min away from a larger community > 30,000, [48].
 
Literature
9.
go back to reference Glazier RH, Hutchison B, Kopp A. Comparison of Family Health Teams to Other Ontario Primary Care Models, 2004/05-2011/12. Toronto: Institute for Clinical Evaluative Sciences; 2015. Glazier RH, Hutchison B, Kopp A. Comparison of Family Health Teams to Other Ontario Primary Care Models, 2004/05-2011/12. Toronto: Institute for Clinical Evaluative Sciences; 2015.
16.
go back to reference Donnelly C, Ashcroft R, Mofina A, Bobbette N, Mulder C. Measuring the performance of interprofessional primary health care teams: understanding the teams perspective. Prim Health Care Res Dev. 2019;20. Donnelly C, Ashcroft R, Mofina A, Bobbette N, Mulder C. Measuring the performance of interprofessional primary health care teams: understanding the teams perspective. Prim Health Care Res Dev. 2019;20.
17.
go back to reference Zygmunt A, Berge F. Inter-provincial variation and determinants of access to team-based primary care in Canada. Dalhousie Med J. 2014;41(1):3–10.CrossRef Zygmunt A, Berge F. Inter-provincial variation and determinants of access to team-based primary care in Canada. Dalhousie Med J. 2014;41(1):3–10.CrossRef
18.
go back to reference Phillips KA, Morrison KR, Andersen R, Aday LA. Understanding the context of healthcare utilization: Assessing environmental and provider-related variables in the behavioral model of utilization. Health Serv Res. 1988;33(3):571–96. Phillips KA, Morrison KR, Andersen R, Aday LA. Understanding the context of healthcare utilization: Assessing environmental and provider-related variables in the behavioral model of utilization. Health Serv Res. 1988;33(3):571–96.
19.
go back to reference Andersen RM. Revisiting the behavioral model and access to medical care: Does it matter? J Health Soc Behav. 1995:1–10. Andersen RM. Revisiting the behavioral model and access to medical care: Does it matter? J Health Soc Behav. 1995:1–10.
20.
go back to reference Johnston S, Dahrouge S, Hogg W. Gauging to gain: Primary care performance measurement. Can Fam Physician. 2008;54(9):1215–7.PubMedPubMedCentral Johnston S, Dahrouge S, Hogg W. Gauging to gain: Primary care performance measurement. Can Fam Physician. 2008;54(9):1215–7.PubMedPubMedCentral
22.
go back to reference Beaulieu MD, Haggerty J, Tousignant P, Barnsley J, Hogg W, Geneau R, et al. Characteristics of primary care practices associated with high quality of care. CMAJ. 2013;185(12):E590–6. Beaulieu MD, Haggerty J, Tousignant P, Barnsley J, Hogg W, Geneau R, et al. Characteristics of primary care practices associated with high quality of care. CMAJ. 2013;185(12):E590–6.
23.
go back to reference Russell G, Dahrouge S, Tuna M, Hogg W, Geneau R, Gebremichael G. Getting it all done. Organizational factors linked with comprehensive primary care. Fam Pract. 2010;27(5): 535–541. Russell G, Dahrouge S, Tuna M, Hogg W, Geneau R, Gebremichael G. Getting it all done. Organizational factors linked with comprehensive primary care. Fam Pract. 2010;27(5): 535–541.
24.
go back to reference Maulik PK, Mascarenhas MN, Mathers CD, Dua T, Saxena S. Prevalence of intellectual disability: A meta-analysis of population-based studies. Res Dev Disabil. 2011;32(2):419–36.CrossRefPubMed Maulik PK, Mascarenhas MN, Mathers CD, Dua T, Saxena S. Prevalence of intellectual disability: A meta-analysis of population-based studies. Res Dev Disabil. 2011;32(2):419–36.CrossRefPubMed
25.
go back to reference McKenzie K, Milton M, Smith G, Ouellette-Kuntz H. Systematic review of the prevalence and incidence of intellectual disabilities: Current trends and issues. Curr Dev Disord Rep. 2016;3(2):104–15.CrossRef McKenzie K, Milton M, Smith G, Ouellette-Kuntz H. Systematic review of the prevalence and incidence of intellectual disabilities: Current trends and issues. Curr Dev Disord Rep. 2016;3(2):104–15.CrossRef
27.
go back to reference Anderson LL, Humphries K, McDermott S, Marks B, Sisirak J, Larson S. The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellect Dev Disabil. 2013;51(5):385–98.CrossRefPubMedPubMedCentral Anderson LL, Humphries K, McDermott S, Marks B, Sisirak J, Larson S. The state of the science of health and wellness for adults with intellectual and developmental disabilities. Intellect Dev Disabil. 2013;51(5):385–98.CrossRefPubMedPubMedCentral
28.
go back to reference Lin E, Balogh RS, Durbin A, Holder L, Gupta N, Volpe T, et al. Addressing gaps in the health care services used by adults with developmental disabilities in Ontario. Toronto: Institute for Clinical Evaluative Sciences; 2019. Lin E, Balogh RS, Durbin A, Holder L, Gupta N, Volpe T, et al. Addressing gaps in the health care services used by adults with developmental disabilities in Ontario. Toronto: Institute for Clinical Evaluative Sciences; 2019.
29.
go back to reference Lunsky Y, Klein-Geltink, JE, Yates, EA. Editors. Atlas on the primary care of adults with developmental disabilities in Ontario. Toronto: Institute for Clinical Evaluative Sciences and Centre for Addiction and Mental Health; 2013. Lunsky Y, Klein-Geltink, JE, Yates, EA. Editors. Atlas on the primary care of adults with developmental disabilities in Ontario. Toronto: Institute for Clinical Evaluative Sciences and Centre for Addiction and Mental Health; 2013.
30.
go back to reference Ouellette-Kuntz H. Understanding health disparities and inequities faced by individuals with intellectual disabilities. J Appl Res Intellect Disabil. 2005;18(2):113–21.CrossRef Ouellette-Kuntz H. Understanding health disparities and inequities faced by individuals with intellectual disabilities. J Appl Res Intellect Disabil. 2005;18(2):113–21.CrossRef
31.
go back to reference Lunsky Y, De Oliveira C, Wilton A, Wodchis W. (2019). High health care costs among adults with intellectual and developmental disabilities: A population‐based study. J Intellect Disabil Res. 2019;63(2):124–137. Lunsky Y, De Oliveira C, Wilton A, Wodchis W. (2019). High health care costs among adults with intellectual and developmental disabilities: A population‐based study. J Intellect Disabil Res. 2019;63(2):124–137.
33.
go back to reference Sullivan WF, Diepstra H, Heng J, Ally S, Bradley E, Casson I et al. Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.Can Fam Physician. 2018;64(4):254–79. Sullivan WF, Diepstra H, Heng J, Ally S, Bradley E, Casson I et al. Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.Can Fam Physician. 2018;64(4):254–79.
34.
go back to reference Isaacs BJ, Jaakkimainen RL, Barnsley J, Klein-Geltink JE, Balogh RS, Cobigo V et al. Health services utilization. In Lunsky Y, Klein-Geltink GE & Yates, editors. Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario Toronto: Institute for Clinical Evaluative Sciences and Centre for Addiction and Mental Health; 2013. p.41–62. Isaacs BJ, Jaakkimainen RL, Barnsley J, Klein-Geltink JE, Balogh RS, Cobigo V et al. Health services utilization. In Lunsky Y, Klein-Geltink GE & Yates, editors. Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario Toronto: Institute for Clinical Evaluative Sciences and Centre for Addiction and Mental Health; 2013. p.41–62.
35.
go back to reference Dixon J. Impacts of the person-centred medical home on healthcare access and utilization indicators for adults with intellectual and developmental disabilities in Ontario. MSc thesis. Department of Public Health Sciences, Queen’s University, Kingston; 2015. Dixon J. Impacts of the person-centred medical home on healthcare access and utilization indicators for adults with intellectual and developmental disabilities in Ontario. MSc thesis. Department of Public Health Sciences, Queen’s University, Kingston; 2015.
36.
go back to reference Yin RK. Case study research: Design and methods. 5th ed. Thousand Oaks: Sage Publications; 2014. Yin RK. Case study research: Design and methods. 5th ed. Thousand Oaks: Sage Publications; 2014.
38.
go back to reference Lin E, Selick A, Balogh R, Isaacs B, Ouellette-Kuntz H, Klein-Geltink GE, et al. Prevalence, demographic and disease profiles. In Lunsky Y, Klein-Geltink GE & Yates, editors. Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario. Toronto: Institute for Clinical Evaluative Sciences and Centre for Addiction and Mental Health; 2013. 20–36. Lin E, Selick A, Balogh R, Isaacs B, Ouellette-Kuntz H, Klein-Geltink GE, et al. Prevalence, demographic and disease profiles. In Lunsky Y, Klein-Geltink GE & Yates, editors. Atlas on the Primary Care of Adults with Developmental Disabilities in Ontario. Toronto: Institute for Clinical Evaluative Sciences and Centre for Addiction and Mental Health; 2013. 20–36.
40.
go back to reference Patton MQ. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks: Sage Publications; 2002. Patton MQ. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks: Sage Publications; 2002.
43.
44.
go back to reference Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRefPubMed Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRefPubMed
46.
go back to reference Braun V, Clarke V. Thematic analysis. In Cooper H, editor, APA Handbook of Research Methods in Psychology, Vol. 2: Research designs: Quantitative, qualitative, neuropsychological, and biological. Washington: American Psychological Association; 2012.p.57–61. Braun V, Clarke V. Thematic analysis. In Cooper H, editor, APA Handbook of Research Methods in Psychology, Vol. 2: Research designs: Quantitative, qualitative, neuropsychological, and biological. Washington: American Psychological Association; 2012.p.57–61.
47.
go back to reference Almutairi AF, Gardner GE, McCarthy A. Practical guidance for the use of a pattern-matching technique in case-study research: A case presentation. Nurs Health Sci. 2014;16(2):239–44.CrossRefPubMed Almutairi AF, Gardner GE, McCarthy A. Practical guidance for the use of a pattern-matching technique in case-study research: A case presentation. Nurs Health Sci. 2014;16(2):239–44.CrossRefPubMed
48.
go back to reference Carroll JC, Talbot Y, Permaul J, Tobin A, Moineddin R, Blaine S, et al. Academic family health teams Part 1: Patient perceptions of core primary care domains. Can Fam Physician. 2016;62(1):e23–30. Carroll JC, Talbot Y, Permaul J, Tobin A, Moineddin R, Blaine S, et al. Academic family health teams Part 1: Patient perceptions of core primary care domains. Can Fam Physician. 2016;62(1):e23–30.
49.
go back to reference Rayner J, Muldoon L, Bayoumi I, McMurchy D, Mulligan K, Tharao W. Delivering primary health care as envisioned: A model of health and well-being guiding community-governed primary care organizations. Int J Integr Care. 2018;26(3):231–41. Rayner J, Muldoon L, Bayoumi I, McMurchy D, Mulligan K, Tharao W. Delivering primary health care as envisioned: A model of health and well-being guiding community-governed primary care organizations. Int J Integr Care. 2018;26(3):231–41.
50.
go back to reference Dahrouge S, Hogg W, Ward N, Tuna M, Devlin RA, Kristjansson E, et al. Delivery of primary health care to persons who are socio-economically disadvantaged: does the organizational delivery model matter? BMC Health Serv Res. 2013;13(1):517.CrossRefPubMedPubMedCentral Dahrouge S, Hogg W, Ward N, Tuna M, Devlin RA, Kristjansson E, et al. Delivery of primary health care to persons who are socio-economically disadvantaged: does the organizational delivery model matter? BMC Health Serv Res. 2013;13(1):517.CrossRefPubMedPubMedCentral
51.
go back to reference Lunsky Y, Balogh R, Sullivan WF, Jaakkimainen RL. Periodic health examinations for adults with developmental disabilities: Are we doing enough? Can Fam Physician. 2014;60(2):109–10.PubMedPubMedCentral Lunsky Y, Balogh R, Sullivan WF, Jaakkimainen RL. Periodic health examinations for adults with developmental disabilities: Are we doing enough? Can Fam Physician. 2014;60(2):109–10.PubMedPubMedCentral
52.
go back to reference Harris MF, Advocat J, Crabtree BF, Levesque JF, Miller WL, Gunn JM, et al. Interprofessional teamwork innovations for primary health care practices and practitioners: Evidence from a comparison of reform in three countries. J Multidiscip Healthc. 2016;9(1):35–46.CrossRefPubMedPubMedCentral Harris MF, Advocat J, Crabtree BF, Levesque JF, Miller WL, Gunn JM, et al. Interprofessional teamwork innovations for primary health care practices and practitioners: Evidence from a comparison of reform in three countries. J Multidiscip Healthc. 2016;9(1):35–46.CrossRefPubMedPubMedCentral
53.
go back to reference Wranik WD, Price S, Haydt SM, Edwards J, Hatfield K, Weir J, et al. Implications of interprofessional primary care team characteristics for health services and patient health outcomes: A systematic review with narrative synthesis. Health Policy. 2019;123(6):550–63.CrossRefPubMed Wranik WD, Price S, Haydt SM, Edwards J, Hatfield K, Weir J, et al. Implications of interprofessional primary care team characteristics for health services and patient health outcomes: A systematic review with narrative synthesis. Health Policy. 2019;123(6):550–63.CrossRefPubMed
54.
go back to reference Robertson J, Hatton C, Emerson E, Baines S. The impact of health checks for people with intellectual disabilities: An updated systematic review of evidence. Res Dev Disabil. 2014;35(10):2450–62.CrossRefPubMed Robertson J, Hatton C, Emerson E, Baines S. The impact of health checks for people with intellectual disabilities: An updated systematic review of evidence. Res Dev Disabil. 2014;35(10):2450–62.CrossRefPubMed
55.
go back to reference Durbin J, Selick A, Casson I, Green L, Spassiani N, Perry A, et al. Evaluating the implementation of health checks for adults with intellectual and developmental disabilities in primary care: The importance of organizational context. Intellect Dev Disabil. 2016;54(2):136–50.CrossRefPubMed Durbin J, Selick A, Casson I, Green L, Spassiani N, Perry A, et al. Evaluating the implementation of health checks for adults with intellectual and developmental disabilities in primary care: The importance of organizational context. Intellect Dev Disabil. 2016;54(2):136–50.CrossRefPubMed
56.
go back to reference Kastner TA, Walsh KK. Health care for individuals with intellectual and developmental disabilities: an integrated DD health home model. In: Hodapp RM, editor. International review of research in developmental disabilities. Oxford: Academic Press; 2012. p. 1–45. Kastner TA, Walsh KK. Health care for individuals with intellectual and developmental disabilities: an integrated DD health home model. In: Hodapp RM, editor. International review of research in developmental disabilities. Oxford: Academic Press; 2012. p. 1–45.
57.
go back to reference Hogg W, Rowan M, Russell G, Geneau R, Muldoon L. Framework for primary care organizations: The importance of a structural domain. Int J Qual Health Care. 2008;20(5):308–13.CrossRefPubMed Hogg W, Rowan M, Russell G, Geneau R, Muldoon L. Framework for primary care organizations: The importance of a structural domain. Int J Qual Health Care. 2008;20(5):308–13.CrossRefPubMed
Metadata
Title
Organizational attributes of interprofessional primary care for adults with intellectual and developmental disabilities in ontario, Canada: a multiple case study
Authors
Nicole Bobbette
Rosemary Lysaght
Hélène Ouellette-Kuntz
Joan Tranmer
Catherine Donnelly
Publication date
01-12-2021
Publisher
BioMed Central
Keyword
Care
Published in
BMC Primary Care / Issue 1/2021
Electronic ISSN: 2731-4553
DOI
https://doi.org/10.1186/s12875-021-01502-z

Other articles of this Issue 1/2021

BMC Primary Care 1/2021 Go to the issue