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BMC Primary Care
Published in: BMC Primary Care 1/2021

Open Access 01-12-2021 | Care | Research

Experiences of family caregivers of patients with COVID-19

Authors: Tahereh Rahimi, Neda Dastyar, Foozieh Rafati

Published in: BMC Primary Care | Issue 1/2021

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Abstract

Background

Family caregivers of patients with COVID-19 face many challenges that affect their physical and mental health.

Aim

The aim of the present study was to explore experiences of family caregivers of patients with COVID-19.

Methods

This phenomenological study was performed based on 13 family caregivers who had experience in home caring for patients with COVID-19. Data were collected through purposive sampling with in-depth semi-structured interviews. The Colaizzi's 7-step method was used to determine themes. The MAXQDA10 software was used to manage qualitative data analysis.

Results

Thirteen family caregivers participated. Five main themes describe family caregivers' experiences of caring for patients with COVID-19: nature of the disease; unmet needs; unpleasant physical, psychological, and social experiences; care facilitators and positive experiences.

Conclusion

Information and financial support for COVID-19 should be provided to family caregivers. Also, community members should embrace patients and family caregivers and reinforce the positive experiences of caregivers.
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Literature
1.
Li Q, Guan X, Wu P, Wang X, Zhou L, Tong Y, et al. Early transmission dynamics in Wuhan, China, of novel coronavirus-infected pneumonia. N Engl J Med. 2020;382(13):1199–207.CrossRef
2.
3.
Clark A, Jit M, Warren-Gash C, Guthrie B, Wang HHX, Mercer SW, et al. Global, regional, and national estimates of the population at increased risk of severe COVID-19 due to underlying health conditions in 2020: a modelling study. Lancet Glob Health. 2020;8(8):e1003–17.CrossRef
4.
Rothe C, Schunk M, Sothmann P, Bretzel G, Froeschl G, Wallrauch C, et al. Transmission of 2019-nCoV Infection from an Asymptomatic Contact in Germany. N Engl J Med. 2020;382(10):970–1.CrossRef
5.
Chen ZM, Fu JF, Shu Q, Chen YH, Hua CZ, Li FB, et al. Diagnosis and treatment recommendations for pediatric respiratory infection caused by the 2019 novel coronavirus. World J Pediatr. 2020;16(3):240–6.CrossRef
6.
7.
Rosell-Murphy M, Bonet-Simó JM, Baena E, Prieto G, Bellerino E, Solé F, et al. Intervention to improve social and family support for caregivers of dependent patients: ICIAS study protocol. BMC Fam Pract. 2014;15:53.
8.
Dixe M, Conceição LF, Areosa T, Frontini RC, Pralta D, Querido A. Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study. BMC Geriatr. 2019;19:255.CrossRef
9.
Schulz R. Family caregiving roles and impacts. In: Schulz R, Eden J, editors. Families caring for an aging America. Washington, DC: National Academies of Sciences, Engineering, and Medicine; 2016. p. 73–122.CrossRef
10.
Longacre ML, Valdmanis VG, Handorf EA, Fang CY. Work impact and emotional stress among informal caregivers for older adults. J Gerontol B Psychol Sci Soc Sci. 2017;72(3):522–31.
11.
Mausbach BT, Roepke SK, Chattillion EA, Harmell AL, Moore R, Romero-Moreno R, et al. Multiple mediators of the relations between caregiving stress and depressive symptoms. Aging Ment Health. 2012;16(1):27–38.
12.
Tang F, Jang H, Lingler J, Tamres LK, Erlen JA. Stressors and Caregivers' Depression: Multiple Mediators of Self-Efficacy, Social Support, and Problem-Solving Skill. Soc Work Health Care. 2015;54(7):651–68.
13.
Ajay S, Kasthuri A, Kiran P, Malhotra R. Association of impairments of older persons with caregiver burden among family caregivers: Findings from rural South India. Arch Gerontol Geriatr. 2017;68:143–8.
14.
Gibbons SW, Ross A, Bevans M. Liminality as a conceptual frame for understanding the family caregiving rite of passage: An integrative review. Res Nurs Health. 2014;37(5):423–36.
15.
Lynch SH, Shuster G, Lobo ML. The family caregiver experience - examining the positive and negative aspects of compassion satisfaction and compassion fatigue as caregiving outcomes. Aging Ment Health. 2018;22(11):1424–31.
16.
Schulz R, Sherwood PR. Physical and mental health effects of family caregiving. Am J Nurs. 2008;108:23–7.
17.
Magliano L, Fiorillo A, De Rosa C, Malangone C, Maj M, Group NMHPW. Family burden in long-term diseases: a comparative study in schizophrenia vs. physical disorders. Soc Sci Med. 2005;61(2):313–22.
18.
Holt-Lunstad J, Smith TB, Baker M, Harris T, Stephenson D. Loneliness and social isolation as risk factors for mortality: a meta-analytic review. Perspect Psychol Sci. 2015;10(2):227–37.
19.
Arnout BA. The effects of corona virus (COVID-19) outbreak on the individuals’ mental health and on the decision makers: A comparative epidemiological study. Health Sci. 2020;9(3):26–47.
20.
Mirzaei A, Raesi R, Saghari S, Raei M. Evaluation of Family Caregiver Burden among COVID-19 Patients. Open Public Health J. 2020;13:808–14.
21.
Kent EE, Ornstein KA, Dionne-Odom JN. The Family Caregiving Crisis Meets an Actual Pandemic. J Pain Symptom Manage. 2020;60(1):66–9.
22.
Aliakbari Dehkordi M, Eisazadeh F, Aghajanbigloo S. Psychological consequences of patients with coronavirus (COVID- 19): A Qualitative Study. Iran J Health Psychol. 2020;2(2):9–20.
23.
Karimi Z, Fereidouni Z, Behnammoghadam M, Alimohammadi N, Mousavizadeh A, Salehi T, Mirzaee MS, Mirzaee S. The Lived Experience of Nurses Caring for Patients with COVID-19 in Iran: A Phenomenological Study. Risk Manag Healthc Policy. 2020;13:1271–78.
24.
Sandstedt P, Littorin S, Cröde Widsell G, Johansson S, Gottberg K, Ytterberg C, Olsson M, Widén Holmqvist L, Kierkegaard M. Caregiver experience, health-related quality of life and life satisfaction among informal caregivers to patients with amyotrophic lateral sclerosis: A cross-sectional study. J Clin Nurs. 2018;27(23-24):4321–30.
25.
Polit DF, Beck CT. Essentials of Nursing Research: Appraising Evidence for Nursing Practice. 10th Ed. Philadelphia: Lippincott Williams & Wilkins; 2017.
26.
Rapport F, Wainwright P. Phenomenology as a paradigm of movement. Nurs Inq. 2006;13(3):228–36.
27.
Giorgi A. The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. J Phenomenol Psychol.1997;28(2):235–60.
28.
Sundler AJ, Lindberg E, Nilsson C, Palmér L. Qualitative thematic analysis based on descriptive phenomenology. Nurs Open. 2019;6:733–9.
29.
Lopez KA, Willis DG. Descriptive versus interpretive phenomenology: their contributions to nursing knowfaledge. Qual Health Res. 2004;14(5):726-35.
30.
Creswell JW. Qualitative inquiry and research design: choosing among five approaches. Thousand Oaks: Sage Publications; 2013.
31.
Colaizzi PF. Psychological Research as the Phenomenologist Views It. In: Valle RS, King M. Existential Phenomenological Alternatives for Psychology. New York: Oxford University Press; 1978. p. 48-71.
32.
Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. N Dir Eval. 1986;(30):73–84.
33.
Sun N, Wei L, Shi S, Jiao D, Song R, Ma L, et al. A qualitative study on the psychological experience of caregivers of COVID-19 patients. Am J Infect Control. 2020;48(6):592–8.
34.
35.
Havranek MM, Bolliger B, Roos S, Pryce CR, Quednow BB, Seifritz E. Uncontrollable and unpredictable stress interacts with subclinical depression and anxiety scores in determining anxiety response. Stress. 2016;19(1):53–62.
36.
Mubeen SM, Kamal S, Kamal S, Balkhi F. Knowledge and awareness regarding spread and prevention of COVID-19 among the young adults of Karachi. J Pak Med Assoc. 2020;70(5):S169–74.
37.
38.
39.
Choi J, Donahoe MP, Hoffman LA. Psychological and physical health in family caregivers of intensive care unit survivors: current knowledge and future research strategies. J Korean Acad Nurs. 2016;46(2):159–67.
40.
Vasileiou K, Barnett J, Barreto M, Vines J, Atkinson M, Lawson S, Wilson M. Experiences of loneliness associated with being an informal caregiver: a qualitative investigation. Front Psychol. 2017;8:585.
41.
Otis-Green S, Juarez G. Enhancing the social well-being of family caregivers. Semin Oncol Nurs. 2012;28(4):246–55.
42.
Veld JH, Verkaik R, Meijel, B, Verkade PJ, Werkman W, Hertogh C, Francke A. Self-management by family caregivers to manage changes in the behavior and mood of their relative with dementia: an online focus group study. BMC Geriatrics. 2016;16:95. https://​doi.​org/​10.​1186/​s12877-016-0268-4.
43.
44.
Abendroth M, Lutz BJ, Young ME. Family caregivers' decision process to institutionalize persons with Parkinson's disease: a grounded theory study. Int J Nurs Stud. 2012;49(4):445–54.
45.
Zahed S, Emami M, Bazargan-Hejazi S, et al. What motivates informal caregivers of people with dementia (PWD): a qualitative study. BMC Palliat Care. 2019;18:105.
Metadata
Title
Experiences of family caregivers of patients with COVID-19
Authors
Tahereh Rahimi
Neda Dastyar
Foozieh Rafati
Publication date
01-12-2021
Publisher
BioMed Central
Keywords
Care
COVID-19
Published in
BMC Primary Care / Issue 1/2021
Electronic ISSN: 2731-4553
DOI
https://doi.org/10.1186/s12875-021-01489-7

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