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Published in: BMC Primary Care 1/2018

Open Access 01-12-2018 | Research article

Access to primary and specialized somatic health care for persons with severe mental illness: a qualitative study of perceived barriers and facilitators in Swedish health care

Authors: Elisabeth Björk Brämberg, Jarl Torgerson, Anna Norman Kjellström, Peder Welin, Marie Rusner

Published in: BMC Primary Care | Issue 1/2018

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Abstract

Background

Persons with severe mental illness (e.g. schizophrenia, bipolar disorder) have a high prevalence of somatic conditions compared to the general population. Mortality data in the Nordic countries reveal that these persons die 15–20 years earlier than the general population. Some factors explaining this high prevalence may be related to the individuals in question; others arise from the health care system’s difficulty in offering somatic health care to these patient groups. The aim of the present study was therefore to explore the experiences and views of patients, relatives and clinicians regarding individual and organizational factors which facilitate or hinder access to somatic health care for persons with severe mental illness.

Methods

Flexible qualitative design. Data was collected by means of semi-structured individual interviews with patients with severe mental illness, relatives and clinicians representing primary and specialized health care. In all, 50 participants participated.

Results

The main barrier to accessing somatic care is the gap between the organization of the health care system and the patients’ individual health care needs. This is observed at both individual and organizational level. The health care system seems unable to support patients with severe mental illness and their psychiatric-somatic comorbidity. The main facilitators are the links between severe mental illness patients and medical departments. These links take the form of functions (i.e. systems which ensure that patients receive regular reminders), or persons (i.e. professional contacts who facilitate patients’ access the health care).

Conclusions

Health care services for patients with severe mental illness need reorganization. Organizational structures and systems that facilitate cooperation between different departments must be put in place, along with training for health care professionals about somatic disease among psychiatric patients. The links between individual and organizational levels could be strengthened by introducing professional contacts, such as liaison physicians and case managers. This is also important to reduce stress and responsibility among relatives.
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Literature
1.
go back to reference Janssen EM, McGinty EE, Azrin ST, Juliano-Bult D, Daumit GL. Review of the evidence: prevalence of medical conditions in the United States population with serious mental illness. Gen Hosp Psychiatry. 2015;37:199–222.CrossRefPubMedPubMedCentral Janssen EM, McGinty EE, Azrin ST, Juliano-Bult D, Daumit GL. Review of the evidence: prevalence of medical conditions in the United States population with serious mental illness. Gen Hosp Psychiatry. 2015;37:199–222.CrossRefPubMedPubMedCentral
2.
go back to reference Vancampfort D, Wampers M, Mitchell AJ, Correll CU, De Herdt A, Probst M, De Hert M. A meta-analysis of cardio-metabolic abnormalities in drug naive, first-episode and multi-episode patients with schizophrenia versus general population controls. World Psychiatry. 2013;12:240–50.CrossRefPubMedPubMedCentral Vancampfort D, Wampers M, Mitchell AJ, Correll CU, De Herdt A, Probst M, De Hert M. A meta-analysis of cardio-metabolic abnormalities in drug naive, first-episode and multi-episode patients with schizophrenia versus general population controls. World Psychiatry. 2013;12:240–50.CrossRefPubMedPubMedCentral
3.
go back to reference Scott D, Happell B. The high prevalence of poor physical health and unhealthy lifestyle behaviours in individuals with severe mental illness. Issues Ment Health Nurs. 2011;32:589–97.CrossRefPubMed Scott D, Happell B. The high prevalence of poor physical health and unhealthy lifestyle behaviours in individuals with severe mental illness. Issues Ment Health Nurs. 2011;32:589–97.CrossRefPubMed
4.
go back to reference Druss BG, Zhao L, Von Esenwein S, Morrato EH, Marcus SC. Understanding excess mortality in persons with mental illness: 17-year follow up of a nationally representative US survey. Med Care. 2011;49:599–604.CrossRefPubMed Druss BG, Zhao L, Von Esenwein S, Morrato EH, Marcus SC. Understanding excess mortality in persons with mental illness: 17-year follow up of a nationally representative US survey. Med Care. 2011;49:599–604.CrossRefPubMed
5.
go back to reference Vancampfort D, Stubbs B, Mitchell AJ, De Hert M, Wampers M, Ward PB, Rosenbaum S, Correll CU. Risk of metabolic syndrome and its components in people with schizophrenia and related psychotic disorders, bipolar disorder and major depressive disorder: a systematic review and meta-analysis. World Psychiatry. 2015;14:339–47.CrossRefPubMedPubMedCentral Vancampfort D, Stubbs B, Mitchell AJ, De Hert M, Wampers M, Ward PB, Rosenbaum S, Correll CU. Risk of metabolic syndrome and its components in people with schizophrenia and related psychotic disorders, bipolar disorder and major depressive disorder: a systematic review and meta-analysis. World Psychiatry. 2015;14:339–47.CrossRefPubMedPubMedCentral
6.
go back to reference Henderson DC, Vincenzi B, Andrea NV, Ulloa M, Copeland PM. Pathophysiological mechanisms of increased cardiometabolic risk in people with schizophrenia and other severe mental illnesses. Lancet Psychiatry. 2015;2:452–64.CrossRefPubMed Henderson DC, Vincenzi B, Andrea NV, Ulloa M, Copeland PM. Pathophysiological mechanisms of increased cardiometabolic risk in people with schizophrenia and other severe mental illnesses. Lancet Psychiatry. 2015;2:452–64.CrossRefPubMed
7.
8.
go back to reference Smith DJ, Martin D, McLean G, Langan J, Guthrie B, Mercer SW. Multimorbidity in bipolar disorder and undertreatment of cardiovascular disease: a cross sectional study. BMC Med. 2013;11:263.CrossRefPubMedPubMedCentral Smith DJ, Martin D, McLean G, Langan J, Guthrie B, Mercer SW. Multimorbidity in bipolar disorder and undertreatment of cardiovascular disease: a cross sectional study. BMC Med. 2013;11:263.CrossRefPubMedPubMedCentral
10.
go back to reference Groenkjaer M, de Crespigny C, Liu D, Moss J, Cairney I, Lee D, Procter N, Galletly C. "The chicken or the egg": barriers and facilitators to collaborative Care for People with Comorbidity in a metropolitan region of South Australia. Issues Ment Health Nurs. 2016;38(1):18–24. Groenkjaer M, de Crespigny C, Liu D, Moss J, Cairney I, Lee D, Procter N, Galletly C. "The chicken or the egg": barriers and facilitators to collaborative Care for People with Comorbidity in a metropolitan region of South Australia. Issues Ment Health Nurs. 2016;38(1):18–24.
11.
go back to reference Levinson Miller C, Druss BG, Dombrowski EA, Rosenheck RA. Barriers to primary medical care among patients at a community mental health center. Psychiatr Serv. 2003;54:1158–60.CrossRefPubMed Levinson Miller C, Druss BG, Dombrowski EA, Rosenheck RA. Barriers to primary medical care among patients at a community mental health center. Psychiatr Serv. 2003;54:1158–60.CrossRefPubMed
12.
go back to reference Loeb DF, Bayliss EA, Candrian C, deGruy FV, Binswanger IA. Primary care providers' experiences caring for complex patients in primary care: a qualitative study. BMC Fam Pract. 2016;17:34.CrossRefPubMedPubMedCentral Loeb DF, Bayliss EA, Candrian C, deGruy FV, Binswanger IA. Primary care providers' experiences caring for complex patients in primary care: a qualitative study. BMC Fam Pract. 2016;17:34.CrossRefPubMedPubMedCentral
13.
go back to reference De Hert M, Cohen D, Bobes J, Cetkovich-Bakmas M, Leucht S, Ndetei DM, Newcomer JW, Uwakwe R, Asai I, Moller HJ, et al. Physical illness in patients with severe mental disorders. II. Barriers to care, monitoring and treatment guidelines, plus recommendations at the system and individual level. World Psychiatry. 2011;10:138–51.CrossRefPubMedPubMedCentral De Hert M, Cohen D, Bobes J, Cetkovich-Bakmas M, Leucht S, Ndetei DM, Newcomer JW, Uwakwe R, Asai I, Moller HJ, et al. Physical illness in patients with severe mental disorders. II. Barriers to care, monitoring and treatment guidelines, plus recommendations at the system and individual level. World Psychiatry. 2011;10:138–51.CrossRefPubMedPubMedCentral
14.
go back to reference Happell B, Scott D, Platania-Phung C. Perceptions of barriers to physical health care for people with serious mental illness: a review of the international literature. Issues Ment Health Nurs. 2012;33:752–61.CrossRefPubMed Happell B, Scott D, Platania-Phung C. Perceptions of barriers to physical health care for people with serious mental illness: a review of the international literature. Issues Ment Health Nurs. 2012;33:752–61.CrossRefPubMed
15.
go back to reference Ross LE, Vigod S, Wishart J, Waese M, Spence JD, Oliver J, Chambers J, Anderson S, Shields R. Barriers and facilitators to primary care for people with mental health and/or substance use issues: a qualitative study. BMC Fam Pract. 2015;16:135.CrossRefPubMedPubMedCentral Ross LE, Vigod S, Wishart J, Waese M, Spence JD, Oliver J, Chambers J, Anderson S, Shields R. Barriers and facilitators to primary care for people with mental health and/or substance use issues: a qualitative study. BMC Fam Pract. 2015;16:135.CrossRefPubMedPubMedCentral
16.
go back to reference Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4:50.CrossRefPubMedPubMedCentral Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4:50.CrossRefPubMedPubMedCentral
17.
go back to reference Kvale S. Interviews. Thousand Oaks: Sage; 1996. Kvale S. Interviews. Thousand Oaks: Sage; 1996.
18.
go back to reference Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–57.CrossRefPubMed Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–57.CrossRefPubMed
20.
go back to reference Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24:105–12.CrossRefPubMed Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24:105–12.CrossRefPubMed
22.
go back to reference Farmer C, Fenu E, O'Flynn N, Guthrie B. Clinical assessment and management of multimorbidity: summary of NICE guidance. BMJ. 2016;354:i4843.CrossRefPubMed Farmer C, Fenu E, O'Flynn N, Guthrie B. Clinical assessment and management of multimorbidity: summary of NICE guidance. BMJ. 2016;354:i4843.CrossRefPubMed
23.
go back to reference Picco L, Pang S, Lau YW, Jeyagurunathan A, Satghare P, Abdin E, Vaingankar JA, Lim S, Poh CL, Chong SA, Subramaniam M. Internalized stigma among psychiatric outpatients: associations with quality of life, functioning, hope and self-esteem. Psychiatry Res. 2016;246:500–6.CrossRefPubMed Picco L, Pang S, Lau YW, Jeyagurunathan A, Satghare P, Abdin E, Vaingankar JA, Lim S, Poh CL, Chong SA, Subramaniam M. Internalized stigma among psychiatric outpatients: associations with quality of life, functioning, hope and self-esteem. Psychiatry Res. 2016;246:500–6.CrossRefPubMed
24.
go back to reference Livingston JD, Boyd JE. Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med. 2010;71:2150–61.CrossRefPubMed Livingston JD, Boyd JE. Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med. 2010;71:2150–61.CrossRefPubMed
25.
go back to reference Lundberg B, Hansson L, Wentz E, Bjorkman T. Are stigma experiences among persons with mental illness, related to perceptions of self-esteem, empowerment and sense of coherence? J Psychiatr Ment Health Nurs. 2009;16:516–22.CrossRefPubMed Lundberg B, Hansson L, Wentz E, Bjorkman T. Are stigma experiences among persons with mental illness, related to perceptions of self-esteem, empowerment and sense of coherence? J Psychiatr Ment Health Nurs. 2009;16:516–22.CrossRefPubMed
26.
go back to reference Corrigan PW, Watson AC. Understanding the impact of stigma on people with mental illness. World Psychiatry. 2002;1:16–20.PubMedPubMedCentral Corrigan PW, Watson AC. Understanding the impact of stigma on people with mental illness. World Psychiatry. 2002;1:16–20.PubMedPubMedCentral
27.
go back to reference Coventry P, Lovell K, Dickens C, Bower P, Chew-Graham C, McElvenny D, Hann M, Cherrington A, Garrett C, Gibbons CJ, et al. Integrated primary care for patients with mental and physical multimorbidity: cluster randomised controlled trial of collaborative care for patients with depression comorbid with diabetes or cardiovascular disease. BMJ. 2015;350:h638.CrossRefPubMedPubMedCentral Coventry P, Lovell K, Dickens C, Bower P, Chew-Graham C, McElvenny D, Hann M, Cherrington A, Garrett C, Gibbons CJ, et al. Integrated primary care for patients with mental and physical multimorbidity: cluster randomised controlled trial of collaborative care for patients with depression comorbid with diabetes or cardiovascular disease. BMJ. 2015;350:h638.CrossRefPubMedPubMedCentral
28.
go back to reference Royal College of Psychiatrists: Improving the physical health of adults with severe mental illness: essential actions Working Group for Improving the Physical Health of People with SMI; 2016. Royal College of Psychiatrists: Improving the physical health of adults with severe mental illness: essential actions Working Group for Improving the Physical Health of People with SMI; 2016.
29.
go back to reference Joseph-Williams N, Elwyn G, Edwards A. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns. 2014;94:291–309.CrossRefPubMed Joseph-Williams N, Elwyn G, Edwards A. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns. 2014;94:291–309.CrossRefPubMed
30.
go back to reference Rusner M, Carlsson G, Brunt D, Nystrom M. A dependence that empowers: the meaning of the conditions that enable a good life with bipolar disorder. Int J Qual Stud Health Well-being. 2010;5 Rusner M, Carlsson G, Brunt D, Nystrom M. A dependence that empowers: the meaning of the conditions that enable a good life with bipolar disorder. Int J Qual Stud Health Well-being. 2010;5
31.
go back to reference Creswell JW. Research design: qualitative, quantitative, and mixed methods approaches. Sage cop: Thousand Oaks; 2009. Creswell JW. Research design: qualitative, quantitative, and mixed methods approaches. Sage cop: Thousand Oaks; 2009.
Metadata
Title
Access to primary and specialized somatic health care for persons with severe mental illness: a qualitative study of perceived barriers and facilitators in Swedish health care
Authors
Elisabeth Björk Brämberg
Jarl Torgerson
Anna Norman Kjellström
Peder Welin
Marie Rusner
Publication date
01-12-2018
Publisher
BioMed Central
Published in
BMC Primary Care / Issue 1/2018
Electronic ISSN: 2731-4553
DOI
https://doi.org/10.1186/s12875-017-0687-0

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