Skip to main content
Top
Published in: Alzheimer's Research & Therapy 1/2014

Open Access 01-02-2014 | Research

A controlled trial of Partners in Dementia Care: veteran outcomes after six and twelve months

Authors: David M Bass, Katherine S Judge, ALynn Snow, Nancy L Wilson, Robert O Morgan, Katie Maslow, Ronda Randazzo, Jennifer A Moye, Germaine L Odenheimer, Elizabeth Archambault, Richard Elbein, Paul Pirraglia, Thomas A Teasdale, Catherine A McCarthy, Wendy J Looman, Mark E Kunik

Published in: Alzheimer's Research & Therapy | Issue 1/2014

Login to get access

Abstract

Introduction

“Partners in Dementia Care” (PDC) tested the effectiveness of a care-coordination program integrating healthcare and community services and supporting veterans with dementia and their caregivers. Delivered via partnerships between Veterans Affairs medical centers and Alzheimer’s Association chapters, PDC targeted both patients and caregivers, distinguishing it from many non-pharmacological interventions. Hypotheses posited PDC would improve five veteran self-reported outcomes: 1) unmet need, 2) embarrassment about memory problems, 3) isolation, 4) relationship strain and 5) depression. Greater impact was expected for more impaired veterans. A unique feature was self-reported research data collected from veterans with dementia.

Methods and Findings

Five matched communities were study sites. Two randomly selected sites received PDC for 12 months; comparison sites received usual care. Three structured telephone interviews were completed every 6 months with veterans who could participate.

Results

Of 508 consenting veterans, 333 (65.6%) completed baseline interviews. Among those who completed baseline interviews, 263 (79.0%) completed 6-month follow-ups and 194 (58.3%) completed 12-month follow-ups. Regression analyses showed PDC veterans had significantly less adverse outcomes than those receiving usual care, particularly for more impaired veterans after 6 months, including reduced relationship strain (B = −0.09; p = 0.05), depression (B = −0.10; p = 0.03), and unmet need (B = −0.28; p = 0.02; and B = −0.52; p = 0.08). PDC veterans also had less embarrassment about memory problems (B = −0.24; p = 0.08). At 12 months, more impaired veterans had further reductions in unmet need (B = −0.96; p < 0.01) and embarrassment (B = −0.05; p = 0.02). Limitations included use of matched comparison sites rather than within-site randomization and lack of consideration for variation within the PDC group in amounts and types of assistance provided.

Conclusions

Partnerships between community and health organizations have the potential to meet the dementia-related needs and improve the psychosocial functioning of persons with dementia.

Trial Registry

Appendix
Available only for authorised users
Literature
1.
go back to reference Office of Assistant Deputy Under-Secretary for Health: Projections of the Prevalence and Incidence of Dementias Including Alzheimer's Disease for the Total, Enrolled, and Patient Veteran Populations Age 65 and Over. 2004, Washington, DC: Department of Veterans Affairs Office of Assistant Deputy Under-Secretary for Health: Projections of the Prevalence and Incidence of Dementias Including Alzheimer's Disease for the Total, Enrolled, and Patient Veteran Populations Age 65 and Over. 2004, Washington, DC: Department of Veterans Affairs
2.
go back to reference Sheets CJ, Mahoney-Gleason H: Caregiver support in the Veterans Health Administration: caring for those who care. Generations. 2010, 34: 92-98. Sheets CJ, Mahoney-Gleason H: Caregiver support in the Veterans Health Administration: caring for those who care. Generations. 2010, 34: 92-98.
3.
go back to reference US Congress: Senate. 111th Congress, 2nd Session: Caregivers and Veterans Omnibus Health Services Act of 2010. 2010, Washington, DC: GPO US Congress: Senate. 111th Congress, 2nd Session: Caregivers and Veterans Omnibus Health Services Act of 2010. 2010, Washington, DC: GPO
4.
go back to reference Cooley SG, Asthana S: Dementia care for veterans: enhancing comprehensive, coordinated services. Generations. 2010, 34: 57-63. Cooley SG, Asthana S: Dementia care for veterans: enhancing comprehensive, coordinated services. Generations. 2010, 34: 57-63.
6.
go back to reference Bass DM, Clark PA, Looman WJ, McCarthy CA, Eckert S: The Cleveland Alzheimer's managed care demonstration: outcomes after 12 months of implementation. Gerontologist. 2002, 43: 73-85.CrossRef Bass DM, Clark PA, Looman WJ, McCarthy CA, Eckert S: The Cleveland Alzheimer's managed care demonstration: outcomes after 12 months of implementation. Gerontologist. 2002, 43: 73-85.CrossRef
8.
go back to reference US Administration on Aging (2009) Alzheimer’s Disease Supportive Services Program: Evidence-based cooperative agreements to better serve people with Alzheimer’s disease and related disorders. OMB Approval No. 0985–0018 US Administration on Aging (2009) Alzheimer’s Disease Supportive Services Program: Evidence-based cooperative agreements to better serve people with Alzheimer’s disease and related disorders. OMB Approval No. 0985–0018
9.
go back to reference Eloniemi-Sulkava U, Saarenheimo M, Laakkonen ML, Pietilä M, Savikko N, Kautiainen H, Tilvis RS, Pitkälä KH: Family care as collaboration: effectiveness of a multicomponent support program for elderly couples with dementia. Randomized controlled intervention study. J Am Geriatr Soc. 2009, 57: 2200-2208. 10.1111/j.1532-5415.2009.02564.x.CrossRefPubMed Eloniemi-Sulkava U, Saarenheimo M, Laakkonen ML, Pietilä M, Savikko N, Kautiainen H, Tilvis RS, Pitkälä KH: Family care as collaboration: effectiveness of a multicomponent support program for elderly couples with dementia. Randomized controlled intervention study. J Am Geriatr Soc. 2009, 57: 2200-2208. 10.1111/j.1532-5415.2009.02564.x.CrossRefPubMed
10.
go back to reference Maslow K, Selstad J: Chronic care networks for Alzheimer’s disease: approaches for involving and supporting family caregivers in an innovative model of dementia care. Alzheimers Care Q. 2001, 2: 33-46. Maslow K, Selstad J: Chronic care networks for Alzheimer’s disease: approaches for involving and supporting family caregivers in an innovative model of dementia care. Alzheimers Care Q. 2001, 2: 33-46.
11.
go back to reference Garlo K, O’Leary JR, Van Ness PH, Fried TR: Burden in caregivers of older adults with advance illness. J Am Geriatr Soc. 2010, 58: 2315-2322. 10.1111/j.1532-5415.2010.03177.x.PubMedCentralCrossRefPubMed Garlo K, O’Leary JR, Van Ness PH, Fried TR: Burden in caregivers of older adults with advance illness. J Am Geriatr Soc. 2010, 58: 2315-2322. 10.1111/j.1532-5415.2010.03177.x.PubMedCentralCrossRefPubMed
12.
go back to reference Shay K, Burris JF: Setting the stage for a new strategic plan for geriatrics and extended care in the Veterans Health Administration: summary of the 2008 VA State of the Art Conference, “The changing faces of geriatrics and extended care: meeting the needs of veterans in the next decade”. J Am Geriatr Soc. 2008, 56: 2330-2339. 10.1111/j.1532-5415.2008.02079.x.CrossRefPubMed Shay K, Burris JF: Setting the stage for a new strategic plan for geriatrics and extended care in the Veterans Health Administration: summary of the 2008 VA State of the Art Conference, “The changing faces of geriatrics and extended care: meeting the needs of veterans in the next decade”. J Am Geriatr Soc. 2008, 56: 2330-2339. 10.1111/j.1532-5415.2008.02079.x.CrossRefPubMed
13.
go back to reference Bernabei R, Landi F, Gambassi G, Sqadan A, Zuccala G, Mor V, Rubenstein LZ, Carbonin P: Randomised trial of impact of model of integrated care and case management for older people living in the community. BMJ. 1998, 316: 1348-1351. 10.1136/bmj.316.7141.1348.PubMedCentralCrossRefPubMed Bernabei R, Landi F, Gambassi G, Sqadan A, Zuccala G, Mor V, Rubenstein LZ, Carbonin P: Randomised trial of impact of model of integrated care and case management for older people living in the community. BMJ. 1998, 316: 1348-1351. 10.1136/bmj.316.7141.1348.PubMedCentralCrossRefPubMed
14.
go back to reference Czaja SJ, Gitlin LN, Schulz R, Zhang S, Burgio LD, Stevens AB, Nichols LO, Gallagher-Thompson D: Development of the risk appraisal measure (RAM): a brief screen to identify risk areas and guide interventions for dementia caregivers. J Am Geriatr Soc. 2009, 57: 1064-1072. 10.1111/j.1532-5415.2009.02260.x.PubMedCentralCrossRefPubMed Czaja SJ, Gitlin LN, Schulz R, Zhang S, Burgio LD, Stevens AB, Nichols LO, Gallagher-Thompson D: Development of the risk appraisal measure (RAM): a brief screen to identify risk areas and guide interventions for dementia caregivers. J Am Geriatr Soc. 2009, 57: 1064-1072. 10.1111/j.1532-5415.2009.02260.x.PubMedCentralCrossRefPubMed
15.
go back to reference Hepburn KW, Tornatore J, Center B, Ostwald SW: Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes. J Am Geriatr Soc. 2001, 49: 450-457. 10.1046/j.1532-5415.2001.49090.x.CrossRefPubMed Hepburn KW, Tornatore J, Center B, Ostwald SW: Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes. J Am Geriatr Soc. 2001, 49: 450-457. 10.1046/j.1532-5415.2001.49090.x.CrossRefPubMed
16.
go back to reference Sink KM, Covinsky KE, Barnes DE, Newcomer RJ, Yaffe K: Caregiver characteristics are associated with neuropsychiatric symptoms of dementia. J Am Geriatr Soc. 2006, 54: 796-803. 10.1111/j.1532-5415.2006.00697.x.CrossRefPubMed Sink KM, Covinsky KE, Barnes DE, Newcomer RJ, Yaffe K: Caregiver characteristics are associated with neuropsychiatric symptoms of dementia. J Am Geriatr Soc. 2006, 54: 796-803. 10.1111/j.1532-5415.2006.00697.x.CrossRefPubMed
17.
go back to reference Coon DW, Williams MP, Moore RJ, Edgerly ES, Steinbach CM, Roth SP, Phillips CL, Nguyen H, Dowling GA, Dunning EA, Feigenbaum LZ: The Northern California Chronic Care Network for Dementia. J Am Geriatr Soc. 2004, 52: 150-156. 10.1111/j.1532-5415.2004.52026.x.CrossRefPubMed Coon DW, Williams MP, Moore RJ, Edgerly ES, Steinbach CM, Roth SP, Phillips CL, Nguyen H, Dowling GA, Dunning EA, Feigenbaum LZ: The Northern California Chronic Care Network for Dementia. J Am Geriatr Soc. 2004, 52: 150-156. 10.1111/j.1532-5415.2004.52026.x.CrossRefPubMed
19.
go back to reference Schulz R, Cook TB, Beach SR, Lingler JH, Martire LM, Monin JK, Czaja SJ: Magnitude and causes of bias among family caregivers rating Alzheimer disease patients. Am J Geriatr Psychiatry. 2013, 21: 14-25. 10.1016/j.jagp.2012.10.002.CrossRefPubMed Schulz R, Cook TB, Beach SR, Lingler JH, Martire LM, Monin JK, Czaja SJ: Magnitude and causes of bias among family caregivers rating Alzheimer disease patients. Am J Geriatr Psychiatry. 2013, 21: 14-25. 10.1016/j.jagp.2012.10.002.CrossRefPubMed
20.
go back to reference Brod M, Steward AL, Sands L, Walton P: Conceptualization and measurement of quality of life in dementia: the Dementia Quality of Life Instrument (DDQoL). Gerontologist. 1999, 39: 25-35. 10.1093/geront/39.1.25.CrossRefPubMed Brod M, Steward AL, Sands L, Walton P: Conceptualization and measurement of quality of life in dementia: the Dementia Quality of Life Instrument (DDQoL). Gerontologist. 1999, 39: 25-35. 10.1093/geront/39.1.25.CrossRefPubMed
21.
go back to reference Pearlin LI, Mullan JT, Semple SJ, Skaff MM: Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990, 30: 583-594. 10.1093/geront/30.5.583.CrossRefPubMed Pearlin LI, Mullan JT, Semple SJ, Skaff MM: Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990, 30: 583-594. 10.1093/geront/30.5.583.CrossRefPubMed
22.
go back to reference Anehensel CS, Pearlin LI, Mullan JT, Zarit SH, Whitlatch CJ: Profiles of Caregiving: The Unexpected Career. 1995, New York: Academic Anehensel CS, Pearlin LI, Mullan JT, Zarit SH, Whitlatch CJ: Profiles of Caregiving: The Unexpected Career. 1995, New York: Academic
23.
24.
go back to reference Lin N: Modeling the effects of social support. Social Support, Life Events, and Depression. Edited by: Lin N, Dean A, Ensel W. 1986, Orlando, FL: Academic, 173-209.CrossRef Lin N: Modeling the effects of social support. Social Support, Life Events, and Depression. Edited by: Lin N, Dean A, Ensel W. 1986, Orlando, FL: Academic, 173-209.CrossRef
25.
go back to reference Bass DM, McClendon MJ, Brennan PF, McCarthy C: The buffering effect of a computer support network on caregiver strain. J Aging Health. 1998, 10: 20-43. 10.1177/089826439801000102.CrossRefPubMed Bass DM, McClendon MJ, Brennan PF, McCarthy C: The buffering effect of a computer support network on caregiver strain. J Aging Health. 1998, 10: 20-43. 10.1177/089826439801000102.CrossRefPubMed
26.
go back to reference Katzman R, Brown T, Fuld P, Peck A, Schechter R, Schimmel H: Validation of a short Orientation-Memory-Concentration test of cognitive impairment. Am J Psychiatry. 1983, 140: 734-739.CrossRefPubMed Katzman R, Brown T, Fuld P, Peck A, Schechter R, Schimmel H: Validation of a short Orientation-Memory-Concentration test of cognitive impairment. Am J Psychiatry. 1983, 140: 734-739.CrossRefPubMed
27.
go back to reference US Department of Health and Human Services: Early Identification of Alzheimer’s Disease and Related Dementias. 1996, Agency for Health Care Policy and Research Publication No. 97–0703 US Department of Health and Human Services: Early Identification of Alzheimer’s Disease and Related Dementias. 1996, Agency for Health Care Policy and Research Publication No. 97–0703
28.
go back to reference Judge KS, Bass DM, Snow AL, Wilson NL, Morgan R, Looman WJ, McCarthy C, Kunik ME: Partners in Dementia Care: a care coordination intervention for individuals with dementia and their family caregivers. Gerontologist. 2011, 51: 261-272. 10.1093/geront/gnq097.CrossRefPubMed Judge KS, Bass DM, Snow AL, Wilson NL, Morgan R, Looman WJ, McCarthy C, Kunik ME: Partners in Dementia Care: a care coordination intervention for individuals with dementia and their family caregivers. Gerontologist. 2011, 51: 261-272. 10.1093/geront/gnq097.CrossRefPubMed
29.
go back to reference Krestar ML, Loman W, Powers S, Dawson S, Judge KS: Including individuals with memory impairment in the research process: the importance of scales and response categories used in surveys. J Empir Res Hum Res Ethics. 2012, 7: 70-79. 10.1525/jer.2012.7.2.70.CrossRefPubMed Krestar ML, Loman W, Powers S, Dawson S, Judge KS: Including individuals with memory impairment in the research process: the importance of scales and response categories used in surveys. J Empir Res Hum Res Ethics. 2012, 7: 70-79. 10.1525/jer.2012.7.2.70.CrossRefPubMed
30.
go back to reference Clark PA, Bass DM, Looman WJ, McCarthy CA, Eckert S: Outcomes for patients with dementia from the Cleveland Alzheimer’s managed care demonstration. J Aging Ment Health. 2004, 8: 40-51. 10.1080/13607860310001613329.CrossRef Clark PA, Bass DM, Looman WJ, McCarthy CA, Eckert S: Outcomes for patients with dementia from the Cleveland Alzheimer’s managed care demonstration. J Aging Ment Health. 2004, 8: 40-51. 10.1080/13607860310001613329.CrossRef
31.
go back to reference Bass DM, McClendon MJ, Deimling GT, Mukherjee S: The influence of diagnosed mental impairment on family caregiver strain. J Gerontol. 1994, 49: S146-S155. 10.1093/geronj/49.3.S146.CrossRefPubMed Bass DM, McClendon MJ, Deimling GT, Mukherjee S: The influence of diagnosed mental impairment on family caregiver strain. J Gerontol. 1994, 49: S146-S155. 10.1093/geronj/49.3.S146.CrossRefPubMed
32.
go back to reference Kohout FJ, Berkman LF, Evans DA, Cornoni-Huntley J: Two shorter forms of the CES-D (Center for Epidemiological Studies Depression) depression symptoms index. J Aging Health. 1993, 5: 179-193. 10.1177/089826439300500202.CrossRefPubMed Kohout FJ, Berkman LF, Evans DA, Cornoni-Huntley J: Two shorter forms of the CES-D (Center for Epidemiological Studies Depression) depression symptoms index. J Aging Health. 1993, 5: 179-193. 10.1177/089826439300500202.CrossRefPubMed
33.
go back to reference Lawton MP, Brody EM: Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969, 9: 179-186. 10.1093/geront/9.3_Part_1.179.CrossRefPubMed Lawton MP, Brody EM: Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969, 9: 179-186. 10.1093/geront/9.3_Part_1.179.CrossRefPubMed
34.
go back to reference McClendon M: Multiple Regression and Causal Analysis. 1994, Waveland: Prospect Heights, IL McClendon M: Multiple Regression and Causal Analysis. 1994, Waveland: Prospect Heights, IL
35.
go back to reference Cohen J, Cohen P: Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences. 1975, Mahwah, NJ: Lawrence Erlbaum Cohen J, Cohen P: Applied Multiple Regression/Correlation Analysis for the Behavioral Sciences. 1975, Mahwah, NJ: Lawrence Erlbaum
36.
go back to reference Dawson NT, Powers SM, Krestar M, Yarry SJ, Judge KS: Predictors of self-reported psychosocial outcomes in individuals with dementia. Gerontologist. 2013, 53: 748-757. 10.1093/geront/gns137.PubMedCentralCrossRefPubMed Dawson NT, Powers SM, Krestar M, Yarry SJ, Judge KS: Predictors of self-reported psychosocial outcomes in individuals with dementia. Gerontologist. 2013, 53: 748-757. 10.1093/geront/gns137.PubMedCentralCrossRefPubMed
37.
go back to reference Reed P, Bluethmann S: Voices of Alzheimer’s Disease: A Summary Report on the Nationwide Town Hall Meetings for People with Early Stage Dementia. 2008, Chicago: Alzheimer’s Association Reed P, Bluethmann S: Voices of Alzheimer’s Disease: A Summary Report on the Nationwide Town Hall Meetings for People with Early Stage Dementia. 2008, Chicago: Alzheimer’s Association
40.
go back to reference Bass DM, Judge KS: Challenges implementing evidence-based programs. Generations. 2010, 34: 51-58. Bass DM, Judge KS: Challenges implementing evidence-based programs. Generations. 2010, 34: 51-58.
Metadata
Title
A controlled trial of Partners in Dementia Care: veteran outcomes after six and twelve months
Authors
David M Bass
Katherine S Judge
ALynn Snow
Nancy L Wilson
Robert O Morgan
Katie Maslow
Ronda Randazzo
Jennifer A Moye
Germaine L Odenheimer
Elizabeth Archambault
Richard Elbein
Paul Pirraglia
Thomas A Teasdale
Catherine A McCarthy
Wendy J Looman
Mark E Kunik
Publication date
01-02-2014
Publisher
BioMed Central
Published in
Alzheimer's Research & Therapy / Issue 1/2014
Electronic ISSN: 1758-9193
DOI
https://doi.org/10.1186/alzrt242

Other articles of this Issue 1/2014

Alzheimer's Research & Therapy 1/2014 Go to the issue