Published in:
Open Access
01-12-2014 | Poster presentation
E-learning course for Norwegian caregivers
Author:
Gro Trae
Published in:
Orphanet Journal of Rare Diseases
|
Special Issue 1/2014
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Excerpt
Frambu Resource Centre for Rare Disorders in Norway has registered 140 persons with Prader-Willi Syndrome (PWS), and often receives inquiries on telephone and e-mail about different aspects concerning this group. Frambu offer local guidance and courses at Frambu, but with limited time resources for local guidance, as well as limited possibilities for local caregivers to participate in courses at Frambu, we found it necessary to distend our competence services for this group. …