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Open Access 01-12-2014 | Oral presentation

Towards a European platform for Rare Diseases Registries

Author: Ciarán Nicholl

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

The Joint Research Centre (JRC) is a Directorate-General (DG) of the European Commission (EC), it was established in 1957 and its mission is to provide independent, evidence-based scientific and technical support throughout the EU policy cycle. Health is a key European policy area and research on Rare Diseases (RD) is identified as a priority in both the Commission Communication on RD: Europe's challenges COMM (2008) 679 final and the Council Recommendation on an action in the field of RD (2009/C 151/02). …

Title: Towards a European platform for Rare Diseases Registries
Author: Ciarán Nicholl
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O6

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