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Open Access 01-12-2014 | Oral presentation

European Network of Rare Disease Help Lines (ENRDHLs) – caller profile analysis 2013

Authors: Georgi Iskrov, François Houÿez

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

Generation and dissemination of information has been a crucial area for actions in the field of rare diseases. In this context, rare disease patients and their experience are recognised as a unique source of information that could trigger important developments for all stakeholders. …

Title: European Network of Rare Disease Help Lines (ENRDHLs) – caller profile analysis 2013
Authors: Georgi Iskrov
François Houÿez
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O13

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

European Network of Rare Disease Help Lines (ENRDHLs) – caller profile analysis 2013

Excerpt

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Excerpt

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