Top

Published in:

Open Access 01-10-2010 | Oral presentation

The present situation of Rare Diseases in Central/Eastern Europe? The role of patient organisations

Author: Gabor Pogany

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2010

Excerpt

Our goal was to introduce the limited available comparative data to characterise the situation in Central/Eastern Europe in the field of rare diseases. We collected the most important observations of current international surveys which were performed with or without the involvement of member associations of EURORDIS. …

Title: The present situation of Rare Diseases in Central/Eastern Europe? The role of patient organisations
Author: Gabor Pogany
Publication date: 01-10-2010
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2010
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-5-S1-O30

Keynote webinar | Spotlight on medication adherence

Springer Medicine

The present situation of Rare Diseases in Central/Eastern Europe? The role of patient organisations

Excerpt

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Excerpt

Please log in to get access to this content

Other articles of this Special Issue 1/2010

Cross-border health care represents a key issue in the field of rare diseases

The impact of a small parental network: how 11q improved research, knowledge, contacts and support

Comparative demographics of the European Cystic Fibrosis population: does EU membership confer an advantage?

How a motivation programme can affect complex treatment compliance in a rare disease? Results of a questionnaire-based, self-reported study to evaluate “Life Club CF”, a programme intended for patients with cystic fibrosis

The German plan for rare diseases: a development in progress

Living with Progeria