Skip to main content
Top
Published in: Implementation Science 1/2013

Open Access 01-12-2013 | Research

Patchy ‘coherence’: using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC)

Authors: Amy Lloyd, Natalie Joseph-Williams, Adrian Edwards, Andrew Rix, Glyn Elwyn

Published in: Implementation Science | Issue 1/2013

Login to get access

Abstract

Background

Implementing shared decision making into routine practice is proving difficult, despite considerable interest from policy-makers, and is far more complex than merely making decision support interventions available to patients. Few have reported successful implementation beyond research studies. MAking Good Decisions In Collaboration (MAGIC) is a multi-faceted implementation program, commissioned by The Health Foundation (UK), to examine how best to put shared decision making into routine practice. In this paper, we investigate healthcare professionals’ perspectives on implementing shared decision making during the MAGIC program, to examine the work required to implement shared decision making and to inform future efforts.

Methods

The MAGIC program approached implementation of shared decision making by initiating a range of interventions including: providing workshops; facilitating development of brief decision support tools (Option Grids); initiating a patient activation campaign (‘Ask 3 Questions’); gathering feedback using Decision Quality Measures; providing clinical leads meetings, learning events, and feedback sessions; and obtaining executive board level support. At 9 and 15 months (May and November 2011), two rounds of semi-structured interviews were conducted with healthcare professionals in three secondary care teams to explore views on the impact of these interventions. Interview data were coded by two reviewers using a framework derived from the Normalization Process Theory.

Results

A total of 54 interviews were completed with 31 healthcare professionals. Partial implementation of shared decision making could be explained using the four components of the Normalization Process Theory: ‘coherence,’ ‘cognitive participation,’ ‘collective action,’ and ‘reflexive monitoring.’ Shared decision making was integrated into routine practice when clinical teams shared coherent views of role and purpose (‘coherence’). Shared decision making was facilitated when teams engaged in developing and delivering interventions (‘cognitive participation’), and when those interventions fit with existing skill sets and organizational priorities (‘collective action’) resulting in demonstrable improvements to practice (‘reflexive monitoring’). The implementation process uncovered diverse and conflicting attitudes toward shared decision making; ‘coherence’ was often missing.

Conclusions

The study showed that implementation of shared decision making is more complex than the delivery of patient decision support interventions to patients, a portrayal that often goes unquestioned. Normalizing shared decision making requires intensive work to ensure teams have a shared understanding of the purpose of involving patients in decisions, and undergo the attitudinal shifts that many health professionals feel are required when comprehension goes beyond initial interpretations. Divergent views on the value of engaging patients in decisions remain a significant barrier to implementation.
Literature
1.
go back to reference Are We There Yet? Case Studies of Implementing Patient Decision Support. Edited by: Elwyn G, Grande S, Godfrey M, Hoffer Gittell J, Collins V. 2013, Hanover, New Hampshire: The Dartmouth Center for Health Care Delivery Science and The Dartmouth Institute for Healthcare Policy and Clinical Practice Are We There Yet? Case Studies of Implementing Patient Decision Support. Edited by: Elwyn G, Grande S, Godfrey M, Hoffer Gittell J, Collins V. 2013, Hanover, New Hampshire: The Dartmouth Center for Health Care Delivery Science and The Dartmouth Institute for Healthcare Policy and Clinical Practice
2.
go back to reference Elwyn G, Coulter A, Laitner S, Walker E, Watson P, Thomson R: Implementing shared decision making in the NHS. Brit Med J. 2010, 341: c5146-10.1136/bmj.c5146.CrossRefPubMed Elwyn G, Coulter A, Laitner S, Walker E, Watson P, Thomson R: Implementing shared decision making in the NHS. Brit Med J. 2010, 341: c5146-10.1136/bmj.c5146.CrossRefPubMed
3.
4.
go back to reference Stacey D, Bennett C, Barry M, Col N, Eden K, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Légaré F, Thomson R: Decision aids for people facing health treatment or screening decisions. Cochrane Db Syst Rev. 2011, CD001431- Stacey D, Bennett C, Barry M, Col N, Eden K, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Légaré F, Thomson R: Decision aids for people facing health treatment or screening decisions. Cochrane Db Syst Rev. 2011, CD001431-
5.
go back to reference Légaré F, Witteman HO: Shared decision making: examining key elements and barriers to adoption into routine clinical practice. Health Affair. 2013, 32: 276-284. 10.1377/hlthaff.2012.1078.CrossRef Légaré F, Witteman HO: Shared decision making: examining key elements and barriers to adoption into routine clinical practice. Health Affair. 2013, 32: 276-284. 10.1377/hlthaff.2012.1078.CrossRef
6.
go back to reference Elwyn G, Scholl I, Tietbohl C, Mann M, Edwards A, Clay K, Légaré F, van der Weijden T, Lewis C, Wexler R, Frosch D: “Many miles to go …” A systematic review of the implementation of patient decision support interventions into routine clinical practice. BMC Med Inform Decis. 2013, In Press Elwyn G, Scholl I, Tietbohl C, Mann M, Edwards A, Clay K, Légaré F, van der Weijden T, Lewis C, Wexler R, Frosch D: “Many miles to go …” A systematic review of the implementation of patient decision support interventions into routine clinical practice. BMC Med Inform Decis. 2013, In Press
7.
go back to reference Légaré F, Ratté S, Gravel K, Graham ID: Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals’ perceptions. Patient Educ Couns. 2008, 73: 526-535. 10.1016/j.pec.2008.07.018.CrossRefPubMed Légaré F, Ratté S, Gravel K, Graham ID: Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals’ perceptions. Patient Educ Couns. 2008, 73: 526-535. 10.1016/j.pec.2008.07.018.CrossRefPubMed
8.
go back to reference Caldon L, Collins K, Reed M, Sivell S, Austoker J, Clements A, Patnick J, Elwyn G, BresDex Group: Clinicians’ concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Health Expect. 2010, 14: 133-146.CrossRefPubMed Caldon L, Collins K, Reed M, Sivell S, Austoker J, Clements A, Patnick J, Elwyn G, BresDex Group: Clinicians’ concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Health Expect. 2010, 14: 133-146.CrossRefPubMed
9.
go back to reference Lin GA, Halley M, Rendle KAS, Tietbohl C, May SG, Trujillo L, Frosch DL: An effort to spread decision aids in five california primary care practices yielded low distribution, highlighting hurdles. Health Affair. 2013, 32: 311-320. 10.1377/hlthaff.2012.1070.CrossRef Lin GA, Halley M, Rendle KAS, Tietbohl C, May SG, Trujillo L, Frosch DL: An effort to spread decision aids in five california primary care practices yielded low distribution, highlighting hurdles. Health Affair. 2013, 32: 311-320. 10.1377/hlthaff.2012.1070.CrossRef
10.
go back to reference Elwyn G, Légaré F, van der Weijden T, Edwards A, May C: Arduous implementation: does the Normalisation Process Model explain why it’s so difficult to embed decision support technologies for patients in routine clinical practice. Implement Sci. 2008, 3: 57-10.1186/1748-5908-3-57.CrossRefPubMedPubMedCentral Elwyn G, Légaré F, van der Weijden T, Edwards A, May C: Arduous implementation: does the Normalisation Process Model explain why it’s so difficult to embed decision support technologies for patients in routine clinical practice. Implement Sci. 2008, 3: 57-10.1186/1748-5908-3-57.CrossRefPubMedPubMedCentral
11.
go back to reference Langley GJ, Moen RD, Nolan KM, Nolan TW, Norman CL, Provost LP: The Improvement Guide: A Practical Approach to Enhancing Organization Performance. 2009, San Francisco, California: Josey-Bass, 2 Langley GJ, Moen RD, Nolan KM, Nolan TW, Norman CL, Provost LP: The Improvement Guide: A Practical Approach to Enhancing Organization Performance. 2009, San Francisco, California: Josey-Bass, 2
12.
go back to reference Elwyn G, Lloyd A, Joseph-Williams N, Cording E, Thomson R, Durand M-A, Edwards A: Option Grids: shared decision making made easier. Patient Educ Couns. 2013, 90: 207-212. 10.1016/j.pec.2012.06.036.CrossRefPubMed Elwyn G, Lloyd A, Joseph-Williams N, Cording E, Thomson R, Durand M-A, Edwards A: Option Grids: shared decision making made easier. Patient Educ Couns. 2013, 90: 207-212. 10.1016/j.pec.2012.06.036.CrossRefPubMed
14.
go back to reference Sepucha K, Ozanne E, Silvia K, Partridge A, Mulley AG: An approach to measuring the quality of breast cancer decisions. Patient Educ Couns. 2007, 65: 261-269. 10.1016/j.pec.2006.08.007.CrossRefPubMed Sepucha K, Ozanne E, Silvia K, Partridge A, Mulley AG: An approach to measuring the quality of breast cancer decisions. Patient Educ Couns. 2007, 65: 261-269. 10.1016/j.pec.2006.08.007.CrossRefPubMed
15.
go back to reference Shepherd H, Barratt A, Trevena L, McGeechan K, Care K, Epstein R, Butow P, Del Mar C, Entiwstle V, Tattersall M: Three simple questions to increase information about treatment options and patient involvement in healthcare consultations. Patient Educ Couns. 2011, 84: 379-385. 10.1016/j.pec.2011.07.022.CrossRefPubMed Shepherd H, Barratt A, Trevena L, McGeechan K, Care K, Epstein R, Butow P, Del Mar C, Entiwstle V, Tattersall M: Three simple questions to increase information about treatment options and patient involvement in healthcare consultations. Patient Educ Couns. 2011, 84: 379-385. 10.1016/j.pec.2011.07.022.CrossRefPubMed
17.
go back to reference Ritchie J, Spencer L: Qualitative data analysis for applied policy research. Analyzing Qualitative Data. Edited by: Bryman A, Burgess R. 1994, New York, New York: Routledge, 173-194.CrossRef Ritchie J, Spencer L: Qualitative data analysis for applied policy research. Analyzing Qualitative Data. Edited by: Bryman A, Burgess R. 1994, New York, New York: Routledge, 173-194.CrossRef
18.
go back to reference May C, Finch T: Implementing, embedding, and integrating practices: an outline of Normalization Process Theory. Sociology. 2009, 43: 535-554.CrossRef May C, Finch T: Implementing, embedding, and integrating practices: an outline of Normalization Process Theory. Sociology. 2009, 43: 535-554.CrossRef
19.
go back to reference Gallacher K, May CR, Montori VM, Mair FS: Understanding patients’ experiences of treatment burden in chronic heart failure using Normalization Process Theory. Ann Fam Med. 2011, 9: 235-243. 10.1370/afm.1249.CrossRefPubMedPubMedCentral Gallacher K, May CR, Montori VM, Mair FS: Understanding patients’ experiences of treatment burden in chronic heart failure using Normalization Process Theory. Ann Fam Med. 2011, 9: 235-243. 10.1370/afm.1249.CrossRefPubMedPubMedCentral
20.
go back to reference Macfarlane A, O’Reilly-de Brún M: Using a theory-driven conceptual framework in qualitative health research. Qual Health Res. 2012, 22: 607-618. 10.1177/1049732311431898.CrossRefPubMed Macfarlane A, O’Reilly-de Brún M: Using a theory-driven conceptual framework in qualitative health research. Qual Health Res. 2012, 22: 607-618. 10.1177/1049732311431898.CrossRefPubMed
21.
go back to reference Blakeman T, Bower P, Reeves D, Chew-Graham C: Bringing self-management into clinical view: a qualitative study of long-term condition management in primary care consultations. Chronic Illn. 2010, 6: 136-150. 10.1177/1742395309358333.CrossRefPubMed Blakeman T, Bower P, Reeves D, Chew-Graham C: Bringing self-management into clinical view: a qualitative study of long-term condition management in primary care consultations. Chronic Illn. 2010, 6: 136-150. 10.1177/1742395309358333.CrossRefPubMed
23.
go back to reference Protheroe J, Brooks H, Chew-Graham C, Gardner C, Rogers A: Permission to participate? A qualitative study of participation in patients from differing socio-economic backgrounds. J Health Psychol. 2013, 18: 1046-1055. 10.1177/1359105312459876.CrossRefPubMed Protheroe J, Brooks H, Chew-Graham C, Gardner C, Rogers A: Permission to participate? A qualitative study of participation in patients from differing socio-economic backgrounds. J Health Psychol. 2013, 18: 1046-1055. 10.1177/1359105312459876.CrossRefPubMed
24.
go back to reference Stacey D, Chambers SK, Jacobsen MJ, Dunn J: Professionals providing decision support for callers: an implementation study. Oncol Nurs Forum. 2008, 35: 961-969. 10.1188/08.ONF.961-969.CrossRefPubMed Stacey D, Chambers SK, Jacobsen MJ, Dunn J: Professionals providing decision support for callers: an implementation study. Oncol Nurs Forum. 2008, 35: 961-969. 10.1188/08.ONF.961-969.CrossRefPubMed
25.
go back to reference Feibelmann S, Yang TS, Uzogara EE, Sepucha K: What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative. Health Expect. 2011, 14 (Suppl 1): 85-95.CrossRefPubMed Feibelmann S, Yang TS, Uzogara EE, Sepucha K: What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative. Health Expect. 2011, 14 (Suppl 1): 85-95.CrossRefPubMed
26.
go back to reference Frosch DL, Singer KJ, Timmermans S: Conducting implementation research in community-based primary care: a qualitative study on integrating patient decision support interventions for cancer screening into routine practice. Health Expect. 2011, 14 (Suppl 1): 73-84.CrossRefPubMed Frosch DL, Singer KJ, Timmermans S: Conducting implementation research in community-based primary care: a qualitative study on integrating patient decision support interventions for cancer screening into routine practice. Health Expect. 2011, 14 (Suppl 1): 73-84.CrossRefPubMed
27.
go back to reference Silvia K, Ozanne E, Sepucha K: Implementing breast cancer decision aids in community sites: barriers and resources. Health Expect. 2008, 11: 46-53. 10.1111/j.1369-7625.2007.00477.x.CrossRefPubMed Silvia K, Ozanne E, Sepucha K: Implementing breast cancer decision aids in community sites: barriers and resources. Health Expect. 2008, 11: 46-53. 10.1111/j.1369-7625.2007.00477.x.CrossRefPubMed
28.
go back to reference Uy V, May SG, Tietbohl C, Frosch DL: Barriers and facilitators to routine distribution of patient decision support interventions: a preliminary study in community-based primary care settings. Health Expect. 012, Epub ahead of print Uy V, May SG, Tietbohl C, Frosch DL: Barriers and facilitators to routine distribution of patient decision support interventions: a preliminary study in community-based primary care settings. Health Expect. 012, Epub ahead of print
29.
go back to reference Holmes-Rovner MV, Valade D, Orlowski C, Draus C, Nabozny-Valerio B, Keiser S: Implementing shared decision-making in routine practice: barriers and opportunities. Health Expect. 2000, 3: 182-191. 10.1046/j.1369-6513.2000.00093.x.CrossRefPubMed Holmes-Rovner MV, Valade D, Orlowski C, Draus C, Nabozny-Valerio B, Keiser S: Implementing shared decision-making in routine practice: barriers and opportunities. Health Expect. 2000, 3: 182-191. 10.1046/j.1369-6513.2000.00093.x.CrossRefPubMed
30.
go back to reference Stapleton H, Kirkham M, Thomas G: Qualitative study of evidence based leaflets in maternity care. Brit Med J. 2002, 324: 639-642. 10.1136/bmj.324.7338.639.CrossRefPubMedPubMedCentral Stapleton H, Kirkham M, Thomas G: Qualitative study of evidence based leaflets in maternity care. Brit Med J. 2002, 324: 639-642. 10.1136/bmj.324.7338.639.CrossRefPubMedPubMedCentral
31.
go back to reference Silvia K, Sepucha K: Decision aids in routine practice: lessons from the breast cancer initiative. Health Expect. 2006, 9: 255-264. 10.1111/j.1369-7625.2006.00393.x.CrossRefPubMed Silvia K, Sepucha K: Decision aids in routine practice: lessons from the breast cancer initiative. Health Expect. 2006, 9: 255-264. 10.1111/j.1369-7625.2006.00393.x.CrossRefPubMed
32.
go back to reference Stacey D, Pomey M, O’Connor A, Graham I: Adoption and sustainability of decision support for patients facing health decisions: an implementation case study in nursing. Implement Sci. 2006, 1: 17-10.1186/1748-5908-1-17.CrossRefPubMedPubMedCentral Stacey D, Pomey M, O’Connor A, Graham I: Adoption and sustainability of decision support for patients facing health decisions: an implementation case study in nursing. Implement Sci. 2006, 1: 17-10.1186/1748-5908-1-17.CrossRefPubMedPubMedCentral
33.
go back to reference Belkora JK, Loth MK, Volz S, Rugo HS: Implementing decision and communication aids to facilitate patient-centered care in breast cancer: a case study. Patient Educ Couns. 2009, 77: 360-368. 10.1016/j.pec.2009.09.012.CrossRefPubMed Belkora JK, Loth MK, Volz S, Rugo HS: Implementing decision and communication aids to facilitate patient-centered care in breast cancer: a case study. Patient Educ Couns. 2009, 77: 360-368. 10.1016/j.pec.2009.09.012.CrossRefPubMed
34.
go back to reference Elwyn G, Rix A, Holt T, Jones D: Why do clinicians not refer patients to online decision support tools? Interviews with front line clinics in the NHS. Brit Med J. 2012, 2: e001530- Elwyn G, Rix A, Holt T, Jones D: Why do clinicians not refer patients to online decision support tools? Interviews with front line clinics in the NHS. Brit Med J. 2012, 2: e001530-
35.
go back to reference Frosch DL, May SG, Rendle K, Tietbohl C, Elwyn G: Authoritarian physicians and patients’ fear of being labeled “difficult” among key obstacles to shared decision making. Health Affair. 2012, 31: 1030-1038. 10.1377/hlthaff.2011.0576.CrossRef Frosch DL, May SG, Rendle K, Tietbohl C, Elwyn G: Authoritarian physicians and patients’ fear of being labeled “difficult” among key obstacles to shared decision making. Health Affair. 2012, 31: 1030-1038. 10.1377/hlthaff.2011.0576.CrossRef
Metadata
Title
Patchy ‘coherence’: using normalization process theory to evaluate a multi-faceted shared decision making implementation program (MAGIC)
Authors
Amy Lloyd
Natalie Joseph-Williams
Adrian Edwards
Andrew Rix
Glyn Elwyn
Publication date
01-12-2013
Publisher
BioMed Central
Published in
Implementation Science / Issue 1/2013
Electronic ISSN: 1748-5908
DOI
https://doi.org/10.1186/1748-5908-8-102

Other articles of this Issue 1/2013

Implementation Science 1/2013 Go to the issue