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Open Access 01-07-2012 | Oral presentation

The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort

Authors: Marc D Natter, Jane R Winsor, Kathleen A Fox, Norman T Ilowite, Kenneth D Mandl, Kelly L Mieszkalski, Christy I Sandborg, John S Sundy, Carol A Wallace, Laura E Schanberg, CARRAnet Investigators Group

Published in: Pediatric Rheumatology | Special Issue 1/2012

Excerpt

In 2009, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) established a longitudinal multi-center, multiple disease U.S. national registry (CARRAnet) for pediatric rheumatology with the intent of providing 60 participating clinical sites a new framework to drive observational clinical research and evidence-based care. CARRAnet seeks to enroll up to 20,000 subjects with childhood-onset rheumatic disease and twice yearly follow-up. We report baseline characteristics of the initial 6-month enrollment cohort; disease-specific results are reported separately. …

Title: The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort
Authors: Marc D Natter
Jane R Winsor
Kathleen A Fox
Norman T Ilowite
Kenneth D Mandl
Kelly L Mieszkalski
Christy I Sandborg
John S Sundy
Carol A Wallace
Laura E Schanberg
CARRAnet Investigators Group
Publication date: 01-07-2012
Publisher: BioMed Central
Published in: Pediatric Rheumatology / Issue Special Issue 1/2012
Electronic ISSN: 1546-0096
DOI: https://doi.org/10.1186/1546-0096-10-S1-A57

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The childhood arthritis & rheumatology research alliance network registry: demographics and characteristics of the initial 6-month cohort

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