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Pediatric Rheumatology

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Open Access 01-12-2012 | Research

Youth report of healthcare transition counseling and autonomy support from their rheumatologist

Authors: Courtney Kellerman Wells, Barbara J McMorris, Keith J Horvath, Ann W Garwick, Peter B Scal

Published in: Pediatric Rheumatology | Issue 1/2012

Abstract

Background

To increase understanding of the healthcare transition (HCT) process for young people living with Juvenile Idopathic Arthritis (JIA) by examining: 1) the extent to which youth report discussing HCT topics with their rheumatologist and 2) the association between youth perceptions of autonomy support from their rheumatologist and HCT discussions.

Methods

Data are from an online survey of youth in the United States with rheumatologic conditions (n= 134). HCT discussion was measured by 4 questions from the National Survey of Children with Special Health Care Needs. Youth perception of autonomy support was measured using a validated 6-item scale.

Results

One third of the youth (33.7%) reported talking to their rheumatologist about transferring to adult medicine. Less than half (40.8%) of respondents talked with their rheumatologist about adult healthcare needs, and less than a quarter (22.0%) discussed acquiring health insurance as an adult. Nearly two-thirds of respondents (62.7%) reported that their rheumatologist usually/always encourages self-care responsibility. Multivariate analyses revealed significant associations between rheumatologist support for youth autonomy and HCT counseling.

Conclusion

The low frequency of HCT counseling reported indicates a continuing need to increase awareness among rheumatologist in the USA. The strong associations between rheumatologist’s support for youth autonomy and HCT counseling suggest that developmentally “in-tune” providers may deliver the best guidance about transition planning for youth living with arthritis.

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Title: Youth report of healthcare transition counseling and autonomy support from their rheumatologist
Authors: Courtney Kellerman Wells
Barbara J McMorris
Keith J Horvath
Ann W Garwick
Peter B Scal
Publication date: 01-12-2012
Publisher: BioMed Central
Published in: Pediatric Rheumatology / Issue 1/2012
Electronic ISSN: 1546-0096
DOI: https://doi.org/10.1186/1546-0096-10-36

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Youth report of healthcare transition counseling and autonomy support from their rheumatologist

Abstract

Background

Methods

Results

Conclusion

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Abstract

Background

Methods

Results

Conclusion

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