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Health and Quality of Life Outcomes
Published in: Health and Quality of Life Outcomes 1/2012

Open Access 01-12-2012 | Letter to the Editor

Questions of Copyright

Authors: Caroline Anfray, Marie-Pierre Emery, Katrin Conway, Catherine Acquadro

Published in: Health and Quality of Life Outcomes | Issue 1/2012

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Abstract

The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership. This is the copyright holder of the instrument who will control its access (distribution and reproduction), its adaptation or modification, and its translation. Copyright is a means to protect the integrity of an instrument. The ownership of an instrument should be defined in the beginning between all parties involved, and each step of the instrument's life, including distribution, should be anticipated for purpose of copyright.
Appendix
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Literature
1.
Anfray C, Emery MP: Use of PRO instruments: licensing and copyright issues [abstract]. Qual Life Res 2006, 15(suppl 1):A-112.
2.
Anfray C, Emery MP: Access and use of Patient-Reported Outcomes (PRO) instruments in international studies: authorship and copyright issues [abstract]. Qual Life Res 2007, 16(suppl):A-21.
3.
Anfray C, Emery MP: Use of Patient-Reported Outcomes (PRO) Instruments: Copyright Issues [abstract]. Value in Health 2007, 10(3):A189.CrossRef
4.
Anfray C: Patient-reported outcomes instruments: bridging the gap between international copyright laws and common practice for developers and users-a case example. Qual Life Res 2009, 18(10):1281–1283. 10.1007/s11136-009-9552-5CrossRefPubMed
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Revicki DA, Schwartz CE: Intellectual property rights and good research practice. Qual Life Res 2009, 18(10):1279–1280. 10.1007/s11136-009-9551-6CrossRefPubMed
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Metadata
Title
Questions of Copyright
Authors
Caroline Anfray
Marie-Pierre Emery
Katrin Conway
Catherine Acquadro
Publication date
01-12-2012
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2012
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/1477-7525-10-16

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