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Published in: International Journal for Equity in Health 1/2011

Open Access 01-12-2011 | Research

"There's no kind of respect here" A qualitative study of racism and access to maternal health care among Romani women in the Balkans

Authors: Teresa Janevic, Pooja Sripad, Elizabeth Bradley, Vera Dimitrievska

Published in: International Journal for Equity in Health | Issue 1/2011

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Abstract

Introduction

Roma, the largest minority group in Europe, face widespread racism and health disadvantage. Using qualitative data from Serbia and Macedonia, our objective was to develop a conceptual framework showing how three levels of racism--personal, internalized, and institutional--affect access to maternal health care among Romani women.

Methods

Eight focus groups of Romani women aged 14-44 (n = 71), as well as in-depth semi-structured interviews with gynecologists (n = 8) and key informants from NGOs and state institutions (n = 11) were conducted on maternal health care seeking, experiences during care, and perceived health care discrimination. Transcripts were coded, and analyzed using a grounded theory approach. Themes were categorized into domains.

Results

Twenty-two emergent themes identified barriers that reflected how racism affects access to maternal health care. The domains into which the themes were classified were perceptions and interactions with health system, psychological factors, social environment and resources, lack of health system accountability, financial needs, and exclusion from education.

Conclusions

The experiences of Romani women demonstrate psychosocial and structural pathways by which racism and discrimination affect access to prenatal and maternity care. Interventions to address maternal health inequalities should target barriers within all three levels of racism.
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Literature
1.
go back to reference Crowe D: A History of the Gypsies of Eastern Europe and Russia. 2007, New York: Palgrave Macmillan Crowe D: A History of the Gypsies of Eastern Europe and Russia. 2007, New York: Palgrave Macmillan
2.
go back to reference Szelenyi I, Ladanyi J: Patterns of Exclusion: Constructing Gypsy Ethnicity and the Making of an Underclass in Transitional Societies of Europe. 2006, East European Monographs Szelenyi I, Ladanyi J: Patterns of Exclusion: Constructing Gypsy Ethnicity and the Making of an Underclass in Transitional Societies of Europe. 2006, East European Monographs
3.
go back to reference Pew Research Center: Two decades after the wall's fall: End of Communism cheered but now with more reservations. 2009, Washington DC; Pew Research Center Pew Research Center: Two decades after the wall's fall: End of Communism cheered but now with more reservations. 2009, Washington DC; Pew Research Center
4.
go back to reference UNDP: At Risk: Roma and the displaced in Southeast Europe. 2006, Bratislava; UNDP UNDP: At Risk: Roma and the displaced in Southeast Europe. 2006, Bratislava; UNDP
5.
go back to reference UNICEF: Multiple Indicator Cluster Survey, Serbia. 2007, Belgrade; UNICEF UNICEF: Multiple Indicator Cluster Survey, Serbia. 2007, Belgrade; UNICEF
6.
go back to reference State Statistical Office: Republic of Macedonia Multiple Indicator Cluster Survey 2005-2006. 2007, Skopje; State Statistical Office of Macedonia State Statistical Office: Republic of Macedonia Multiple Indicator Cluster Survey 2005-2006. 2007, Skopje; State Statistical Office of Macedonia
7.
go back to reference European Roma Rights Centre: Ambulance Not on the Way: The Disgrace of Health Care for Roma in Europe. 2006, Budapest; European Roma Rights Centre European Roma Rights Centre: Ambulance Not on the Way: The Disgrace of Health Care for Roma in Europe. 2006, Budapest; European Roma Rights Centre
8.
go back to reference Bhopal R: Glossary of terms relating to ethnicity and race: for reflection and debate. J Epidemiol Community Health. 2004, 58: 441-5. 10.1136/jech.2003.013466.PubMedCentralCrossRefPubMed Bhopal R: Glossary of terms relating to ethnicity and race: for reflection and debate. J Epidemiol Community Health. 2004, 58: 441-5. 10.1136/jech.2003.013466.PubMedCentralCrossRefPubMed
9.
go back to reference Measuring racism: cutting edge work of the CDC Racism and Health Working Group. Annual Meeting of the Society for Epidemiologic Research, Montreal. 2011 Measuring racism: cutting edge work of the CDC Racism and Health Working Group. Annual Meeting of the Society for Epidemiologic Research, Montreal. 2011
10.
go back to reference Miskovic M: Roma education in Europe: in support of the discourse of race. Pedagogy, Culture, and Society. 2009, 17: 201-10.1080/14681360902934442.CrossRef Miskovic M: Roma education in Europe: in support of the discourse of race. Pedagogy, Culture, and Society. 2009, 17: 201-10.1080/14681360902934442.CrossRef
11.
go back to reference Ahmed P, Feliciano C, Emigh RJ: Internal and external ethnic assessments in Eastern Europe. Social Forces. 2007, 231-55. Ahmed P, Feliciano C, Emigh RJ: Internal and external ethnic assessments in Eastern Europe. Social Forces. 2007, 231-55.
12.
go back to reference Methods in community-based participatory research for health. Edited by: Israel B, Eng E, Shultz A, et al. 2005, San Francisco: Jossey-Bass Methods in community-based participatory research for health. Edited by: Israel B, Eng E, Shultz A, et al. 2005, San Francisco: Jossey-Bass
14.
go back to reference Patton M: Qualitative Research and Evaluation Methods. 2002, Thousand Oaks: Sage Patton M: Qualitative Research and Evaluation Methods. 2002, Thousand Oaks: Sage
15.
go back to reference Green J, Thorogood T: Qualitative Research Methods for Health Research. 2009, Thousand Oaks: Sage Green J, Thorogood T: Qualitative Research Methods for Health Research. 2009, Thousand Oaks: Sage
16.
go back to reference Biernacki P, Waldorf D: Snowball sampling. Sociological methods and research. 1981, 10: 141-63. Biernacki P, Waldorf D: Snowball sampling. Sociological methods and research. 1981, 10: 141-63.
17.
go back to reference Bradley EH, Curry LA, Devers KJ: Qualitative data analysis for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007, 42: 1758-72. 10.1111/j.1475-6773.2006.00684.x.PubMedCentralCrossRefPubMed Bradley EH, Curry LA, Devers KJ: Qualitative data analysis for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007, 42: 1758-72. 10.1111/j.1475-6773.2006.00684.x.PubMedCentralCrossRefPubMed
19.
go back to reference Janevic T, Petrovic O, Bjelic I, Kubera A: Risk factors for childhood malnutrition in Roma settlements in Serbia. BMC Public Health. 2010, 10: 509-10.1186/1471-2458-10-509.PubMedCentralCrossRefPubMed Janevic T, Petrovic O, Bjelic I, Kubera A: Risk factors for childhood malnutrition in Roma settlements in Serbia. BMC Public Health. 2010, 10: 509-10.1186/1471-2458-10-509.PubMedCentralCrossRefPubMed
20.
go back to reference Ensor T, Cooper S: Overcoming barriers to health service access: influencing the demand side. Health Policy Plan. 2004, 19: 69-79. 10.1093/heapol/czh009.CrossRefPubMed Ensor T, Cooper S: Overcoming barriers to health service access: influencing the demand side. Health Policy Plan. 2004, 19: 69-79. 10.1093/heapol/czh009.CrossRefPubMed
21.
go back to reference Peters DH, Garg A, Bloom G, Walker DG, Brieger WR, Rahman MH: Poverty and access to health care in developing countries. Ann N Y Acad Sci. 2008, 1136: 161-71. 10.1196/annals.1425.011.CrossRefPubMed Peters DH, Garg A, Bloom G, Walker DG, Brieger WR, Rahman MH: Poverty and access to health care in developing countries. Ann N Y Acad Sci. 2008, 1136: 161-71. 10.1196/annals.1425.011.CrossRefPubMed
22.
go back to reference Andersen RM: Revisiting the behavioral model and access to medical care: does it matter?. J Health Soc Behav. 1995, 36: 1-10. 10.2307/2137284.CrossRefPubMed Andersen RM: Revisiting the behavioral model and access to medical care: does it matter?. J Health Soc Behav. 1995, 36: 1-10. 10.2307/2137284.CrossRefPubMed
23.
go back to reference Kressin NR, Raymond KL, Manze M: Perceptions of race/ethnicity-based discrimination: a review of measures and evaluation of their usefulness for the health care setting. J Health Care Poor Underserved. 2008, 19: 697-730. 10.1353/hpu.0.0041.PubMedCentralCrossRefPubMed Kressin NR, Raymond KL, Manze M: Perceptions of race/ethnicity-based discrimination: a review of measures and evaluation of their usefulness for the health care setting. J Health Care Poor Underserved. 2008, 19: 697-730. 10.1353/hpu.0.0041.PubMedCentralCrossRefPubMed
24.
go back to reference Kosa K, Molnar A, McKee M, Adany R: Rapid health impact appraisal of eviction versus a housing project in a colony-dwelling Roma community. J Epidemiol Community Health. 2007, 61: 960-5. 10.1136/jech.2006.057158.PubMedCentralCrossRefPubMed Kosa K, Molnar A, McKee M, Adany R: Rapid health impact appraisal of eviction versus a housing project in a colony-dwelling Roma community. J Epidemiol Community Health. 2007, 61: 960-5. 10.1136/jech.2006.057158.PubMedCentralCrossRefPubMed
25.
go back to reference Bird ST, Bogart LM: Perceived race-based and socioeconomic status(SES)-based discrimination in interactions with health care providers. Ethn Dis. 2001, 11: 554-63.PubMed Bird ST, Bogart LM: Perceived race-based and socioeconomic status(SES)-based discrimination in interactions with health care providers. Ethn Dis. 2001, 11: 554-63.PubMed
26.
go back to reference Burgess DJ, Ding Y, Hargreaves M, van Ryn M, Phelan S: The association between perceived discrimination and underutilization of needed medical and mental health care in a multi-ethnic community sample. J Health Care Poor Underserved. 2008, 19: 894-911. 10.1353/hpu.0.0063.CrossRefPubMed Burgess DJ, Ding Y, Hargreaves M, van Ryn M, Phelan S: The association between perceived discrimination and underutilization of needed medical and mental health care in a multi-ethnic community sample. J Health Care Poor Underserved. 2008, 19: 894-911. 10.1353/hpu.0.0063.CrossRefPubMed
27.
go back to reference Hausmann LR, Jeong K, Bost JE, Ibrahim SA: Perceived discrimination in health care and use of preventive health services. J Gen Intern Med. 2008, 23: 1679-84. 10.1007/s11606-008-0730-x.PubMedCentralCrossRefPubMed Hausmann LR, Jeong K, Bost JE, Ibrahim SA: Perceived discrimination in health care and use of preventive health services. J Gen Intern Med. 2008, 23: 1679-84. 10.1007/s11606-008-0730-x.PubMedCentralCrossRefPubMed
28.
go back to reference Perez D, Sribney WM, Rodriguez MA: Perceived discrimination and self-reported quality of care among Latinos in the United States. J Gen Intern Med. 2009, 24 (Suppl 3): 548-54.PubMedCentralCrossRefPubMed Perez D, Sribney WM, Rodriguez MA: Perceived discrimination and self-reported quality of care among Latinos in the United States. J Gen Intern Med. 2009, 24 (Suppl 3): 548-54.PubMedCentralCrossRefPubMed
29.
go back to reference Sorkin DH, Ngo-Metzger Q, De Alba I: Racial/ethnic discrimination in health care: impact on perceived quality of care. J Gen Intern Med. 2010, 25: 390-6. 10.1007/s11606-010-1257-5.PubMedCentralCrossRefPubMed Sorkin DH, Ngo-Metzger Q, De Alba I: Racial/ethnic discrimination in health care: impact on perceived quality of care. J Gen Intern Med. 2010, 25: 390-6. 10.1007/s11606-010-1257-5.PubMedCentralCrossRefPubMed
30.
go back to reference Dovidio JF, Penner LA, Albrecht TL, Norton WE, Gaertner SL, Shelton JN: Disparities and distrust: the implications of psychological processes for understanding racial disparities in health and health care. Soc Sci Med. 2008, 67: 478-86. 10.1016/j.socscimed.2008.03.019.CrossRefPubMed Dovidio JF, Penner LA, Albrecht TL, Norton WE, Gaertner SL, Shelton JN: Disparities and distrust: the implications of psychological processes for understanding racial disparities in health and health care. Soc Sci Med. 2008, 67: 478-86. 10.1016/j.socscimed.2008.03.019.CrossRefPubMed
31.
go back to reference van Ryn M, Burgess D, Dovidio J, Phelan S, Saha S, Malat J, Griffin J, Fu S, Perry S: The impact of racism on clinician cognition, behavior, and clinical decision making. Du Bois Review. 2011, 8: 199-10.1017/S1742058X11000191.PubMedCentralCrossRefPubMed van Ryn M, Burgess D, Dovidio J, Phelan S, Saha S, Malat J, Griffin J, Fu S, Perry S: The impact of racism on clinician cognition, behavior, and clinical decision making. Du Bois Review. 2011, 8: 199-10.1017/S1742058X11000191.PubMedCentralCrossRefPubMed
32.
go back to reference Johnson RL, Roter D, Powe NR, Cooper LA: Patient race/ethnicity and quality of patient-physician communication during medical visits. Am J Public Health. 2004, 94: 2084-90. 10.2105/AJPH.94.12.2084.PubMedCentralCrossRefPubMed Johnson RL, Roter D, Powe NR, Cooper LA: Patient race/ethnicity and quality of patient-physician communication during medical visits. Am J Public Health. 2004, 94: 2084-90. 10.2105/AJPH.94.12.2084.PubMedCentralCrossRefPubMed
33.
go back to reference Zolnierek KB, Dimatteo MR: Physician communication and patient adherence to treatment: a meta-analysis. Med Care. 2009, 47: 826-34. 10.1097/MLR.0b013e31819a5acc.CrossRefPubMed Zolnierek KB, Dimatteo MR: Physician communication and patient adherence to treatment: a meta-analysis. Med Care. 2009, 47: 826-34. 10.1097/MLR.0b013e31819a5acc.CrossRefPubMed
34.
go back to reference Bradley EH, McGraw SA, Curry L, Buckser A, King KL, Kasl SV, Andersen R: Expanding the Andersen model: the role of psychosocial factors in long-term care use. Health Serv Res. 2002, 37: 1221-42. 10.1111/1475-6773.01053.PubMedCentralCrossRefPubMed Bradley EH, McGraw SA, Curry L, Buckser A, King KL, Kasl SV, Andersen R: Expanding the Andersen model: the role of psychosocial factors in long-term care use. Health Serv Res. 2002, 37: 1221-42. 10.1111/1475-6773.01053.PubMedCentralCrossRefPubMed
35.
go back to reference Williams DR, Mohammed SA: Discrimination and racial disparities in health: evidence and needed research. J Behav Med. 2009, 32: 20-47. 10.1007/s10865-008-9185-0.PubMedCentralCrossRefPubMed Williams DR, Mohammed SA: Discrimination and racial disparities in health: evidence and needed research. J Behav Med. 2009, 32: 20-47. 10.1007/s10865-008-9185-0.PubMedCentralCrossRefPubMed
36.
37.
go back to reference King G: Institutional racism and the medical/health complex: a conceptual analysis. Ethn Dis. 1996, 6: 30-46.PubMed King G: Institutional racism and the medical/health complex: a conceptual analysis. Ethn Dis. 1996, 6: 30-46.PubMed
38.
go back to reference Griffith DM, Mason M, Yonas M, Eng E, Jeffries V, Plihcik S, Parks B: Dismantling institutional racism: theory and action. Am J Community Psychol. 2007, 39: 381-92. 10.1007/s10464-007-9117-0.CrossRefPubMed Griffith DM, Mason M, Yonas M, Eng E, Jeffries V, Plihcik S, Parks B: Dismantling institutional racism: theory and action. Am J Community Psychol. 2007, 39: 381-92. 10.1007/s10464-007-9117-0.CrossRefPubMed
39.
40.
go back to reference Ensor T: Informal payments for health care in transition economies. Soc Sci Med. 2004, 58: 237-46. 10.1016/S0277-9536(03)00007-8.CrossRefPubMed Ensor T: Informal payments for health care in transition economies. Soc Sci Med. 2004, 58: 237-46. 10.1016/S0277-9536(03)00007-8.CrossRefPubMed
41.
go back to reference Fotaki M: Informal Payments: A Side Effect of Transition or a Mechanism for Sustaining the Illusion of 'Free'Health Care? The Experience of Four Regions in the Russian Federation. J Soc Policy. 2009, 38: 649-70. 10.1017/S0047279409003274.CrossRef Fotaki M: Informal Payments: A Side Effect of Transition or a Mechanism for Sustaining the Illusion of 'Free'Health Care? The Experience of Four Regions in the Russian Federation. J Soc Policy. 2009, 38: 649-70. 10.1017/S0047279409003274.CrossRef
42.
go back to reference Radin D: Too Ill to Find the Cure?. East European Politics & Societies. 2009, 23: 105-10.1177/0888325408327850.CrossRef Radin D: Too Ill to Find the Cure?. East European Politics & Societies. 2009, 23: 105-10.1177/0888325408327850.CrossRef
43.
go back to reference Green LA, Gorenflo DW, Wyszewianski L, Michigan Consortium for Family Practice Research: Validating an instrument for selecting interventions to change physician practice patterns: a Michigan Consortium for Family Practice Research study. J Fam Pract. 2002, 51: 938-42.PubMed Green LA, Gorenflo DW, Wyszewianski L, Michigan Consortium for Family Practice Research: Validating an instrument for selecting interventions to change physician practice patterns: a Michigan Consortium for Family Practice Research study. J Fam Pract. 2002, 51: 938-42.PubMed
44.
go back to reference Ravnbol CI: The Human Rights of Minority Women: Romani Women's Rights from a Perspective on International Human Rights Law and Politics. International Journal on Minority and Group Rights. 2010, 17: 1-45. 10.1163/157181110X12595859744123.CrossRef Ravnbol CI: The Human Rights of Minority Women: Romani Women's Rights from a Perspective on International Human Rights Law and Politics. International Journal on Minority and Group Rights. 2010, 17: 1-45. 10.1163/157181110X12595859744123.CrossRef
45.
go back to reference Bond JE: Intersecting Identities and Human Rights: The Example of Romani Women's Reproductive Rights. Geo J Gender & L. 2004, 5: 897- Bond JE: Intersecting Identities and Human Rights: The Example of Romani Women's Reproductive Rights. Geo J Gender & L. 2004, 5: 897-
46.
go back to reference Janevic T, Jankovic J, Bradley E: Socioeconomic position, gender, and inequalities in self-rated health between Roma and non-Roma in Serbia. Int J Public Health. 2011 Janevic T, Jankovic J, Bradley E: Socioeconomic position, gender, and inequalities in self-rated health between Roma and non-Roma in Serbia. Int J Public Health. 2011
47.
go back to reference Janes CR, Corbett KK: Anthropology and global health. Annu Rev Anthropol. 2009, 38: 167-83. 10.1146/annurev-anthro-091908-164314.CrossRef Janes CR, Corbett KK: Anthropology and global health. Annu Rev Anthropol. 2009, 38: 167-83. 10.1146/annurev-anthro-091908-164314.CrossRef
48.
go back to reference Mullings L, Schulz A: Intersectionality and health: an introduction. Gender, Race, Class & Health: Intersectional approaches. Edited by: Schulz A, Mullings L. 2005, Jossey-Bass, 3-17. Mullings L, Schulz A: Intersectionality and health: an introduction. Gender, Race, Class & Health: Intersectional approaches. Edited by: Schulz A, Mullings L. 2005, Jossey-Bass, 3-17.
Metadata
Title
"There's no kind of respect here" A qualitative study of racism and access to maternal health care among Romani women in the Balkans
Authors
Teresa Janevic
Pooja Sripad
Elizabeth Bradley
Vera Dimitrievska
Publication date
01-12-2011
Publisher
BioMed Central
Published in
International Journal for Equity in Health / Issue 1/2011
Electronic ISSN: 1475-9276
DOI
https://doi.org/10.1186/1475-9276-10-53

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