Skip to main content
Top
Published in: BMC Health Services Research 1/2007

Open Access 01-12-2007 | Research article

The development of a theory-based intervention to promote appropriate disclosure of a diagnosis of dementia

Authors: Robbie Foy, Jillian J Francis, Marie Johnston, Martin Eccles, Jan Lecouturier, Claire Bamford, Jeremy Grimshaw

Published in: BMC Health Services Research | Issue 1/2007

Login to get access

Abstract

Background

The development and description of interventions to change professional practice are often limited by the lack of an explicit theoretical and empirical basis. We set out to develop an intervention to promote appropriate disclosure of a diagnosis of dementia based on theoretical and empirical work.

Methods

We identified three key disclosure behaviours: finding out what the patient already knows or suspects about their diagnosis; using the actual words 'dementia' or 'Alzheimer's disease' when talking to the patient; and exploring what the diagnosis means to the patient. We conducted a questionnaire survey of older peoples' mental health teams (MHTs) based upon theoretical constructs from the Theory of Planned Behaviour (TPB) and Social Cognitive Theory (SCT) and used the findings to identify factors that predicted mental health professionals' intentions to perform each behaviour. We selected behaviour change techniques likely to alter these factors.

Results

The change techniques selected were: persuasive communication to target subjective norm; behavioural modelling and graded tasks to target self-efficacy; persuasive communication to target attitude towards the use of explicit terminology when talking to the patient; and behavioural modelling by MHTs to target perceived behavioural control for finding out what the patient already knows or suspects and exploring what the diagnosis means to the patient. We operationalised these behaviour change techniques using an interactive 'pen and paper' intervention designed to increase intentions to perform the three target behaviours.

Conclusion

It is feasible to develop an intervention to change professional behaviour based upon theoretical models, empirical data and evidence based behaviour change techniques. The next step is to evaluate the effect of such an intervention on behavioural intention. We argue that this approach to development and reporting of interventions will contribute to the science of implementation by providing replicable interventions that illuminate the principles and processes underlying change.
Appendix
Available only for authorised users
Literature
1.
go back to reference The Improved Clinical Effectiveness through Behavioural Research Group: Designing theoretically-informed implementation interventions. Implement Sci. 2006, 1: 4-10.1186/1748-5908-1-4.CrossRef The Improved Clinical Effectiveness through Behavioural Research Group: Designing theoretically-informed implementation interventions. Implement Sci. 2006, 1: 4-10.1186/1748-5908-1-4.CrossRef
2.
go back to reference Eccles M, Grimshaw JM, Campbell M, Ramsay C: Research designs for studies evaluating the effectiveness of change and quality improvement strategies. Qual Saf Health Care. 2003, 12: 47-52. 10.1136/qhc.12.1.47.CrossRef Eccles M, Grimshaw JM, Campbell M, Ramsay C: Research designs for studies evaluating the effectiveness of change and quality improvement strategies. Qual Saf Health Care. 2003, 12: 47-52. 10.1136/qhc.12.1.47.CrossRef
3.
go back to reference Grimshaw JM, Thomas RE, MacLennan G, Fraser C, Ramsay CR, Vale L, Whitty P, Eccles MP, Matowe L, Shirran L, Wensing M, Dikstra R, Donaldson C, Hutchison A: Effectiveness and efficiency of guideline dissemination and implementation strategies. Health Technol Assess. 2004, 8 (6). Grimshaw JM, Thomas RE, MacLennan G, Fraser C, Ramsay CR, Vale L, Whitty P, Eccles MP, Matowe L, Shirran L, Wensing M, Dikstra R, Donaldson C, Hutchison A: Effectiveness and efficiency of guideline dissemination and implementation strategies. Health Technol Assess. 2004, 8 (6).
4.
go back to reference Foy R, Eccles M, Jamtvedt G, Young J, Grimshaw J, Baker R: What do we know about how to do audit and feedback? Pitfalls in applying evidence from a systematic review. BMC Health Serv Res. 2005, 5: 50-10.1186/1472-6963-5-50.CrossRef Foy R, Eccles M, Jamtvedt G, Young J, Grimshaw J, Baker R: What do we know about how to do audit and feedback? Pitfalls in applying evidence from a systematic review. BMC Health Serv Res. 2005, 5: 50-10.1186/1472-6963-5-50.CrossRef
5.
go back to reference Shojania KG, Grimshaw JM: Evidence-based quality improvement: the state of the science. Health Affairs. 2005, 24: 138-150. 10.1377/hlthaff.24.1.138.CrossRef Shojania KG, Grimshaw JM: Evidence-based quality improvement: the state of the science. Health Affairs. 2005, 24: 138-150. 10.1377/hlthaff.24.1.138.CrossRef
6.
go back to reference Davies P, Walker A, Grimshaw J: Theories of behaviour change in studies of guideline implementation. Proceedings of the British Psychological Society. 2003, 11: 120. Davies P, Walker A, Grimshaw J: Theories of behaviour change in studies of guideline implementation. Proceedings of the British Psychological Society. 2003, 11: 120.
7.
go back to reference Department of H: National Service Framework for Older People. 2001, London , Department of Health Department of H: National Service Framework for Older People. 2001, London , Department of Health
8.
go back to reference Bamford C, Lamont S, Eccles M, Robinson L, May C, Bond J: Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry. 2004, 19: 151-169. 10.1002/gps.1050.CrossRef Bamford C, Lamont S, Eccles M, Robinson L, May C, Bond J: Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry. 2004, 19: 151-169. 10.1002/gps.1050.CrossRef
9.
10.
go back to reference Bonetti D, Eccles M, Johnston M, Steen N, Grimshaw J, Baker R, Walker A, Pitts N: Guiding the design and selection of interventions to influence the implementation of evidence-based practice: An experimental simulation of a complex intervention trial. Soc Sci Med. 2005, 60: 2135-2147. 10.1016/j.socscimed.2004.08.072.CrossRef Bonetti D, Eccles M, Johnston M, Steen N, Grimshaw J, Baker R, Walker A, Pitts N: Guiding the design and selection of interventions to influence the implementation of evidence-based practice: An experimental simulation of a complex intervention trial. Soc Sci Med. 2005, 60: 2135-2147. 10.1016/j.socscimed.2004.08.072.CrossRef
11.
go back to reference Eccles MP, Foy R, Bamford CH, Hughes JC, Johnson M, Whitty PM, Steen N, Grimshaw JG: A trial platform to develop a tailored theory based intervention to improve professional practice in the disclosure of a diagnosis of dementia. BMC Implementation Science. 2006, 1: 7-10.1186/1748-5908-1-7.CrossRef Eccles MP, Foy R, Bamford CH, Hughes JC, Johnson M, Whitty PM, Steen N, Grimshaw JG: A trial platform to develop a tailored theory based intervention to improve professional practice in the disclosure of a diagnosis of dementia. BMC Implementation Science. 2006, 1: 7-10.1186/1748-5908-1-7.CrossRef
12.
go back to reference Webb TL, Sheeran P: Does changing behavioral intentions engender behavior change? A meta-analysis of the experimental evidence. Psychological Bulletin. 2006, 132: 249-268. 10.1037/0033-2909.132.2.249.CrossRef Webb TL, Sheeran P: Does changing behavioral intentions engender behavior change? A meta-analysis of the experimental evidence. Psychological Bulletin. 2006, 132: 249-268. 10.1037/0033-2909.132.2.249.CrossRef
13.
go back to reference Eccles MP, Hrisos S, Francis J, Kaner EF, Dickinson HO, Beyer F, Johnston M: Do self- reported intentions predict clinicians behaviour: a systematic review. Implementation Science. 2006, 1: 28-10.1186/1748-5908-1-28.CrossRef Eccles MP, Hrisos S, Francis J, Kaner EF, Dickinson HO, Beyer F, Johnston M: Do self- reported intentions predict clinicians behaviour: a systematic review. Implementation Science. 2006, 1: 28-10.1186/1748-5908-1-28.CrossRef
14.
go back to reference Foy R, Bamford C, Francis J, Johnston M, Lecouturier J, Eccles M, Steen N, Grimshaw J: Which factors explain variation in intention to disclose a diagnosis of dementia? A theory-based survey of mental health professionals. Implement Sci. 2007, 2: 31-10.1186/1748-5908-2-31.CrossRef Foy R, Bamford C, Francis J, Johnston M, Lecouturier J, Eccles M, Steen N, Grimshaw J: Which factors explain variation in intention to disclose a diagnosis of dementia? A theory-based survey of mental health professionals. Implement Sci. 2007, 2: 31-10.1186/1748-5908-2-31.CrossRef
15.
go back to reference Fishbein M, Fishbein M: Attitude and the prediction of behavior. Readings in attitude theory and measurement. 1967, New York , Wiley Fishbein M, Fishbein M: Attitude and the prediction of behavior. Readings in attitude theory and measurement. 1967, New York , Wiley
16.
go back to reference Ajzen I: The theory of planned behaviour. Organizational Behaviour and Human Decision Processes. 1991, 50: 179-211. 10.1016/0749-5978(91)90020-T.CrossRef Ajzen I: The theory of planned behaviour. Organizational Behaviour and Human Decision Processes. 1991, 50: 179-211. 10.1016/0749-5978(91)90020-T.CrossRef
17.
go back to reference Bandura A: Social foundations of thought and action: A social cognitive theory. 1986, Upper Saddle River, NJ , Prentice-Hall Bandura A: Social foundations of thought and action: A social cognitive theory. 1986, Upper Saddle River, NJ , Prentice-Hall
18.
go back to reference Godin G: Importance of the emotional aspect of attitude to predict intention. Psychological Reports. 1987, 61 (3): 719-723.CrossRef Godin G: Importance of the emotional aspect of attitude to predict intention. Psychological Reports. 1987, 61 (3): 719-723.CrossRef
19.
go back to reference Gollwitzer PM, Bargh JA: The volitional benefits of planning. The psychology of action: linking cognition and motivation to behaviour. 1996, New York , Guilford Press, 287-312. Gollwitzer PM, Bargh JA: The volitional benefits of planning. The psychology of action: linking cognition and motivation to behaviour. 1996, New York , Guilford Press, 287-312.
20.
go back to reference Michie S, Abraham C: Identifying techniques that promote health behaviour change: Evidence based or evidence inspired?. Psychology & Health. 2004, 19: 29-49. 10.1080/0887044031000141199.CrossRef Michie S, Abraham C: Identifying techniques that promote health behaviour change: Evidence based or evidence inspired?. Psychology & Health. 2004, 19: 29-49. 10.1080/0887044031000141199.CrossRef
21.
go back to reference Michie S, Johnston M, Francis JJ, Hardeman W, Eccles MP: How do behaviour change techniques map on to psychological constructs? Results of a consensus process. Applied Psychology: An International Review, Special Issue on "Conceptualizing They-Based Health Behavior Change Research". Galway, Ireland . Michie S, Johnston M, Francis JJ, Hardeman W, Eccles MP: How do behaviour change techniques map on to psychological constructs? Results of a consensus process. Applied Psychology: An International Review, Special Issue on "Conceptualizing They-Based Health Behavior Change Research". Galway, Ireland .
22.
go back to reference Marzanski M: Would you like to know what is wrong with you? On telling the truth to patients with dementia. J Med Ethics. 2000, 26: 108-113. 10.1136/jme.26.2.108.CrossRef Marzanski M: Would you like to know what is wrong with you? On telling the truth to patients with dementia. J Med Ethics. 2000, 26: 108-113. 10.1136/jme.26.2.108.CrossRef
23.
go back to reference Dautzenberg PLJ, van Marum RJ, van der Hammen R, Paling HA: Patients and families desire a patient to be told the diagnosis of dementia: a survey by questionnaire on a Dutch memory clinic. Int J Geriatr Psychiatry. 2003, 2003 (18): 777-779. 10.1002/gps.916.CrossRef Dautzenberg PLJ, van Marum RJ, van der Hammen R, Paling HA: Patients and families desire a patient to be told the diagnosis of dementia: a survey by questionnaire on a Dutch memory clinic. Int J Geriatr Psychiatry. 2003, 2003 (18): 777-779. 10.1002/gps.916.CrossRef
24.
go back to reference Medical Research C: A framework for development and evaluation of RCTs for complex interventions to improve health. 2000, London Medical Research C: A framework for development and evaluation of RCTs for complex interventions to improve health. 2000, London
Metadata
Title
The development of a theory-based intervention to promote appropriate disclosure of a diagnosis of dementia
Authors
Robbie Foy
Jillian J Francis
Marie Johnston
Martin Eccles
Jan Lecouturier
Claire Bamford
Jeremy Grimshaw
Publication date
01-12-2007
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2007
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/1472-6963-7-207

Other articles of this Issue 1/2007

BMC Health Services Research 1/2007 Go to the issue