Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

At a glance: The ONWARDS insulin icodec trials

A round-up of the ONWARDS phase 3 clinical trials evaluating the novel weekly insulin icodec in people with diabetes.
ADVANCED SEARCH
Log in
Top
BMC Health Services Research
Published in: BMC Health Services Research 1/2014

Open Access 01-12-2014 | Research article

Implementing strategies in consumer and community engagement in health care: results of a large-scale, scoping meta-review

Authors: Pooria Sarrami-Foroushani, Joanne Travaglia, Deborah Debono, Jeffrey Braithwaite

Published in: BMC Health Services Research | Issue 1/2014

Login to get access

Abstract

Background

There is growing recognition of the importance of the active involvement of consumers and community members in health care. Despite the long history of consumer and community engagement (CCE) research and practice, there is no consensus on the best strategies for CCE. In this paper, we identify various dimensions of CCE-related strategies and offer a practical model to assist policy-makers, practitioners and researchers.

Methods

We undertook a large-scale, scoping meta-review and searched six databases using a list of nine medical subject headings (MeSH) and a comprehensive list of 47 phrases. We identified and examined a total of 90 relevant systematic reviews.

Results

Identified reviews show that although there is a significant body of research on CCE, the development of the field is hindered by a lack of evidence relating to specific elements of CCE. They also indicate a diverse and growing enterprise, drawing on a wide range of disciplinary, political and philosophical perspectives and a mix of definitions, targets, approaches, strategies and mechanisms. CCE interventions and strategies aim to involve consumers, community members and the public in general, as well as specific sub-groups, including children and people from culturally and linguistically diverse backgrounds. Strategies for CCE vary in terms of their aim and type of proposed activity, as do the methods and tools which have been developed to support them. Methods and tools include shared decision making, use of decision aids, consumer representation, application of electronic and internet-based facilities, and peer support. The success of CCE is dependent on both the approach taken and contextual factors, including structural facilitators such as governmental support, as well as barriers such as costs, organisational culture and population-specific limitations.

Conclusions

The diversity of the field indicates the need to measure each component of CCE. This meta-review provides the basis for development of a new eight stage model of consumer and community engagement. This model emphasises the importance of clarity and focus, as well as an extensive evaluation of contextual factors within specific settings, before the implementation of CCE strategies, enabling those involved in CCE to determine potential facilitators and barriers to the process.
Appendix
Available only for authorised users
Literature
1.
Mold A: Patient groups and the construction of the patient-consumer in Britain: An historical overview. J Soc Policy. 2010, 39 (4): 505-521. 10.1017/S0047279410000231.PubMedPubMedCentral
2.
Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N, Tyrer P: Systematic review of involving patients in the planning and development of health care. BMJ. 2002, 325 (7375): 1263-10.1136/bmj.325.7375.1263.PubMedPubMedCentral
3.
van der Zeijden A: The patient rights movement in Europe. Pharmacoeconomics. 2000, 18: 7-13. 10.2165/00019053-200018001-00003.PubMed
4.
Harrison S, Dowswell G, Milewa T: Guest editorial: public and user ‘involvement’ in the UK National Health Service. Health Soc Care Community. 2002, 10: 63-66. 10.1046/j.1365-2524.2002.00342.x.PubMed
5.
Roy CM, Cain R: The involvement of people living with HIV/AIDS in community-basedorganizations: contributions andconstraints. AIDS Care. 2001, 13: 421-432. 10.1080/09540120120057950.PubMed
6.
Wilson T, Buck D, Ham C: Rising tothechallenge: will the NHSsupport people with long term conditions?. BMJ. 2005, 330: 657-661. 10.1136/bmj.330.7492.657.PubMedPubMedCentral
7.
Fulop N, Protopsaltis G, Hutchings A, King A, Allen P, Normand C, Walters R: Process and impact of mergers of NHS trusts: multicentre case study and management cost analysis. BMJ. 2002, 325 (7358): 246-10.1136/bmj.325.7358.246.PubMedPubMedCentral
8.
9.
Ward JK, McEachan RRC, Lawton R, Armitage G, Watt I, Wright J: Patient involvement in patient safety: Protocol for developing an intervention using patient reports of organisational safety and patient incident reporting. BMC Health Serv Res. 2011, 11: 130-10.1186/1472-6963-11-130.PubMedPubMedCentral
10.
11.
Tempfer CB, Nowak P: Consumer participation and organizational development in health care: A systematic review. Wien Klin Wochenschr. 2011, 123 (13–14): 408-414.PubMed
12.
Conrardy JA, Brenek B, Myers S: Determining the state of knowledge for implementing the universal protocol recommendations: an integrative review of the literature. AORN J. 2010, 92 (2): 194-207. 10.1016/j.aorn.2009.12.031.PubMed
13.
Huffman MD, Galloway JM: Cardiovascular health in indigenous communities: successful programs. Heart Lung Circul. 2010, 19 (5–6): 351-360.
14.
Goss C, Mosconi P, Renzi C, Deledda G: Participation of patients and citizens in healthcare decisions in Italy. ZEFQ. 2011, 105 (4): 277-282.
15.
Cornuz J, Kuenzi B, Krones T: Shared decision making development in Switzerland: Room for improvement!. ZEFQ. 2011, 105 (4): 296-299.
16.
Attree P, French B, Milton B, Povall S, Whitehead M, Popay J: The experience of community engagement for individuals: A rapid review of evidence. Health Soc Care Community. 2011, 19 (3): 250-260. 10.1111/j.1365-2524.2010.00976.x.PubMed
17.
18.
Fudge N, Wolfe CDA, McKevitt C: Assessing the promise of user involvement in health service development: ethnographic study. BMJ. 2011, Online first: doi:10.1136/bmj.39456.552257.BE
19.
20.
Arnstein SR: A ladder of citizen participation. J Am Inst Plann. 1969, 35 (4): 216-224. 10.1080/01944366908977225.
21.
Tritter JQ, McCallum A: The snakes and ladders of user involvement: moving beyond Arnstein. Health Pol. 2006, 76 (2): 156-168. 10.1016/j.healthpol.2005.05.008.
22.
Travaglia J, Robertson H: The role of the patient in quality improvement. Continuous quality improvement in health care. Edited by: Johnson J, Sollecito WA. 2011, Sudbury, MA: Jones & Bartlett
23.
Bowen F, Newenham-Kahindi A, Herremans I: When suits meet roots: The antecedents and consequences of community engagement strategy. J Bus Ethics. 2010, 95 (2): 297-318. 10.1007/s10551-009-0360-1.
24.
Sarrami-Foroushani P, Travaglia J, Debono D, Braithwaite J: Key concepts in consumer and community engagement: a scoping meta-review. BMC Health Serv Res. 2014, 14 (1): 250-10.1186/1472-6963-14-250.PubMedPubMedCentral
25.
Sarrami-Foroushani P, Travaglia J, Debono D, Clay-Williams R, Braithwaite J: Scoping Meta-Review: Introducing a New Methodology. Clin Transl Sci. 2014, n/a-n/a
26.
Arksey H, O'Malley L: Scoping studies: towards a methodological framework. Int J Soc Res Meth. 2005, 8 (1): 19-32. 10.1080/1364557032000119616.
27.
Levac D, Colquhoun H, O'Brien KK: Scoping studies: advancing the methodology. Implement Sci. 2010, 5: 69-10.1186/1748-5908-5-69.PubMedPubMedCentral
28.
Higgins J, Green S: Cochrane Handbook for Systematic Reviews of InterventionsVersion 5.1.0 [updated March 2011]. Available from www.cochrane-handbook.org. 2011, The Cochrane Collaboration
29.
30.
Glaser BG: Conceptualization: On theory and theorizing using grounded theory. Int J Qual Meth. 2008, 1 (2): 23-38.
31.
Evans: Rhetoric or reality? A systematic review of the impact of participatory approaches by UK public health units on health and social outcomes. J Public Health. 2010, 32 (3): 418-426. 10.1093/pubmed/fdq014.
32.
Moore L, Kirk S: A literature review of children's and young people's participation in decisions relating to health care. J Clin Nurs. 2010, 19 (15–16): 2215-2225.PubMed
33.
Vis SA, Strandbu A, Holtan A, Thomas N: Participation and health - a research review of child participation in planning and decision-making. Child Family Soc Work. 2011, 16 (3): 325-335. 10.1111/j.1365-2206.2010.00743.x.
34.
Lyttle DJ, Ryan A: Factors influencing older patients' participation in care: a review of the literature. Int J Older People Nurs. 2010, 5 (4): 274-282. 10.1111/j.1748-3743.2010.00245.x.PubMed
35.
Duncan E, Best C, Hagen S: Shared decision making interventions for people with mental health conditions. Cochrane Database Syst Rev. 2010, CD007297-1
36.
Perestelo-Perez L, Gonzalez-Lorenzo M, Perez-Ramos J, Rivero-Santana A, Serrano-Aguilar P: Patient involvement and shared decision-making in mental health care. Curr Clin Pharmacol. 2011, 6 (2): 83-90. 10.2174/157488411796151192.PubMed
37.
Belanger E, Rodriguez C, Groleau D: Shared decision-making in palliative care: a systematic mixed studies review using narrative synthesis. Palliat Med. 2011, 25 (3): 242-261. 10.1177/0269216310389348.PubMed
38.
Bravo P, Cabieses B, Bustamante C, Campos S, Stacey D: Shared decision making in Chile: Supportive policies and research initiatives. ZEFQ. 2011, 105 (4): 254-258.
39.
Menon D, Stafinski T: Role of patient and public participation in health technology assessment and coverage decisions. Expert Rev Pharmacoecon Outcomes Res. 2011, 11 (1): 75-89. 10.1586/erp.10.82.PubMed
40.
Facey K, Boivin A, Gracia J, Hansen HP, Lo Scalzo A, Mossman J, Single A: Patients' perspectives in health technology assessment: A route to robust evidence and fair deliberation. Int J Technol Assess Health Care. 2010, 26 (3): 334-340. 10.1017/S0266462310000395.PubMed
41.
Peat M, Entwistle V, Hall J, Birks Y, Golder S, Group P: Scoping review and approach to appraisal of interventions intended to involve patients in patient safety. J Health Serv Res Policy. 2010, 15 (Suppl 1): 17-25. 10.1258/jhsrp.2009.009040.PubMed
42.
Hall J, Peat M, Birks Y, Golder S, Group P, Entwistle V, Gilbody S, Mansell P, McCaughan D, Sheldon T, Watt I, Williams B, Wright J: Effectiveness of interventions designed to promote patient involvement to enhance safety: a systematic review. Qual Saf Health Care. 2010, 19 (5): e10.PubMed
43.
Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D: Patient participation: current knowledge and applicability to patient safety. Mayo Clin Proc. 2010, 85 (1): 53-62. 10.4065/mcp.2009.0248.PubMedPubMedCentral
44.
Woodward HI, Mytton OT, Lemer C, Yardley IE, Ellis BM, Rutter PD, Greaves FE, Noble DJ, Kelley E, Wu AW: What have we learned about interventions to reduce medical errors?. Annu Rev Public Health. 2010, 31: 479-497. 10.1146/annurev.publhealth.012809.103544.PubMed
45.
Davis RE, Vincent CA, Murphy MF: Blood transfusion safety: the potential role of the patient. Transfus Med Rev. 2011, 25 (1): 12-23. 10.1016/j.tmrv.2010.08.003.PubMed
46.
Atkinson JA, Vallely A, Fitzgerald L, Whittaker M, Tanner M: The architecture and effect of participation: A systematic review of community participation for communicable disease control and elimination. Implications for malaria elimination. Malar J. 2011, 10: 225-10.1186/1475-2875-10-225.PubMedPubMedCentral
47.
Legare F, Ratte S, Stacey D, Kryworuchko J, Gravel K, Graham ID, Turcotte S: Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2011, 1: 1.
48.
Ryan R, Prictor M, McLaughlin KJ, Hill S: Audio-visual presentation of information for informed consent for participation in clinical trials [Systematic Review]. Cochrane Database Syst Rev. 2010, 11: 11.
49.
Car J, Lang B, Colledge A, Ung C, Majeed A: Interventions for enhancing consumers' online health literacy. Cochrane Database Syst Rev. 2011, CD007092-6
50.
Henderson C, Laugharne R: User-held personalised information for routine care of people with severe mental illness [Systematic Review]. Cochrane Database Syst Rev. 2011, 5: 5.
51.
Cooper C, Tandy AR, Balamurali TBS, Livingston G: A systematic review and meta-analysis of ethnic differences in use of dementia treatment, care, and research. Am J Geriatr Psychiatry. 2010, 18 (3): 193-203. 10.1097/JGP.0b013e3181bf9caf.PubMed
52.
53.
Bonfill Cosp X, Marzo Castillejo M, Pladevall Vila M, Marti J, Emparanza JI: Strategies for increasing the participation of women in community breast cancer screening. Cochrane Database Syst Rev. 2010, 11: 11.
54.
Spadea T, Bellini S, Kunst A, Stirbu I, Costa G: The impact of interventions to improve attendance in female cancer screening among lower socioeconomic groups: A review. Prev Med. 2010, 50 (4): 159-164. 10.1016/j.ypmed.2010.01.007.PubMed
55.
Diclemente RJ, Ruiz MS, Sales JM: Barriers to adolescents' participation in HIV biomedical prevention research. J Acquir Immune Defic Syndr. 2010, 54 (SUPPL. 1): S12-S17.PubMedPubMedCentral
56.
Maticka-Tyndale E, Barnett JP: Peer-led interventions to reduce HIV risk of youth: a review. Eval Program Plann. 2010, 33 (2): 98-112. 10.1016/j.evalprogplan.2009.07.001.PubMed
57.
Ng BE, Butler LM, Horvath T, Rutherford GW: Population-based biomedical sexually transmitted infection control interventions for reducing HIV infection [Systematic Review]. Cochrane Database Syst Rev. 2011, 5: 5.
58.
Dhalla S, Poole G: Barriers of enrolment in HIV vaccine trials: A review of HIV vaccine preparedness studies. Vaccine. 2011, 29 (35): 5850-5859. 10.1016/j.vaccine.2011.06.055.PubMed
59.
Ammenwerth E, Schnell-Inderst P, Hoerbst A: Patient empowerment by electronic health records: first results of a systematic review on the benefit of patient portals. Stud Health Technol Inform. 2011, 165: 63-67.PubMed
60.
Dedding C, van Doorn R, Winkler L, Reis R: How will e-health affect patient participation in the clinic? A review of e-health studies and the current evidence for changes in the relationship between medical professionals and patients. Soc Sci Med. 2011, 72 (1): 49-53. 10.1016/j.socscimed.2010.10.017.PubMed
61.
Ennis L, Rose D, Callard F, Denis M, Wykes T: Rapid progress or lengthy process? electronic personal health records in mental health. BMC Psychiatry. 2011, 11: 117-10.1186/1471-244X-11-117.PubMedPubMedCentral
62.
Myers KM, Palmer NB, Geyer JR: Research in child and adolescent telemental health. Child Adolesc Psychiatr Clin N Am. 2011, 20 (1): 155-171. 10.1016/j.chc.2010.08.007.PubMed
63.
Ryhänen AM, Siekkinen M, Rankinen S, Korvenranta H, Leino-Kilpi H: The effects of internet or interactive computer-based patient education in the field of breast cancer: A systematic literature review. Patient Educ Couns. 2010, 79 (1): 5-13. 10.1016/j.pec.2009.08.005.PubMed
64.
Samoocha D, Bruinvels DJ, Elbers NA, Anema JR, van der Beek AJ: Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res. 2010, 12 (2): e23-10.2196/jmir.1286.PubMedPubMedCentral
65.
Clavering EK, McLaughlin J: Children's participation in health research: from objects to agents?. Child Care Health Dev. 2010, 36 (5): 603-611. 10.1111/j.1365-2214.2010.01094.x.PubMed
66.
Schwappach DLB: Engaging patients as vigilant partners in safety: A systematic review. Med Care Res Rev. 2010, 67 (2): 119-148. 10.1177/1077558709342254.PubMed
67.
Schwappach DLB, Wernli M: Medication errors in chemotherapy: incidence, types and involvement of patients in prevention. A review of the literature. Eur J Cancer Care (Engl). 2010, 19 (3): 285-292. 10.1111/j.1365-2354.2009.01127.x.
68.
Catalani C, Minkler M: Photovoice: a review of the literature in health and public health. Health Educ Behav. 2010, 37 (3): 424-451. 10.1177/1090198109342084.PubMed
69.
Dubois JM, Bailey-Burch B, Bustillos D, Campbell J, Cottler L, Fisher CB, Hadley WB, Hoop JG, Roberts L, Salter EK, Sieber JE, Stevenson RD: Ethical issues in mental health research: the case for community engagement. Curr Opin Psychiatry. 2011, 24 (3): 208-214. 10.1097/YCO.0b013e3283459422.PubMedPubMedCentral
70.
Henderson S, Kendall E: Culturally and linguistically diverse peoples' knowledge of accessibility and utilisation of health services: exploring the need for improvement in health service delivery. Aust J Prim Health. 2011, 17 (2): 195-201. 10.1071/PY10065.PubMed
71.
Liaw ST, Lau P, Pyett P, Furler J, Burchill M, Rowley K, Kelaher M: Successful chronic disease care for Aboriginal Australians requires cultural competence. Aust N Z J Public Health. 2011, 35 (3): 238-248. 10.1111/j.1753-6405.2011.00701.x.PubMed
72.
Curtis-Tyler K: Levers and barriers to patient-centred care with children: findings from a synthesis of studies of the experiences of children living with type 1 diabetes or asthma. Child Care Health Dev. 2011, 37 (4): 540-550. 10.1111/j.1365-2214.2010.01180.x.PubMed
73.
Sykes LL, Walker RL, Ngwakongnwi E, Quan H: A systematic literature review on response rates across racial and ethnic populations. Can J Public Health. 2010, 101 (3): 213-219. Revue Canadienne de Sante PubliquePubMed
74.
Chung EY-h, Packer T, Yau M: When East meets Wests: community-based rehabilitation in Chinese communities. Disabil Rehabil. 2011, 33 (8): 697-705. 10.3109/09638288.2010.506240.PubMed
75.
Hibbard JH: Using systematic measurement to target consumer activation strategies. Med Care Res Rev. 2009, 66 (1 suppl): 9S-27S. 10.1177/1077558708326969.PubMed
76.
Coulter A, Edwards A, Elwyn G, Thomson R: Implementing shared decision making in the UK. ZEFQ. 2011, 105 (4): 300-304.
77.
Legare F, Stacey D, Forest PG, Coutu MF: Moving SDM forward in Canada: Milestones, public involvement, and barriers that remain. ZEFQ. 2011, 105 (4): 245-253.
78.
Abreu MM, Battisti R, Martins RS, Baumgratz TD, Cuziol M: Shared decision making in Brazil: history and current discussion. ZEFQ. 2011, 105 (4): 240-244.
79.
McCaffery KJ, Smith S, Shepherd HL, Sze M, Dhillon H, Jansen J, Juraskova I, Butow PN, Trevena L, Carey K, Tattersall MHN, Barratt A: Shared decision making in Australia in 2011. ZEFQ. 2011, 105 (4): 234-239.
80.
Gillis , Mac L: Service learning with vulnerable populations: review of the literature. Int J Nurs Educ Scholarsh. 2010, 7 (1): 1.
81.
Gruman J, Rovner MH, French ME, Jeffress D, Sofaer S, Shaller D, Prager DJ: From patient education to patient engagement: implications for the field of patient education. Patient Educ Couns. 2010, 78 (3): 350-356. 10.1016/j.pec.2010.02.002.PubMed
82.
Johanson R, Rigby C, Newburn M, Stewart M, Jones P: Suggestions in maternal and child health for the National Technology Assessment Programme: a consideration of consumer and professional priorities. J Roy Soc Prom Health. 2002, 122 (1): 50-10.1177/146642400212200115.
83.
Dolan P, Cookson R, Ferguson B: Effect of discussion and deliberation on the public's views of priority setting in health care: focus group study. BMJ. 1999, 318 (7188): 916-919. 10.1136/bmj.318.7188.916.PubMedPubMedCentral
84.
Iedema R, Merrick E, Piper D, Britton K, Gray J, Verma R, Manning N: Codesigning as a Discursive Practice in Emergency Health Services: The Architecture of Deliberation. J Appl Behav Sci. 2010, 46 (1): 73-91. 10.1177/0021886309357544.
85.
Curtis LC, Wells SM, Penney DJ, Ghose SS, Mistler LA, Mahone IH, Delphin-Rittmon M, del Vecchio P, Lesko S: Pushing the envelope: shared decision making in mental health. Psychiatr Rehabil J. 2010, 34 (1): 14-22.PubMed
86.
Gagnon AJ, Sandall J: Individual or group antenatal education for childbirth or parenthood, or both [Systematic Review]. Cochrane Database Syst Rev. 2011, 10: 10.
87.
O'Connor A, Stacey D, Bennett CL, Barry MJ, Col NF, Eden KB, HolmesRovner M, LlewellynThomas H, Lyddiatt A, Legare F, Thomson R: Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2011, 10: 10.
88.
Sivell S, Edwards A, Elwyn GR: Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions?. Health Expect. 2011, 14: 6-19.PubMed
89.
Bunge M, Muhlhauser I, Steckelberg A: What constitutes evidence-based patient information? Overview of discussed criteria. Patient Educ Couns. 2010, 78 (3): 316-328. 10.1016/j.pec.2009.10.029.PubMed
90.
Crawford MJ, Aldridge T, Bhui K, Rutter D, Manley C, Weaver T, Tyrer P, Fulop N: User involvement in the planning and delivery of mental health services: A cross-sectional survey of service users and providers. Acta Psychiatr Scand. 2003, 107 (6): 410-414. 10.1034/j.1600-0447.2003.00049.x.PubMed
91.
Hordern A, Georgiou A, Whetton S, Prgomet M: Consumer e-health: an overview of research evidence and implications for future policy. Health Inf Manag J. 2011, 40 (2): 6-14.
92.
Forbes A, While A, Griffiths P, Ismail K, Heller S: Organizing and delivering diabetes education and self-care support: findings of scoping project. J Health Serv Res Policy. 2011, 16 (Suppl 1): 42-49. 10.1258/jhsrp.2010.010102.PubMed
93.
Repper J, Carter T: A review of the literature on peer support in mental health services. J Ment Health. 2011, 20 (4): 392-411. 10.3109/09638237.2011.583947.PubMed
94.
Doughty C, Tse S: Can consumer-led mental health services be equally effective? An integrative review of CLMH services in high-income countries. Community Ment Health J. 2011, 47 (3): 252-266. 10.1007/s10597-010-9321-5.PubMed
95.
Wright-Berryman JL, McGuire AB, Salyers MP: A review of consumer-provided services on assertive community treatment and intensive case management teams: implications for future research and practice. J Am Psychiatr Nurses Assoc. 2011, 17 (1): 37-44. 10.1177/1078390310393283.PubMedPubMedCentral
96.
Lassi ZS, Haider BA, Bhutta ZA: Community-based intervention packages for reducing maternal and neonatal morbidity and mortality and improving neonatal outcomes. Cochrane Database Syst Rev. 2011, 1: 1.
97.
Roozen HG, de Waart R: Community reinforcement and family training: an effective option to engage treatment-resistant substance-abusing individuals in treatment [corrected] [published erratum appears in ADDICTION 2010 Nov;105(11):2040]. Addiction. 2010, 105 (10): 1729-1738. 10.1111/j.1360-0443.2010.03016.x.PubMed
98.
Preston R, Waugh H, Larkins S, Taylor J: Community participation in rural primary health care: intervention or approach?. Aust J Prim Health. 2010, 16 (1): 4-16. 10.1071/PY09053.PubMed
99.
Rose KD, Ross JS, Horwitz LI: Advanced access scheduling outcomes: A systematic review. Arch Intern Med. 2011, 171 (13): 1150-1159. 10.1001/archinternmed.2011.168.PubMedPubMedCentral
100.
Macdonald G, Turner W: Treatment Foster Care for improving outcomes in children and young people. Cochrane Database Syst Rev. 2011, 5: 5.
101.
Ryan R, Santesso N, Hill S, Lowe D, Kaufman C, Grimshaw J: Consumer-oriented interventions for evidence-based prescribing and medicines use: an overview of systematic reviews. Cochrane Database Syst Rev. 2011, 5: 260.
102.
Minet L, Møller S, Vach W, Wagner L, Henriksen JE: Mediating the effect of self-care management intervention in type 2 diabetes: A meta-analysis of 47 randomised controlled trials. Patient Educ Couns. 2010, 80 (1): 29-41. 10.1016/j.pec.2009.09.033.PubMed
103.
Thomas RE, Russell M, Lorenzetti D: Interventions to increase influenza vaccination rates of those 60 years and older in the community. Cochrane Database Syst Rev. 2010, CD005188-9
104.
Boote J, Baird W, Beecroft C: Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy. 2010, 95 (1): 10-23. 10.1016/j.healthpol.2009.11.007.PubMed
105.
Boote J, Baird W, Sutton A: Public involvement in the systematic review process in health and social care: A narrative review of case examples. Health Policy. 2011, 102 (2–3): 105-116.PubMed
106.
Ko H, Turner T, Jones C, Hill C: Patient-held medical records for patients with chronic disease: a systematic review. Qual Saf Health Care. 2010, 19 (5): 1-7.
107.
Scholl I, Koelewijn-van Loon M, Sepucha K, Elwyn G, Legare F, Harter M, Dirmaier J: Measurement of shared decision making - a review of instruments. Z. 2011, 105 (4): 313-324.
108.
Foss C, Askautrud M: Measuring the participation of elderly patients in the discharge process from hospital: a critical review of existing instruments. Scand J Caring Sci. 2010, 24 (Suppl 1): 46-55.PubMed
109.
Fine E, Reid MC, Shengelia R, Adelman RD: Directly observed patient-physician discussions in palliative and end-of-life care: A systematic review of the literature. J Palliat Med. 2010, 13 (5): 595-603. 10.1089/jpm.2009.0388.PubMedPubMedCentral
110.
Happell B, Roper C: Consumer participation in mental health research: Articulating a model to guide practice. Australas Psychiatry. 2007, 15 (3): 237-241. 10.1080/10398560701320113.PubMed
111.
Oliver S, Clarke-Jones L, Rees R, Milne R, Buchanan P, Gabbay J, Gyte G, Oakley A, Stein K: Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technol Assess. 2004, 8 (15): 1-148. III-IVPubMed
112.
Woodall A, Morgan C, Sloan C, Howard L: Barriers to participation in mental health research: are there specific gender, ethnicity and age related barriers?. BMC Psychiatry. 2010, 10: 103-10.1186/1471-244X-10-103.PubMedPubMedCentral
113.
Bajramovic J, Emmerton L, Tett SE: Perceptions around concordance–focus groups and semi‒structured interviews conducted with consumers, pharmacists and general practitioners. Health Expect. 2004, 7 (3): 221-234. 10.1111/j.1369-7625.2004.00280.x.PubMed
114.
Australian Bureau of Statistics: adult Literacy and Life Skills Survey, Summary Results. 2006, Canberra: Australian Bureau of Statistics, Australian Government Publishing Service
115.
Tariman JD, Berry DL, Cochrane B, Doorenbos A, Schepp K: Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol. 2010, 21 (6): 1145-1151. 10.1093/annonc/mdp534.PubMed
116.
Chen PG, Diaz N, Lucas G, Rosenthal MS: Dissemination of results in community-based participatory research. Am J Prev Med. 2010, 39 (4): 372-378. 10.1016/j.amepre.2010.05.021.PubMed
117.
118.
Frosch DL, Moulton BW, Wexler RM, Holmes-Rovner M, Volk RJ, Levin CA: Shared decision making in the United States: Policy and implementation activity on multiple fronts. ZEFQ. 2011, 105 (4): 305-312.
119.
Moumjid N, Christine D-B, Denois-Regnier V, Roux P, Soum-Pouyalet F: Shared decision making in the physician-patient encounter in France: a general overview in 2011. ZEFQ. 2011, 105 (4): 259-262.
120.
Harter M, Muller H, Dirmaier J, Donner-Banzhoff N, Bieber C, Eich W: Patient participation and shared decision making in Germany - History, agents and current transfer to practice. ZEFQ. 2011, 105 (4): 263-270.
121.
Perestelo-Perez L, Perez-Ramos J, Gonzalez-Lorenzo M, Rivero-Santana A, Serrano-Aguilar P: Decision aids for patients facing health treatment decisions in Spain: preliminary results. Patient Educ Couns. 2010, 80 (3): 364-371. 10.1016/j.pec.2010.06.001.PubMed
122.
Perestelo-Perez L, Rivero-Santana A, Perez-Ramos J, Gonzalez-Lorenzo M, Roman JGS, Serrano-Aguilar P: Shared decision making in Spain: Current state and future perspectives. ZEFQ. 2011, 105 (4): 289-295.
123.
Miron-Shatz T, Golan O, Brezis M, Siegal G, Doniger GM: The status of shared decision making and citizen participation in Israeli medicine. ZEFQ. 2011, 105 (4): 271-276.
Metadata
Title
Implementing strategies in consumer and community engagement in health care: results of a large-scale, scoping meta-review
Authors
Pooria Sarrami-Foroushani
Joanne Travaglia
Deborah Debono
Jeffrey Braithwaite
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2014
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/1472-6963-14-402

Other articles of this Issue 1/2014

BMC Health Services Research 1/2014 Go to the issue

Research article

Key concepts in consumer and community engagement: a scoping meta-review

Research article

Effective policy initiatives to constrain lipid-lowering drug expenditure growth in South Korea

Research article

People with limiting long-term conditions report poorer experiences and more problems with hospital care

Research article

Facilitators and barriers to applying a national quality registry for quality improvement in stroke care

Research article

Comparing the implementation of team approaches for improving diabetes care in community health centers

Research article

Demographics, clinical characteristics, health resource utilization and cost of chronic thromboembolic pulmonary hypertension patients: retrospective results from six European countries