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BMC Health Services Research
Published in: BMC Health Services Research 1/2014

Open Access 01-12-2014 | Research article

Why carers use adult day respite: a mixed method case study

Authors: Christine M Stirling, Corinna A Dwan, Angela R McKenzie

Published in: BMC Health Services Research | Issue 1/2014

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Abstract

Background

We need to improve our understanding of the complex interactions between family carers’ emotional relationships with care-recipients and carers use of support services. This study assessed carer’s expectations and perceptions of adult day respite services and their commitment to using services.

Methods

A mixed-method case study approach was used with psychological contract providing a conceptual framework. Data collection was situated within an organisational case study, and the total population of carers from the organisation’s day respite service were approached. Fifty respondents provided quantitative and qualitative data through an interview survey. The conceptual framework was expanded to include Maslow’s hierarchy of needs during analysis.

Results

Carers prioritised benefits for and experiences of care-recipients when making day respite decisions. Respondents had high levels of trust in the service and perceived that the major benefits for care-recipients were around social interaction and meaningful activity with resultant improved well-being. Carers wanted day respite experiences to include all levels of Maslow’s hierarchy of needs from the provision of physiological care and safety through to the higher levels of belongingness, love and esteem.

Conclusion

The study suggests carers need to trust that care-recipients will have quality experiences at day respite. This study was intended as a preliminary stage for further research and while not generalizable it does highlight key considerations in carers’ use of day respite services.
Appendix
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Literature
1.
Pinquart M, Sorensen S: Helping caregivers of persons with dementia: which interventions work and how large are their effects?. Int Psychogeriatr. 2006, 18 (4): 577-595. 10.1017/S1041610206003462.CrossRefPubMed
2.
Australian Institute of Health and Welfare: Dementia in Australia: National data analysis and development. 2007, Canberra: AIHW
3.
Orpin P, Stirling C, Hetherington S, Robinson A: Rural dementia carers: formal and informal sources of support. Ageing Soc. 2014, 34 (2): 1-24.CrossRef
4.
Eagar K, Owen A, Williams K, Westera A, Marosszeky N, England R, Morris D: Effective Caring: a synthesis of the international evidence on carer needs and interventions. 2007, 0-128.
5.
Economics A: Caring places: planning for aged care and dementia 2010–2050. 2010, Canberra: Access Economics Pty Ltd
6.
Cuijpers P: Depressive disorders in care givers of dementia: a systematic review. Ageing Ment Health. 2005, 9: 325-330. 10.1080/13607860500090078.CrossRef
7.
Sorenson S, Duberstein P, Gill D, Pinquart M: Dementia care: mental health effects, intervention strategies, and clinical implications. Lancet Neurol. 2006, 5: 961-973. 10.1016/S1474-4422(06)70599-3.CrossRef
8.
Torti FM, Gwyther LP, Reed SD, Friedman JY, Schulman KA: A multinational review of recent trends and reports in dementia caregiver burden. Alzheimer Dis Assoc Disord. 2004, 18 (2): 99-109. 10.1097/01.wad.0000126902.37908.b2.CrossRefPubMed
9.
Etters L, Goodall D, Harrison BE: Caregiver burden among dementia patient caregivers: A review of the literature. J Am Acad Nurse Pract. 2008, 20 (8): 423-428. 10.1111/j.1745-7599.2008.00342.x.CrossRefPubMed
10.
Eagar K, Owen A, Williams K, Westera A, Marosszeky N, England R, Morris D: Effective Caring: a synthesis of the international evidence on carer needs and interventions. 2007, University of Wollongong: Wollongong: Centre for Health Service Development, 0-128.
11.
McConaghy R, Caltabiano ML: Caring for a person with dementia: exploring relationships between perceived burden, depression, coping and well-being. Nurs Health Sci. 2005, 7: 81-91. 10.1111/j.1442-2018.2005.00213.x.CrossRefPubMed
12.
Phillipson L, Magee C, Jones SC: Why carers of people with dementia do not utilise out-of-home respite services. Health Soc Care Community. 2013, 21 (4): 411-422. 10.1111/hsc.12030.CrossRefPubMed
13.
Droes R, Meiland FJM, Schmitz MJ, Van Tilburg W: Effect of the Meeting Centres Support Program on informal carers of people with dementia: results from a multi-centre study. Aging Ment Health. 2006, 10 (2): 112-124. 10.1080/13607860500310682.CrossRefPubMed
14.
Gaugler JE, Jarrott SE, Zarit SH, Stephens MP, Townsend A, Greene R: Respite for dementia caregivers: the effects of adult day service use on caregiving hours and care demands. Int Psychogeriatr. 2003, 15 (1): 37-58. 10.1017/S1041610203008743.CrossRefPubMed
15.
Parker D, Mills S, Abbey J: Effectiveness of interventions that assist caregivers to support people with dementia living in the community: a systematic review. Int J Evid Based Healthc. 2008, 6: 137-172.PubMed
16.
Mason A, Weatherly H, Spilsbury K, Golder S, Arksey H, Adamson J, Drummond M: The effectiveness and cost-effectiveness of respite for caregivers of frail older people. J Am Geriatr Soc. 2007, 55 (2): 290-299. 10.1111/j.1532-5415.2006.01037.x.CrossRefPubMed
17.
Femia EEP, Zarit SHP, Stephens MAPP, Greene RP: Impact of adult day services on behavioral and psychological symptoms of dementia. Gerontologist. 2007, 47 (6): 775-788. 10.1093/geront/47.6.775.CrossRefPubMed
18.
Warren S, Kerr JR, Smith D, Godkin D, Schalm C: The impact of adult day programs on family caregivers of elderly relatives. J Community Health Nurs. 2003, 20 (4): 209-221. 10.1207/S15327655JCHN2004_02.CrossRefPubMed
19.
Ward M, Mary W: The views of people with a physical disability on day activity centres in the Eastern Region of Ireland. Disabil Rehabil. 2003, 25 (10): 527-527. 10.1080/0963828031000090399.CrossRefPubMed
20.
Fulbright SA: Rates of depression and participation in senior centre activities in community-dwelling older persons. J Psychiatr Ment Health Nurs. 2010, 17 (5): 385-391. 10.1111/j.1365-2850.2009.01535.x.CrossRefPubMed
21.
Brodaty H, Thomson C, Thompson C, Fine M: Why caregivers of people with dementia and memory loss don't use services. Int J Geriatr Psychiatry. 2005, 20 (6): 537-546. 10.1002/gps.1322.CrossRefPubMed
22.
Toseland RW, McCallion P, Gerber T, Banks S: Predictors of health and human services use by persons with dementia and their family caregivers. Soc Sci Med. 2002, 55 (7): 1255-1266. 10.1016/S0277-9536(01)00240-4.CrossRefPubMed
23.
Robinson A, Elder J, Emden C, Lea E, Vickers J, Turner P: Information pathways into dementia care services: family carers have their say. Dementia: Int J Soc Res Prac. 2009, 8 (1): 17-37.CrossRef
24.
Stirling C, Andrews S, Croft T, Vickers J, Turner P, Robinson A: Measuring dementia carers' unmet need for services - an exploratory mixed method study. BMC Health Serv Res. 2010, 10 (122): EJ
25.
Wackerbarth S: Modeling a dynamic decision process: supporting the decisions of caregivers of family members with dementia. Qual Health Res. 1999, 9 (3): 294-314. 10.1177/104973299129121875.CrossRef
26.
Stirling C, Leggett S, Lloyd B, Scott J, Blizzard L, Quinn S, Robinson A: Decision aids for respite service choices by carers of people with dementia: development and pilot RCT. BMC Med Inform Decis Mak. 2012, 12 (1): 21-10.1186/1472-6947-12-21.CrossRefPubMedPubMedCentral
27.
Greenberger H, Litwin H: Can burdened caregivers be effective facilitators of elder care-recipient health care?. J Adv Nurs. 2003, 41 (4): 332-341. 10.1046/j.1365-2648.2003.02531.x.CrossRefPubMed
28.
Yin RK: Case Study Research: design and methods. 2006, Thousand Oaks: Sage Publications, 3
29.
Kitchener A: Mixed methods in case study research. Encyclopedia of case study research. Edited by: Mills A, Durepos G, Wiebe E. 2010, Thousand Oaks, CA: Sage Publications Inc, 562-565.
30.
Rousseau DM: Psychological contracts in organizations: understanding written and unwritten agreements. 1995, Thousand Oaks, CA: Sage
31.
Stirling C, Kilpatrick S, Orpin P: A psychological contract perspective to the link between non-profit organizations' management practices and volunteer sustainability. Hum Rescs Dev Int. 2011, 14 (3): 321-336. 10.1080/13678868.2011.585066.CrossRef
32.
O'Donohue W, Nelson L: Let's be professional about this: ideology and the psychological contracts of registered nurses. J Nurs Manag. 2007, 15 (5): 547-555. 10.1111/j.1365-2834.2007.00715.x.CrossRefPubMed
33.
Annunzio-Green ND, Francis H: Human resource development and the psychological contract: Great expectations or false hopes?. Hum Rescs Dev Int. 2005, 8 (3): 327-344. 10.1080/13678860500199725.CrossRef
34.
Hindmarch I, Lehfeld H, De Jongh P, Erzigkeit H: The bayer activities of daily living scale (B-ADL). Dement Geriatr Cogn Disord. 1998, 9 (Supp 2): 20-26.CrossRefPubMed
35.
Schölzel-Dorenbos CJ, Ettema TP, Bos J, Boelens-van der Knoop E, Gerritsen DL, Hoogeveen F, De Lange J, Meihuizen L, Dröes R-M: Evaluating the outcome of interventions on quality of life in dementia: selection of the appropriate scale. Int J Geriatr Psychiatry. 2007, 22 (6): 511-519. 10.1002/gps.1719.CrossRefPubMed
36.
Thorgrimsen L, Selwood A, Spector A, Royan L, De Madariaga LM, Woods RT, Orrell M: Whose quality of life is it anyway? The validity and reliability of the quality of life-alzheimer's disease (QoL-AD) scale. Alzheimer Dis Assoc Disord. 2003, 17 (4): 201-208. 10.1097/00002093-200310000-00002.CrossRefPubMed
37.
Hodgson C, Higginson I, Jefferys P: Carers' Checklist: an outcome measure for people with dementia and their carers. 1998
38.
Maslow AH: A theory of human motivation. Psychol Rev. 1943, 50 (4): 370-397.CrossRef
39.
Carroll C, Booth A, Cooper K: A worked example of 'bes fit' framework synthesis: A systematic review of views concerning the taking of some potential chemopreventive agents. BMC Med Res Methodol. 2011, 11 (29).
40.
Clark JP: How to peer review a qualitative manuscript. Peer Review in Health Sciences. Edited by: Godlee F, Jefferson T. 2003, London: BMJ Books, 219-235. 2
Metadata
Title
Why carers use adult day respite: a mixed method case study
Authors
Christine M Stirling
Corinna A Dwan
Angela R McKenzie
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2014
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/1472-6963-14-245

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