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Published in: BMC Health Services Research 1/2014

Open Access 01-12-2014 | Research article

The functional barometer –a self-report questionnaire in accordance with the international classification of functioning, disability and health for pain related problems; validity and patient-observer comparisons

Authors: Jan-Rickard Norrefalk, Elisabeth Svensson

Published in: BMC Health Services Research | Issue 1/2014

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Abstract

Background

The International Classification of Functioning, Disability and Health, (ICF) provides a unified, international standardized framework for describing and classifying health and health-related functioning and disability. Based on an ICF core sets the Functional Barometer, (FB), was developed for assessments of perceived pain-related problems with functions, activity and quality-of-life by patients suffering from long-term pain. The aim was to evaluate the construct validity, and to compare the assessments of a patient’s problems from the perspectives of the patient and of the examining professional when using the validated FB and corresponding ICF-classification form, respectively.

Methods

Patients with long-term pain for more than 3 months that visited one of four pain clinics during specified time periods of data collections were eligible. The self-report Balanced Inventory for Spinal disorders was used for validation of the FB. Correspondingly to the validated FB an ICF-classification form for professional’s assessment was developed. The data sets for these inter-scale and the patient-professional comparisons were collected adjacent to the clinical examination. By the statistical method used for evaluation of the pairs of ordinal data presence of systematic disagreement was identified and measured separately from additional individual variations.

Results

The validation process resulted in a revised FB(2.0) that meets the requirements of good construct and content validity. The professionals’ ICF-classifications of the patients’ problems disagreed with the patients’ assessments on the FB(2.0); the percentage agreements ranged from 18% to 51%. The main reason was that the practitioners systematically underestimated the patients’ levels of problems but the different professionals contributed also to a large individual variability (noise) in assessment.

Conclusions

This study presents an ICF-based validated self-report questionnaire, The FB, to be used for identifying and describing pain-related problems with current functioning, activities and quality-of-life as perceived by patients suffering from long-term pain. The strong evidences of underestimation of the patients’ problems and the variability in the professionals’ ICF-classifications demonstrated the importance of describing the patient’s problems both from the patient’s and the professional’s perspective beneficial for the patient’s rehabilitation.
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Literature
1.
go back to reference Breivik H, Collett B, Ventafridda V, Cohen R, Gallagher D: Survey of persistent pain in Europe: prevalence, impact on daily life, and treatment. Eur J Pain. 2006, 10: 287-333. 10.1016/j.ejpain.2005.06.009.CrossRefPubMed Breivik H, Collett B, Ventafridda V, Cohen R, Gallagher D: Survey of persistent pain in Europe: prevalence, impact on daily life, and treatment. Eur J Pain. 2006, 10: 287-333. 10.1016/j.ejpain.2005.06.009.CrossRefPubMed
3.
go back to reference Poole H, White S, Blake C, Murphy P, Bramwell R: Depression in persistent pain patients: prevalence and measurement. Pain Pract. 2009, 9: 173-180. 10.1111/j.1533-2500.2009.00274.x.CrossRefPubMed Poole H, White S, Blake C, Murphy P, Bramwell R: Depression in persistent pain patients: prevalence and measurement. Pain Pract. 2009, 9: 173-180. 10.1111/j.1533-2500.2009.00274.x.CrossRefPubMed
4.
go back to reference Hasselström J, Liu-Palmgren J, Rasjo-Wraak G: Prevalence of pain in general practice. Eur J Pain. 2002, 6: 375-385. 10.1016/S1090-3801(02)00025-3.CrossRefPubMed Hasselström J, Liu-Palmgren J, Rasjo-Wraak G: Prevalence of pain in general practice. Eur J Pain. 2002, 6: 375-385. 10.1016/S1090-3801(02)00025-3.CrossRefPubMed
5.
go back to reference Mäntyselkä P, Kumpusalo E, Ahonen R, Kumpusalo A, Kauhanen J, Viinamäki H, Halonen P, Takala J: Pain as a reason to visit the doctor: a study in Finnish primary health care. Pain. 2001, 89: 175-180. 10.1016/S0304-3959(00)00361-4.CrossRefPubMed Mäntyselkä P, Kumpusalo E, Ahonen R, Kumpusalo A, Kauhanen J, Viinamäki H, Halonen P, Takala J: Pain as a reason to visit the doctor: a study in Finnish primary health care. Pain. 2001, 89: 175-180. 10.1016/S0304-3959(00)00361-4.CrossRefPubMed
6.
go back to reference Norrefalk JR, Littwold-Poljo A, Ryhle L, Jansen GB: Effect on work ability after team evaluation of functioning regarding pain, self-rated disability, and work ability assessment. J Multidiscip Healthc. 2010, 3: 155-159.PubMedPubMedCentral Norrefalk JR, Littwold-Poljo A, Ryhle L, Jansen GB: Effect on work ability after team evaluation of functioning regarding pain, self-rated disability, and work ability assessment. J Multidiscip Healthc. 2010, 3: 155-159.PubMedPubMedCentral
7.
go back to reference Turk DC, Rudy TE: Persistent pain and the injured worker. J Occup Rehabil. 1991, 1: 159-179. 10.1007/BF01073385.CrossRefPubMed Turk DC, Rudy TE: Persistent pain and the injured worker. J Occup Rehabil. 1991, 1: 159-179. 10.1007/BF01073385.CrossRefPubMed
8.
go back to reference Lund I, Lundeberg T, Kowalski J, Sandberg L, Norrbrink Budh C, Svensson E: Evaluation of variations in sensory and pain threshold assessments by electrocutaneous stimulation. Physiother Theory Pract. 2005, 21: 81-92. 10.1080/09593980590922307.CrossRefPubMed Lund I, Lundeberg T, Kowalski J, Sandberg L, Norrbrink Budh C, Svensson E: Evaluation of variations in sensory and pain threshold assessments by electrocutaneous stimulation. Physiother Theory Pract. 2005, 21: 81-92. 10.1080/09593980590922307.CrossRefPubMed
9.
go back to reference Scott PJ, Huskisson EC: Measurement of functional capacity with visual analogue scales. Rheumatol Rehabil. 1977, 16: 257-259. 10.1093/rheumatology/16.4.257.CrossRefPubMed Scott PJ, Huskisson EC: Measurement of functional capacity with visual analogue scales. Rheumatol Rehabil. 1977, 16: 257-259. 10.1093/rheumatology/16.4.257.CrossRefPubMed
10.
go back to reference Main CJ: The modified somatic perception questionnaire (MSPQ). J Psychosom Res. 1983, 27: 503-514. 10.1016/0022-3999(83)90040-5.CrossRefPubMed Main CJ: The modified somatic perception questionnaire (MSPQ). J Psychosom Res. 1983, 27: 503-514. 10.1016/0022-3999(83)90040-5.CrossRefPubMed
11.
go back to reference Salen BA, Spangfort EV, Nygren AL, Nordemar R: The disability rating index: an instrument for the assessment of disability in clinical settings. J Clin Epidemiol. 1994, 47: 1423-1435. 10.1016/0895-4356(94)90086-8.CrossRefPubMed Salen BA, Spangfort EV, Nygren AL, Nordemar R: The disability rating index: an instrument for the assessment of disability in clinical settings. J Clin Epidemiol. 1994, 47: 1423-1435. 10.1016/0895-4356(94)90086-8.CrossRefPubMed
12.
go back to reference Kerns RD, Turk DC, Rudy TE: The West Haven-Yale multidimensional pain inventory (WHYMPI). Pain. 1985, 23: 345-356. 10.1016/0304-3959(85)90004-1.CrossRefPubMed Kerns RD, Turk DC, Rudy TE: The West Haven-Yale multidimensional pain inventory (WHYMPI). Pain. 1985, 23: 345-356. 10.1016/0304-3959(85)90004-1.CrossRefPubMed
13.
go back to reference Turk DC, Rudy TE: Toward an empirically derived taxonomy of persistent pain patients: integration of psychological assessment data. J Consult Clin Psychol. 1988, 56: 233-238.CrossRefPubMed Turk DC, Rudy TE: Toward an empirically derived taxonomy of persistent pain patients: integration of psychological assessment data. J Consult Clin Psychol. 1988, 56: 233-238.CrossRefPubMed
14.
go back to reference Bergström G, Jensen IB, Bodin L, Linton SJ, Nygren AL, Carlsson SG: Reliability and factor structure of the multidimensional pain inventory – Swedish language version (MPI-S). Pain. 1998, 75: 101-110. 10.1016/S0304-3959(97)00210-8.CrossRefPubMed Bergström G, Jensen IB, Bodin L, Linton SJ, Nygren AL, Carlsson SG: Reliability and factor structure of the multidimensional pain inventory – Swedish language version (MPI-S). Pain. 1998, 75: 101-110. 10.1016/S0304-3959(97)00210-8.CrossRefPubMed
15.
go back to reference Zigmond AS, Snaith RP: The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983, 67: 361-370. 10.1111/j.1600-0447.1983.tb09716.x.CrossRefPubMed Zigmond AS, Snaith RP: The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983, 67: 361-370. 10.1111/j.1600-0447.1983.tb09716.x.CrossRefPubMed
16.
go back to reference Nyberg V, Sanne H, Sjölund BH: Swedish quality registry for pain rehabilitation: purpose, design, implementation and characteristics of referred patients. J Rehabil Med. 2011, 43: 50-57. 10.2340/16501977-0631.CrossRefPubMed Nyberg V, Sanne H, Sjölund BH: Swedish quality registry for pain rehabilitation: purpose, design, implementation and characteristics of referred patients. J Rehabil Med. 2011, 43: 50-57. 10.2340/16501977-0631.CrossRefPubMed
17.
go back to reference Cieza A, Stucki G: The international classification of functioning disability and health: its development process and content validity. Eur J Phys Rehabil Med. 2008, 44: 303-313.PubMed Cieza A, Stucki G: The international classification of functioning disability and health: its development process and content validity. Eur J Phys Rehabil Med. 2008, 44: 303-313.PubMed
19.
go back to reference Stucki G, Kostanjsek N, Üstün B, Cieza A: ICF-based classification and measurement of functioning. Eur J Phys Rehabil Med. 2008, 44: 315-328.PubMed Stucki G, Kostanjsek N, Üstün B, Cieza A: ICF-based classification and measurement of functioning. Eur J Phys Rehabil Med. 2008, 44: 315-328.PubMed
20.
go back to reference Svensson E: Analysis of systematic and random differences between paired ordinal categorical data. 1993, Göteborg: PhD Dissertation, Göteborg University Svensson E: Analysis of systematic and random differences between paired ordinal categorical data. 1993, Göteborg: PhD Dissertation, Göteborg University
21.
go back to reference Kirshner B, Guyatt G: A methodological framework for assessing health indices. J Chron Dis. 1985, 38: 27-36. 10.1016/0021-9681(85)90005-0.CrossRefPubMed Kirshner B, Guyatt G: A methodological framework for assessing health indices. J Chron Dis. 1985, 38: 27-36. 10.1016/0021-9681(85)90005-0.CrossRefPubMed
22.
go back to reference Rauch A, Cieza A, Stucki G: How to apply international classification of functioning, disability and health (ICF) for rehabilitation management in clinical practice. Eur J Phys Rehabil Med. 2008, 44: 329-342.PubMed Rauch A, Cieza A, Stucki G: How to apply international classification of functioning, disability and health (ICF) for rehabilitation management in clinical practice. Eur J Phys Rehabil Med. 2008, 44: 329-342.PubMed
23.
go back to reference Grill E, Quittan M, Huber OE, Boldt C, Stucki G: Identification of relevant ICF categories by health professionals in the acute hospital. Disabil Rehabil. 2005, 27: 437-445. 10.1080/09638280400014030.CrossRefPubMed Grill E, Quittan M, Huber OE, Boldt C, Stucki G: Identification of relevant ICF categories by health professionals in the acute hospital. Disabil Rehabil. 2005, 27: 437-445. 10.1080/09638280400014030.CrossRefPubMed
24.
go back to reference Stucki G, Cieza A: The international classification of functioning, disability and health (ICF) in physical and rehabilitation medicine. Eur J Phys Rehabil Med. 2008, 44: 299-302.PubMed Stucki G, Cieza A: The international classification of functioning, disability and health (ICF) in physical and rehabilitation medicine. Eur J Phys Rehabil Med. 2008, 44: 299-302.PubMed
25.
go back to reference Cieza A, Ewert T, Üstün TB, Chatterji S, Kostanjsek N, Stucki G: Development of ICF core sets for patients with chronic conditions. J Rehab Med. 2004, 44 (suppl): 9-11. Cieza A, Ewert T, Üstün TB, Chatterji S, Kostanjsek N, Stucki G: Development of ICF core sets for patients with chronic conditions. J Rehab Med. 2004, 44 (suppl): 9-11.
26.
go back to reference Prodinger B, Salzberger T, Stucki G, Stamm T, Cieza A: Measuring functioning in people with fibromyalgia (FM) based on the international classification of functioning, disability and health (ICF) – A psychometric analysis. Pain Pract. 2012, 12: 255-265. 10.1111/j.1533-2500.2011.00488.x. 10.1111/j.1533-2500.2011.00488.xCrossRefPubMed Prodinger B, Salzberger T, Stucki G, Stamm T, Cieza A: Measuring functioning in people with fibromyalgia (FM) based on the international classification of functioning, disability and health (ICF) – A psychometric analysis. Pain Pract. 2012, 12: 255-265. 10.1111/j.1533-2500.2011.00488.x. 10.1111/j.1533-2500.2011.00488.xCrossRefPubMed
27.
go back to reference Cieza A, Stucki G, Weigl M, Kullman L, Stoll T, Kamen L, Kostanjsek N, Walsh N: ICF core sets for chronic widespread pain. J Rehabil Med. 2004, 44 (suppl): 63-68.CrossRefPubMed Cieza A, Stucki G, Weigl M, Kullman L, Stoll T, Kamen L, Kostanjsek N, Walsh N: ICF core sets for chronic widespread pain. J Rehabil Med. 2004, 44 (suppl): 63-68.CrossRefPubMed
28.
go back to reference Cieza A, Kirchberger I, Biering-Sorensen F, Baumberger M, Charlifue S, Post MW, Campbell R, Kovindha A, Ring H, Sinnott A, Kostanjsek N, Stucki G: ICF core sets for individuals with spinal cord injury in the long-term context. Spinal Cord. 2010, 48: 305-312. 10.1038/sc.2009.183. 10.1038/sc.20098.183CrossRefPubMed Cieza A, Kirchberger I, Biering-Sorensen F, Baumberger M, Charlifue S, Post MW, Campbell R, Kovindha A, Ring H, Sinnott A, Kostanjsek N, Stucki G: ICF core sets for individuals with spinal cord injury in the long-term context. Spinal Cord. 2010, 48: 305-312. 10.1038/sc.2009.183. 10.1038/sc.20098.183CrossRefPubMed
29.
go back to reference The Swedish social insurance agency and the World Health Organization: Klassifikation av funktionstillstånd, funktionshinder och hälsa. The Swedish version of the International Classification of Functioning, Disability and Health (ICF). 2003, Stockholm; Socialstyrelsen: World Health Organization, 4-(ISBN: 91-7201-755-4) The Swedish social insurance agency and the World Health Organization: Klassifikation av funktionstillstånd, funktionshinder och hälsa. The Swedish version of the International Classification of Functioning, Disability and Health (ICF). 2003, Stockholm; Socialstyrelsen: World Health Organization, 4-(ISBN: 91-7201-755-4)
30.
go back to reference Svensson E, Holm S: Separation of systematic and random differences in ordinal rating scales. Stat Med. 1994, 13: 2437-2453. 10.1002/sim.4780132308.CrossRefPubMed Svensson E, Holm S: Separation of systematic and random differences in ordinal rating scales. Stat Med. 1994, 13: 2437-2453. 10.1002/sim.4780132308.CrossRefPubMed
31.
go back to reference Svensson E, Starmark J-E, Ekholm S, von Essen C, Johansson A: Analysis of interobserver disagreement in the assessment of subarachnoid blood and acute hydrocephalus on CT scans. Neurol Res. 1996, 18: 487-494.PubMed Svensson E, Starmark J-E, Ekholm S, von Essen C, Johansson A: Analysis of interobserver disagreement in the assessment of subarachnoid blood and acute hydrocephalus on CT scans. Neurol Res. 1996, 18: 487-494.PubMed
32.
go back to reference Berntson L, Svensson E: Pain assessment in children with JCA; a matter of scale and rater. Acta Paediatr. 2001, 90: 1131-1136. 10.1111/j.1651-2227.2001.tb03242.x.CrossRefPubMed Berntson L, Svensson E: Pain assessment in children with JCA; a matter of scale and rater. Acta Paediatr. 2001, 90: 1131-1136. 10.1111/j.1651-2227.2001.tb03242.x.CrossRefPubMed
33.
go back to reference Bombardier C, Tugwell P: Methodological considerations in functional assessment. J Rheumatol. 1987, 14 (suppl 15): 6-10. Bombardier C, Tugwell P: Methodological considerations in functional assessment. J Rheumatol. 1987, 14 (suppl 15): 6-10.
34.
go back to reference Svensson E: Concordance between ratings using different scales for the same variable. Stat Med. 2000, 19: 3483-3496. 10.1002/1097-0258(20001230)19:24<3483::AID-SIM786>3.0.CO;2-A.CrossRefPubMed Svensson E: Concordance between ratings using different scales for the same variable. Stat Med. 2000, 19: 3483-3496. 10.1002/1097-0258(20001230)19:24<3483::AID-SIM786>3.0.CO;2-A.CrossRefPubMed
35.
go back to reference Svensson E, Schillberg B, Kling AM, Nyström B: The balanced inventory for spinal disorders. The validity of a disease specific questionnaire for evaluation of outcomes in patients with various spinal disorders. Spine. 2009, 34: 1976-1983. 10.1097/BRS.0b013e3181b07d6a.CrossRefPubMed Svensson E, Schillberg B, Kling AM, Nyström B: The balanced inventory for spinal disorders. The validity of a disease specific questionnaire for evaluation of outcomes in patients with various spinal disorders. Spine. 2009, 34: 1976-1983. 10.1097/BRS.0b013e3181b07d6a.CrossRefPubMed
36.
go back to reference Svensson E: Validity. Encyclopaedic Companion to Medical Statistics. Edited by: Everitt BS, Palmer CR. 2010, Chichester: Wiley, 470-471. 2 Svensson E: Validity. Encyclopaedic Companion to Medical Statistics. Edited by: Everitt BS, Palmer CR. 2010, Chichester: Wiley, 470-471. 2
37.
go back to reference Wahlström H: Nonparametric tests for comparing two treatments by using ordinal data. 2004, PhD dissertation. Örebro University, University Library, http://www.ub.oru.se. Wahlström H: Nonparametric tests for comparing two treatments by using ordinal data. 2004, PhD dissertation. Örebro University, University Library, http://​www.​ub.​oru.​se.
38.
go back to reference Stevens SS: On the theory of scales of measurement. Science. 1946, 103: 677-680. 10.1126/science.103.2684.677.CrossRef Stevens SS: On the theory of scales of measurement. Science. 1946, 103: 677-680. 10.1126/science.103.2684.677.CrossRef
39.
40.
go back to reference Siegel S, Castellan NJ: Nonparametric statistics for the behavioral sciences. 1988, New York: McGraw Hill, 2 Siegel S, Castellan NJ: Nonparametric statistics for the behavioral sciences. 1988, New York: McGraw Hill, 2
41.
go back to reference Dybkaer R, Jorgensen K: Measurement, value and scale. Scand J Clin Lab Invest. 1989, 49 (suppl 194): 69-76. Dybkaer R, Jorgensen K: Measurement, value and scale. Scand J Clin Lab Invest. 1989, 49 (suppl 194): 69-76.
42.
go back to reference Merbitz C, Morris J, Grip JC: Ordinal scales and foundations of misinference. Arch Phys Med Rehabil. 1989, 70: 308-312.PubMed Merbitz C, Morris J, Grip JC: Ordinal scales and foundations of misinference. Arch Phys Med Rehabil. 1989, 70: 308-312.PubMed
43.
go back to reference Svensson E: Guidelines to statistical evaluation of data from rating scales and questionnaires. J Rehab Med. 2001, 33: 47-48. 10.1080/165019701300006542.CrossRef Svensson E: Guidelines to statistical evaluation of data from rating scales and questionnaires. J Rehab Med. 2001, 33: 47-48. 10.1080/165019701300006542.CrossRef
44.
go back to reference Svensson E: Different ranking approaches defining association and agreement measures of paired ordinal data. Stat Med. 2012, 31: 3104-3117. 10.1002/sim.5382.CrossRefPubMed Svensson E: Different ranking approaches defining association and agreement measures of paired ordinal data. Stat Med. 2012, 31: 3104-3117. 10.1002/sim.5382.CrossRefPubMed
47.
go back to reference Svensson E: Application of a rank-invariant method to evaluate reliability of ordered categorical assessments. J Epidemiol Biostatistics. 1998, 3: 403-409. Svensson E: Application of a rank-invariant method to evaluate reliability of ordered categorical assessments. J Epidemiol Biostatistics. 1998, 3: 403-409.
48.
go back to reference Svensson E, Schillberg B, Kling AM, Nyström B: Reliability of the balanced inventory for spinal disorders, a questionnaire for evaluation of outcomes in patients with various spinal disorders. J Spinal Disord Tech. 2012, 25: 196-204. 10.1097/BSD.0b013e31821534da. 10.1097/BSD.0b013e31821534daCrossRefPubMed Svensson E, Schillberg B, Kling AM, Nyström B: Reliability of the balanced inventory for spinal disorders, a questionnaire for evaluation of outcomes in patients with various spinal disorders. J Spinal Disord Tech. 2012, 25: 196-204. 10.1097/BSD.0b013e31821534da. 10.1097/BSD.0b013e31821534daCrossRefPubMed
49.
go back to reference Sonn U, Svensson E: Measures of individual and group changes in ordered categorical data: application to the ADL Staircase. Scand J Rehab Med. 1997, 29: 233-242. Sonn U, Svensson E: Measures of individual and group changes in ordered categorical data: application to the ADL Staircase. Scand J Rehab Med. 1997, 29: 233-242.
50.
go back to reference Svensson E: Ordinal invariant measures for individual and group changes in ordered categorical data. Stat Med. 1998, 17: 2923-2936. 10.1002/(SICI)1097-0258(19981230)17:24<2923::AID-SIM104>3.0.CO;2-#.CrossRefPubMed Svensson E: Ordinal invariant measures for individual and group changes in ordered categorical data. Stat Med. 1998, 17: 2923-2936. 10.1002/(SICI)1097-0258(19981230)17:24<2923::AID-SIM104>3.0.CO;2-#.CrossRefPubMed
51.
go back to reference Svensson E, Starmark JE: Evaluation of individual and group changes in social outcome after aneurysmal subarachnoid haemorrhage: a long-term follow-up study. J Rehab Med. 2002, 34: 251-259. 10.1080/165019702760390338.CrossRef Svensson E, Starmark JE: Evaluation of individual and group changes in social outcome after aneurysmal subarachnoid haemorrhage: a long-term follow-up study. J Rehab Med. 2002, 34: 251-259. 10.1080/165019702760390338.CrossRef
52.
go back to reference Svensson E: Analysis of the inter-observer reliability of subjective assessments concerning the evaluation of the convenience of a new device for subcutaneous injections of hGH-One.click® Serono Nordic, Report. 2003 Svensson E: Analysis of the inter-observer reliability of subjective assessments concerning the evaluation of the convenience of a new device for subcutaneous injections of hGH-One.click® Serono Nordic, Report. 2003
Metadata
Title
The functional barometer –a self-report questionnaire in accordance with the international classification of functioning, disability and health for pain related problems; validity and patient-observer comparisons
Authors
Jan-Rickard Norrefalk
Elisabeth Svensson
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2014
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/1472-6963-14-187

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