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Published in: BMC Medical Informatics and Decision Making 2/2013

Open Access 01-11-2013 | Review

Clarifying values: an updated review

Authors: Angela Fagerlin, Michael Pignone, Purva Abhyankar, Nananda Col, Deb Feldman-Stewart, Teresa Gavaruzzi, Jennifer Kryworuchko, Carrie A Levin, Arwen H Pieterse, Valerie Reyna, Anne Stiggelbout, Laura D Scherer, Celia Wills, Holly O Witteman

Published in: BMC Medical Informatics and Decision Making | Special Issue 2/2013

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Abstract

Background

Consensus guidelines have recommended that decision aids include a process for helping patients clarify their values. We sought to examine the theoretical and empirical evidence related to the use of values clarification methods in patient decision aids.

Methods

Building on the International Patient Decision Aid Standards (IPDAS) Collaboration’s 2005 review of values clarification methods in decision aids, we convened a multi-disciplinary expert group to examine key definitions, decision-making process theories, and empirical evidence about the effects of values clarification methods in decision aids. To summarize the current state of theory and evidence about the role of values clarification methods in decision aids, we undertook a process of evidence review and summary.

Results

Values clarification methods (VCMs) are best defined as methods to help patients think about the desirability of options or attributes of options within a specific decision context, in order to identify which option he/she prefers. Several decision making process theories were identified that can inform the design of values clarification methods, but no single “best” practice for how such methods should be constructed was determined. Our evidence review found that existing VCMs were used for a variety of different decisions, rarely referenced underlying theory for their design, but generally were well described in regard to their development process. Listing the pros and cons of a decision was the most common method used. The 13 trials that compared decision support with or without VCMs reached mixed results: some found that VCMs improved some decision-making processes, while others found no effect.

Conclusions

Values clarification methods may improve decision-making processes and potentially more distal outcomes. However, the small number of evaluations of VCMs and, where evaluations exist, the heterogeneity in outcome measures makes it difficult to determine their overall effectiveness or the specific characteristics that increase effectiveness.
Appendix
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Literature
1.
go back to reference Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006, 333: 417-10.1136/bmj.38926.629329.AE.PubMedCentralCrossRefPubMed Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006, 333: 417-10.1136/bmj.38926.629329.AE.PubMedCentralCrossRefPubMed
2.
go back to reference de Vries M, Fagerlin A, Witteman H, Scherer LD: Combining deliberation and intuition in patient decision support. Patient Educ Couns. 2013, 91 (2): 154-60. 10.1016/j.pec.2012.11.016.CrossRefPubMed de Vries M, Fagerlin A, Witteman H, Scherer LD: Combining deliberation and intuition in patient decision support. Patient Educ Couns. 2013, 91 (2): 154-60. 10.1016/j.pec.2012.11.016.CrossRefPubMed
3.
go back to reference Llewellyn-Thomas HA, Crump RT: Decision support for patients: values clarification and preference elicitation. Med Care Res Rev. 2013, 70 (1 suppl): 50S-79S. 10.1177/1077558712461182.CrossRefPubMed Llewellyn-Thomas HA, Crump RT: Decision support for patients: values clarification and preference elicitation. Med Care Res Rev. 2013, 70 (1 suppl): 50S-79S. 10.1177/1077558712461182.CrossRefPubMed
4.
go back to reference Bekker HL: The loss of reason in patient decision aid research: do checklists damage the quality of informed choice interventions?. Patient Educ Couns. 2010, 78: 357-364. 10.1016/j.pec.2010.01.002.CrossRefPubMed Bekker HL: The loss of reason in patient decision aid research: do checklists damage the quality of informed choice interventions?. Patient Educ Couns. 2010, 78: 357-364. 10.1016/j.pec.2010.01.002.CrossRefPubMed
5.
go back to reference Durand MA, Stiel M, Boivin J, Elwyn G: Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Educ Couns. 2008, 71: 125-135. 10.1016/j.pec.2007.12.004.CrossRefPubMed Durand MA, Stiel M, Boivin J, Elwyn G: Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Educ Couns. 2008, 71: 125-135. 10.1016/j.pec.2007.12.004.CrossRefPubMed
7.
go back to reference Pieterse AH, De Vries M, Kunneman M, Stiggelbout AM, Feldman-Stewart D: Theory-informed design of values clarification methods: A cognitive psychological perspective on patient treatment decision making. Soc Sci Med. 2013, 77: 156-163.CrossRefPubMed Pieterse AH, De Vries M, Kunneman M, Stiggelbout AM, Feldman-Stewart D: Theory-informed design of values clarification methods: A cognitive psychological perspective on patient treatment decision making. Soc Sci Med. 2013, 77: 156-163.CrossRefPubMed
8.
go back to reference Witteman H, Scherer L, Gavaruzzi T, Pieterse A, Fuhrel-Forbis A, Exe N, Kahn V, Ubel P, Feldman-Stewart D, Col N, Fagerlin A: Values Clarification Exercises: A Systematic Review. Presented at Society for Medical Decision Making Annual Meeting, Advanced Designing of Evidence-Based Patient Decision Aids, October 20. 2012, . Phoenix, Arizona, USA Witteman H, Scherer L, Gavaruzzi T, Pieterse A, Fuhrel-Forbis A, Exe N, Kahn V, Ubel P, Feldman-Stewart D, Col N, Fagerlin A: Values Clarification Exercises: A Systematic Review. Presented at Society for Medical Decision Making Annual Meeting, Advanced Designing of Evidence-Based Patient Decision Aids, October 20. 2012, . Phoenix, Arizona, USA
9.
go back to reference Llewellyn-Thomas H: Values clarification. Shared Decision Making in Health Care: Achieving Evidence Based Patient Choice. Edited by: Edwards GEA. 2009, Oxford: Oxford University Press, 123-133. 2 Llewellyn-Thomas H: Values clarification. Shared Decision Making in Health Care: Achieving Evidence Based Patient Choice. Edited by: Edwards GEA. 2009, Oxford: Oxford University Press, 123-133. 2
10.
go back to reference Fischhoff B: Value elicitation - is there anything in there?. Am Psychol. 1991, 46: 835-847.CrossRef Fischhoff B: Value elicitation - is there anything in there?. Am Psychol. 1991, 46: 835-847.CrossRef
11.
go back to reference Simon D, Krawczyk DC, Bleicher A, Holyoak KJ: The transience of constructed preferences. J Behav Decis Mak. 2008, 21: 1-14. 10.1002/bdm.575.CrossRef Simon D, Krawczyk DC, Bleicher A, Holyoak KJ: The transience of constructed preferences. J Behav Decis Mak. 2008, 21: 1-14. 10.1002/bdm.575.CrossRef
12.
go back to reference Feldman-Stewart D, Brundage MD, Van Manen L, Svenson O: Patient-focussed decision-making in early-stage prostate cancer: insights from a cognitively based decision aid. Health Expect. 2004, 7: 126-141. 10.1111/j.1369-7625.2004.00271.x.CrossRefPubMed Feldman-Stewart D, Brundage MD, Van Manen L, Svenson O: Patient-focussed decision-making in early-stage prostate cancer: insights from a cognitively based decision aid. Health Expect. 2004, 7: 126-141. 10.1111/j.1369-7625.2004.00271.x.CrossRefPubMed
13.
go back to reference Betsch T, Glockner A: Intuition in Judgment and Decision Making: Extensive Thinking Without Effort. Psychol Inq. 2010, 21: 279-294. 10.1080/1047840X.2010.517737.CrossRef Betsch T, Glockner A: Intuition in Judgment and Decision Making: Extensive Thinking Without Effort. Psychol Inq. 2010, 21: 279-294. 10.1080/1047840X.2010.517737.CrossRef
14.
go back to reference Wilson TD, Schooler JW: Thinking too much: introspection can reduce the quality of preferences and decisions. J Pers Soc Psychol. 1991, 60: 181-192.CrossRefPubMed Wilson TD, Schooler JW: Thinking too much: introspection can reduce the quality of preferences and decisions. J Pers Soc Psychol. 1991, 60: 181-192.CrossRefPubMed
15.
16.
go back to reference Fraenkel L, Peters E, Charpentier P, Olsen B, Errante L, Schoen RT, Reyna V: Decision tool to improve the quality of care in rheumatoid arthritis. Arthritis Care Res (Hoboken). 2012, 64: 977-985. Fraenkel L, Peters E, Charpentier P, Olsen B, Errante L, Schoen RT, Reyna V: Decision tool to improve the quality of care in rheumatoid arthritis. Arthritis Care Res (Hoboken). 2012, 64: 977-985.
Metadata
Title
Clarifying values: an updated review
Authors
Angela Fagerlin
Michael Pignone
Purva Abhyankar
Nananda Col
Deb Feldman-Stewart
Teresa Gavaruzzi
Jennifer Kryworuchko
Carrie A Levin
Arwen H Pieterse
Valerie Reyna
Anne Stiggelbout
Laura D Scherer
Celia Wills
Holly O Witteman
Publication date
01-11-2013
Publisher
BioMed Central
DOI
https://doi.org/10.1186/1472-6947-13-S2-S8

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