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BMC Palliative Care
Published in: BMC Palliative Care 1/2010

Open Access 01-12-2010 | Research article

'Palliative care': a contradiction in terms? A qualitative study of cancer patients with a Turkish or Moroccan background, their relatives and care providers

Authors: Fuusje M de Graaff, Anneke L Francke, Maria ETC van den Muijsenbergh, Sjaak van der Geest

Published in: BMC Palliative Care | Issue 1/2010

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Abstract

Background

Palliative cancer care aims to improve quality of life and ultimately quality of dying, while prolonging life is not an objective anymore when death nears. The question is, however, whether these perspectives on palliative care are congruent with the perspectives of immigrant families with a Turkish or Moroccan background.

Methods

A qualitative design was used as we were looking for the personal views of 'very ill' cancer patients with a Turkish or Moroccan background, their family members and their Dutch care providers. We interviewed 83 people, involved in 33 cases to obtain information about their views, values and norms on 'good care'.

Results

The main concerns about 'good care' expressed by Turkish and Moroccan families were: maximum treatment and curative care until the end of their lives, never having hope taken away, devoted care by their families, avoiding shameful situations, dying with a clear mind and being buried in their own country. Their views conflict, to some extent, with the dominant principles in palliative care, for example, the emphasis on quality of life and advanced care planning, which includes discussing diagnosis and prognosis with the patient.

Conclusions

Patients and their families with a Turkish or Moroccan background often have different ideas about 'good care' than their Dutch care providers. As many of them are aiming at cure until the end of life, they find 'good palliative care' a contradiction in terms.
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Metadata
Title
'Palliative care': a contradiction in terms? A qualitative study of cancer patients with a Turkish or Moroccan background, their relatives and care providers
Authors
Fuusje M de Graaff
Anneke L Francke
Maria ETC van den Muijsenbergh
Sjaak van der Geest
Publication date
01-12-2010
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2010
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-9-19

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