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BMC Palliative Care
Published in: BMC Palliative Care 1/2010

Open Access 01-12-2010 | Research article

Barriers and needs in paediatric palliative home care in Germany: a qualitative interview study with professional experts

Authors: Saskia Jünger, Tania Pastrana, Martina Pestinger, Martina Kern, Boris Zernikow, Lukas Radbruch

Published in: BMC Palliative Care | Issue 1/2010

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Abstract

Background

In North-Rhine Westphalia (Germany) a pilot project for an extensive service provision of palliative care for children and adolescents has been implemented. Accompanying research was undertaken with the aim to assess the status quo of service delivery at the outset of the project and to evaluate the effects of the pilot project. As part of the research, barriers and needs with respect to paediatric palliative home care in the target region were explored.

Methods

Semi-structured interviews with 24 experts in the field of paediatrics, palliative and hospice care have been conducted and were analysed by qualitative content analysis.

Results

Four main categories emerged from the interviews: (1) specific challenges and demands in palliative care for children and adolescents, (2) lack of clear legal and financial regulations, (3) gaps in the existing care delivery, and (4) access to services. Generally the interviews reflected the observation that the whole field is currently expanding and that certain deficits are temporary barriers that will be resolvable in the medium-term perspective.

Conclusions

Predominant barriers were seen in the lack of clear legal and financial regulations which take into account the specific challenges of palliative care in children and adolescents, as well as in a shortcoming of specialist services for a local based care provision throughout the federal country.
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Metadata
Title
Barriers and needs in paediatric palliative home care in Germany: a qualitative interview study with professional experts
Authors
Saskia Jünger
Tania Pastrana
Martina Pestinger
Martina Kern
Boris Zernikow
Lukas Radbruch
Publication date
01-12-2010
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2010
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-9-10

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