Skip to main content
Top
Published in: BMC Palliative Care 1/2009

Open Access 01-12-2009 | Research article

GP and nurses' perceptions of how after hours care for people receiving palliative care at home could be improved: a mixed methods study

Authors: Heather M Tan, Margaret M O'Connor, Gail Miles, Britt Klein, Peter Schattner

Published in: BMC Palliative Care | Issue 1/2009

Login to get access

Abstract

Background

Primary health care providers play a dominant role in the provision of palliative care (PC) in Australia but many gaps in after hours service remain. In some rural areas only 19% of people receiving palliative care achieve their goal of dying at home. This study, which builds on an earlier qualitative phase of the project, investigates the gaps in care from the perspective of general practitioners (GPs) and PC nurses.

Methods

Questionnaires, developed from the outcomes of the earlier phase, and containing both structured and open ended questions, were distributed through Divisions of General Practice (1 urban, 1 rural, 1 mixed) to GPs (n = 524) and through a special interest group to palliative care nurses (n = 122) in both rural and urban areas.

Results

Questionnaires were returned by 114 GPs (22%) and 52 nurses (43%). The majority of GPs were associated with a practice which provided some after hours services but PC was not a strong focus for most. This was reflected in low levels of PC training, limited awareness of the existence of after hours triage services in their area, and of the availability of Enhanced Primary Care (EPC) Medicare items for care planning for palliative patients. However, more than half of both nurses and GPs were aware of accessible PC resources.
Factors such as poor communication and limited availability of after hours services were identified the as most likely to impact negatively on service provision. Strategies considered most likely to improve after hours services were individual patient protocols, palliative care trained respite carers and regular multidisciplinary meetings that included the GP.

Conclusion

While some of the identified gaps can only be met by long term funding and policy change, educational tools for use in training programs in PC for health professionals, which focus on the utilisation of EPC Medicare items in palliative care planning, the development of advance care plans and good communication between members of multidisciplinary teams, which include the GP, may enhance after hours service provision for patients receiving palliative care at home. The role of locums in after PC is an area for further research
Appendix
Available only for authorised users
Literature
1.
go back to reference Hudson R, O'Connor M: Palliative Care and Aged Care: A Guide to Practice. 2007, New York: Ausmed Publications Pty Ltd Hudson R, O'Connor M: Palliative Care and Aged Care: A Guide to Practice. 2007, New York: Ausmed Publications Pty Ltd
2.
go back to reference Allen S, Chapman Y, O'Connor M, Francis K: Discourses associated with nursing aged people who are dying in the Australian context: a review of the literature. Int Nurs Rev. 2008, 55: 349-354. 10.1111/j.1466-7657.2008.00628.x.CrossRefPubMed Allen S, Chapman Y, O'Connor M, Francis K: Discourses associated with nursing aged people who are dying in the Australian context: a review of the literature. Int Nurs Rev. 2008, 55: 349-354. 10.1111/j.1466-7657.2008.00628.x.CrossRefPubMed
3.
go back to reference Australian Government Department of Health & Ageing: Guidelines for a Palliative Approach in Residential Aged Care: The National Palliative Care Program. 2004, Canberra: Department of Communications, Information Technology and the Arts Australian Government Department of Health & Ageing: Guidelines for a Palliative Approach in Residential Aged Care: The National Palliative Care Program. 2004, Canberra: Department of Communications, Information Technology and the Arts
4.
go back to reference Kuebler KK, Berry PH, Heidrich DE: End of Life Care: Clinical Practice Guidelines. 2002, Philadelphia: W.B. Saunders Company Kuebler KK, Berry PH, Heidrich DE: End of Life Care: Clinical Practice Guidelines. 2002, Philadelphia: W.B. Saunders Company
5.
go back to reference Palmer GR, Short SD: Health Care & Public Policy: An Australian Analysis. 2007, South Yarra. MacMillan Publishers Australia Pty Ltd Palmer GR, Short SD: Health Care & Public Policy: An Australian Analysis. 2007, South Yarra. MacMillan Publishers Australia Pty Ltd
6.
go back to reference Boyd CO, Vernon GM: Primary care of the older adult with end-stage Alzheimer's disease. Nurse Practitioner: American Journal of Primary Health Care. 1998, 23 (4): 63-64. Boyd CO, Vernon GM: Primary care of the older adult with end-stage Alzheimer's disease. Nurse Practitioner: American Journal of Primary Health Care. 1998, 23 (4): 63-64.
7.
go back to reference Walshe C, Caress A, Chew-Graham C, Todd C: Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts. Palliat Med. 2008, 22: 736-743. 10.1177/0269216308094103.CrossRefPubMed Walshe C, Caress A, Chew-Graham C, Todd C: Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts. Palliat Med. 2008, 22: 736-743. 10.1177/0269216308094103.CrossRefPubMed
8.
go back to reference Evans R, Stone D, Elwyn G: Organizing Palliative care for rural populations: a systematic review of the evidence. Fam Pract. 2003, 20: 304-310. 10.1093/fampra/cmg312.CrossRefPubMed Evans R, Stone D, Elwyn G: Organizing Palliative care for rural populations: a systematic review of the evidence. Fam Pract. 2003, 20: 304-310. 10.1093/fampra/cmg312.CrossRefPubMed
9.
go back to reference Farber NJ, Urban SY, Collier VU, Metzger M, Weiner J, Boyer EG: Frequency and perceived competence in providing palliative care to terminally ill patients: a survey of primary care physicians. J Pain Symptom Manage. 2004, 28 (4): 364-372. 10.1016/j.jpainsymman.2004.01.013.CrossRefPubMed Farber NJ, Urban SY, Collier VU, Metzger M, Weiner J, Boyer EG: Frequency and perceived competence in providing palliative care to terminally ill patients: a survey of primary care physicians. J Pain Symptom Manage. 2004, 28 (4): 364-372. 10.1016/j.jpainsymman.2004.01.013.CrossRefPubMed
10.
go back to reference Goldschmidt D, Groenvold M, Johnsen AT, Stromgren AS, Krasnik A, Schmidt L: Cooperating with a palliative home-care team: expectations and evaluations of GPs and district nurses. Palliat Med. 2005, 19 (3): 241-250. 10.1191/0269216305pm1007oa.CrossRefPubMed Goldschmidt D, Groenvold M, Johnsen AT, Stromgren AS, Krasnik A, Schmidt L: Cooperating with a palliative home-care team: expectations and evaluations of GPs and district nurses. Palliat Med. 2005, 19 (3): 241-250. 10.1191/0269216305pm1007oa.CrossRefPubMed
11.
go back to reference Jo S, Brazil K, Lohfeld L, Willison : Caregiving at the end of life: Perspectives from spousal caregivers and care recipients. Palliat Support Care. 2007, 5: 11-17.CrossRefPubMed Jo S, Brazil K, Lohfeld L, Willison : Caregiving at the end of life: Perspectives from spousal caregivers and care recipients. Palliat Support Care. 2007, 5: 11-17.CrossRefPubMed
12.
go back to reference Elsey B, McIntyre J: Assessing a supportive and learning network for palliative care workers in a country area of South Australia. Aust J Rural Health. 1996, 4: 159-164. 10.1111/j.1440-1584.1996.tb00204.x.CrossRefPubMed Elsey B, McIntyre J: Assessing a supportive and learning network for palliative care workers in a country area of South Australia. Aust J Rural Health. 1996, 4: 159-164. 10.1111/j.1440-1584.1996.tb00204.x.CrossRefPubMed
14.
go back to reference Zapart S, Kenny P, Servis B, Wiley S: Home-based palliative care in Sydney, Australia: the carer's perspective on the provision of informal care. Health Soc Care Community. 2007, 15 (2): 97-107. 10.1016/j.jpainsymman.2007.08.017.PubMed Zapart S, Kenny P, Servis B, Wiley S: Home-based palliative care in Sydney, Australia: the carer's perspective on the provision of informal care. Health Soc Care Community. 2007, 15 (2): 97-107. 10.1016/j.jpainsymman.2007.08.017.PubMed
15.
go back to reference Philips J, Davidson PM, Newton PJ, DiGiacomo M: Supporting Patients and Their Caregivers After-Hours at the End-of-Life: The Role of Telephone Support. J Pain Symptom Manage. 2008, 36 (1): 11-21. 10.1016/j.jpainsymman.2007.08.017.CrossRef Philips J, Davidson PM, Newton PJ, DiGiacomo M: Supporting Patients and Their Caregivers After-Hours at the End-of-Life: The Role of Telephone Support. J Pain Symptom Manage. 2008, 36 (1): 11-21. 10.1016/j.jpainsymman.2007.08.017.CrossRef
16.
go back to reference Brumley D, Fisher J, Robinson H, Ashby M: Improving access to clinical information in after hours community palliative care. Aust J Adv Nurs. 2006, 24 (1): 27-31.PubMed Brumley D, Fisher J, Robinson H, Ashby M: Improving access to clinical information in after hours community palliative care. Aust J Adv Nurs. 2006, 24 (1): 27-31.PubMed
17.
go back to reference Chan SQ, Yong E, Ting A, Kendrick M, DeWitt DE: Rural healthcare provider options about implementation of an after-hours rural telephone triage system. Rural Remote Health. 2007, 7 (1): 1-3. Chan SQ, Yong E, Ting A, Kendrick M, DeWitt DE: Rural healthcare provider options about implementation of an after-hours rural telephone triage system. Rural Remote Health. 2007, 7 (1): 1-3.
18.
go back to reference Ciechomski L, Tan H, O'Connor M, Miles G, Klein B, Schattner P: After Hours Palliative Care Provision in Rural and urban Victoria, Australia. Asia Pacific Journal of Health Management. 2009, 4 (1): 57-63. Ciechomski L, Tan H, O'Connor M, Miles G, Klein B, Schattner P: After Hours Palliative Care Provision in Rural and urban Victoria, Australia. Asia Pacific Journal of Health Management. 2009, 4 (1): 57-63.
19.
go back to reference Rhee J, Zwar N, Vagholkar S, Dennis S, Broadbent A, Mitchell G: Attitude and Barriers to Involvement in Palliative Care by Australian Urban General Practitioners. J Palliat Med. 2008, 11 (7): 980-985. 10.1007/s005200100254.CrossRefPubMed Rhee J, Zwar N, Vagholkar S, Dennis S, Broadbent A, Mitchell G: Attitude and Barriers to Involvement in Palliative Care by Australian Urban General Practitioners. J Palliat Med. 2008, 11 (7): 980-985. 10.1007/s005200100254.CrossRefPubMed
20.
go back to reference Low JA, Liu RK, Strutt R, Chye R: Specialist, community palliative care services - a survey of general practitioners' experiences in Eastern Sydney. Support Care Cancer. 2001, 9 (7): 474-476. 10.1191/0269216302pm573oa.CrossRefPubMed Low JA, Liu RK, Strutt R, Chye R: Specialist, community palliative care services - a survey of general practitioners' experiences in Eastern Sydney. Support Care Cancer. 2001, 9 (7): 474-476. 10.1191/0269216302pm573oa.CrossRefPubMed
21.
go back to reference Mitchell GK: How well do general practitioners deliver palliative care? A systematic review. Palliat Med. 2002, 16: 457-464. 10.1191/0269216302pm573oa.CrossRefPubMed Mitchell GK: How well do general practitioners deliver palliative care? A systematic review. Palliat Med. 2002, 16: 457-464. 10.1191/0269216302pm573oa.CrossRefPubMed
22.
go back to reference Worth A, Boyd K, Kendall M, Heaney D, Macleod U, Cormie P, Hockley J, Murray S: Out of hours palliative care: a qualitative study of cancer patients, carers and professionals. Br J Gen Pract. 2006, 56 (522): 6-13. 10.1111/j.1440-1854.2004.00568.x.PubMedPubMedCentral Worth A, Boyd K, Kendall M, Heaney D, Macleod U, Cormie P, Hockley J, Murray S: Out of hours palliative care: a qualitative study of cancer patients, carers and professionals. Br J Gen Pract. 2006, 56 (522): 6-13. 10.1111/j.1440-1854.2004.00568.x.PubMedPubMedCentral
23.
go back to reference Wilkes L, Mohan S, White K, Smith H: Evaluation of an after hours telephone support service for rural palliative care patients and their families: A pilot study. Aust J Rural Health. 2004, 12: 95-98. 10.1111/j.1440-1854.2004.00568.x.CrossRefPubMed Wilkes L, Mohan S, White K, Smith H: Evaluation of an after hours telephone support service for rural palliative care patients and their families: A pilot study. Aust J Rural Health. 2004, 12: 95-98. 10.1111/j.1440-1854.2004.00568.x.CrossRefPubMed
24.
go back to reference Aranda SK, Hayman-White K, Devilee L, O'Connor M, Bence G: Inpatient hospital triage of 'after-hours' calls to a community palliative care service. Int J Pall Nurs. 2001, 7 (5): 214-220.CrossRef Aranda SK, Hayman-White K, Devilee L, O'Connor M, Bence G: Inpatient hospital triage of 'after-hours' calls to a community palliative care service. Int J Pall Nurs. 2001, 7 (5): 214-220.CrossRef
25.
go back to reference Borgsteed S, Graafland-Riedstra C, Deliens L, Francke A, van Eijk J, Willems D: Good end-of-life care according to patients and their GPs. Br J Gen Pract. 2006, 56 (522): 20-26. Borgsteed S, Graafland-Riedstra C, Deliens L, Francke A, van Eijk J, Willems D: Good end-of-life care according to patients and their GPs. Br J Gen Pract. 2006, 56 (522): 20-26.
Metadata
Title
GP and nurses' perceptions of how after hours care for people receiving palliative care at home could be improved: a mixed methods study
Authors
Heather M Tan
Margaret M O'Connor
Gail Miles
Britt Klein
Peter Schattner
Publication date
01-12-2009
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2009
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-8-13

Other articles of this Issue 1/2009

BMC Palliative Care 1/2009 Go to the issue