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Published in: BMC Palliative Care 1/2009

Open Access 01-12-2009 | Research article

Measuring the diffusion of palliative care in long-term care facilities – a death census

Authors: Sophie Paroz, Brigitte Santos-Eggimann

Published in: BMC Palliative Care | Issue 1/2009

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Abstract

Background

The dissemination of palliative care for patients presenting complex chronic diseases at various stages has become an important matter of public health. A death census in Swiss long-term care facilities (LTC) was set up with the aim of monitoring the frequency of selected indicators of palliative care.

Methods

The survey covered 150 LTC facilities (105 nursing homes and 45 home health services), each of which was asked to complete a questionnaire for every non-accidental death over a period of six months. The frequency of 4 selected indicators of palliative care (resort to a specialized palliative care service, the administration of opiates, use of any pain measurement scale or other symptom measurement scale) was monitored in respect of the stages of care and analysed based on gender, age, medical condition and place of residence.

Results

Overall, 1200 deaths were reported, 29.1% of which were related to cancer. The frequencies of each indicator varied according to the type of LTC, mostly regarding the administration of opiate. It appeared that the access to palliative care remained associated with cancer, terminal care and partly with age, whereas gender and the presence of mental disorders had no effect on the indicators. In addition, the use of drugs was much more frequent than the other indicators.

Conclusion

The profile of patients with access to palliative care must become more diversified. Among other recommendations, equal access to opiates in nursing homes and in home health services, palliative care at an earlier stage and the systematic use of symptom management scales when resorting to opiates have to become of prime concern.
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Literature
2.
go back to reference Centeno C, Arnillas P, Hernansanz S, Flores LA, Gomez M, Lopez-Lara F: The reality of palliative care in Spain. Palliat Med. 2000, 14 (5): 387-94. 10.1191/026921600701536219.CrossRefPubMed Centeno C, Arnillas P, Hernansanz S, Flores LA, Gomez M, Lopez-Lara F: The reality of palliative care in Spain. Palliat Med. 2000, 14 (5): 387-94. 10.1191/026921600701536219.CrossRefPubMed
3.
go back to reference Gomez-Batiste X, Porta-Sales J, Pascual A, Nabal M, Espinosa J, Paz S, et al: Catalonia WHO palliative care demonstration project at 15 Years (2005). J Pain Symptom Manage. 2007, 33 (5): 584-90. 10.1016/j.jpainsymman.2007.02.019.CrossRefPubMed Gomez-Batiste X, Porta-Sales J, Pascual A, Nabal M, Espinosa J, Paz S, et al: Catalonia WHO palliative care demonstration project at 15 Years (2005). J Pain Symptom Manage. 2007, 33 (5): 584-90. 10.1016/j.jpainsymman.2007.02.019.CrossRefPubMed
4.
go back to reference Desmedt M: Palliative care services in Belgium: benefits and shortcomings of a legal framework. Support Care Cancer. 1999, 7 (3): 109-12. 10.1007/s005200050239.CrossRefPubMed Desmedt M: Palliative care services in Belgium: benefits and shortcomings of a legal framework. Support Care Cancer. 1999, 7 (3): 109-12. 10.1007/s005200050239.CrossRefPubMed
5.
go back to reference Fainsinger RL, Brenneis C, Fassbender K: Edmonton, Canada: a regional model of palliative care development. J Pain Symptom Manage. 2007, 33 (5): 634-9. 10.1016/j.jpainsymman.2007.02.012.CrossRefPubMed Fainsinger RL, Brenneis C, Fassbender K: Edmonton, Canada: a regional model of palliative care development. J Pain Symptom Manage. 2007, 33 (5): 634-9. 10.1016/j.jpainsymman.2007.02.012.CrossRefPubMed
6.
go back to reference Kaasa S, Jordhoy MS, Haugen DF: Palliative care in Norway: a national public health model. J Pain Symptom Manage. 2007, 33 (5): 599-604. 10.1016/j.jpainsymman.2007.02.011.CrossRefPubMed Kaasa S, Jordhoy MS, Haugen DF: Palliative care in Norway: a national public health model. J Pain Symptom Manage. 2007, 33 (5): 599-604. 10.1016/j.jpainsymman.2007.02.011.CrossRefPubMed
7.
go back to reference Stjernsward J, Colleau SM, Ventafridda V: The World Health Organization Cancer Pain and Palliative Care Program. Past, present, and future. J Pain Symptom Manage. 1996, 12 (2): 65-72. 10.1016/0885-3924(96)00109-1.CrossRefPubMed Stjernsward J, Colleau SM, Ventafridda V: The World Health Organization Cancer Pain and Palliative Care Program. Past, present, and future. J Pain Symptom Manage. 1996, 12 (2): 65-72. 10.1016/0885-3924(96)00109-1.CrossRefPubMed
8.
go back to reference Christakis NA, Escarce JJ: Survival of Medicare patients after enrolment in hospice programs. N Engl J Med. 1996, 335 (3): 172-8. 10.1056/NEJM199607183350306.CrossRefPubMed Christakis NA, Escarce JJ: Survival of Medicare patients after enrolment in hospice programs. N Engl J Med. 1996, 335 (3): 172-8. 10.1056/NEJM199607183350306.CrossRefPubMed
9.
go back to reference Burt J, Raine R: The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review. Age Ageing. 2006, 35 (5): 469-76. 10.1093/ageing/afl001.CrossRefPubMed Burt J, Raine R: The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review. Age Ageing. 2006, 35 (5): 469-76. 10.1093/ageing/afl001.CrossRefPubMed
10.
go back to reference Beccaro M, Costantini M, Merlo DF: Inequity in the provision of and access to palliative care for cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). BMC Public Health. 2007, 7: 66-10.1186/1471-2458-7-66.CrossRefPubMedPubMedCentral Beccaro M, Costantini M, Merlo DF: Inequity in the provision of and access to palliative care for cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). BMC Public Health. 2007, 7: 66-10.1186/1471-2458-7-66.CrossRefPubMedPubMedCentral
11.
go back to reference Pletcher MJ, Kertesz SG, Kohn MA, Gonzales R: Trends in opioid prescribing by race/ethnicity for patients seeking care in US emergency departments. JAMA. 2008, 299 (1): 70-8. 10.1001/jama.2007.64.CrossRefPubMed Pletcher MJ, Kertesz SG, Kohn MA, Gonzales R: Trends in opioid prescribing by race/ethnicity for patients seeking care in US emergency departments. JAMA. 2008, 299 (1): 70-8. 10.1001/jama.2007.64.CrossRefPubMed
12.
go back to reference Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, et al: Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med. 2008, 148 (2): 147-59.CrossRefPubMed Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, et al: Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med. 2008, 148 (2): 147-59.CrossRefPubMed
13.
go back to reference Higginson IJ, Davies E, Tsouros AD: The end of life: unknown and unplanned?. Eur J Public Health. 2007, 17 (4): 331-2. 10.1093/eurpub/ckm003.CrossRefPubMed Higginson IJ, Davies E, Tsouros AD: The end of life: unknown and unplanned?. Eur J Public Health. 2007, 17 (4): 331-2. 10.1093/eurpub/ckm003.CrossRefPubMed
14.
go back to reference Cohen J, Bilsen J, Fischer S, Lofmark R, Norup M, van der HA, et al: End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?. J Epidemiol Community Health. 2007, 61 (12): 1062-8. 10.1136/jech.2006.056341.CrossRefPubMedPubMedCentral Cohen J, Bilsen J, Fischer S, Lofmark R, Norup M, van der HA, et al: End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?. J Epidemiol Community Health. 2007, 61 (12): 1062-8. 10.1136/jech.2006.056341.CrossRefPubMedPubMedCentral
15.
go back to reference Qaseem A, Snow V, Shekelle P, Casey DE, Cross JT, Owens DK, et al: Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians. Ann Intern Med. 2008, 148 (2): 141-6.CrossRefPubMed Qaseem A, Snow V, Shekelle P, Casey DE, Cross JT, Owens DK, et al: Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians. Ann Intern Med. 2008, 148 (2): 141-6.CrossRefPubMed
16.
go back to reference Stucki G: Le programme vaudois de développement des soins palliatifs. Palliative-ch. 2003, 4: 25-8.CrossRef Stucki G: Le programme vaudois de développement des soins palliatifs. Palliative-ch. 2003, 4: 25-8.CrossRef
17.
go back to reference Coventry PA, Grande GE, Richards DA, Todd CJ: Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age Ageing. 2005, 34 (3): 218-27. 10.1093/ageing/afi054.CrossRefPubMed Coventry PA, Grande GE, Richards DA, Todd CJ: Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age Ageing. 2005, 34 (3): 218-27. 10.1093/ageing/afi054.CrossRefPubMed
18.
go back to reference Field D, Addington-Hall J: Extending specialist palliative care to all?. Soc Sci Med. 1999, 48 (9): 1271-80. 10.1016/S0277-9536(98)00430-4.CrossRefPubMed Field D, Addington-Hall J: Extending specialist palliative care to all?. Soc Sci Med. 1999, 48 (9): 1271-80. 10.1016/S0277-9536(98)00430-4.CrossRefPubMed
19.
go back to reference Field D, Addington-Hall J: Extending specialist palliative care to all?. Soc Sci Med. 1999, 48 (9): 1271-80. 10.1016/S0277-9536(98)00430-4.CrossRefPubMed Field D, Addington-Hall J: Extending specialist palliative care to all?. Soc Sci Med. 1999, 48 (9): 1271-80. 10.1016/S0277-9536(98)00430-4.CrossRefPubMed
20.
go back to reference Pautex S, Gold G, Michel JP: Les patients atteints de démence sévère: quand, pourquoi et comment décèdent-ils?. Infokara. 2003, 18 (4): 163-7. 10.3917/inka.034.0163. Pautex S, Gold G, Michel JP: Les patients atteints de démence sévère: quand, pourquoi et comment décèdent-ils?. Infokara. 2003, 18 (4): 163-7. 10.3917/inka.034.0163.
21.
go back to reference Pautex S, Herrmann FR, Le LP, Ghedira M, Zulian GB, Michon A, et al: Symptom relief in the last week of life: is dementia always a limiting factor?. J Am Geriatr Soc. 2007, 55 (8): 1316-7. 10.1111/j.1532-5415.2007.01267.x.CrossRefPubMed Pautex S, Herrmann FR, Le LP, Ghedira M, Zulian GB, Michon A, et al: Symptom relief in the last week of life: is dementia always a limiting factor?. J Am Geriatr Soc. 2007, 55 (8): 1316-7. 10.1111/j.1532-5415.2007.01267.x.CrossRefPubMed
22.
go back to reference Sykes N, Thorns A: The use of opioids and sedatives at the end of life. Lancet Oncol. 2003, 4 (5): 312-8. 10.1016/S1470-2045(03)01079-9.CrossRefPubMed Sykes N, Thorns A: The use of opioids and sedatives at the end of life. Lancet Oncol. 2003, 4 (5): 312-8. 10.1016/S1470-2045(03)01079-9.CrossRefPubMed
23.
go back to reference Cohen J, Bilsen J, Fischer S, Lofmark R, Norup M, van der HA, et al: End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?. J Epidemiol Community Health. 2007, 61 (12): 1062-8. 10.1136/jech.2006.056341.CrossRefPubMedPubMedCentral Cohen J, Bilsen J, Fischer S, Lofmark R, Norup M, van der HA, et al: End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?. J Epidemiol Community Health. 2007, 61 (12): 1062-8. 10.1136/jech.2006.056341.CrossRefPubMedPubMedCentral
24.
go back to reference Sykes N, Thorns A: The use of opioids and sedatives at the end of life. Lancet Oncol. 2003, 4 (5): 312-8. 10.1016/S1470-2045(03)01079-9.CrossRefPubMed Sykes N, Thorns A: The use of opioids and sedatives at the end of life. Lancet Oncol. 2003, 4 (5): 312-8. 10.1016/S1470-2045(03)01079-9.CrossRefPubMed
25.
go back to reference Thorns A, Sykes N: Opioid use in last week of life and implications for end-of-life decision-making. Lancet. 2000, 356 (9227): 398-9. 10.1016/S0140-6736(00)02534-4.CrossRefPubMed Thorns A, Sykes N: Opioid use in last week of life and implications for end-of-life decision-making. Lancet. 2000, 356 (9227): 398-9. 10.1016/S0140-6736(00)02534-4.CrossRefPubMed
26.
go back to reference Pautex S: L'évaluation de la douleur chez la personne âgée. Utilisez les échelles d'autoévaluation de la douleur!. Gériatrie Pratique. 2007, 3: 6. Pautex S: L'évaluation de la douleur chez la personne âgée. Utilisez les échelles d'autoévaluation de la douleur!. Gériatrie Pratique. 2007, 3: 6.
Metadata
Title
Measuring the diffusion of palliative care in long-term care facilities – a death census
Authors
Sophie Paroz
Brigitte Santos-Eggimann
Publication date
01-12-2009
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2009
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-8-1

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