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BMC Palliative Care
Published in: BMC Palliative Care 1/2013

Open Access 01-12-2013 | Study protocol

Towards a standardized method of developing quality indicators for palliative care: protocol of the Quality indicators for Palliative Care (Q-PAC) study

Authors: Kathleen Leemans, Joachim Cohen, Anneke L Francke, Robert Vander Stichele, Susanne JJ Claessen, Lieve Van den Block, Luc Deliens

Published in: BMC Palliative Care | Issue 1/2013

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Abstract

Background

In recent years, there have been several studies, using a wide variety of methods, aimed at developing quality indicators for palliative care. In this Quality Indicators for Palliative Care study (Q-PAC study) we have applied a scientifically rigorous method to develop a comprehensive and valid quality indicator set which can contribute to a standardized method for use in other countries.

Methods and design

Firstly, an extensive literature review identified existing international quality indicators and relevant themes for measuring quality in palliative care. Secondly, the most relevant of these were selected by an expert panel. Thirdly, those prioritized by the experts were scored by a second multidisciplinary expert panel for usability and relevance, in keeping with the RAND/UCLA-method, combining evidence with consensus among stakeholders. This panel included carers and policymakers as well as patients and next-of-kin. Fourthly, the draft set was tested and evaluated in practice for usability and feasibility; the indicators were then translated into questionnaires presented to patients, next-of-kin and care providers. To encourage the acceptance and use of the indicators, stakeholders, including national palliative care organizations, were involved throughout the whole project.

Conclusion

Our indicator development trajectory resulted in a set of quality indicators applicable to all patients in all palliative care settings. The set includes patient and relative perspectives and includes outcome, process and structure indicators. Our method can contribute internationally to a more standardized and rigorous approach to developing quality indicators for palliative care.
Appendix
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Metadata
Title
Towards a standardized method of developing quality indicators for palliative care: protocol of the Quality indicators for Palliative Care (Q-PAC) study
Authors
Kathleen Leemans
Joachim Cohen
Anneke L Francke
Robert Vander Stichele
Susanne JJ Claessen
Lieve Van den Block
Luc Deliens
Publication date
01-12-2013
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2013
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-12-6

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