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Published in: BMC Public Health 1/2014

Open Access 01-12-2014 | Research article

The World Health Organization Quality of Life instrument for people with intellectual and physical disabilities (WHOQOL-Dis): evidence of validity of the Brazilian version

Authors: Juliana Bredemeier, Gabriela Peretti Wagner, Marilyn Agranonik, Tatiana Spalding Perez, Marcelo P Fleck

Published in: BMC Public Health | Issue 1/2014

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Abstract

Background

The number of people with disabilities in Brazil and worldwide has grown substantially in recent decades. Cross-cultural quality of life instruments can be helpful in the development of interventions designed to meet the needs of this population and contribute to rational allocation of resources. This study sought to provide evidence of validity and reliability the Brazilian Portuguese version of WHOQOL-Dis-D (a cross-cultural, multicentre instrument developed by the WHOQOL-Group for the assessment of quality of life in persons with physical disability – PD) and WHOQOL-Dis-ID (for persons with intellectual disability – ID).

Methods

Classical psychometric methods were used to conduct independent analyses of the PD and ID samples. Criterion groups were established for analysis of construct validity. Concurrent validity was assessed in relation to SWLS and BDI-II scores; discriminant validity, in relation to WHODAS-II. Cronbach alpha was used to test the instrument scales and subscales for reliability. The ID subgroup was retested, and test-retest reliability assessed by means of intraclass correlation coefficients and paired Student’s t-test.

Results

A total of 162 (98 females) people with PD and 156 (55 females) people with ID participated in the study. Cronbach alpha was satisfactory across practically all domains and factors in the PD subsample. In IDs, most factors or domains had coefficients higher than 0.70, but four subscales exhibited less satisfactory performance. Evidence of construct and concurrent validity and reliability were obtained.

Conclusions

The analyses presented herein provide satisfactory evidence of the validity and reliability of the instrument and corroborated the factor structure revealed during cross-cultural research. Further studies with larger sample sizes are required to obtain additional evidence of validity and reliability.
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Literature
1.
go back to reference World Health Organization: International Classification of Functioning, Disability and Health: ICF. 2001, Geneva: WHO World Health Organization: International Classification of Functioning, Disability and Health: ICF. 2001, Geneva: WHO
2.
go back to reference World Health Organization: World report on disability. 2011, Malta: WHO World Health Organization: World report on disability. 2011, Malta: WHO
5.
go back to reference World Health Organization: Constitution of the World Health Organization. Basic Documents. 1946, Geneva: World Health Organization World Health Organization: Constitution of the World Health Organization. Basic Documents. 1946, Geneva: World Health Organization
6.
go back to reference Albrecht GL, Devlieger PJ: The disability paradox: high quality of life against all odds. Soc Sci Med. 1999, 48: 977-988.CrossRefPubMed Albrecht GL, Devlieger PJ: The disability paradox: high quality of life against all odds. Soc Sci Med. 1999, 48: 977-988.CrossRefPubMed
7.
go back to reference WHOQOL Group: The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995, 41: 1403-CrossRef WHOQOL Group: The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995, 41: 1403-CrossRef
8.
go back to reference Quittner AL: Measurement of quality of life in cystic fibrosis. Curr Opin Pulm Med. 1998, 4: 326-331.CrossRefPubMed Quittner AL: Measurement of quality of life in cystic fibrosis. Curr Opin Pulm Med. 1998, 4: 326-331.CrossRefPubMed
9.
go back to reference Henry B, Aussage P, Grosskopf C, Goehrs JM: Development of the Cystic Fibrosis Questionnaire (CFQ) for assessing quality of life in pediatric and adult patients. Qual Life Res. 2003, 12: 63-67.CrossRefPubMed Henry B, Aussage P, Grosskopf C, Goehrs JM: Development of the Cystic Fibrosis Questionnaire (CFQ) for assessing quality of life in pediatric and adult patients. Qual Life Res. 2003, 12: 63-67.CrossRefPubMed
10.
go back to reference Gee L, Abbott J, Conway SP, Etherington C, Webb AK: Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax. 2000, 55: 946-954.CrossRefPubMedPubMedCentral Gee L, Abbott J, Conway SP, Etherington C, Webb AK: Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax. 2000, 55: 946-954.CrossRefPubMedPubMedCentral
11.
go back to reference Bowling A, Brazier J: ‘Quality of life’ in social science and medicine. Soc Sci Med. 1995, 41 (10): 1337-1338.CrossRef Bowling A, Brazier J: ‘Quality of life’ in social science and medicine. Soc Sci Med. 1995, 41 (10): 1337-1338.CrossRef
12.
go back to reference Power MJ, Green AM, WHOQOL-Dis Group: Development of the WHOQOL disabilities module. Qual Life Res. 2010, 19 (4): 571-584.CrossRefPubMed Power MJ, Green AM, WHOQOL-Dis Group: Development of the WHOQOL disabilities module. Qual Life Res. 2010, 19 (4): 571-584.CrossRefPubMed
13.
go back to reference Mattevi BS, Bredemeier J, Fam C, Fleck MPA: Quality of care, quality of life, and attitudes toward disabilities: perspectives from a qualitative focus group study in Porto Alegre. Brazil. Rev Panam Salud Publ. 2012, 31 (3): 188-196.CrossRef Mattevi BS, Bredemeier J, Fam C, Fleck MPA: Quality of care, quality of life, and attitudes toward disabilities: perspectives from a qualitative focus group study in Porto Alegre. Brazil. Rev Panam Salud Publ. 2012, 31 (3): 188-196.CrossRef
14.
go back to reference Fleck MPA, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, Pinzon V: Aplicação da versão em português do instrumento abreviado de avaliação da qualidade de vida “WHOQOL-bref”. Rev Saúde Públ. 2000, 34 (2): 178-183.CrossRef Fleck MPA, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, Pinzon V: Aplicação da versão em português do instrumento abreviado de avaliação da qualidade de vida “WHOQOL-bref”. Rev Saúde Públ. 2000, 34 (2): 178-183.CrossRef
15.
go back to reference Bredemeier J, Mattevi BS, Fam C, Fleck MP: Inclusion criteria of national items in Brazilian Portuguese versions of Dis-QOL measures. Qual Life Res. 2008, v (Suppl): A-49-A-49. Bredemeier J, Mattevi BS, Fam C, Fleck MP: Inclusion criteria of national items in Brazilian Portuguese versions of Dis-QOL measures. Qual Life Res. 2008, v (Suppl): A-49-A-49.
16.
go back to reference Fang J, Fleck MPA, Green A, McVilly K, Hao Y, Tan W, Fu R, Power M: The response scale for the intellectual disability module of the WHOQOL: 5-point or 3-point?. J Intellect Dev Disabil. 2011, 55 (6): 537-549.CrossRef Fang J, Fleck MPA, Green A, McVilly K, Hao Y, Tan W, Fu R, Power M: The response scale for the intellectual disability module of the WHOQOL: 5-point or 3-point?. J Intellect Dev Disabil. 2011, 55 (6): 537-549.CrossRef
17.
go back to reference World Health Organization: WHODAS-II Disability Assessment Schedule: Training Manual – A Guide to Administration. 2000, Geneva: World Health Organization World Health Organization: WHODAS-II Disability Assessment Schedule: Training Manual – A Guide to Administration. 2000, Geneva: World Health Organization
18.
go back to reference Diener E, Emmons R, Larsen J, Griffin S: The Satisfaction with life scale. J Pers Assess. 1985, 49 (1): 71-75.CrossRefPubMed Diener E, Emmons R, Larsen J, Griffin S: The Satisfaction with life scale. J Pers Assess. 1985, 49 (1): 71-75.CrossRefPubMed
19.
go back to reference Beck AT, Steer RA, Brown GK: Manual for the Beck Depression Inventory-II. 1996, San Antonio, TX: Psychological Corporation Beck AT, Steer RA, Brown GK: Manual for the Beck Depression Inventory-II. 1996, San Antonio, TX: Psychological Corporation
20.
go back to reference Gorenstein C, Pang WY, Argimon IL, Werlang BSG: Manual do Inventário de Depressão de Beck – BDI II – Adaptação Brasileira. 2011, Casa do Psicólogo: São Paulo, SP Gorenstein C, Pang WY, Argimon IL, Werlang BSG: Manual do Inventário de Depressão de Beck – BDI II – Adaptação Brasileira. 2011, Casa do Psicólogo: São Paulo, SP
21.
go back to reference WHOQOL-Dis Group: The Quality of Care and Support (QOCS) for people with disability scale: development and psychometric properties. Res Dev Disabil. 2011, 32 (3): 1212-1225. doi:10.1016/j.ridd.2010.12.030CrossRef WHOQOL-Dis Group: The Quality of Care and Support (QOCS) for people with disability scale: development and psychometric properties. Res Dev Disabil. 2011, 32 (3): 1212-1225. doi:10.1016/j.ridd.2010.12.030CrossRef
22.
go back to reference Cummins RA: Comprehensive Quality of Life Scale – Intellectual/Cognitive Disability. 1997, Melbourn, VIC: Deakin University, 5 Cummins RA: Comprehensive Quality of Life Scale – Intellectual/Cognitive Disability. 1997, Melbourn, VIC: Deakin University, 5
23.
go back to reference Dalton AJ, McVilly KR: Ethics guidelines for international multicenter research involving people with intellectual disabilities. JPPID. 2004, 1 (2): 57-70. Dalton AJ, McVilly KR: Ethics guidelines for international multicenter research involving people with intellectual disabilities. JPPID. 2004, 1 (2): 57-70.
24.
go back to reference World Medical Association: Declaration of Helsinki: ethical principles for medical research involving human subjects – updated version -. 2008, World Medical Association, 1964/2008, Available from: http://www.wma.net/ Accessed on 23rd Jan 2011 World Medical Association: Declaration of Helsinki: ethical principles for medical research involving human subjects – updated version -. 2008, World Medical Association, 1964/2008, Available from: http://​www.​wma.​net/​ Accessed on 23rd Jan 2011
25.
go back to reference Cortina JM: What is coefficient alpha? An examination of theory and applications. J Appl Psych. 1993, 78 (1): 98-104.CrossRef Cortina JM: What is coefficient alpha? An examination of theory and applications. J Appl Psych. 1993, 78 (1): 98-104.CrossRef
26.
go back to reference Fleck MPA, Lima AF, Louzada S, Schestasky G, Henriques A, Borges VR, Camey S: Association of depressive symptoms and social functioning in primary care service. Brazil. Rev Saúde Públ. 2002, 36 (4): 431-438.CrossRef Fleck MPA, Lima AF, Louzada S, Schestasky G, Henriques A, Borges VR, Camey S: Association of depressive symptoms and social functioning in primary care service. Brazil. Rev Saúde Públ. 2002, 36 (4): 431-438.CrossRef
27.
go back to reference Berlim MT, Mattevi BS, Fleck MP: Depression and quality of life among depressed Brazilian outpatients. Psychiatr Serv. 2003, 54 (2): 254-CrossRefPubMed Berlim MT, Mattevi BS, Fleck MP: Depression and quality of life among depressed Brazilian outpatients. Psychiatr Serv. 2003, 54 (2): 254-CrossRefPubMed
28.
go back to reference Lucas-Carrasco R, Salvador-Carulla L: Life satisfaction in persons with intellectual disabilities. Res Dev Disabil. 2012, 33 (4): 1103-1109.CrossRefPubMed Lucas-Carrasco R, Salvador-Carulla L: Life satisfaction in persons with intellectual disabilities. Res Dev Disabil. 2012, 33 (4): 1103-1109.CrossRefPubMed
29.
go back to reference Van Damme-Ostapowicz K, Krajewska-Kułak E, Rozwadowska E, Nahorski WL, Olszański R: Quality of life and satisfaction with life of malaria patients in context of acceptance of the disease: quantitative studies. Malar J. 2012, 29 (11): 171-CrossRef Van Damme-Ostapowicz K, Krajewska-Kułak E, Rozwadowska E, Nahorski WL, Olszański R: Quality of life and satisfaction with life of malaria patients in context of acceptance of the disease: quantitative studies. Malar J. 2012, 29 (11): 171-CrossRef
30.
go back to reference Streiner DL: Starting at the beginning: an introduction to coefficient alpha and internal consistency. J Pers Assess. 2003, 80 (1): 99-103.CrossRefPubMed Streiner DL: Starting at the beginning: an introduction to coefficient alpha and internal consistency. J Pers Assess. 2003, 80 (1): 99-103.CrossRefPubMed
Metadata
Title
The World Health Organization Quality of Life instrument for people with intellectual and physical disabilities (WHOQOL-Dis): evidence of validity of the Brazilian version
Authors
Juliana Bredemeier
Gabriela Peretti Wagner
Marilyn Agranonik
Tatiana Spalding Perez
Marcelo P Fleck
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Public Health / Issue 1/2014
Electronic ISSN: 1471-2458
DOI
https://doi.org/10.1186/1471-2458-14-538

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