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BMC Public Health
Published in: BMC Public Health 1/2013

Open Access 01-12-2013 | Research article

Time to care? Health of informal older carers and time spent on health related activities: an Australian survey

Authors: Tanisha Jowsey, Ian McRae, James Gillespie, Michelle Banfield, Laurann Yen

Published in: BMC Public Health | Issue 1/2013

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Abstract

Background

Little is known about the time spent on specific health related activities by older adult informal carers who assist people with chronic illness. Research has not yet addressed the association between carer health status and their care demands. Such information could inform policy and health system efforts to manage chronic illness.

Methods

We conducted an Australia wide survey using recall questionnaires to record time use. The study asked how much time is spent on “most days” for the most common activities like taking medication, self-treatment and testing, and how much time in the last month on less common activities like attending a physician or shopping associated with health needs. The survey was mailed to 5,000 members of National Seniors Australia; 2,500 registrants on the National Diabetes Services Scheme; and 3,100 members of the Australian Lung Foundation. A total of 2519 people responded, including 313 people who identified as informal carers. Statistical analysis was undertaken using Stata 11. Standard errors and confidence intervals were derived using bootstrapping techniques within Stata 11.

Results

Most carers (96.2%) had chronic illness themselves, and those with greater numbers of chronic illnesses were those who faced the greatest overall time demands. The top decile of carers devoted between 8.5 and 10 hours a day to personal and caring health related activities. Informal carers with chronic illness spent more time managing their own health than people with chronic illness who were not informal carers. These carers spent more time on caring for others than on caring for their own health. High levels of caring responsibility were associated with poorer reported carer health.

Conclusions

Policy and health care services will need to adapt to recognise and reduce the time burden on carers who themselves have chronic illness. More carefully targeted investment in the social infrastructure of formal care would free up carers for other activities (including their own care) and holds the potential to improve the quality of life as well as the health outcomes of this population.
Literature
1.
Commonwealth of Australia: National Carer Strategy. 2011, Canberra: FaHCSIA
2.
National Health and Hospitals Reform Commission: A Healthier Future for All Australians: Final Report June 2009. 2009, Canberra: Commonwealth of Australia
3.
Essue B, Jowsey T, Jeon Y-H, Mirzaei M, Pearce-Brown C, Aspin C, Usherwood T, And the Scipps Team: Informal care and the self-management partnership: implications for Australian health policy and practice. Aust Health Rev. 2010, 34: 414-422. 10.1071/AH09795.PubMed
4.
Yen L, Mcrae I, Jeon Y-H, Essue B, Herath P: The impact of chronic illness on workforce participation and the need for assistance with household tasks and personal care by older Australians. Health Soc Care Community. 2011, 19: 485-494. 10.1111/j.1365-2524.2011.00994.x.PubMed
5.
Dejonge KE, Taler G, Boling PA: Independence at Home: Community-Based Care for Older Adults with Severe Chronic Illness. Clin Geriatr Med. 2009, 25: 155-169. 10.1016/j.cger.2008.11.004.PubMed
6.
Dunbrack J: Respite for Family Caregivers: An Environmental Scan of Publicly-funded Programs in Canada. 2003, Ottawa: Health Canada
7.
8.
Knutson KL, Ryden AM, Mander BA, Van Cauter E: Role of Sleep Duration and Quality in the Risk and Severity of Type 2 Diabetes Mellitus. Arch Intern Med. 2006, 166: 1768-1774. 10.1001/archinte.166.16.1768.PubMed
9.
Buyck J-F, Bonnaud S, Boumendil A, Andrieu S, Bonenfant SB, Goldberg M, Zins M, Ankri JL: Informal Caregiving and Self-Reported Mental and Physical Health: Results From the Gazel Cohort Study. Am J Public Health. 2011, 101: 1971-1979. 10.2105/AJPH.2010.300044.PubMedPubMedCentral
10.
Aranda M: The influence of ethnicity and culture on the caregiver stress and coping process: a sociocultural review and analysis. Gerontologist. 1997, 37: 342-354. 10.1093/geront/37.3.342.PubMed
11.
Cain CJ, Newsome Wicks M: Caregiver Attributes as Correlates of Burden in Family Caregivers Coping With Chronic Obstructive Pulmonary Disease. J Fam Nurs. 2000, 6: 46-68. 10.1177/107484070000600104.
12.
Gallagher D, Rose J, Rivera P, Lovett S, Thompson LW: Prevalence of depression in family carers. Gerontologist. 1989, 29: 449-456. 10.1093/geront/29.4.449.PubMed
13.
Kenny PM, Hall JP, Zapart S, Davis PR: Informal Care and Home-Based Palliative Care: The Health-Related Quality of Life of Carers. J Pain Symptom Manage. 2010, 40: 35-48. 10.1016/j.jpainsymman.2009.11.322.PubMed
14.
Navaie-Waliser M, Feldman PH, Gould DA, Levine C, Kuerbis A, Donelan K: When the caregiver needs care: The plight of vulnerable caregivers. Am J Public Health. 2002, 92: 409-413. 10.2105/AJPH.92.3.409.PubMedPubMedCentral
15.
Christakisa NA, Iwashynab TJ: The health impact of health care on families: a matched cohort studyof hospice use bydecedents and mortalityoutcomes in surviving, widowed spouses. Soc Sci Med. 2003, 57: 465-475. 10.1016/S0277-9536(02)00370-2.
16.
Tommis Y, Robinson CA, Seddon D, Woods B: Carers with chronic conditions: changes over time in their physical health. Chronic Illn. 2009, 5: 155-164. 10.1177/1742395309339251.PubMed
17.
Miller EA, Allen SM, Mor V: Commentary: Navigating the Labyrinth of Long-Term Care: Shoring Up Informal Caregiving in a Home- and Community-Based World. J Aging Soc Policy. 2008, 21: 1-16. 10.1080/08959420802473474.
18.
Candy B, Jones L, Drake R, Leurent B, King M: Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database Syst Rev. 2011, CD007617: 10.1002/14651858.CD007617.pub2.
19.
Mcnamara B, Rosenwax L: Which carers of family members at the end of life need more support from health services and why?. Soc Sci Med. 2010, 70: 1035-1041. 10.1016/j.socscimed.2009.11.029.PubMed
20.
Dumont S, Jacobs P, Turcotte V, Anderson D, Harel F: Measurement challenges of informal caregiving: A novel measurement method applied to a cohort of palliative care patients. Soc Sci Med. 2010, 71: 1890-1895. 10.1016/j.socscimed.2010.08.003.PubMed
21.
Australian Bureau of Statistics: Caring in the Community, Australia 2009 4436.0. 2009, Canberra: Australian Bureau of Statistics
22.
Bittman M, Thomson C: Invisible Support: The determinants of time spent in informal care. Volunteers & Volunteering. Edited by: Warburton J, Oppenheimer M. 2000, Sydney: Federation Press
23.
Bittman M, Fisher K, Hill P, Thomson C: The Time Cost of Care. Int J Time Use Res. 2005, 2: 54-66.
24.
Bittman M, Fast J, Fisher K, Thomson C: Making the Invisible Visible. The life and time(s) of informal caregivers. Family Time. Edited by: Folbre N, Bittman M. 2004, London: Routledge: The Social Organization of Care
25.
Russell LB, Ibuka Y, Abraham KG: Health-Related Activities in the American Time Use Survey. Medical Care. 2007, 45: 680-685. 10.1097/MLR.0b013e3180455782.PubMed
26.
Russell LB, Ibuka Y, Carr D: How Much Time Do Patients Spend on Outpatient Visits?: The American Time Use Survey. The Patient. 2008, 1: 211-222. 10.2165/1312067-200801030-00008.PubMed
27.
Corbin J, Strauss A: Managing Chronic Illness: Three Lines of Work. Qual Sociol. 1985, 8: 224-247. 10.1007/BF00989485.
28.
Jeon Y-H, Jowsey T, Yen L, Glasgow NJ, Essue B, Kljakovic M, Pearce-Brown C, Mirzaei M, Usherwood T, Jan S, Kraus SG, Aspin C: Achieving a balanced life in the face of chronic illness. Aust J Prim Health. 2010, 16: 66-74.PubMed
29.
Mcrae I, Yen L, Jeon Y-H, Herath PM, Essue B: Multimorbidity is associated with higher out-of-pocket spending: a study of older Australians with multiple chronic conditions. Aust J Prim Health. 2012, http://​dx.​doi.​org/​10.​1071/​PY12035.​ Published online: 24 May 2012
30.
Australian Bureau of Statistics: Information Paper. Introduction to Socio-Economic Indexes for Areas (SEIFA). 2006, Canberra: Australian Bureau of Statistics
31.
Safford MM: Making the most of the time we have. Family Medical Forum. 2005, 54: 455-456.
32.
Stata Corp LP: Stata 11. 2009, College Station, Texas: StataCorp
33.
Yen L, Mcrae IS, Jowsey T, Gillespie J, Dugdale P, Banfield M, Mathews P, Kljakovic M: Health work by older people with chronic illness: how much time does it take?. Chronic Illn. 2013, 1: 1-15.
34.
Brodhead T: Preface. This day is for me: Taking care of the caregiver. Edited by: Cameron SD. 2003, Montreal: PQ: J.W. McConnell Family Foundation
35.
Decima Research Inc: National profile of family caregivers in Canada Final Report. 2002, Ottawa: Health Canada
36.
Brodaty H, Thomson C, Thompson C, Fine M: Why caregivers of people with dementia and memory loss don't use services. Int J Geriatr Psychiatry. 2005, 20: 537-546. 10.1002/gps.1322.PubMed
37.
Keefe JM, Manning M: The Cost Effectiveness of Respite: A Literature Review. 2005, Nova Scotia: Health Care Policy Directorate, Health Canada
38.
Valderas JM, Starfield B, Sibbald B, Salisbury C, Roland M: Defining Comorbidity: Implications for Understanding Health and Health Services. Ann Fam Med. 2009, 7: 357-363. 10.1370/afm.983.PubMedPubMedCentral
39.
Huntley AL, Johnson R, Purdy S, Valderas JM, Salisbury C: Measures of multimorbidity and morbidity burden for use in primary care and community settings: a systematic review and guide. Ann Fam Med. 2012, 10: 134-141. 10.1370/afm.1363.PubMedPubMedCentral
40.
Glynn LG, Valderas JM, Healy P, Burke E, Newell J, Gillespie P, Murphy AW: The prevalence of multimorbidity in primary care and its effect on health care utilization and cost. Fam Pract. 2011, 28: 516-523. 10.1093/fampra/cmr013.PubMed
41.
Krassie J, Smart C, Roberts DCK: A review of the nutritional needs of meals on wheels consumers and factors associated with the provision of an effective meals on wheels service–an australian perspective. Eur J Clin Nutr. 2000, 54: 275-80. 10.1038/sj.ejcn.1600790.PubMed
42.
Jowsey T: Perceptions of time and identity: informal family carers of people with chronic illness. Making Sense of Chronic Disease Series, Interdisciplinary Net. Oxford University. 2011, 1-10.
43.
Agar JWM: Nocturnal haemodialysis in Australia and New Zealand. Nephrology. 2005, 10: 222-230. 10.1111/j.1440-1797.2005.00409.x.PubMed
44.
Suri RS, Nesrallah GE, Mainra R, Garg AX, Lindsay RM, Greene T, Daugirdas JT: Daily Hemodialysis: A Systematic Review. Clin J Am Soc Nephrol. 2006, 1: 33-42.PubMed
45.
Henderson J, Harrison C, Valenti L, Bayram C, Miller G: Self-monitoring of blood glucose by patients with Type 2 diabetes. Primary Health Care Research Conference. 2012, PHCRIS: Canberra
46.
Wilkinson R, Pickett K: Spirit Level: Why Equality is Better for Everyone. 2010, London: Penguin Books
Metadata
Title
Time to care? Health of informal older carers and time spent on health related activities: an Australian survey
Authors
Tanisha Jowsey
Ian McRae
James Gillespie
Michelle Banfield
Laurann Yen
Publication date
01-12-2013
Publisher
BioMed Central
Published in
BMC Public Health / Issue 1/2013
Electronic ISSN: 1471-2458
DOI
https://doi.org/10.1186/1471-2458-13-374

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