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Published in: BMC Pediatrics 1/2014

Open Access 01-12-2014 | Study protocol

A pedometer based physical activity self-management program for children and adolescents with physical disability – design and methods of the StepUp study

Authors: Carol Maher, Angela Crettenden, Kerry Evans, Myra Thiessen, Monica Toohey, Jim Dollman

Published in: BMC Pediatrics | Issue 1/2014

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Abstract

Background

Physical activity affords a wide range of physiological and psychological benefits for children and adolescents, yet many children with physical disabilities are insufficiently active to achieve these benefits. The StepUp program is a newly developed 6-week pedometer-based self-management program for children and adolescents with physical disability. Participants use a pedometer to undertake a 6-week physical activity challenge, with personalised daily step count goals set in consultation with a physiotherapist. The study aims to evaluate the effectiveness of the StepUp program, using a randomised control trial design.

Methods/design

A target sample of 70 young people with physical disabilities (aged 8–17 years, ambulant with or without aid, residing in Adelaide) will be recruited. Participants will be randomly allocated to either intervention or control following completion of baseline assessments. Assessments are repeated at 8 weeks (immediately post intervention) and 20 weeks (12 weeks post intervention). The primary outcome is objective physical activity determined from 7 day accelerometry, and the secondary outcomes are exercise intention, physical self-worth, quality of life and fatigue. Analyses will be undertaken on an intention-to-treat basis using random effects mixed modelling.

Discussion

This study will provide information about the potential of a low-touch and low-cost physical activity intervention for children and adolescents with cerebral palsy.

Trial registration

Australian New Zealand Clinical Trials Registry (ANZCTR): ACTRN12613000023​752.
Appendix
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Literature
1.
go back to reference Trost S: Discussion paper for the development of recommendations for children’s and youths’ participation in health promoting physical activity. 2005, Canberra: Australian Department of Health and Ageing Trost S: Discussion paper for the development of recommendations for children’s and youths’ participation in health promoting physical activity. 2005, Canberra: Australian Department of Health and Ageing
2.
go back to reference Andersson C, Mattsson E: Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol. 2001, 43: 76-82. 10.1017/S0012162201.CrossRefPubMed Andersson C, Mattsson E: Adults with cerebral palsy: a survey describing problems, needs, and resources, with special emphasis on locomotion. Dev Med Child Neurol. 2001, 43: 76-82. 10.1017/S0012162201.CrossRefPubMed
3.
go back to reference Jahnsen R, Villien L, Egeland T, Stanghelle JK, Holm I: Locomotion skills in adults with cerebral palsy. Clin Rehabil. 2003, 18: 309-316.CrossRef Jahnsen R, Villien L, Egeland T, Stanghelle JK, Holm I: Locomotion skills in adults with cerebral palsy. Clin Rehabil. 2003, 18: 309-316.CrossRef
4.
go back to reference Santiago MC, Coyle CP: Leisure-time physical activity and secondary conditions in women with physical disabilities. Disabil Rehabil. 2004, 26: 485-494. 10.1080/09638280410001663139.CrossRefPubMed Santiago MC, Coyle CP: Leisure-time physical activity and secondary conditions in women with physical disabilities. Disabil Rehabil. 2004, 26: 485-494. 10.1080/09638280410001663139.CrossRefPubMed
5.
go back to reference Basaran S, Guler-Uysal F, Ergen N, Seydaoglu G, Bingol-Karakoç G, Ufuk Altintas D: Effects of physical exercise on quality of life, exercise capacity and pulmonary function in children with asthma. J Rehabil Med. 2006, 38: 130-135.CrossRefPubMed Basaran S, Guler-Uysal F, Ergen N, Seydaoglu G, Bingol-Karakoç G, Ufuk Altintas D: Effects of physical exercise on quality of life, exercise capacity and pulmonary function in children with asthma. J Rehabil Med. 2006, 38: 130-135.CrossRefPubMed
6.
go back to reference Fredriksen PM, Kahrs N, Blaasvaer S, Sigurdsen E, Gundersen O, Roeksund O, Norgaand G, Vik JT, Soerbye O, Ingjer E, Thaulow E: Effect of physical training in children and adolescents with congenital heart disease. Cardiol Young. 2000, 10: 107-114.PubMed Fredriksen PM, Kahrs N, Blaasvaer S, Sigurdsen E, Gundersen O, Roeksund O, Norgaand G, Vik JT, Soerbye O, Ingjer E, Thaulow E: Effect of physical training in children and adolescents with congenital heart disease. Cardiol Young. 2000, 10: 107-114.PubMed
7.
go back to reference Australian Institute of Health and Welfare (AIHW): Children With Disabilities In Australia. 2004, Canberra: Australian Institute of Health and Welfare Australian Institute of Health and Welfare (AIHW): Children With Disabilities In Australia. 2004, Canberra: Australian Institute of Health and Welfare
8.
go back to reference Law M, King G, King S, Kertoy M, Hurley P, Rosenbaum P, Young N, Hanna S: Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol. 2006, 48: 337-342. 10.1017/S0012162206000740.CrossRefPubMed Law M, King G, King S, Kertoy M, Hurley P, Rosenbaum P, Young N, Hanna S: Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol. 2006, 48: 337-342. 10.1017/S0012162206000740.CrossRefPubMed
9.
go back to reference Maher CA, Williams MT, Olds T, Lane AE: Physical and sedentary activity in adolescents with cerebral palsy. Dev Med Child Neurol. 2007, 49: 450-457. 10.1111/j.1469-8749.2007.00450.x.CrossRefPubMed Maher CA, Williams MT, Olds T, Lane AE: Physical and sedentary activity in adolescents with cerebral palsy. Dev Med Child Neurol. 2007, 49: 450-457. 10.1111/j.1469-8749.2007.00450.x.CrossRefPubMed
10.
go back to reference Maher C, Kernot J, Olds T: Time use patterns in ambulatory adolescents with cerebral palsy. Child Care Health Dev. 2013, 39 (3): 404-411. 10.1111/j.1365-2214.2011.01352.x.CrossRefPubMed Maher C, Kernot J, Olds T: Time use patterns in ambulatory adolescents with cerebral palsy. Child Care Health Dev. 2013, 39 (3): 404-411. 10.1111/j.1365-2214.2011.01352.x.CrossRefPubMed
11.
go back to reference Maher CA, Williams MT, Olds T, Lane AE: An internet-based physical activity intervention for adolescents with cerebral palsy: a randomized controlled trial. Dev Med Child Neurol. 2010, 52: 448-455. 10.1111/j.1469-8749.2009.03609.x.CrossRefPubMed Maher CA, Williams MT, Olds T, Lane AE: An internet-based physical activity intervention for adolescents with cerebral palsy: a randomized controlled trial. Dev Med Child Neurol. 2010, 52: 448-455. 10.1111/j.1469-8749.2009.03609.x.CrossRefPubMed
12.
go back to reference Van Wely L, Becher J, Reinders-Messelink H, Lindeman E, Verschuren O, Verheijden J, Dallmeijer A: LEARN 2 MOVE 7–12 years: a randomized controlled trial on the effects of a physical activity stimulation program in children with cerebral palsy. BMC Pediatr. 2010, 10: 77-10.1186/1471-2431-10-77.CrossRefPubMedPubMedCentral Van Wely L, Becher J, Reinders-Messelink H, Lindeman E, Verschuren O, Verheijden J, Dallmeijer A: LEARN 2 MOVE 7–12 years: a randomized controlled trial on the effects of a physical activity stimulation program in children with cerebral palsy. BMC Pediatr. 2010, 10: 77-10.1186/1471-2431-10-77.CrossRefPubMedPubMedCentral
13.
go back to reference Fowler EG, Knutson LM, DeMuth SK, Sugi M, Siebert K, Simms V, Azen SP, Winstein CJ: Pediatric endurance and limb strengthening for children with cerebral palsy (PEDALS)–a randomized controlled trial protocol for a stationary cycling intervention. BMC Pediatr. 2007, 7: 14-10.1186/1471-2431-7-14.CrossRefPubMedPubMedCentral Fowler EG, Knutson LM, DeMuth SK, Sugi M, Siebert K, Simms V, Azen SP, Winstein CJ: Pediatric endurance and limb strengthening for children with cerebral palsy (PEDALS)–a randomized controlled trial protocol for a stationary cycling intervention. BMC Pediatr. 2007, 7: 14-10.1186/1471-2431-7-14.CrossRefPubMedPubMedCentral
14.
go back to reference Slaman J, Roebroeck M, van Meeteren J, van der Slot W, Reinders-Messelink H, Lindeman E, Stam H, van den Berg-Emons R: LEARN 2 MOVE 16–24: effectiveness of an intervention to stimulate physical activity and improve physical fitness of adolescents and young adults with spastic cerebral palsy; a randomized controlled trial. BMC Pediatr. 2010, 10: 79-10.1186/1471-2431-10-79.CrossRefPubMedPubMedCentral Slaman J, Roebroeck M, van Meeteren J, van der Slot W, Reinders-Messelink H, Lindeman E, Stam H, van den Berg-Emons R: LEARN 2 MOVE 16–24: effectiveness of an intervention to stimulate physical activity and improve physical fitness of adolescents and young adults with spastic cerebral palsy; a randomized controlled trial. BMC Pediatr. 2010, 10: 79-10.1186/1471-2431-10-79.CrossRefPubMedPubMedCentral
15.
go back to reference de Vries SI, Bakker I, Hopman-Rock M, Hirasing RA, van Mechelen W: Clinimetric review of motion sensors in children and adolescents. J Clin Epidemiol. 2006, 59: 670-680. 10.1016/j.jclinepi.2005.11.020.CrossRefPubMed de Vries SI, Bakker I, Hopman-Rock M, Hirasing RA, van Mechelen W: Clinimetric review of motion sensors in children and adolescents. J Clin Epidemiol. 2006, 59: 670-680. 10.1016/j.jclinepi.2005.11.020.CrossRefPubMed
16.
go back to reference Lubans DR, Morgan PJ, Tudor-Locke C: A systematic review of studies using pedometers to promote physical activity among youth. Prev Med. 2009, 48: 307-315. 10.1016/j.ypmed.2009.02.014.CrossRefPubMed Lubans DR, Morgan PJ, Tudor-Locke C: A systematic review of studies using pedometers to promote physical activity among youth. Prev Med. 2009, 48: 307-315. 10.1016/j.ypmed.2009.02.014.CrossRefPubMed
17.
go back to reference Sawyer SM, Aroni RA: Self-management in adolescents with chronic illness. What does it mean and how can it be achieved?. Med J Aust. 2005, 183: 405-409.PubMed Sawyer SM, Aroni RA: Self-management in adolescents with chronic illness. What does it mean and how can it be achieved?. Med J Aust. 2005, 183: 405-409.PubMed
18.
go back to reference Novacheck TF, Stout JL, Tervo R: Reliability and validity of the gillette functional assessment questionnaire as an outcome measure in children with walking disabilities. J Pediatr Orthop. 2000, 20: 75-PubMed Novacheck TF, Stout JL, Tervo R: Reliability and validity of the gillette functional assessment questionnaire as an outcome measure in children with walking disabilities. J Pediatr Orthop. 2000, 20: 75-PubMed
20.
go back to reference Bjornson KF, Belza B, Kartin D, Logsdon R, Mc Laughlin JF: Ambulatory physical activity performance in youth with cerebral palsy and youth who are developing typically. Phys Ther. 2007, 87: 248-257. 10.2522/ptj.20060157.CrossRefPubMedPubMedCentral Bjornson KF, Belza B, Kartin D, Logsdon R, Mc Laughlin JF: Ambulatory physical activity performance in youth with cerebral palsy and youth who are developing typically. Phys Ther. 2007, 87: 248-257. 10.2522/ptj.20060157.CrossRefPubMedPubMedCentral
21.
go back to reference Kuo YL, Culhane KM, Thomason P, Tirosh O, Baker R: Measuring distance walked and step count in children with cerebral palsy: an evaluation of two portable activity monitors. Gait Posture. 2009, 39: 304-310.CrossRef Kuo YL, Culhane KM, Thomason P, Tirosh O, Baker R: Measuring distance walked and step count in children with cerebral palsy: an evaluation of two portable activity monitors. Gait Posture. 2009, 39: 304-310.CrossRef
22.
go back to reference Motl R, Dishman R, Saunders R, Dowda M, Felton G, Ward D, Pate R: Examining social-cognitive determinants of intention and physical activity among black and white adolescent girls using structural equation modeling. Health Psychol. 2002, 21: 459-467.CrossRefPubMed Motl R, Dishman R, Saunders R, Dowda M, Felton G, Ward D, Pate R: Examining social-cognitive determinants of intention and physical activity among black and white adolescent girls using structural equation modeling. Health Psychol. 2002, 21: 459-467.CrossRefPubMed
23.
go back to reference Whitehead J, Corbin C: Effects of fitness test type, teacher, and gender on exercise intrinsic motivation and physical self-worth. J Sch Health. 1991, 61: 11-16. 10.1111/j.1746-1561.1991.tb07850.x.CrossRefPubMed Whitehead J, Corbin C: Effects of fitness test type, teacher, and gender on exercise intrinsic motivation and physical self-worth. J Sch Health. 1991, 61: 11-16. 10.1111/j.1746-1561.1991.tb07850.x.CrossRefPubMed
24.
go back to reference Whitehead J: A study of children’s physical self-perceptions using an adapted physical self-perception profile questionnaire. Pediatr Exerc Sci. 1995, 7: 132-132. Whitehead J: A study of children’s physical self-perceptions using an adapted physical self-perception profile questionnaire. Pediatr Exerc Sci. 1995, 7: 132-132.
25.
go back to reference Ernhart M, Ellert U, Kurth BM, Ravens-Sieberer U: Measuring adolescents’ HRQoL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument. Health Qual Life Outcomes. 2009, 26: 77-CrossRef Ernhart M, Ellert U, Kurth BM, Ravens-Sieberer U: Measuring adolescents’ HRQoL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument. Health Qual Life Outcomes. 2009, 26: 77-CrossRef
26.
go back to reference Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P: The PedsQL™ in pediatric cancer. Cancer. 2002, 94: 2090-2106. 10.1002/cncr.10428.CrossRefPubMed Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P: The PedsQL™ in pediatric cancer. Cancer. 2002, 94: 2090-2106. 10.1002/cncr.10428.CrossRefPubMed
27.
go back to reference Varni JW, Burwinkle TM, Szer IS: The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity. J Rheumatol. 2004, 31: 2494-2500.PubMed Varni JW, Burwinkle TM, Szer IS: The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity. J Rheumatol. 2004, 31: 2494-2500.PubMed
28.
go back to reference Varni JW, Limbers CA, Bryant WP, Wilson DP: The PedsQL™ Multidimensional Fatigue Scale in type 1 diabetes: feasibility, reliability, and validity. Pediatr Diabetes. 2009, 10: 321-328. 10.1111/j.1399-5448.2008.00482.x.CrossRefPubMed Varni JW, Limbers CA, Bryant WP, Wilson DP: The PedsQL™ Multidimensional Fatigue Scale in type 1 diabetes: feasibility, reliability, and validity. Pediatr Diabetes. 2009, 10: 321-328. 10.1111/j.1399-5448.2008.00482.x.CrossRefPubMed
29.
go back to reference Nader PR, Bradley RH, Houts RM, McRitchie SL, O’Brien M: Moderate-to-vigorous physical activity from ages 9 to 15 years. JAMA. 2008, 300: 295-305. 10.1001/jama.300.3.295.CrossRefPubMed Nader PR, Bradley RH, Houts RM, McRitchie SL, O’Brien M: Moderate-to-vigorous physical activity from ages 9 to 15 years. JAMA. 2008, 300: 295-305. 10.1001/jama.300.3.295.CrossRefPubMed
30.
go back to reference Tucker P, Gilliland J: The effect of season and weather on physical activity: a systematic review. Public Health. 2007, 121: 909-922. 10.1016/j.puhe.2007.04.009.CrossRefPubMed Tucker P, Gilliland J: The effect of season and weather on physical activity: a systematic review. Public Health. 2007, 121: 909-922. 10.1016/j.puhe.2007.04.009.CrossRefPubMed
Metadata
Title
A pedometer based physical activity self-management program for children and adolescents with physical disability – design and methods of the StepUp study
Authors
Carol Maher
Angela Crettenden
Kerry Evans
Myra Thiessen
Monica Toohey
Jim Dollman
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Pediatrics / Issue 1/2014
Electronic ISSN: 1471-2431
DOI
https://doi.org/10.1186/1471-2431-14-31

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