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BMC Proceedings
Published in: BMC Proceedings 9/2016

Open Access 01-11-2016 | Meeting report

Proceedings of the COST action BM1407 inaugural conference BEAT-PCD: translational research in primary ciliary dyskinesia - bench, bedside, and population perspectives

Authors: Bruna Rubbo, Laura Behan, Eleonora Dehlink, Myrofora Goutaki, Claire Hogg, Panayiotis Kouis, Claudia E. Kuehni, Philipp Latzin, Kim Nielsen, Dominic Norris, Sylvia Nyilas, Mareike Price, Jane S. Lucas, on behalf of BEAT-PCD

Published in: BMC Proceedings | Special Issue 9/2016

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Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. ‘Better Experimental Approaches to Treat Primary Ciliary Dyskinesia’ (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU Framework Programme Horizon 2020 funded COST Action (BM1407). The Inaugural Conference of BEAT-PCD was held in December 2015 in Southampton, UK. The conference attracted ninety-six scientists, clinicians, allied health professionals, industrial partners and patient representatives from twenty countries. We aimed to identify the needs for PCD research and clinical care, particularly focussing on basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. This allowed us to develop plans for collaborative studies. In this report, we summarize the meeting, highlight developments, and discuss open questions thereby documenting ongoing developments in the field of PCD research.
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Metadata
Title
Proceedings of the COST action BM1407 inaugural conference BEAT-PCD: translational research in primary ciliary dyskinesia - bench, bedside, and population perspectives
Authors
Bruna Rubbo
Laura Behan
Eleonora Dehlink
Myrofora Goutaki
Claire Hogg
Panayiotis Kouis
Claudia E. Kuehni
Philipp Latzin
Kim Nielsen
Dominic Norris
Sylvia Nyilas
Mareike Price
Jane S. Lucas
on behalf of BEAT-PCD
Publication date
01-11-2016
Publisher
BioMed Central
Published in
BMC Proceedings / Issue Special Issue 9/2016
Electronic ISSN: 1753-6561
DOI
https://doi.org/10.1186/s12919-016-0067-0