Skip to main content
Top
Published in: BMC Health Services Research 1/2023

Open Access 01-12-2023 | Care | Research

Accessibility to specialist palliative care services in Germany: a geographical network analysis

Authors: Daniela Gesell, Farina Hodiamont, Claudia Bausewein, Daniela Koller

Published in: BMC Health Services Research | Issue 1/2023

Login to get access

Abstract

Background

The need for palliative care will increase over the next years because of the rise in deaths from chronic illness and demographic changes. The provision of specialist palliative care (SPC) in Germany (palliative care units (PCU), specialist palliative home care (SPHC) teams and palliative care advisory (PCA) teams) has been expanded in recent years. Despite the increasing availability, there is still insufficient coverage with long travel times. The aim was to describe the spatial distribution of SPC services in Germany, to calculate the potential accessibility of facilities and to assess potential spatial under-provision.

Methods

Retrospective cross-sectional study with regional analysis of SPC services in Germany. Addresses of SPC services registered online were geocoded, accessibility and network analyses were conducted, and proportion of the population living up to 60 minutes driving time were calculated.

Results

A total of 673 facilities were included. Their distribution is heterogeneous with every fourth of the 401 districts (110/401; 27.4%) lacking a SPC service. In half of the area of Germany the existing PCU and SPHC teams are within reach of 30 minutes, with nearly 90% of the population living there. Hospitals providing PCA teams can be reached within 30 minutes in 17% of the total area with provision for 43% of the population.

Conclusions

A high coverage of SPHC teams and PCU indicates a good spatial distribution in Germany but no complete adequate provision of SPC services, especially for PCA teams. There is a persistent need for further implementation of hospital PCA teams.
Appendix
Available only for authorised users
Literature
2.
go back to reference Knaul FM, Farmer PE, Krakauer EL, De Lima L, Bhadelia A, Kwete XJ, Arreola-Ornelas H, Gómez-Dantés O, Rodriguez NM, Alleyne GA. Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report. The Lancet. 2018;391(10128):1391–454.CrossRef Knaul FM, Farmer PE, Krakauer EL, De Lima L, Bhadelia A, Kwete XJ, Arreola-Ornelas H, Gómez-Dantés O, Rodriguez NM, Alleyne GA. Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report. The Lancet. 2018;391(10128):1391–454.CrossRef
4.
go back to reference Radbruch L, Payne S. White paper on standards and norms for hospice and palliative care in Europe: part 1. Eur J Palliat care. 2009;16(6):278–89. Radbruch L, Payne S. White paper on standards and norms for hospice and palliative care in Europe: part 1. Eur J Palliat care. 2009;16(6):278–89.
5.
6.
go back to reference Sepúlveda C, Marlin A, Yoshida T, Ullrich A. Palliative Care: the World Health Organization’s global perspective. J Pain Symptom Manage. 2002;24(2):91–6.CrossRefPubMed Sepúlveda C, Marlin A, Yoshida T, Ullrich A. Palliative Care: the World Health Organization’s global perspective. J Pain Symptom Manage. 2002;24(2):91–6.CrossRefPubMed
8.
go back to reference Robert-Koch-Institut: 5.5 Palliativversorgung In: Gesundheit in Deutschland Gesundheitsberichterstattung in Deutschland. edn. Edited by Robert-Koch-Institut. Berlin. ; 2015: 332–337. Robert-Koch-Institut: 5.5 Palliativversorgung In: Gesundheit in Deutschland Gesundheitsberichterstattung in Deutschland. edn. Edited by Robert-Koch-Institut. Berlin. ; 2015: 332–337.
9.
go back to reference Radbruch L, Payne S. White Paper on standards and norms for hospice and palliative care in Europe: part 2. Eur J Palliat Care. 2010;17(1):22–33. Radbruch L, Payne S. White Paper on standards and norms for hospice and palliative care in Europe: part 2. Eur J Palliat Care. 2010;17(1):22–33.
10.
go back to reference Radbruch L, Andersohn F, Walker J. Überversorgung kurativ-unterversorgung palliativ?: Analyse ausgewählter Behandlungen. am Lebensende: Bertelsmann-Stiftung; 2015. Radbruch L, Andersohn F, Walker J. Überversorgung kurativ-unterversorgung palliativ?: Analyse ausgewählter Behandlungen. am Lebensende: Bertelsmann-Stiftung; 2015.
11.
go back to reference Melching H. Strukturen und regionale Unterschiede in der Hospiz-. und Palliativversorgung: Bertelsmann-Stiftung; 2015. Melching H. Strukturen und regionale Unterschiede in der Hospiz-. und Palliativversorgung: Bertelsmann-Stiftung; 2015.
12.
go back to reference Jacobs K, Kuhlmey A, Gress S, Klauber J, Schwinger A. Pflege-Report 2022. Berlin, Heidelberg: Springer; 2022.CrossRef Jacobs K, Kuhlmey A, Gress S, Klauber J, Schwinger A. Pflege-Report 2022. Berlin, Heidelberg: Springer; 2022.CrossRef
13.
go back to reference Chukwusa E, Yu P, Verne J, Taylor R, Higginson IJ, Wei G. Regional variations in geographic access to inpatient hospices and place of death: a Population-based study in England, UK. PLoS ONE. 2020;15(4):e0231666.CrossRefPubMedPubMedCentral Chukwusa E, Yu P, Verne J, Taylor R, Higginson IJ, Wei G. Regional variations in geographic access to inpatient hospices and place of death: a Population-based study in England, UK. PLoS ONE. 2020;15(4):e0231666.CrossRefPubMedPubMedCentral
14.
go back to reference Schneider W, Eichner E, Thoms U, Kopitzsch F, Stadelbacher S. Struktur-und Prozesseffekte der SAPV in Bayern–Evaluation/Qualitätssicherung und (Aus-) Wirkungen der SAPV auf die AAPV (unter besonderer Berücksichtigung des ländlichen Raums): Ergebnisbericht. Universität Augsburg PKVS, Bayerisches Staatsministerium für Gesundheit und Pflege, Herausgeber Augsburg 2014. Schneider W, Eichner E, Thoms U, Kopitzsch F, Stadelbacher S. Struktur-und Prozesseffekte der SAPV in Bayern–Evaluation/Qualitätssicherung und (Aus-) Wirkungen der SAPV auf die AAPV (unter besonderer Berücksichtigung des ländlichen Raums): Ergebnisbericht. Universität Augsburg PKVS, Bayerisches Staatsministerium für Gesundheit und Pflege, Herausgeber Augsburg 2014.
15.
go back to reference van Baal K, Stiel S, Hemmerling M, Stahmeyer JT, Wiese B, Schneider N, Afshar K. Ambulante Palliativversorgung in Niedersachsen–regionale Unterschiede in der Versorgung von Menschen am Lebensende anhand von Qualitätsindikatoren. In: Versorgungsatlas vol. 21/4. Berlin: Zentralinstitut für die kassenärztliche Versorgung in Deutschland 2021:1–19. van Baal K, Stiel S, Hemmerling M, Stahmeyer JT, Wiese B, Schneider N, Afshar K. Ambulante Palliativversorgung in Niedersachsen–regionale Unterschiede in der Versorgung von Menschen am Lebensende anhand von Qualitätsindikatoren. In: Versorgungsatlas vol. 21/4. Berlin: Zentralinstitut für die kassenärztliche Versorgung in Deutschland 2021:1–19.
16.
go back to reference Wiese C, Zausig Y, Vormelker J, Orso S, Graf B, Hanekop G. Ambulante und stationäre palliativmedizinische Patientenversorgung in Deutschland. Anaesthesist 2010, 59(2). Wiese C, Zausig Y, Vormelker J, Orso S, Graf B, Hanekop G. Ambulante und stationäre palliativmedizinische Patientenversorgung in Deutschland. Anaesthesist 2010, 59(2).
17.
go back to reference Benchimol EI, Smeeth L, Guttmann A, Harron K, Moher D, Petersen I, Sørensen HT, von Elm E, Langan SM, Committee RW. The REporting of studies conducted using Observational routinely-collected health data (RECORD) statement. PLoS Med. 2015;12(10):e1001885.CrossRefPubMedPubMedCentral Benchimol EI, Smeeth L, Guttmann A, Harron K, Moher D, Petersen I, Sørensen HT, von Elm E, Langan SM, Committee RW. The REporting of studies conducted using Observational routinely-collected health data (RECORD) statement. PLoS Med. 2015;12(10):e1001885.CrossRefPubMedPubMedCentral
25.
go back to reference van Steijn D, Pons Izquierdo JJ, Garralda Domezain E, Sánchez-Cárdenas MA, Centeno Cortés C. Population’s potential accessibility to Specialized Palliative Care Services: a comparative study in three european countries. Int J Environ Res Public Health. 2021;18(19):10345.CrossRefPubMedPubMedCentral van Steijn D, Pons Izquierdo JJ, Garralda Domezain E, Sánchez-Cárdenas MA, Centeno Cortés C. Population’s potential accessibility to Specialized Palliative Care Services: a comparative study in three european countries. Int J Environ Res Public Health. 2021;18(19):10345.CrossRefPubMedPubMedCentral
26.
go back to reference Schuurman N, Amram O, Crooks VA, Johnston R, Williams A. A comparative analysis of potential spatio-temporal access to palliative care services in two canadian provinces. BMC Health Serv Res. 2015;15(1):270.CrossRefPubMedPubMedCentral Schuurman N, Amram O, Crooks VA, Johnston R, Williams A. A comparative analysis of potential spatio-temporal access to palliative care services in two canadian provinces. BMC Health Serv Res. 2015;15(1):270.CrossRefPubMedPubMedCentral
27.
go back to reference Cinnamon J, Schuurman N, Crooks VA. A method to determine spatial access to specialized palliative care services using GIS. BMC Health Serv Res. 2008;8(1):140.CrossRefPubMedPubMedCentral Cinnamon J, Schuurman N, Crooks VA. A method to determine spatial access to specialized palliative care services using GIS. BMC Health Serv Res. 2008;8(1):140.CrossRefPubMedPubMedCentral
30.
go back to reference Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF. Early palliative care for patients with metastatic non–small-cell lung cancer. N Engl J Med. 2010;363(8):733–42.CrossRefPubMed Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF. Early palliative care for patients with metastatic non–small-cell lung cancer. N Engl J Med. 2010;363(8):733–42.CrossRefPubMed
31.
go back to reference May P, Garrido MM, Cassel JB, Kelley AS, Meier DE, Normand C, Smith TJ, Stefanis L, Morrison RS. Prospective cohort study of Hospital Palliative Care Teams for inpatients with Advanced Cancer: earlier Consultation is Associated with larger cost-saving effect. J Clin Oncol. 2015;33(25):2745–52.CrossRefPubMedPubMedCentral May P, Garrido MM, Cassel JB, Kelley AS, Meier DE, Normand C, Smith TJ, Stefanis L, Morrison RS. Prospective cohort study of Hospital Palliative Care Teams for inpatients with Advanced Cancer: earlier Consultation is Associated with larger cost-saving effect. J Clin Oncol. 2015;33(25):2745–52.CrossRefPubMedPubMedCentral
32.
go back to reference Fitzpatrick J, Mavissakalian M, Luciani T, Xu Y, Mazurek A. Economic impact of early inpatient palliative care intervention in a Community Hospital setting. J Palliat Med. 2018;21(7):933–9.CrossRefPubMed Fitzpatrick J, Mavissakalian M, Luciani T, Xu Y, Mazurek A. Economic impact of early inpatient palliative care intervention in a Community Hospital setting. J Palliat Med. 2018;21(7):933–9.CrossRefPubMed
33.
go back to reference Arias-Casais N, Garralda E, Rhee J. EAPC atlas of palliative care in Europe. Romania. 2019;122:0–6. Arias-Casais N, Garralda E, Rhee J. EAPC atlas of palliative care in Europe. Romania. 2019;122:0–6.
34.
go back to reference Sánchez-Cárdenas MA, Garralda E, Benítez E, Arias-Casais N, van Steijn D, Centeno C. Palliative Care Coverage across European National Health Systems: proposal of a Synthetic Indicator. Int J Environ Res Public Health. 2021;18(20):10753.CrossRefPubMedPubMedCentral Sánchez-Cárdenas MA, Garralda E, Benítez E, Arias-Casais N, van Steijn D, Centeno C. Palliative Care Coverage across European National Health Systems: proposal of a Synthetic Indicator. Int J Environ Res Public Health. 2021;18(20):10753.CrossRefPubMedPubMedCentral
35.
go back to reference Ditscheid B, Krause M, Lehmann T, Stichling K, Jansky M, Nauck F, Wedding U, Schneider W, Marschall U, Meißner W. Palliative care at the end of life in Germany: utilization and regional distribution. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2020;63(12):1502–10.CrossRefPubMedPubMedCentral Ditscheid B, Krause M, Lehmann T, Stichling K, Jansky M, Nauck F, Wedding U, Schneider W, Marschall U, Meißner W. Palliative care at the end of life in Germany: utilization and regional distribution. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2020;63(12):1502–10.CrossRefPubMedPubMedCentral
36.
go back to reference Neumeier S, Osigus T. Erreichbarkeit von Krankenhäusern in der Grundversorgung. Deutschlandatlas 2019 edited by Bundesinstitut für Bau- S-uRB, Thünen-Institut BfrLnRu, Wald und Fischerei,. Berlin: Bundesministerium des Innern, für Bau und Heimat,; 2019. Neumeier S, Osigus T. Erreichbarkeit von Krankenhäusern in der Grundversorgung. Deutschlandatlas 2019 edited by Bundesinstitut für Bau- S-uRB, Thünen-Institut BfrLnRu, Wald und Fischerei,. Berlin: Bundesministerium des Innern, für Bau und Heimat,; 2019.
37.
go back to reference Peters DH, Garg A, Bloom G, Walker DG, Brieger WR, Rahman MH. Poverty and access to health care in developing countries. Ann N Y Acad Sci. 2008;1136:161–71.CrossRefPubMed Peters DH, Garg A, Bloom G, Walker DG, Brieger WR, Rahman MH. Poverty and access to health care in developing countries. Ann N Y Acad Sci. 2008;1136:161–71.CrossRefPubMed
38.
go back to reference Hesse M, Ates G, Woitha K. Hospiz- und Palliativversorgung in Rheinland-Pfalz. In: Gutachten im Auftrag des Ministeriums für Soziales, Arbeit, Gesundheit und Demographie des Landes Rheinland-Pfalz (MSAGD) Bonn; 2016. Hesse M, Ates G, Woitha K. Hospiz- und Palliativversorgung in Rheinland-Pfalz. In: Gutachten im Auftrag des Ministeriums für Soziales, Arbeit, Gesundheit und Demographie des Landes Rheinland-Pfalz (MSAGD) Bonn; 2016.
39.
go back to reference Phibbs CS, Luft HS. Correlation of travel time on roads versus straight line distance. Med Care Res Rev. 1995;52(4):532–42.CrossRefPubMed Phibbs CS, Luft HS. Correlation of travel time on roads versus straight line distance. Med Care Res Rev. 1995;52(4):532–42.CrossRefPubMed
Metadata
Title
Accessibility to specialist palliative care services in Germany: a geographical network analysis
Authors
Daniela Gesell
Farina Hodiamont
Claudia Bausewein
Daniela Koller
Publication date
01-12-2023
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2023
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-023-09751-7

Other articles of this Issue 1/2023

BMC Health Services Research 1/2023 Go to the issue