Skip to main content
Top
Published in: BMC Palliative Care 1/2023

Open Access 01-12-2023 | Research

The responsibility to quench thirst by providing drinks when a relative is dying spouses’ experience in specialist palliative home care

Authors: Maria Friedrichsen, Nana Waldréus, Micha Milovanovic, Anne Söderlund Schaller, Pier Jaarsma, Tiny Jaarsma

Published in: BMC Palliative Care | Issue 1/2023

Login to get access

Abstract

Background

Thirst and dry mouth are common symptoms in terminally ill patients. It is known that family members usually request drips for their dying relative. Few studies have focused on thirst in terminally ill patients and their spouses’ experience of this, leading to a knowledge gap in this area.

Aim

The aim of this study was to explore spouses’ experiences of observing and managing thirst in a dying relative admitted to specialist palliative home care.

Methods

A qualitative interview study with an inductive approach was conducted. Eighteen spouses caring for their husband or wife admitted to specialist palliative home care in different hospitals in Sweden were interviewed. The interviews were transcribed verbatim and analysed with a reflexive thematic analysis.

Results

Three main themes emerged regarding spouses’ experiences of patients’ thirst: Knowledge and views of thirst; Control of fluid intake provides vital information; and Taking charge of their drinking is a life and death responsibility.

Conclusions

Spouses experience a responsibility to serve the dying person with fluids so that they will not get thirsty. It is so obvious and commonplace to them. To be able to fulfil this responsibility, they need to keep track of the patient’s fluid intake and know what quenches thirst. There is a need for research in this area to assist carers and patients in identifying which drinks best quench the patient’s thirst. Interventions are also needed to help provide/make available knowledge on suitable thirst-quenching drinks.
Appendix
Available only for authorised users
Literature
15.
go back to reference Toto K. Regulation of plasma osmolality: thirst and vasopressin. Crit Care Nurs Clin North Am. 1994;6(4):661–74.CrossRefPubMed Toto K. Regulation of plasma osmolality: thirst and vasopressin. Crit Care Nurs Clin North Am. 1994;6(4):661–74.CrossRefPubMed
19.
go back to reference Ellershaw J, Sutcliffe J, Saunders C. Dehydration and the dying patient. J Pain Symptom Manage. 1995;10(3):192–7.CrossRefPubMed Ellershaw J, Sutcliffe J, Saunders C. Dehydration and the dying patient. J Pain Symptom Manage. 1995;10(3):192–7.CrossRefPubMed
20.
go back to reference Burge F. Dehydration symptoms of palliative care cancer patients. J Pain Symptom Manage. 1993;8(7):54–64.CrossRef Burge F. Dehydration symptoms of palliative care cancer patients. J Pain Symptom Manage. 1993;8(7):54–64.CrossRef
21.
go back to reference Morita T, Tei Y, Tsunoda J, et al. Determinants of the sensation of thirst in terminally ill cancer patients. Support Care Cancer. 2001;9(3):177–86.CrossRefPubMed Morita T, Tei Y, Tsunoda J, et al. Determinants of the sensation of thirst in terminally ill cancer patients. Support Care Cancer. 2001;9(3):177–86.CrossRefPubMed
33.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Res Psychol. 2006;3(2):77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Res Psychol. 2006;3(2):77–101.CrossRef
34.
go back to reference Levinas E. Totality and infinity: an essay on exteriority. Pittsburg: Duquesne University Press; 1969. Levinas E. Totality and infinity: an essay on exteriority. Pittsburg: Duquesne University Press; 1969.
36.
go back to reference Clancy A, Svensson T. Faced’ with responsibility: levinasian ethics and the challenges of responsibility in Norwegian public health nursing. Nurs Philos. 2007;8(3):158–66.CrossRefPubMed Clancy A, Svensson T. Faced’ with responsibility: levinasian ethics and the challenges of responsibility in Norwegian public health nursing. Nurs Philos. 2007;8(3):158–66.CrossRefPubMed
Metadata
Title
The responsibility to quench thirst by providing drinks when a relative is dying spouses’ experience in specialist palliative home care
Authors
Maria Friedrichsen
Nana Waldréus
Micha Milovanovic
Anne Söderlund Schaller
Pier Jaarsma
Tiny Jaarsma
Publication date
01-12-2023
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2023
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-023-01306-1

Other articles of this Issue 1/2023

BMC Palliative Care 1/2023 Go to the issue