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BMC Primary Care
Published in: BMC Primary Care 1/2016

Open Access 01-12-2016 | Research article

A longitudinal study on the information needs and preferences of patients after an acute coronary syndrome

Authors: Andrea Greco, Erika Rosa Cappelletti, Dario Monzani, Luca Pancani, Marco D’Addario, Maria Elena Magrin, Massimo Miglioretti, Marcello Sarini, Marta Scrignaro, Luca Vecchio, Francesco Fattirolli, Patrizia Steca

Published in: BMC Primary Care | Issue 1/2016

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Abstract

Background

Research has shown that the provision of pertinent health information to patients with cardiovascular disease is associated with better adherence to medical prescriptions, behavioral changes, and enhanced perception of control over the disease. Yet there is no clear knowledge on how to improve information pertinence. Identifying and meeting the information needs of patients and their preferences for sources of information is pivotal to developing patient-led services. This prospective, observational study was aimed at exploring the information needs and perceived relevance of different information sources for patients during the twenty-four months following an acute coronary syndrome.

Methods

Two hundred and seventeen newly diagnosed patients with acute coronary syndrome were enrolled in the study. The patients were primarily men (83.41 %) with a mean age of 57.28 years (range 35–75; SD = 7.98). Patients’ needs for information and the perceived relevance of information sources were evaluated between 2 and 8 weeks after hospitalization (baseline) and during three follow-ups at 6, 12 and 24 months after baseline. Repeated measures ANOVA, Bonferroni post hoc tests and Cochran’s Q Test were performed to test differences in variables of interest over time.

Results

Results showed a reduction in information needs, but this decrease was significant only for topics related to daily activities, behavioral habits, risk and complication. At baseline, the primary sources of information were specialists and general practitioners, followed by family members and information leaflets given by physicians. Relevance of other sources changed differently over time.

Conclusion

The present longitudinal study is an original contribution to the investigation of changes in information needs and preferences for sources of information among patients who are diagnosed with acute coronary syndrome. One of the main results of this study is that information on self-disease management is perceived as a minor theme for patients even two years after the event. Knowledge on how patients’ information needs and perceived relevance of information sources change over time could enhance the quality of chronic disease management, leading health-care systems to move toward more patient-tailored care.
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Metadata
Title
A longitudinal study on the information needs and preferences of patients after an acute coronary syndrome
Authors
Andrea Greco
Erika Rosa Cappelletti
Dario Monzani
Luca Pancani
Marco D’Addario
Maria Elena Magrin
Massimo Miglioretti
Marcello Sarini
Marta Scrignaro
Luca Vecchio
Francesco Fattirolli
Patrizia Steca
Publication date
01-12-2016
Publisher
BioMed Central
Published in
BMC Primary Care / Issue 1/2016
Electronic ISSN: 2731-4553
DOI
https://doi.org/10.1186/s12875-016-0534-8

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