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Open Access 01-12-2014 | Oral presentation

Can people living with a rare disease be independent? Inspiring personal stories

Author: Gabor Pogany

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

The Hungarian Williams Syndrome Association successfully organised the „Wing-Test” project supported by the Norwegian Fund and assisted by FRAMBU, the Resource Centre for Rare Disorders of Norway. In this presentation we first would like to present our innovative good practices from the perspective of the Participants and their families and summarize the results and effects on the life quality of these people and society. …

Title: Can people living with a rare disease be independent? Inspiring personal stories
Author: Gabor Pogany
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O34

Keynote webinar | Spotlight on medication adherence

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Can people living with a rare disease be independent? Inspiring personal stories

Excerpt

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Excerpt

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