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Open Access 01-10-2010 | Oral presentation

The Swedish rare disease information database and the Swedish information centre for rare diseases

Authors: Christina Greek-Winald, Birgitta Gustafsson, Lisbeth Högvik

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2010

Excerpt

The Swedish National Board of Health and Welfare database of rare diseases contains detailed documents describing over 250 rare diseases, and new texts are constantly being produced. There are currently more than 500,000 Swedish and international visitors every year, and the figure is constantly rising. People with rare diseases and their families, parent and patient organisations, professionals, researchers and public authorities are all regular users. The database is freely and easily accessible to all at http://www.socialstyrelsen.se/ovanligadiagnoser. …

Title: The Swedish rare disease information database and the Swedish information centre for rare diseases
Authors: Christina Greek-Winald
Birgitta Gustafsson
Lisbeth Högvik
Publication date: 01-10-2010
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2010
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-5-S1-O27

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