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Published in: Scoliosis and Spinal Disorders 1/2006

Open Access 01-12-2006 | Research

Social acceptability of treatments for adolescent idiopathic scoliosis: a cross-sectional study

Authors: Stefano Negrini, Roberta Carabalona

Published in: Scoliosis and Spinal Disorders | Issue 1/2006

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Abstract

Background

There are no data on social acceptability of scoliosis. Aim. To elicit evidence-based opinions on therapeutic strategies for adolescent idiopathic scoliosis in a sample of families with not affected children, so to understand the social perception of this issue.

Methods

Design. Cross-sectional study. Setting. Secondary schools in 4 northern Italian regions. Participants. Parents of children in the age group at risk of and not affected by scoliosis (Pre-test group = 100, Study group = 3,162). Interventions. Questionnaire: five specific and evidence-based questions regarding scoliosis treatment options and a socio-demographic section. Methodology. "Role-playing" in which it was required to normal people to answer what they would have chosen if they had been in the situation proposed. Main outcome measures. Perception of acceptability of treatments for adolescent idiopathic scoliosis in the general population (social acceptability)

Results

The families support the use of screening (94.8%) at school, immediate bracing (76.4%) for scoliosis with a 60% risk of progression, but also therapeutic exercises (86.9%) in cases with a 25% risk of progression.

Conclusion

There is a growing tendency to consider not only the efficacy, effectiveness and efficiency of treatments, but also their acceptability. This patient-centred aspect is especially more important in areas (like adolescent idiopathic scoliosis) in which there is some evidence on the efficacy of treatments, but not strong and definitive (RCTs). Adolescent idiopathic scoliosis treatments should thus be carefully considered also in the light of their social acceptability.
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Literature
1.
go back to reference Anynsley-Gent A, Barker M, Burr S, Macfarlane A, Morgan J, Sibert J: Who is speaking for children and adolescents and for their health at the policy level. bmj. 2000, 321: 229-232. 10.1136/bmj.321.7255.229.CrossRef Anynsley-Gent A, Barker M, Burr S, Macfarlane A, Morgan J, Sibert J: Who is speaking for children and adolescents and for their health at the policy level. bmj. 2000, 321: 229-232. 10.1136/bmj.321.7255.229.CrossRef
2.
3.
go back to reference Weinstein SL, Dolan LA, Spratt KF, Peterson KK, Spoonamore MJ, Ponseti IV: Health and function of patients with untreated idiopathic scoliosis: a 50-year natural history study. Jama. 2003, 289: 559-567. 10.1001/jama.289.5.559.CrossRefPubMed Weinstein SL, Dolan LA, Spratt KF, Peterson KK, Spoonamore MJ, Ponseti IV: Health and function of patients with untreated idiopathic scoliosis: a 50-year natural history study. Jama. 2003, 289: 559-567. 10.1001/jama.289.5.559.CrossRefPubMed
4.
go back to reference Dickson RA: Spinal deformity--adolescent idiopathic scoliosis. Nonoperative treatment. Spine. 1999, 24: 2601-2606. 10.1097/00007632-199912150-00007.CrossRefPubMed Dickson RA: Spinal deformity--adolescent idiopathic scoliosis. Nonoperative treatment. Spine. 1999, 24: 2601-2606. 10.1097/00007632-199912150-00007.CrossRefPubMed
6.
go back to reference Bridwell KH: Surgical treatment of idiopathic adolescent scoliosis. Spine. 1999, 24: 2607-2616. 10.1097/00007632-199912150-00008.CrossRefPubMed Bridwell KH: Surgical treatment of idiopathic adolescent scoliosis. Spine. 1999, 24: 2607-2616. 10.1097/00007632-199912150-00008.CrossRefPubMed
7.
go back to reference Danielsson AJ, Nachemson AL: Back pain and function 23 years after fusion for adolescent idiopathic scoliosis: a case-control study-part II. Spine. 2003, 28: E373-83. 10.1097/01.BRS.0000084267.41183.75.CrossRefPubMed Danielsson AJ, Nachemson AL: Back pain and function 23 years after fusion for adolescent idiopathic scoliosis: a case-control study-part II. Spine. 2003, 28: E373-83. 10.1097/01.BRS.0000084267.41183.75.CrossRefPubMed
8.
go back to reference Danielsson AJ, Nachemson AL: Back pain and function 22 years after brace treatment for adolescent idiopathic scoliosis: a case-control study-part I. Spine. 2003, 28: 2078-85; discussion 2086. 10.1097/01.BRS.0000084268.77805.6F.CrossRefPubMed Danielsson AJ, Nachemson AL: Back pain and function 22 years after brace treatment for adolescent idiopathic scoliosis: a case-control study-part I. Spine. 2003, 28: 2078-85; discussion 2086. 10.1097/01.BRS.0000084268.77805.6F.CrossRefPubMed
9.
go back to reference Danielsson AJ, Wiklund I, Pehrsson K, Nachemson AL: Health-related quality of life in patients with adolescent idiopathic scoliosis: a matched follow-up at least 20 years after treatment with brace or surgery. Eur Spine J. 2001, 10: 278-288. 10.1007/s005860100309.CrossRefPubMedPubMedCentral Danielsson AJ, Wiklund I, Pehrsson K, Nachemson AL: Health-related quality of life in patients with adolescent idiopathic scoliosis: a matched follow-up at least 20 years after treatment with brace or surgery. Eur Spine J. 2001, 10: 278-288. 10.1007/s005860100309.CrossRefPubMedPubMedCentral
10.
go back to reference Danielsson AJ, Nachemson AL: Childbearing, curve progression, and sexual function in women 22 years after treatment for adolescent idiopathic scoliosis: a case-control study. Spine. 2001, 26: 1449-1456. 10.1097/00007632-200107010-00015.CrossRefPubMed Danielsson AJ, Nachemson AL: Childbearing, curve progression, and sexual function in women 22 years after treatment for adolescent idiopathic scoliosis: a case-control study. Spine. 2001, 26: 1449-1456. 10.1097/00007632-200107010-00015.CrossRefPubMed
11.
go back to reference Negrini S, Aulisa L, Ferraro C, Fraschini P, Masiero S, Simonazzi P, Tedeschi C, Venturin A: Italian guidelines on rehabilitation treatment of adolescents with scoliosis or other spinal deformities. Eura Medicophys. 2005, 41: 183-201.PubMed Negrini S, Aulisa L, Ferraro C, Fraschini P, Masiero S, Simonazzi P, Tedeschi C, Venturin A: Italian guidelines on rehabilitation treatment of adolescents with scoliosis or other spinal deformities. Eura Medicophys. 2005, 41: 183-201.PubMed
12.
go back to reference Nachemson AL, Peterson LE: Effectiveness of treatment with a brace in girls who have adolescent idiopathic scoliosis. A prospective, controlled study based on data from the Brace Study of the Scoliosis Research Society. J Bone Joint Surg Am. 1995, 77: 815-822.PubMed Nachemson AL, Peterson LE: Effectiveness of treatment with a brace in girls who have adolescent idiopathic scoliosis. A prospective, controlled study based on data from the Brace Study of the Scoliosis Research Society. J Bone Joint Surg Am. 1995, 77: 815-822.PubMed
13.
go back to reference Weiss HR, Negrini S, Hawes MC, Rigo M, Kotwicki T, Grivas TB, Maruyama T, Members of the SOSORT: Physical exercises in the treatment of idiopathic scoliosis at risk of brace treatment - SOSORT consensus paper 2005. Scoliosis. 2006, 1: 6-10.1186/1748-7161-1-6. [http://www.isico.it]CrossRefPubMedPubMedCentral Weiss HR, Negrini S, Hawes MC, Rigo M, Kotwicki T, Grivas TB, Maruyama T, Members of the SOSORT: Physical exercises in the treatment of idiopathic scoliosis at risk of brace treatment - SOSORT consensus paper 2005. Scoliosis. 2006, 1: 6-10.1186/1748-7161-1-6. [http://​www.​isico.​it]CrossRefPubMedPubMedCentral
14.
go back to reference Climent JM, Sanchez J: Impact of the type of brace on the quality of life of Adolescents with Spine Deformities. Spine. 1999, 24: 1903-1908. 10.1097/00007632-199909150-00007.CrossRefPubMed Climent JM, Sanchez J: Impact of the type of brace on the quality of life of Adolescents with Spine Deformities. Spine. 1999, 24: 1903-1908. 10.1097/00007632-199909150-00007.CrossRefPubMed
15.
go back to reference Dickson RA, Weinstein SL: Bracing (and screening)--yes or no?. J Bone Joint Surg Br. 1999, 81: 193-198. 10.1302/0301-620X.81B2.9630.CrossRefPubMed Dickson RA, Weinstein SL: Bracing (and screening)--yes or no?. J Bone Joint Surg Br. 1999, 81: 193-198. 10.1302/0301-620X.81B2.9630.CrossRefPubMed
16.
go back to reference Fallstrom K, Cochran T, Nachemson A: Long-term effects on personality development in patients with adolescent idiopathic scoliosis. Influence of type of treatment. Spine. 1986, 11: 756-758.CrossRefPubMed Fallstrom K, Cochran T, Nachemson A: Long-term effects on personality development in patients with adolescent idiopathic scoliosis. Influence of type of treatment. Spine. 1986, 11: 756-758.CrossRefPubMed
17.
go back to reference Bunch WH, Chapman RG: Patient preferences in surgery for scoliosis. J Bone Joint Surg Am. 1985, 67: 794-799.PubMed Bunch WH, Chapman RG: Patient preferences in surgery for scoliosis. J Bone Joint Surg Am. 1985, 67: 794-799.PubMed
18.
go back to reference Hawes MC: The use of exercises in the treatment of scoliosis: an evidence-based critical review of the literature. Pediatr Rehabil. 2003, 6: 171-182. 10.1080/0963828032000159202.CrossRefPubMed Hawes MC: The use of exercises in the treatment of scoliosis: an evidence-based critical review of the literature. Pediatr Rehabil. 2003, 6: 171-182. 10.1080/0963828032000159202.CrossRefPubMed
19.
go back to reference Negrini S, Antonini G, Carabalona R, Minozzi S: Physical exercises as a treatment for adolescent idiopathic scoliosis. A systematic review. Pediatr Rehabil. 2003, 6: 227-235. 10.1080/13638490310001636781.CrossRefPubMed Negrini S, Antonini G, Carabalona R, Minozzi S: Physical exercises as a treatment for adolescent idiopathic scoliosis. A systematic review. Pediatr Rehabil. 2003, 6: 227-235. 10.1080/13638490310001636781.CrossRefPubMed
20.
go back to reference Morryssi R: School screening for scoliosis. Spine. 1999, 24: 2584-2591. 10.1097/00007632-199912150-00005.CrossRef Morryssi R: School screening for scoliosis. Spine. 1999, 24: 2584-2591. 10.1097/00007632-199912150-00005.CrossRef
21.
go back to reference Bunnell WP: Selective screening for scoliosis. Clin Orthop Relat Res. 2005, 40-45. 10.1097/01.blo.0000163242.92733.66. Bunnell WP: Selective screening for scoliosis. Clin Orthop Relat Res. 2005, 40-45. 10.1097/01.blo.0000163242.92733.66.
22.
go back to reference Winter RB, Lonstein JE: To brace or not to brace: the true value of school screening. Spine. 1997, 22: 1283-1284. 10.1097/00007632-199706150-00001.CrossRefPubMed Winter RB, Lonstein JE: To brace or not to brace: the true value of school screening. Spine. 1997, 22: 1283-1284. 10.1097/00007632-199706150-00001.CrossRefPubMed
23.
go back to reference Charles C, Gafni A, Whelan T: Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999, 49: 651-661. 10.1016/S0277-9536(99)00145-8.CrossRefPubMed Charles C, Gafni A, Whelan T: Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999, 49: 651-661. 10.1016/S0277-9536(99)00145-8.CrossRefPubMed
24.
go back to reference Gaudagnoli E, Ward P: Patient partecipation in decision-makin. Soc Sci Med. 1998, 3: 329-339. 10.1016/S0277-9536(98)00059-8.CrossRef Gaudagnoli E, Ward P: Patient partecipation in decision-makin. Soc Sci Med. 1998, 3: 329-339. 10.1016/S0277-9536(98)00059-8.CrossRef
25.
go back to reference Ford S, Schofield T, Hope T: What are the ingredients for a successful evidence-based patinet choice consultation?:A qualitative study. Soc Sci Med. 2003, 3: 589-602. 10.1016/S0277-9536(02)00056-4.CrossRef Ford S, Schofield T, Hope T: What are the ingredients for a successful evidence-based patinet choice consultation?:A qualitative study. Soc Sci Med. 2003, 3: 589-602. 10.1016/S0277-9536(02)00056-4.CrossRef
26.
go back to reference Boumans CE, de Mooij K, Koch PA, van't Hof MA, Zitman FG: Is the social accettabiliy of psichyatric patients decreased by orofacial dyskinesia?. Schizophr Bull. 1994, 3: 339-344.CrossRef Boumans CE, de Mooij K, Koch PA, van't Hof MA, Zitman FG: Is the social accettabiliy of psichyatric patients decreased by orofacial dyskinesia?. Schizophr Bull. 1994, 3: 339-344.CrossRef
27.
go back to reference Negrini S, Grivas TB, Kotwicki T, Maruyama T, Rigo M, Weiss HR, the members of the Scientific society On Scoliosis Orthopaedic and Rehabilitation Treatment (SOSORT): Why do we treat adolescent idiopathic scoliosis? What we want to obtain and to avoid for our patients. SOSORT 2005 Consensus paper. Scoliosis. 2006, 1: 4-10.1186/1748-7161-1-4. [http://www.isico.it]CrossRefPubMedPubMedCentral Negrini S, Grivas TB, Kotwicki T, Maruyama T, Rigo M, Weiss HR, the members of the Scientific society On Scoliosis Orthopaedic and Rehabilitation Treatment (SOSORT): Why do we treat adolescent idiopathic scoliosis? What we want to obtain and to avoid for our patients. SOSORT 2005 Consensus paper. Scoliosis. 2006, 1: 4-10.1186/1748-7161-1-4. [http://​www.​isico.​it]CrossRefPubMedPubMedCentral
28.
go back to reference Rigo M, Negrini S, Weiss HR, Grivas TB, Maruyama T, Kotwicki T, the members of SOSORT: SOSORT consensus paper on brace action: TLSO biomechanics of correction (investigating the rationale for force vector selection). Scoliosis. 2006, 1: 11-10.1186/1748-7161-1-11. [http://www.isico.it]CrossRefPubMedPubMedCentral Rigo M, Negrini S, Weiss HR, Grivas TB, Maruyama T, Kotwicki T, the members of SOSORT: SOSORT consensus paper on brace action: TLSO biomechanics of correction (investigating the rationale for force vector selection). Scoliosis. 2006, 1: 11-10.1186/1748-7161-1-11. [http://​www.​isico.​it]CrossRefPubMedPubMedCentral
29.
go back to reference Weiss HR, Negrini S, Rigo M, Kotwicki T, Hawes MC, Grivas TB, Maruyama T, Landauer F: Indications for conservative management of scoliosis (guidelines). Scoliosis. 2006, 1: 5-10.1186/1748-7161-1-5.CrossRefPubMedPubMedCentral Weiss HR, Negrini S, Rigo M, Kotwicki T, Hawes MC, Grivas TB, Maruyama T, Landauer F: Indications for conservative management of scoliosis (guidelines). Scoliosis. 2006, 1: 5-10.1186/1748-7161-1-5.CrossRefPubMedPubMedCentral
30.
go back to reference Moatti JP, Le Gales C, Seror V, Papiernik E, Henrion R: Social acceptability of HIV screening among pregnant women. AIDS Care. 1990, 2: 213-222.CrossRefPubMed Moatti JP, Le Gales C, Seror V, Papiernik E, Henrion R: Social acceptability of HIV screening among pregnant women. AIDS Care. 1990, 2: 213-222.CrossRefPubMed
31.
go back to reference O'Connor AM, Rostom A, Fiset V, Tetroe J, Entwistle V, Llewellyn-Thomas H, Holmes-Rovner M, Barry M, Jones J: Decision aids for patients facing health treatment or screening decisions: systematic review. Bmj. 1999, 319: 731-734.CrossRefPubMedPubMedCentral O'Connor AM, Rostom A, Fiset V, Tetroe J, Entwistle V, Llewellyn-Thomas H, Holmes-Rovner M, Barry M, Jones J: Decision aids for patients facing health treatment or screening decisions: systematic review. Bmj. 1999, 319: 731-734.CrossRefPubMedPubMedCentral
32.
go back to reference Bradford DS, Tay BK, Hu SS: Adult scoliosis: surgical indications, operative management, complications, and outcomes. Spine. 1999, 24: 2617-2629. 10.1097/00007632-199912150-00009.CrossRefPubMed Bradford DS, Tay BK, Hu SS: Adult scoliosis: surgical indications, operative management, complications, and outcomes. Spine. 1999, 24: 2617-2629. 10.1097/00007632-199912150-00009.CrossRefPubMed
Metadata
Title
Social acceptability of treatments for adolescent idiopathic scoliosis: a cross-sectional study
Authors
Stefano Negrini
Roberta Carabalona
Publication date
01-12-2006
Publisher
BioMed Central
Published in
Scoliosis and Spinal Disorders / Issue 1/2006
Electronic ISSN: 2397-1789
DOI
https://doi.org/10.1186/1748-7161-1-14

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