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Published in: Implementation Science 1/2009

Open Access 01-12-2009 | Debate

Dual equipoise shared decision making: definitions for decision and behaviour support interventions

Authors: Glyn Elwyn, Dominick Frosch, Stephen Rollnick

Published in: Implementation Science | Issue 1/2009

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Abstract

Background

There is increasing interest in interventions that can support patients who face difficult decisions and individuals who need to modify their behaviour to achieve better outcomes. Evidence for effectiveness is used to categorise patients care. Effective care is where evidence of benefit outweighs harm: patients should always receive this type of care, where indicated. Preference-sensitive care describes a situation where the evidence for the superiority of one treatment over another is either not available or does not allow differentiation; in this situation, there are two or more valid approaches, and the best choice depends on how individuals value the risks and benefits of treatments.

Discussion

Preference-sensitive decisions are defined by equipoise: situations where options need to be deliberated. Moreover, where both healthcare professionals and patients agree that equipoise exists, situations may be regarded as having 'dual equipoise'. Such conditions are ideal for shared decision making. However, there are many situations in medicine where dual equipoise does not exist, where health professionals hold the view that scientific evidence for benefit strongly outweighs harm. This is often the case where people suffer from chronic conditions, and where behaviour change is recommended to improve outcomes. However, some patients, are either ambivalent or find it difficult to sustain optimal behaviours, i.e., patients will be in varying degrees of equipoise. Therefore, situations where dual equipoise exists (or not) help to clarify the definitions of two classes of support, namely, decision and behaviour change support interventions. Decision support interventions help people think about choices they face; they describe where and why choice exists, in short, conditions of dual equipoise; they provide information about options, including, where reasonable, the option of taking no action. These interventions help people to deliberate, independently or in collaboration with others, about options by considering relevant attributes; they support people to forecast how they might feel about short, intermediate, and long-term outcomes that have relevant consequences, in ways that help the process of constructing preferences and eventual decision making appropriate to their individual situation. Whereas, behavioural support interventions describe, justify, and recommend actions that, over time, lead to predictable outcomes over short, intermediate, and long-term timeframes, and that have relevant and important consequences for those who are considering behaviour change.

Summary

Decision and behaviour support interventions have divergent aims, different relationships to equipoise, and form two classes of interventions.
Literature
1.
go back to reference Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006, 333: 417-421. 10.1136/bmj.38926.629329.AE.CrossRefPubMedPubMedCentral Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006, 333: 417-421. 10.1136/bmj.38926.629329.AE.CrossRefPubMedPubMedCentral
2.
go back to reference Bekker H, Thornton JG, Airey CM, Connelly JB, Hewison J, Robinson MB, Lilleyman J, Macintosh M, Maule AJ, Pearman AD: Informed decision making: an annotated bibliography and systematic review. Health Technology Assessment. 1999, 3 (1): Bekker H, Thornton JG, Airey CM, Connelly JB, Hewison J, Robinson MB, Lilleyman J, Macintosh M, Maule AJ, Pearman AD: Informed decision making: an annotated bibliography and systematic review. Health Technology Assessment. 1999, 3 (1):
3.
go back to reference Frosch DL, Kaplan RM: Shared decision making in clinical medicine: past research and future directions. Am J Prev Med. 1999, 17: 285-294. 10.1016/S0749-3797(99)00097-5.CrossRefPubMed Frosch DL, Kaplan RM: Shared decision making in clinical medicine: past research and future directions. Am J Prev Med. 1999, 17: 285-294. 10.1016/S0749-3797(99)00097-5.CrossRefPubMed
4.
go back to reference Elwyn G, Edwards A, Kinnersley P, Grol R: Shared decision making and the concept of equipoise: defining the competences of involving patients in healthcare choices. BJGP. 2000, 50: 892-899.PubMedPubMedCentral Elwyn G, Edwards A, Kinnersley P, Grol R: Shared decision making and the concept of equipoise: defining the competences of involving patients in healthcare choices. BJGP. 2000, 50: 892-899.PubMedPubMedCentral
5.
go back to reference Barry CA, Bradley CP, Britten N, Stevenson FA, Barber N: Patients' unvoiced agendas in general practice consultations: qualitative study. BMJ. 2000, 320: 1246-1250. 10.1136/bmj.320.7244.1246.CrossRefPubMedPubMedCentral Barry CA, Bradley CP, Britten N, Stevenson FA, Barber N: Patients' unvoiced agendas in general practice consultations: qualitative study. BMJ. 2000, 320: 1246-1250. 10.1136/bmj.320.7244.1246.CrossRefPubMedPubMedCentral
6.
go back to reference Campbell NC, Murray E, Darbyshire J, Emery J, Farmer A, Griffiths F, Guthrie B, Lester H, Wilson P, Kinmonth AL: Designing and evaluating complex interventions to improve health care. BMJ. 2007, 455-459. 10.1136/bmj.39108.379965.BE. Campbell NC, Murray E, Darbyshire J, Emery J, Farmer A, Griffiths F, Guthrie B, Lester H, Wilson P, Kinmonth AL: Designing and evaluating complex interventions to improve health care. BMJ. 2007, 455-459. 10.1136/bmj.39108.379965.BE.
7.
go back to reference Barry MJ, Mulley AG, Fowler FJ, Wennberg JW: Watchful waiting vs immediate transurethral resection for symptomatic prostatism. The importance of patients' preferences. JAMA. 1988, 259: 3010-3017. 10.1001/jama.259.20.3010.CrossRefPubMed Barry MJ, Mulley AG, Fowler FJ, Wennberg JW: Watchful waiting vs immediate transurethral resection for symptomatic prostatism. The importance of patients' preferences. JAMA. 1988, 259: 3010-3017. 10.1001/jama.259.20.3010.CrossRefPubMed
8.
go back to reference Wennberg JE: Unwarranted variations in healthcare delivery: implications for academic medical centres. BMJ. 2002, 325: 961-964. 10.1136/bmj.325.7370.961.CrossRefPubMedPubMedCentral Wennberg JE: Unwarranted variations in healthcare delivery: implications for academic medical centres. BMJ. 2002, 325: 961-964. 10.1136/bmj.325.7370.961.CrossRefPubMedPubMedCentral
9.
go back to reference Wennberg JE, Fisher ES, Skinner JS: Geography and the debate over Medicare reform. Health Affairs. 2002, W96-114. Suppl Web Exclusives Wennberg JE, Fisher ES, Skinner JS: Geography and the debate over Medicare reform. Health Affairs. 2002, W96-114. Suppl Web Exclusives
10.
go back to reference Guyatt GH, Oxman AD, Vist G, Kunz R, Falck-Ytter Y, Alonso-Coello P, Schünemann HJ, for the GRADE Working Group: Rating quality of evidence and strength of recommendations GRADE: an emerging consensus on rating quality of evidence and strength of recommendations. BMJ. 2008, 336: 924-926. 10.1136/bmj.39489.470347.AD.CrossRefPubMedPubMedCentral Guyatt GH, Oxman AD, Vist G, Kunz R, Falck-Ytter Y, Alonso-Coello P, Schünemann HJ, for the GRADE Working Group: Rating quality of evidence and strength of recommendations GRADE: an emerging consensus on rating quality of evidence and strength of recommendations. BMJ. 2008, 336: 924-926. 10.1136/bmj.39489.470347.AD.CrossRefPubMedPubMedCentral
12.
go back to reference O'Connor AM, Boyd NF, Tritchler DL, Kriukov Y, Sutherland H, Till JE: Eliciting preferences for alternative cancer drug treatments. The influence of framing, medium, and rater variables. Medical Decision Making. 1985, 5: 453-463. 10.1177/0272989X8500500408.CrossRefPubMed O'Connor AM, Boyd NF, Tritchler DL, Kriukov Y, Sutherland H, Till JE: Eliciting preferences for alternative cancer drug treatments. The influence of framing, medium, and rater variables. Medical Decision Making. 1985, 5: 453-463. 10.1177/0272989X8500500408.CrossRefPubMed
13.
go back to reference O'Connor AM, Tugwell P, Wells GA, Elmslie T, Jolly E, Hollingworth G, McPherson R, Bunn H, Graham I, Drake E: A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation. Patient Education and Counseling. 1998, 33: 267-279. 10.1016/S0738-3991(98)00026-3.CrossRefPubMed O'Connor AM, Tugwell P, Wells GA, Elmslie T, Jolly E, Hollingworth G, McPherson R, Bunn H, Graham I, Drake E: A decision aid for women considering hormone therapy after menopause: decision support framework and evaluation. Patient Education and Counseling. 1998, 33: 267-279. 10.1016/S0738-3991(98)00026-3.CrossRefPubMed
14.
go back to reference O'Connor AM, Stacey D, Entwistle V, Llewellyn-Thomas H, Rovner D, Holmes-Rovner M, Tait V, Tetroe J, Fiset V, Barry M, Jones J: Decision aids for people facing health treatment or screening decisions [Cochrane Review]. Update Software. 2003, Oxford O'Connor AM, Stacey D, Entwistle V, Llewellyn-Thomas H, Rovner D, Holmes-Rovner M, Tait V, Tetroe J, Fiset V, Barry M, Jones J: Decision aids for people facing health treatment or screening decisions [Cochrane Review]. Update Software. 2003, Oxford
15.
go back to reference Elwyn G, O'Connor AM, Bennett C, Newcombe RG, Politi M, Durand MA, Drake E, Joseph-Williams N, Khangura S, Saarimaki A, Sivell S, Stiel M, Bernstein SJ, Col N, Coulter A, Eden K, Härter M, Rovner MH, Moumjid N, Stacey D, Thomson R, Whelan T, Weijden van der T, Edwards A: Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS One. 2009, 4: e4705-10.1371/journal.pone.0004705.CrossRefPubMedPubMedCentral Elwyn G, O'Connor AM, Bennett C, Newcombe RG, Politi M, Durand MA, Drake E, Joseph-Williams N, Khangura S, Saarimaki A, Sivell S, Stiel M, Bernstein SJ, Col N, Coulter A, Eden K, Härter M, Rovner MH, Moumjid N, Stacey D, Thomson R, Whelan T, Weijden van der T, Edwards A: Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS One. 2009, 4: e4705-10.1371/journal.pone.0004705.CrossRefPubMedPubMedCentral
17.
go back to reference Krahn M, Naglie G: The next step in guideline development: incorporating patient preferences. JAMA. 2008, 300: 436-438. 10.1001/jama.300.4.436.CrossRefPubMed Krahn M, Naglie G: The next step in guideline development: incorporating patient preferences. JAMA. 2008, 300: 436-438. 10.1001/jama.300.4.436.CrossRefPubMed
18.
go back to reference O'Connor AM, Légaré F, Stacey D: Risk communication in practice: the contribution of decision aids. BMJ. 2003, 327: 736-740. 10.1136/bmj.327.7417.736.CrossRefPubMedPubMedCentral O'Connor AM, Légaré F, Stacey D: Risk communication in practice: the contribution of decision aids. BMJ. 2003, 327: 736-740. 10.1136/bmj.327.7417.736.CrossRefPubMedPubMedCentral
19.
go back to reference O'Connor AM, Llewellyn-Thomas HA, Flood AB: Modifying unwarranted variations in health care: shared decision making using patient decision aids. Health Aff (Millwood). 2004, 63-72. Suppl Web Exclusive:VAR O'Connor AM, Llewellyn-Thomas HA, Flood AB: Modifying unwarranted variations in health care: shared decision making using patient decision aids. Health Aff (Millwood). 2004, 63-72. Suppl Web Exclusive:VAR
20.
go back to reference O'Connor AM, Wennberg JE, Legare F, Llewellyn-Thomas HA, Moulton BW, Sepucha KR, Sodano AG, King JS: Towards the 'tipping point': decision aids and informed patient choice. Health Affairs. 2007, 26: 716-725. 10.1377/hlthaff.26.3.716.CrossRefPubMed O'Connor AM, Wennberg JE, Legare F, Llewellyn-Thomas HA, Moulton BW, Sepucha KR, Sodano AG, King JS: Towards the 'tipping point': decision aids and informed patient choice. Health Affairs. 2007, 26: 716-725. 10.1377/hlthaff.26.3.716.CrossRefPubMed
21.
go back to reference Wennberg JE, O'Connor AM, Collins ED, Weinstein JN: Extending the P4P agenda, part 1: how Medicare can improve patient decision making and reduce unnecessary care. Health Affairs. 2007, 26: 1564-1574. 10.1377/hlthaff.26.6.1564.CrossRefPubMedPubMedCentral Wennberg JE, O'Connor AM, Collins ED, Weinstein JN: Extending the P4P agenda, part 1: how Medicare can improve patient decision making and reduce unnecessary care. Health Affairs. 2007, 26: 1564-1574. 10.1377/hlthaff.26.6.1564.CrossRefPubMedPubMedCentral
22.
go back to reference Winterbottom A, Bekker HL, Conner M, Mooney A: Does narrative information bias individual's decision making? A systematic review. Soc Sci Med. 2008, 67: 2079-2088. 10.1016/j.socscimed.2008.09.037.CrossRefPubMed Winterbottom A, Bekker HL, Conner M, Mooney A: Does narrative information bias individual's decision making? A systematic review. Soc Sci Med. 2008, 67: 2079-2088. 10.1016/j.socscimed.2008.09.037.CrossRefPubMed
23.
go back to reference Gigerenzer G, Todd P: Simple heuristics that make us smart. 1999, New York: Oxford University Press Gigerenzer G, Todd P: Simple heuristics that make us smart. 1999, New York: Oxford University Press
24.
go back to reference Dijksterhuis A, Bos MW, Nordgren LF, van Baaren RB: On making the right choice: the deliberation-without-attention effect. Science. 2006, 311: 1005-1007. 10.1126/science.1121629.CrossRefPubMed Dijksterhuis A, Bos MW, Nordgren LF, van Baaren RB: On making the right choice: the deliberation-without-attention effect. Science. 2006, 311: 1005-1007. 10.1126/science.1121629.CrossRefPubMed
25.
go back to reference Waljee JF, Rogers MAM, Alderman AK: Decision aids and breast cancer: do they influence choice for surgery and knowledge of treatment options?. Journal of Clinical Oncology. 2007, 25: 1067-1073. 10.1200/JCO.2006.08.5472.CrossRefPubMed Waljee JF, Rogers MAM, Alderman AK: Decision aids and breast cancer: do they influence choice for surgery and knowledge of treatment options?. Journal of Clinical Oncology. 2007, 25: 1067-1073. 10.1200/JCO.2006.08.5472.CrossRefPubMed
26.
go back to reference Fisher B, Anderson S, Bryant J, Margolese RG, Deutsch M, Fisher ER, Jeong JH, Wolmark N: Twenty-year follow-up of a randomized trial comparing total mastectomy, lumpectomy, and lumpectomy plus irradiation for the treatment of invasive breast cancer. N Engl J Med. 2002, 347: 1233-1241. 10.1056/NEJMoa022152.CrossRefPubMed Fisher B, Anderson S, Bryant J, Margolese RG, Deutsch M, Fisher ER, Jeong JH, Wolmark N: Twenty-year follow-up of a randomized trial comparing total mastectomy, lumpectomy, and lumpectomy plus irradiation for the treatment of invasive breast cancer. N Engl J Med. 2002, 347: 1233-1241. 10.1056/NEJMoa022152.CrossRefPubMed
27.
go back to reference Veronesi U, Cascinelli N, Mariani L: Twenty-year follow-up of a randomized study comparing breast-conserving surgery with radical mastectomy for early breast cancer. N Engl J Med. 2002, 347: 1227-1232. 10.1056/NEJMoa020989.CrossRefPubMed Veronesi U, Cascinelli N, Mariani L: Twenty-year follow-up of a randomized study comparing breast-conserving surgery with radical mastectomy for early breast cancer. N Engl J Med. 2002, 347: 1227-1232. 10.1056/NEJMoa020989.CrossRefPubMed
28.
go back to reference Evans R, Edwards A, Elwyn G, Watson E, Austoker J, Grol R: 'It's a maybe test': men's experiences of PSA testing in primary care. BJGP. 2005, 303-10: 303-310. Evans R, Edwards A, Elwyn G, Watson E, Austoker J, Grol R: 'It's a maybe test': men's experiences of PSA testing in primary care. BJGP. 2005, 303-10: 303-310.
29.
go back to reference Frosch DL, Bhatnagar V, Tally S, Hamori CJ, Kaplan RM: Internet patient decision support: a randomized controlled trial comparing alternative approaches for men considering prostate cancer screening. Arch Intern Med. 2008, 168: 363-369. 10.1001/archinternmed.2007.111.CrossRefPubMed Frosch DL, Bhatnagar V, Tally S, Hamori CJ, Kaplan RM: Internet patient decision support: a randomized controlled trial comparing alternative approaches for men considering prostate cancer screening. Arch Intern Med. 2008, 168: 363-369. 10.1001/archinternmed.2007.111.CrossRefPubMed
30.
go back to reference Evans R, Edwards A, Brett J, Bradburn M, Watson E, Austoker J, Elwyn G: Reduction in uptake of PSA tests following decision aids for patients: systematic review of current aids and their evaluations. Patient Education and Counseling. 2004, 58: 13-26. 10.1016/j.pec.2004.06.009.CrossRef Evans R, Edwards A, Brett J, Bradburn M, Watson E, Austoker J, Elwyn G: Reduction in uptake of PSA tests following decision aids for patients: systematic review of current aids and their evaluations. Patient Education and Counseling. 2004, 58: 13-26. 10.1016/j.pec.2004.06.009.CrossRef
31.
go back to reference Elwyn G, Frosch D, Volandes A, Edwards A, Montori V: Investing in deliberation: defining and developing decision support interventions for people facing difficult health decisions. John M Eisenberg Center for Clinical Decisions and Communication: White Paper Series. Gaithersberg, Maryland, USA. 2009 Elwyn G, Frosch D, Volandes A, Edwards A, Montori V: Investing in deliberation: defining and developing decision support interventions for people facing difficult health decisions. John M Eisenberg Center for Clinical Decisions and Communication: White Paper Series. Gaithersberg, Maryland, USA. 2009
32.
go back to reference O'Connor AM, Bennett C, Stacey D, Barry MJ, Col NF, Eden KB, Entwistle V, Fiset V, Holmes-Rovner M, Khangura S, Llewellyn-Thomas H, Rovner DR: Do patient decision aids meet effectiveness criteria of the international patient decision aid standards collaboration? A systematic review and meta-analysis. Med Decis Making. 2007, 27: 554-574. 10.1177/0272989X07307319.CrossRefPubMed O'Connor AM, Bennett C, Stacey D, Barry MJ, Col NF, Eden KB, Entwistle V, Fiset V, Holmes-Rovner M, Khangura S, Llewellyn-Thomas H, Rovner DR: Do patient decision aids meet effectiveness criteria of the international patient decision aid standards collaboration? A systematic review and meta-analysis. Med Decis Making. 2007, 27: 554-574. 10.1177/0272989X07307319.CrossRefPubMed
33.
go back to reference Schneider CE: The practice of autonomy: patients, doctors, and medical decisions. 1998, New York: Oxford University Press Schneider CE: The practice of autonomy: patients, doctors, and medical decisions. 1998, New York: Oxford University Press
34.
go back to reference Rollnick R, Butler CC, McCambridge J, Kinnersley P, Elwyn G, Resnicow K: Consultations about changing behaviour. BMJ. 2005, 331: 961-963. 10.1136/bmj.331.7522.961.CrossRefPubMedPubMedCentral Rollnick R, Butler CC, McCambridge J, Kinnersley P, Elwyn G, Resnicow K: Consultations about changing behaviour. BMJ. 2005, 331: 961-963. 10.1136/bmj.331.7522.961.CrossRefPubMedPubMedCentral
35.
go back to reference Bodenheimer T, Lorig K, Holman H, Grumbach K: Patient self-management of chronic disease in primary care. JAMA. 2002, 288: 2469-2475. 10.1001/jama.288.19.2469.CrossRefPubMed Bodenheimer T, Lorig K, Holman H, Grumbach K: Patient self-management of chronic disease in primary care. JAMA. 2002, 288: 2469-2475. 10.1001/jama.288.19.2469.CrossRefPubMed
37.
go back to reference Lorig K, Ritter PL, Villa F, Piette JD: Spanish diabetes self-management with and without automated telephone reinforcement: two randomized trials. Diabetes Care. 2008, 31: 408-414. 10.2337/dc07-1313.CrossRefPubMed Lorig K, Ritter PL, Villa F, Piette JD: Spanish diabetes self-management with and without automated telephone reinforcement: two randomized trials. Diabetes Care. 2008, 31: 408-414. 10.2337/dc07-1313.CrossRefPubMed
38.
go back to reference Lorig KR, Ritter PL, Laurent DD, Plant K: The internet-based arthritis self-management program: a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Rheum. 2008, 59: 1009-1017. 10.1002/art.23817.CrossRefPubMed Lorig KR, Ritter PL, Laurent DD, Plant K: The internet-based arthritis self-management program: a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Rheum. 2008, 59: 1009-1017. 10.1002/art.23817.CrossRefPubMed
39.
go back to reference Durand MA, Stiel M, Boivin J, Elwyn G: Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Educ Couns. 2008, 71: 125-35. 10.1016/j.pec.2007.12.004.CrossRefPubMed Durand MA, Stiel M, Boivin J, Elwyn G: Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Educ Couns. 2008, 71: 125-35. 10.1016/j.pec.2007.12.004.CrossRefPubMed
40.
go back to reference Bekker H: Using decision making theory to inform clinical practice. Shared Decision Making Evidence Based Patient Choice in Healthcare. Edited by: Edwards A, Elwyn G. 2009, Oxford: Oxford University Press, 45-51. Bekker H: Using decision making theory to inform clinical practice. Shared Decision Making Evidence Based Patient Choice in Healthcare. Edited by: Edwards A, Elwyn G. 2009, Oxford: Oxford University Press, 45-51.
Metadata
Title
Dual equipoise shared decision making: definitions for decision and behaviour support interventions
Authors
Glyn Elwyn
Dominick Frosch
Stephen Rollnick
Publication date
01-12-2009
Publisher
BioMed Central
Published in
Implementation Science / Issue 1/2009
Electronic ISSN: 1748-5908
DOI
https://doi.org/10.1186/1748-5908-4-75

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