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Published in: Globalization and Health 1/2009

Open Access 01-12-2009 | Research

Local suffering and the global discourse of mental health and human rights: An ethnographic study of responses to mental illness in rural Ghana

Authors: Ursula M Read, Edward Adiibokah, Solomon Nyame

Published in: Globalization and Health | Issue 1/2009

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Abstract

Background

The Global Movement for Mental Health has brought renewed attention to the neglect of people with mental illness within health policy worldwide. The maltreatment of the mentally ill in many low-income countries is widely reported within psychiatric hospitals, informal healing centres, and family homes. International agencies have called for the development of legislation and policy to address these abuses. However such initiatives exemplify a top-down approach to promoting human rights which historically has had limited impact at the level of those living with mental illness and their families.

Methods

This research forms part of a longitudinal anthropological study of people with severe mental illness in rural Ghana. Visits were made to over 40 households with a family member with mental illness, as well as churches, shrines, hospitals and clinics. Ethnographic methods included observation, conversation, semi-structured interviews and focus group discussions with people with mental illness, carers, healers, health workers and community members.

Results

Chaining and beating of the mentally ill was found to be commonplace in homes and treatment centres in the communities studied, as well as with-holding of food ('fasting'). However responses to mental illness were embedded within spiritual and moral perspectives and such treatment provoked little sanction at the local level. Families struggled to provide care for severely mentally ill relatives with very little support from formal health services. Psychiatric services were difficult to access, particularly in rural communities, and also seen to have limitations in their effectiveness. Traditional and faith healers remained highly popular despite the routine maltreatment of the mentally ill in their facilities.

Conclusion

Efforts to promote the human rights of those with mental illness must engage with the experiences of mental illness within communities affected in order to grasp how these may underpin the use of practices such as mechanical restraint. Interventions which operate at the local level with those living with mental illness within rural communities, as well as family members and healers, may have greater potential to effect change in the treatment of the mentally ill than legislation or investment in services alone.
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Literature
1.
go back to reference WHO: Global Burden of Disease 2004 Update. 2008, Geneva: World Health Organization WHO: Global Burden of Disease 2004 Update. 2008, Geneva: World Health Organization
2.
go back to reference Gureje O, Lasebikan V: Use of mental health services in a developing country. Soc Psychiatry Psychiatr Epidemiol. 2006, 41: 44-49.CrossRefPubMed Gureje O, Lasebikan V: Use of mental health services in a developing country. Soc Psychiatry Psychiatr Epidemiol. 2006, 41: 44-49.CrossRefPubMed
5.
go back to reference Lancet Global Mental Health Group: Scale up services for mental disorders: a call for action. The Lancet. 2007, 370: 1241-1252. 10.1016/S0140-6736(07)61242-2.CrossRef Lancet Global Mental Health Group: Scale up services for mental disorders: a call for action. The Lancet. 2007, 370: 1241-1252. 10.1016/S0140-6736(07)61242-2.CrossRef
7.
go back to reference Maingay S, Thornicroft G, Huxley P, Jenkins R, Szmukler G: Mental health and human rights: the MI Principles-turning rhetoric into action. International Review of Psychiatry. 2002, 14: 19-25. 10.1080/09540260120114023.CrossRef Maingay S, Thornicroft G, Huxley P, Jenkins R, Szmukler G: Mental health and human rights: the MI Principles-turning rhetoric into action. International Review of Psychiatry. 2002, 14: 19-25. 10.1080/09540260120114023.CrossRef
9.
go back to reference WHO: Mental Health Legislation and Human Rights. Mental Health Policy and Service Guidance Package. 2003, Geneva: World Health Organization WHO: Mental Health Legislation and Human Rights. Mental Health Policy and Service Guidance Package. 2003, Geneva: World Health Organization
10.
go back to reference Farmer P, Gastineau N: Rethinking health and human rights: time for a paradigm shift. J Law Med Ethics. 2002, 30: 655-666.CrossRefPubMed Farmer P, Gastineau N: Rethinking health and human rights: time for a paradigm shift. J Law Med Ethics. 2002, 30: 655-666.CrossRefPubMed
11.
go back to reference Read UM, Doku VCK, De-Graft Aikins A: Schizophrenia and psychosis in West Africa from the colonial era to the present. Culture, Mental Illness and Psychiatric Practice in Africa. Edited by: Akyeampong E, Hill A, Kleinman A. Cambridge: Indiana University Press Read UM, Doku VCK, De-Graft Aikins A: Schizophrenia and psychosis in West Africa from the colonial era to the present. Culture, Mental Illness and Psychiatric Practice in Africa. Edited by: Akyeampong E, Hill A, Kleinman A. Cambridge: Indiana University Press
12.
go back to reference Forster EB: The Theory and Practice of Psychiatry in Ghana. Am J Psychother. 1962, 16: 7-51.PubMed Forster EB: The Theory and Practice of Psychiatry in Ghana. Am J Psychother. 1962, 16: 7-51.PubMed
13.
go back to reference Commonwealth Human Rights Initiative Africa: Human Rights Violations in Prayer Camps and Access to Mental Health in Ghana. 2008, Accra: CHRI Commonwealth Human Rights Initiative Africa: Human Rights Violations in Prayer Camps and Access to Mental Health in Ghana. 2008, Accra: CHRI
16.
go back to reference Flisher AJ, Lund C, Funk M, Banda M, Bhana A, Doku V, Drew N, Kigozi FN, Knapp M, Omar M: Mental health policy development and implementation in four African countries. Journal of Health Psychology. 2007, 12: 505-516.CrossRefPubMed Flisher AJ, Lund C, Funk M, Banda M, Bhana A, Doku V, Drew N, Kigozi FN, Knapp M, Omar M: Mental health policy development and implementation in four African countries. Journal of Health Psychology. 2007, 12: 505-516.CrossRefPubMed
18.
go back to reference Craig TJ, Siegel C, Hopper K, Lin S, Sartorius N: Outcome in schizophrenia and related disorders compared between developing and developed countries: a recursive partitioning re-analysis of the WHO DOSMD data. Br J Psychiatry. 1997, 170: 229-233.CrossRefPubMed Craig TJ, Siegel C, Hopper K, Lin S, Sartorius N: Outcome in schizophrenia and related disorders compared between developing and developed countries: a recursive partitioning re-analysis of the WHO DOSMD data. Br J Psychiatry. 1997, 170: 229-233.CrossRefPubMed
19.
go back to reference Edgerton RB, Cohen A: Culture and schizophrenia: the DOSMD challenge. Br J Psychiatry. 1994, 164: 222-231.CrossRefPubMed Edgerton RB, Cohen A: Culture and schizophrenia: the DOSMD challenge. Br J Psychiatry. 1994, 164: 222-231.CrossRefPubMed
20.
go back to reference Hopper K: Interrogating the meaning of "culture" in the WHO international studies of schizophrenia. Schizophrenia, Culture and Subjectivity: the Edge of Experience. Edited by: Jenkins JH, Barrett RJ. 2004, 62-86. Cambridge: Cambridge University Press Hopper K: Interrogating the meaning of "culture" in the WHO international studies of schizophrenia. Schizophrenia, Culture and Subjectivity: the Edge of Experience. Edited by: Jenkins JH, Barrett RJ. 2004, 62-86. Cambridge: Cambridge University Press
21.
go back to reference Harrison G, Hopper K, Craig T, Laska E, Siegel C, Wanderling J, Dube K, Ganev K: Recovery from psychotic illness: a 15- and 25-year international follow-up study. Br J Psychiatry. 2001, 178: 506-517.CrossRefPubMed Harrison G, Hopper K, Craig T, Laska E, Siegel C, Wanderling J, Dube K, Ganev K: Recovery from psychotic illness: a 15- and 25-year international follow-up study. Br J Psychiatry. 2001, 178: 506-517.CrossRefPubMed
22.
go back to reference Patel V, Cohen A, Rangaswamy T, Gureje O: Is the outcome of schizophrenia really better in developing countries?. Revista Brasileira de Psiquiatria. 2006, 28: 149-152.CrossRefPubMed Patel V, Cohen A, Rangaswamy T, Gureje O: Is the outcome of schizophrenia really better in developing countries?. Revista Brasileira de Psiquiatria. 2006, 28: 149-152.CrossRefPubMed
23.
go back to reference Littlewood R: The Butterfly and the Serpent: Essays in Psychiatry, Race and Religion. 1998, London; New York: Free Association Books Littlewood R: The Butterfly and the Serpent: Essays in Psychiatry, Race and Religion. 1998, London; New York: Free Association Books
24.
go back to reference Bernard HR: Research Methods in Anthropology: Qualitative and Quantitative Approaches. 2006, Lanham: Altamira Press, 4 Bernard HR: Research Methods in Anthropology: Qualitative and Quantitative Approaches. 2006, Lanham: Altamira Press, 4
25.
go back to reference Miescher SF: Making Men in Ghana. 2005, Bloomington; Indianapolis: Indiana University Press Miescher SF: Making Men in Ghana. 2005, Bloomington; Indianapolis: Indiana University Press
26.
go back to reference Wiredu K: Cultural Universals and Particulars: An African Perspective. 1996, Bloomington: Indiana University Press Wiredu K: Cultural Universals and Particulars: An African Perspective. 1996, Bloomington: Indiana University Press
27.
go back to reference Alem A: Human rights and psychiatric care in Africa with particular reference to the Ethiopian situation. Acta Psychiatr Scand. 2000, 101: 93-96.CrossRef Alem A: Human rights and psychiatric care in Africa with particular reference to the Ethiopian situation. Acta Psychiatr Scand. 2000, 101: 93-96.CrossRef
28.
go back to reference Eaton J, Agomoh AO: Developing mental health services in Nigeria: the impact of a community-based mental health awareness programme. Soc Psychiatry Psychiatr Epidemiol. 2008, 43: 552-558.CrossRefPubMed Eaton J, Agomoh AO: Developing mental health services in Nigeria: the impact of a community-based mental health awareness programme. Soc Psychiatry Psychiatr Epidemiol. 2008, 43: 552-558.CrossRefPubMed
29.
go back to reference Shibre T, Kebede D, Alem A, Negash A: Schizophrenia: illness impact on family members in a traditional society- rural Ethiopia. Soc Psychiatry Psychiatr Epidemiol. 2003, 38: 27-34.CrossRefPubMed Shibre T, Kebede D, Alem A, Negash A: Schizophrenia: illness impact on family members in a traditional society- rural Ethiopia. Soc Psychiatry Psychiatr Epidemiol. 2003, 38: 27-34.CrossRefPubMed
30.
go back to reference Ukpong DI: Demographic factors and clinical correlates of burden and distress in relatives of service users experiencing schizophrenia: A study from south-western Nigeria. International Journal of Mental Health Nursing. 2006, 15: 54-49.CrossRefPubMed Ukpong DI: Demographic factors and clinical correlates of burden and distress in relatives of service users experiencing schizophrenia: A study from south-western Nigeria. International Journal of Mental Health Nursing. 2006, 15: 54-49.CrossRefPubMed
31.
go back to reference Martyns-Yellowe I: The burden of schizophrenia on the family: a study from Nigeria. Br J Psychiatry. 1992, 161: 779-782.CrossRefPubMed Martyns-Yellowe I: The burden of schizophrenia on the family: a study from Nigeria. Br J Psychiatry. 1992, 161: 779-782.CrossRefPubMed
32.
go back to reference Ohaeri JU: Caregiver burden and psychotic patients' perception of social support in a Nigerian setting. Soc Psychiatry Psychiatr Epidemiol. 2001, 36: 86-93.CrossRefPubMed Ohaeri JU: Caregiver burden and psychotic patients' perception of social support in a Nigerian setting. Soc Psychiatry Psychiatr Epidemiol. 2001, 36: 86-93.CrossRefPubMed
33.
go back to reference Quinn N: Beliefs and Community Responses to Mental Illness in Ghana: The Experiences of Family Carers. Int J Soc Psychiatry. 2007, 53: 175-188.CrossRefPubMed Quinn N: Beliefs and Community Responses to Mental Illness in Ghana: The Experiences of Family Carers. Int J Soc Psychiatry. 2007, 53: 175-188.CrossRefPubMed
34.
go back to reference Sierra Leone: Insanity of War. Unreported World, Channel 4. 2009 Sierra Leone: Insanity of War. Unreported World, Channel 4. 2009
36.
go back to reference Roberts H: A way forward for mental health care in Ghana?. The Lancet. 2001, 357: 1859-10.1016/S0140-6736(00)05020-0.CrossRef Roberts H: A way forward for mental health care in Ghana?. The Lancet. 2001, 357: 1859-10.1016/S0140-6736(00)05020-0.CrossRef
37.
go back to reference Selby H: Mental Illness, Prayer Camps And Society: A Factor of Human Rights Abuse. The Ghanaian Chronicle. Accra. 2008 Selby H: Mental Illness, Prayer Camps And Society: A Factor of Human Rights Abuse. The Ghanaian Chronicle. Accra. 2008
38.
go back to reference Asiedu W, Kwei R: Patients chained at prayer camp. The Mirror. Accra. 2004 Asiedu W, Kwei R: Patients chained at prayer camp. The Mirror. Accra. 2004
39.
go back to reference Vinorkor M-A: Move to Protect Mental Patients. The Daily Graphic. Accra. 2004 Vinorkor M-A: Move to Protect Mental Patients. The Daily Graphic. Accra. 2004
40.
go back to reference WHO: WHO Resource Book on Mental Health, Human Rights and Legislation. 2005, Geneva. World Health Organization WHO: WHO Resource Book on Mental Health, Human Rights and Legislation. 2005, Geneva. World Health Organization
41.
go back to reference Government of Ghana: Mental Health Bill. Ghana. 2006 Government of Ghana: Mental Health Bill. Ghana. 2006
42.
go back to reference National Redemption Council Ghana: Mental Health Decree NRCD 30. Ghana. 1972 National Redemption Council Ghana: Mental Health Decree NRCD 30. Ghana. 1972
44.
go back to reference Englund H: Prisoners of Freedom: Human Rights and the African Poor. 2006, Berkeley; Los Angeles; London: University of California Press Englund H: Prisoners of Freedom: Human Rights and the African Poor. 2006, Berkeley; Los Angeles; London: University of California Press
45.
go back to reference Englund H: The dead hand of human rights: contrasting Christianities in post-transition Malawi. The Journal of Modern African Studies. 2000, 38: 579-603. 10.1017/S0022278X00003487.CrossRef Englund H: The dead hand of human rights: contrasting Christianities in post-transition Malawi. The Journal of Modern African Studies. 2000, 38: 579-603. 10.1017/S0022278X00003487.CrossRef
46.
go back to reference Gyekye K: An Essay on African Philosophical Thought: The Akan Conceptual Scheme. 1987, Cambridge: Cambridge University Press Gyekye K: An Essay on African Philosophical Thought: The Akan Conceptual Scheme. 1987, Cambridge: Cambridge University Press
47.
go back to reference Turner T, Graham LR, Fluehr-Lobban C, Cowan JK: Do anthropologists have an ethical obligation to promote human rights? An open exchange. Human Rights: An Anthropological Reader. Edited by: Goodale M. 2009, 198-205. Chichester: Wiley-Blackwell; Blackwell Readers in Anthropology Turner T, Graham LR, Fluehr-Lobban C, Cowan JK: Do anthropologists have an ethical obligation to promote human rights? An open exchange. Human Rights: An Anthropological Reader. Edited by: Goodale M. 2009, 198-205. Chichester: Wiley-Blackwell; Blackwell Readers in Anthropology
48.
go back to reference Abu-Lughod L: Writing Against Culture. Recapturing Anthropology: Working in the Present. Edited by: Fox RG. 1991, Santa Fe: School of American Research Press Abu-Lughod L: Writing Against Culture. Recapturing Anthropology: Working in the Present. Edited by: Fox RG. 1991, Santa Fe: School of American Research Press
49.
go back to reference de Jong JTVM, Van Ommeren M: Toward a Culture-informed Epidemiology: Combining Qualitative and Quantitative Research in Transcultural Contexts. Transcultural Psychiatry. 2002, 39: 422-433. 10.1177/136346150203900402.CrossRef de Jong JTVM, Van Ommeren M: Toward a Culture-informed Epidemiology: Combining Qualitative and Quantitative Research in Transcultural Contexts. Transcultural Psychiatry. 2002, 39: 422-433. 10.1177/136346150203900402.CrossRef
50.
go back to reference Sefasi A, Crumlish N, Samalani P, Kinsella A, O'Callaghan E, Chilale H: A little knowledge: caregiver burden in schizophrenia in Malawi. Soc Psychiatry Psychiatr Epidemiol. 2008, 43: 160-164.CrossRefPubMed Sefasi A, Crumlish N, Samalani P, Kinsella A, O'Callaghan E, Chilale H: A little knowledge: caregiver burden in schizophrenia in Malawi. Soc Psychiatry Psychiatr Epidemiol. 2008, 43: 160-164.CrossRefPubMed
51.
go back to reference Murthy RS, Kumar KVK, Chisholm D, Thomas T, Sekar K, Chandrashekar CR: Community outreach for untreated schizophrenia in rural India: a follow-up study of symptoms, disability, family burden and costs. Psychol Med. 2005, 35: 341-351.CrossRef Murthy RS, Kumar KVK, Chisholm D, Thomas T, Sekar K, Chandrashekar CR: Community outreach for untreated schizophrenia in rural India: a follow-up study of symptoms, disability, family burden and costs. Psychol Med. 2005, 35: 341-351.CrossRef
Metadata
Title
Local suffering and the global discourse of mental health and human rights: An ethnographic study of responses to mental illness in rural Ghana
Authors
Ursula M Read
Edward Adiibokah
Solomon Nyame
Publication date
01-12-2009
Publisher
BioMed Central
Published in
Globalization and Health / Issue 1/2009
Electronic ISSN: 1744-8603
DOI
https://doi.org/10.1186/1744-8603-5-13

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