Top

Health and Quality of Life Outcomes

Published in:

Open Access 01-12-2011 | Research

Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module

Authors: Peyman Jafari, Elham Forouzandeh, Zahra Bagheri, Zohreh Karamizadeh, Keivan Shalileh

Published in: Health and Quality of Life Outcomes | Issue 1/2011

Abstract

Background

The aim of this study was to measure health related quality of life (HRQOL) in Iranian children with type 1 diabetes and to test the psychometric properties of the Persian version of the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 Diabetes Module.

Methods

Participants were 94 children and adolescents diagnosed with type 1 diabetes for at least 3 months in Shiraz, southern Iran. Convergent, discriminant, and construct validity of the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 Diabetes Module were assessed. Moreover, internal consistency was checked by Cronbach's alpha coefficient.

Results

Cronbach's α for the PedsQL™ 4.0 Generic Core Scales and the PedsQL™ 3.0 Diabetes Module was greater than 0.80 both in the child self-report and parent proxy-report. Both generic and disease-specific versions of the PedsQL showed excellent convergent and acceptable discriminant validity except for 'diabetes symptoms' subscale in the child self-report of the disease-specific module. Moreover, Iranian children with diabetes, as compared with other countries, had lower HRQOL scores.

Conclusions

While this study showed that the Persian version of the PedsQL™ 4.0 Generic Core Scales has good psychometric properties in children with type 1 diabetes, the PedsQL™ 3.0 Diabetes Module needs some modifications to be used as a disease-specific quality of life (QOL) measure. Also, more support should be provided for the care of Iranian children with diabetes.

Kalyva E, Malakonaki E, Eiser C, Mamoulakis D: Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. Pediatr Diabetes 2011,12(1):34–40. 10.1111/j.1399-5448.2010.00653.xPubMedCrossRef

Pishdad GR: Low incidence of type 1 diabetes in Iran. Diabetes Care 2005,28(4):927–928. 10.2337/diacare.28.4.927PubMedCrossRef

Stevanović D, Lakić A, Damnjanović M: Some psychometric properties of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales (PedsQL(TM)) in the general Serbian population. Qual Life Res 2011,20(20):945–949.PubMedCrossRef

Hao Y, Tian Q, Lu Y, Chai Y, Rao S: Psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Qual Life Res 2010,19(8):1229–1233. 10.1007/s11136-010-9672-yPubMedCrossRef

Chen YM, He LP, Mai JC, Hao YT, Xiong LH, Chen WQ, Wu JN: Validity and reliability of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in Chinese children and adolescents. Zhonghua Liu Xing Bing Xue Za Zhi 2008,29(6):560–563.PubMed

Kobayashi K, Kamibeppu K: Measuring quality of life in Japanese children: development of the Japanese version of PedsQL. Pediatr Int 2010,52(1):80–89. 10.1111/j.1442-200X.2009.02889.xPubMedCrossRef

Petersen S, Hägglöf B, Stenlund H, Bergström E: Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. Acta Paediatr 2009,98(9):1504–1512. 10.1111/j.1651-2227.2009.01360.xPubMedCrossRef

Kook SH, Varni JW: Validation of the Korean version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) Generic Core Scales in school children and adolescents using the rasch model. Health Qual Life Outcomes 2008, 6: 41. 10.1186/1477-7525-6-41PubMedCentralPubMedCrossRef

Gkoltsiou K, Dimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y: Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales. Qual Life Res 2008,17(2):299–305. 10.1007/s11136-007-9294-1PubMedCrossRef

10.

Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S: Quality of life of children and adolescents with diabetes of Northern Greek origin. Hippokratia 2008,12(3):168–175.PubMedCentralPubMed

11.

Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL: The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Type 1 Diabetes Module. Diabetes care 2003,26(3):631–637. 10.2337/diacare.26.3.631PubMedCrossRef

12.

Varni JW, Limbers CA, Burwinkle TM, Bryant WP, Wilson DP: The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration. Diabetes Care 2008,31(4):672–677. 10.2337/dc07-2021PubMedCrossRef

13.

Buresova G, Veleminsky MJ, Veleminsky MS: Health related quality of life of children and adolescents with type 1 diabetes. Neuro Endocrinol Lett 2008,29(6):1045–1053.PubMed

14.

Nuboer R, Borsboom GJ, Zoethout JA, Koot HM, Bruining J: Effects of insulin pump vs. injection treatment on quality of life and impact of disease in children with type 1 diabetes mellitus in a randomized, prospective comparison. Pediatr Diabetes 2008, 28: 291–296.CrossRef

15.

Amiri P, M Ardekani E, Jalali-Farahani S, Hosseinpanah F, Varni JW, Ghofranipour F, Montazeri A, Azizi F: Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents. Qual Life Res 2010,19(10):1501–1508. 10.1007/s11136-010-9712-7PubMedCrossRef

16.

Jafari P, Ghanizadeh A, Akhondzadeh S, Mohammadi MR: Health-related quality of life of Iranian children with attention deficit/hyperactivity disorder. Qual Life Res 2011,20(1):31–36. 10.1007/s11136-010-9722-5PubMedCrossRef

17.

Fayers PM, Machin D: Quality of life: The assessment, analysis and interpretation of patient-reported outcomes. 2nd edition. Chichester: John Wiley; 2007.CrossRef

Title: Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module
Authors: Peyman Jafari
Elham Forouzandeh
Zahra Bagheri
Zohreh Karamizadeh
Keivan Shalileh
Publication date: 01-12-2011
Publisher: BioMed Central
Published in: Health and Quality of Life Outcomes / Issue 1/2011
Electronic ISSN: 1477-7525
DOI: https://doi.org/10.1186/1477-7525-9-104

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL™ Generic Core Scales and Diabetes Module

Abstract

Background

Methods

Results

Conclusions

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Abstract

Background

Methods

Results

Conclusions

Please log in to get access to this content

Other articles of this Issue 1/2011

Retrospective study of the effect of disease progression on patient reported outcomes in HER-2 negative metastatic breast cancer patients

Improvement in health-related quality of life after therapy with omeprazole in patients with coronary artery disease and recurrent angina-like chest pain. A double-blind, placebo-controlled trial of the SF-36 survey

The influence of the level of physical activity and human development in the quality of life in survivors of stroke

Quality of Life analysis of patients in chronic use of oral anticoagulant: an observational study

Comparison between the disease-specific Airways Questionnaire 20 and the generic 15D instruments in COPD

Impact of traumatic dental injuries and malocclusions on quality of life of young children