Skip to main content
Top
Published in: Health and Quality of Life Outcomes 1/2005

Open Access 01-12-2005 | Research

Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales

Authors: Penney Upton, Christine Eiser, Ivy Cheung, Hayley A Hutchings, Meriel Jenney, Alison Maddocks, Ian T Russell, John G Williams

Published in: Health and Quality of Life Outcomes | Issue 1/2005

Login to get access

Abstract

Background

Health related quality of life (HRQL) has been recognised as an important paediatric outcome measurement. One of the more promising measures to emerge in recent years is the Pediatric Quality Of Life Inventory (PedsQL™), developed in the US. Advantages of the PedsQL™ include brevity, availability of age appropriate versions and parallel forms for child and parent. This study developed a UK-English version of PedsQL™ generic module and assessed its performance in a group of UK children and their parents.

Methods

PedsQL™ was translated to UK-English. The psychometric properties of the UK version were then tested following administration to 1399 children and 970 of their parents. The sample included healthy children, children diagnosed with asthma, diabetes or inflammatory bowel disease and children in remission from cancer.

Results

Psychometric properties were similar to those reported for the original PedsQL™. Internal reliability exceeded 0.70 for all proxy and self-report sub-scales. Discriminant validity was established for proxy and self-report with higher HRQL being reported for healthy children than those with health problems. Sex differences were noted on the emotional functioning subscale, with females reporting lower HRQL than males. Proxy and self-report correlation was higher for children with health problems than for healthy children.

Conclusion

The UK-English version of PedsQL™ performed as well as the original PedsQL™ and is recommended for assessment of paediatric HRQL in the UK.
Literature
1.
go back to reference Eiser C, Morse R: Quality-of-life measures in chronic diseases in childhood. Health Technol Assess 2001, 5: 1–147.PubMedCrossRef Eiser C, Morse R: Quality-of-life measures in chronic diseases in childhood. Health Technol Assess 2001, 5: 1–147.PubMedCrossRef
2.
go back to reference Varni JW, Seid M, Rode CA: The PedsQL: measurement model for the pediatric quality of life Inventory. Med Care 1999, 37: 126–139. 10.1097/00005650-199902000-00003PubMedCrossRef Varni JW, Seid M, Rode CA: The PedsQL: measurement model for the pediatric quality of life Inventory. Med Care 1999, 37: 126–139. 10.1097/00005650-199902000-00003PubMedCrossRef
3.
go back to reference Varni JW, Seid M, Kurtin P: The PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 2001, 39: 800–812. 10.1097/00005650-200108000-00006PubMedCrossRef Varni JW, Seid M, Kurtin P: The PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations. Med Care 2001, 39: 800–812. 10.1097/00005650-200108000-00006PubMedCrossRef
4.
go back to reference Varni JW, Burwinkle TM, Seid M, Skarr D: The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul Pediatr 2003, 3: 329–341. 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2PubMedCrossRef Varni JW, Burwinkle TM, Seid M, Skarr D: The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambul Pediatr 2003, 3: 329–341. 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2PubMedCrossRef
6.
go back to reference Quittner AL, Sweeny S, Watrous M, Munzenberger P, Bearss K, Nitza AG, Fisher LA, Henry B: Translation And Linguistic Validation Of A Disease Specific Quality Of Life Measure For Cystic Fibrosis. J Pediatr Psychol 2000, 25: 403–414. 10.1093/jpepsy/25.6.403PubMedCrossRef Quittner AL, Sweeny S, Watrous M, Munzenberger P, Bearss K, Nitza AG, Fisher LA, Henry B: Translation And Linguistic Validation Of A Disease Specific Quality Of Life Measure For Cystic Fibrosis. J Pediatr Psychol 2000, 25: 403–414. 10.1093/jpepsy/25.6.403PubMedCrossRef
7.
go back to reference Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16: 297–334.CrossRef Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16: 297–334.CrossRef
8.
go back to reference McHorney CA, Ware JE, Lu JF, Sherbourne CD: The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 1994, 32: 40–66.PubMedCrossRef McHorney CA, Ware JE, Lu JF, Sherbourne CD: The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 1994, 32: 40–66.PubMedCrossRef
9.
go back to reference Nunnally JC, Bernstein IR: Psychometric theory. 3rd edition. New York: McGraw-Hill; 1994. Nunnally JC, Bernstein IR: Psychometric theory. 3rd edition. New York: McGraw-Hill; 1994.
10.
go back to reference Wann-Hansson C, Hallberg IR, Risberg B, Klevsgård R: Comparison of the Nottingham Health Profile and Short Form 36 Health Survey in patients with chronic lower limb ischaemia in a longitudinal perspective. Health Qual Life Outcomes 2004, 2: 9. 10.1186/1477-7525-2-9PubMedCentralPubMedCrossRef Wann-Hansson C, Hallberg IR, Risberg B, Klevsgård R: Comparison of the Nottingham Health Profile and Short Form 36 Health Survey in patients with chronic lower limb ischaemia in a longitudinal perspective. Health Qual Life Outcomes 2004, 2: 9. 10.1186/1477-7525-2-9PubMedCentralPubMedCrossRef
11.
go back to reference Laffel LM, Connell A, Vangsness L, Goebel-Fabbri A, Mansfield A, Anderson BJ: General quality of life in youth with type 1 diabetes: relationship to patient management and diabetes-specific family conflict. Diabetes Care 2003, 26: 3067–3073.PubMedCrossRef Laffel LM, Connell A, Vangsness L, Goebel-Fabbri A, Mansfield A, Anderson BJ: General quality of life in youth with type 1 diabetes: relationship to patient management and diabetes-specific family conflict. Diabetes Care 2003, 26: 3067–3073.PubMedCrossRef
12.
go back to reference Edelman D, Olsen MK, Dudley TK, Harris AC, Oddone EZ: Impact of diabetes screening on quality of life. Diabetes Care 2002, 25: 1022–1026.PubMedCrossRef Edelman D, Olsen MK, Dudley TK, Harris AC, Oddone EZ: Impact of diabetes screening on quality of life. Diabetes Care 2002, 25: 1022–1026.PubMedCrossRef
13.
go back to reference Rosenfield S, Vertefuille J, McAlpine D: Gender stratification and mental health: An exploration of dimensions of the self. Soc Psychol Q 2000, 63: 208–223.CrossRef Rosenfield S, Vertefuille J, McAlpine D: Gender stratification and mental health: An exploration of dimensions of the self. Soc Psychol Q 2000, 63: 208–223.CrossRef
14.
go back to reference Miller PA, Eisenberg N: The relation of empathy to aggression and psychopathology. Psychol Bull 1988, 103: 324–344. 10.1037//0033-2909.103.3.324PubMedCrossRef Miller PA, Eisenberg N: The relation of empathy to aggression and psychopathology. Psychol Bull 1988, 103: 324–344. 10.1037//0033-2909.103.3.324PubMedCrossRef
15.
go back to reference Avison W, McAlpine D: Gender differences in symptoms of depression among adolescents. J Health Soc Behav 1992, 33: 77–96.PubMedCrossRef Avison W, McAlpine D: Gender differences in symptoms of depression among adolescents. J Health Soc Behav 1992, 33: 77–96.PubMedCrossRef
16.
go back to reference Compas BE, Orosan PG, Grant KE: Adolescent Stress and Coping: Implications for Psychopathology During Adolescence. J Adolesc 1993, 16: 331–349. 10.1006/jado.1993.1028PubMedCrossRef Compas BE, Orosan PG, Grant KE: Adolescent Stress and Coping: Implications for Psychopathology During Adolescence. J Adolesc 1993, 16: 331–349. 10.1006/jado.1993.1028PubMedCrossRef
17.
go back to reference Schopp LH, Shigaki C, Johnstone B, Kirkpatrick H: Gender differences in cognitive and emotional adjustment to traumatic brain injury. J Clin Psychol Med Settings 2001, 8: 181–187. 10.1023/A:1011369620254CrossRef Schopp LH, Shigaki C, Johnstone B, Kirkpatrick H: Gender differences in cognitive and emotional adjustment to traumatic brain injury. J Clin Psychol Med Settings 2001, 8: 181–187. 10.1023/A:1011369620254CrossRef
18.
go back to reference Graue M, Wentzel-Larsen T, Hanestad BR, Batsvik B, Sovik O: Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatr 2003, 92: 1190–1196. 10.1080/08035250310005657PubMedCrossRef Graue M, Wentzel-Larsen T, Hanestad BR, Batsvik B, Sovik O: Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatr 2003, 92: 1190–1196. 10.1080/08035250310005657PubMedCrossRef
19.
20.
go back to reference Edelbrock C, Costello AJ, Dulcan MK, Conover NC, Kala R: Parent-Child Agreement On Child Psychiatric Symptoms Assessed Via Structured Interview. J Child Psychol Psychiatry 1986, 27: 181–190.PubMedCrossRef Edelbrock C, Costello AJ, Dulcan MK, Conover NC, Kala R: Parent-Child Agreement On Child Psychiatric Symptoms Assessed Via Structured Interview. J Child Psychol Psychiatry 1986, 27: 181–190.PubMedCrossRef
21.
go back to reference Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL: The PedsQL in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Type 1 Diabetes Module. Diabetes Care 2003, 26: 631–663.PubMedCrossRef Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL: The PedsQL in Type 1 and Type 2 diabetes: Reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Type 1 Diabetes Module. Diabetes Care 2003, 26: 631–663.PubMedCrossRef
Metadata
Title
Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales
Authors
Penney Upton
Christine Eiser
Ivy Cheung
Hayley A Hutchings
Meriel Jenney
Alison Maddocks
Ian T Russell
John G Williams
Publication date
01-12-2005
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2005
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/1477-7525-3-22

Other articles of this Issue 1/2005

Health and Quality of Life Outcomes 1/2005 Go to the issue