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Published in: BMC Health Services Research 1/2013

Open Access 01-12-2013 | Research article

Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction

Authors: Rebecca Whear, Abdul-Kareem Abdul-Rahman, Jo Thompson-Coon, Kate Boddy, Mark G Perry, Ken Stein

Published in: BMC Health Services Research | Issue 1/2013

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Abstract

Background

The cost to the NHS of missed or inappropriate hospital appointments is considerable. Alternative methods of appointment scheduling might be more flexible to patients’ needs without jeopardising health and service quality. The objective was to systematically review evidence of patient initiated clinics in secondary care on patient reported outcomes among patients with chronic/recurrent conditions.

Methods

Seven databases were searched from inception to June 2013. Hand searching of included studies references was also conducted. Studies comparing the effects of patient initiated clinics with traditional consultant led clinics in secondary care for patients with long term chronic or recurrent diseases on health related quality of life and/or patient satisfaction were included. Data was extracted by one reviewer and checked by a second. Results were synthesised narratively.

Results

Seven studies were included in the review, these covered a total of 1,655 participants across three conditions: breast cancer, inflammatory bowel disease and rheumatoid arthritis. Quality of reporting was variable. Results showed no significant differences between the intervention and control groups for psychological and health related quality of life outcomes indicating no evidence of harm. Some patients reported significantly more satisfaction using patient-initiated clinics than usual care (p < 0.001).

Conclusions

The results show potential for patient initiated clinics to result in greater patient and clinician satisfaction. The patient-consultant relationship appeared to play an important part in patient satisfaction and should be considered an important area of future research as should the presence or absence of a guidebook to aid self-management. Patient initiated clinics fit the models of care suggested by policy makers and so further research into long term outcomes for patients and service use in this area of practice is both relevant and timely.
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Literature
1.
go back to reference DoH: The Expert Patient: A New Approach to Chronic Disease Management for the 21st Century. 2001, London: Department of Health, 35. DoH: The Expert Patient: A New Approach to Chronic Disease Management for the 21st Century. 2001, London: Department of Health, 35.
2.
go back to reference Hehir M, Hewlett S, Mitchell K, Kirwan J, Memel D, Pollock J, et al: What happens in RA outpatient clinics?. Rheumatology. 2001, 40: s146. Hehir M, Hewlett S, Mitchell K, Kirwan J, Memel D, Pollock J, et al: What happens in RA outpatient clinics?. Rheumatology. 2001, 40: s146.
3.
go back to reference EPP: Self care reduces costs and improves health - the evidence. 2010, London EPP: Self care reduces costs and improves health - the evidence. 2010, London
4.
go back to reference DoH: Choose & Book – Patient’s Choice of Hospital and Booked Appointment. 2004, London: Department of Health, 16. DoH: Choose & Book – Patient’s Choice of Hospital and Booked Appointment. 2004, London: Department of Health, 16.
6.
go back to reference Rose KD, Ross JS, Horwitz LI: Advanced access scheduling outcomes a systematic review. Arch Intern Med. 2011, 171 (13): 1150-1159. 10.1001/archinternmed.2011.168.CrossRefPubMedPubMedCentral Rose KD, Ross JS, Horwitz LI: Advanced access scheduling outcomes a systematic review. Arch Intern Med. 2011, 171 (13): 1150-1159. 10.1001/archinternmed.2011.168.CrossRefPubMedPubMedCentral
7.
go back to reference Robinson L, Chen R: A comparison of traditional and open-access policies for appointment scheduling. Manuf Serv Oper Manage. 2010, 12 (2): 330-346. Robinson L, Chen R: A comparison of traditional and open-access policies for appointment scheduling. Manuf Serv Oper Manage. 2010, 12 (2): 330-346.
8.
go back to reference Liu N, Ziya S, Kulkarni VG: Dynamic scheduling of outpatient appointments under patient no-shows and cancellations. M Som-Manuf Serv Oper Manage. 2010, 12 (2): 347-364. Liu N, Ziya S, Kulkarni VG: Dynamic scheduling of outpatient appointments under patient no-shows and cancellations. M Som-Manuf Serv Oper Manage. 2010, 12 (2): 347-364.
9.
go back to reference Nuffield: Health and Social Care Bill: Second reading, House of Lords. 2011, London: Nuffield Trust Nuffield: Health and Social Care Bill: Second reading, House of Lords. 2011, London: Nuffield Trust
10.
go back to reference CRD: Systematic Reviews: CRD’s guidance for undertaking reviews in healthcare. 2009, York: Centre for Reviews and Dissemination CRD: Systematic Reviews: CRD’s guidance for undertaking reviews in healthcare. 2009, York: Centre for Reviews and Dissemination
11.
go back to reference Popay J, Roberts H, Sowden A, Petticrew M, Arai L, Rodgers M, et al: Guidance on the conduct of systematic reviews. 2006, London: Economic and Social Research Council Popay J, Roberts H, Sowden A, Petticrew M, Arai L, Rodgers M, et al: Guidance on the conduct of systematic reviews. 2006, London: Economic and Social Research Council
12.
go back to reference Brown L, Payne S, Royle G: Patient-initiated follow-up of breast cancer. Psychooncology. 2002, 11 (4): 346-355. 10.1002/pon.576.CrossRefPubMed Brown L, Payne S, Royle G: Patient-initiated follow-up of breast cancer. Psychooncology. 2002, 11 (4): 346-355. 10.1002/pon.576.CrossRefPubMed
13.
go back to reference Sheppard C, Higgins B, Wise M, Yiangou C, Dubois D, Kilburn S: Breast cancer follow-up: a randomised controlled trial comparing point of need access versus routine 6-monthly clinical review. Eur J Oncol Nurs. 2009, 13: 2-8. 10.1016/j.ejon.2008.11.005.CrossRefPubMed Sheppard C, Higgins B, Wise M, Yiangou C, Dubois D, Kilburn S: Breast cancer follow-up: a randomised controlled trial comparing point of need access versus routine 6-monthly clinical review. Eur J Oncol Nurs. 2009, 13: 2-8. 10.1016/j.ejon.2008.11.005.CrossRefPubMed
14.
go back to reference Kennedy A, Nelson E, Reeves D, Richardson G, Roberts C, Robinson A, et al: A randomised controlled trial to assess the impact of a package comprising a patient-orientated, evidence-based self-help guidebook and patient-centered consultations on disease management and satisfaction in inflammatory bowel disease. Health Technol Assess. 2003, 7 (28). Kennedy A, Nelson E, Reeves D, Richardson G, Roberts C, Robinson A, et al: A randomised controlled trial to assess the impact of a package comprising a patient-orientated, evidence-based self-help guidebook and patient-centered consultations on disease management and satisfaction in inflammatory bowel disease. Health Technol Assess. 2003, 7 (28).
15.
go back to reference Robinson A, Thompson DG, Wilkin D, Roberts C, Grp NWGR: Guided self-management and patient-directed follow-up of ulcerative colitis: a randomised trial. Lancet. 2001, 358 (9286): 976-81. 10.1016/S0140-6736(01)06105-0.CrossRefPubMed Robinson A, Thompson DG, Wilkin D, Roberts C, Grp NWGR: Guided self-management and patient-directed follow-up of ulcerative colitis: a randomised trial. Lancet. 2001, 358 (9286): 976-81. 10.1016/S0140-6736(01)06105-0.CrossRefPubMed
16.
go back to reference Williams JG, Cheung WY, Russell IT, Cohen DR, Longo M, Lervy B: Open access follow up for inflammatory bowel disease: pragmatic randomised trial and cost effectiveness study. Br Med J. 2000, 320 (7234): 544-8. 10.1136/bmj.320.7234.544.CrossRef Williams JG, Cheung WY, Russell IT, Cohen DR, Longo M, Lervy B: Open access follow up for inflammatory bowel disease: pragmatic randomised trial and cost effectiveness study. Br Med J. 2000, 320 (7234): 544-8. 10.1136/bmj.320.7234.544.CrossRef
17.
go back to reference Kirwan JR, Mitchell K, Hewlett S, Hehir M, Pollock J, Memel D, et al: Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years. Rheumatology. 2003, 42 (3): 422-6. 10.1093/rheumatology/keg130.CrossRefPubMed Kirwan JR, Mitchell K, Hewlett S, Hehir M, Pollock J, Memel D, et al: Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years. Rheumatology. 2003, 42 (3): 422-6. 10.1093/rheumatology/keg130.CrossRefPubMed
18.
go back to reference Hewlett S, Mitchell K, Haynes J, Paine T, Korendowych E, Kirwan JR: Patient-initiated hospital follow-up for rheumatoid arthritis. SO. Rheumatology (Oxford). 2000, 9: 990-997.CrossRef Hewlett S, Mitchell K, Haynes J, Paine T, Korendowych E, Kirwan JR: Patient-initiated hospital follow-up for rheumatoid arthritis. SO. Rheumatology (Oxford). 2000, 9: 990-997.CrossRef
19.
go back to reference Hewlett S, Kirwan J, Pollock J, Mitchell K, Hehir M, Blair PS, et al: Patient initiated outpatient follow up in rheumatoid arthritis: six year randomised controlled trial. BMJ. 2005, 330 (7484): 171-10.1136/bmj.38265.493773.8F.CrossRefPubMedPubMedCentral Hewlett S, Kirwan J, Pollock J, Mitchell K, Hehir M, Blair PS, et al: Patient initiated outpatient follow up in rheumatoid arthritis: six year randomised controlled trial. BMJ. 2005, 330 (7484): 171-10.1136/bmj.38265.493773.8F.CrossRefPubMedPubMedCentral
20.
go back to reference Sands A, Adams N: A comparison of patient-initiated versus conventional follow-up for rheumatoid arthritis. J Pain Manage. 2009, 1 (4): 391-400. Sands A, Adams N: A comparison of patient-initiated versus conventional follow-up for rheumatoid arthritis. J Pain Manage. 2009, 1 (4): 391-400.
21.
go back to reference Chattopadhyay C, Hickey PM: Are routine appointments cost-effective in modern rheumatology practice? A comparative outcome audit of routine follow-ups and patient initiated consultations. Arthritis Rheum. 2008, 58 (9): S885. Chattopadhyay C, Hickey PM: Are routine appointments cost-effective in modern rheumatology practice? A comparative outcome audit of routine follow-ups and patient initiated consultations. Arthritis Rheum. 2008, 58 (9): S885.
22.
go back to reference NICE: Rheumatoid arthritis: The management of rheumatoid arthritis in adults. 2009, London: National Institute for Health and Clinical Excellence NICE: Rheumatoid arthritis: The management of rheumatoid arthritis in adults. 2009, London: National Institute for Health and Clinical Excellence
23.
go back to reference Luqmani R, Hennell S, Estrach C, Basher D, Birrell F, Bosworth A, et al: British Society for Rheumatology and British Health Professionals in Rheumatology guideline for the management of rheumatoid arthritis (after the first 2 years). Rheumatology. 2009, 48 (4): 436-9. 10.1093/rheumatology/ken450a.CrossRefPubMed Luqmani R, Hennell S, Estrach C, Basher D, Birrell F, Bosworth A, et al: British Society for Rheumatology and British Health Professionals in Rheumatology guideline for the management of rheumatoid arthritis (after the first 2 years). Rheumatology. 2009, 48 (4): 436-9. 10.1093/rheumatology/ken450a.CrossRefPubMed
24.
go back to reference Mowat C, Cole A, Windsor A, Ahmad T, Arnott I, Driscoll R, et al: Guidelines for the management of inflammatory bowel disease in adults. Gut. 2011, 60: 571-607. 10.1136/gut.2010.224154.CrossRefPubMed Mowat C, Cole A, Windsor A, Ahmad T, Arnott I, Driscoll R, et al: Guidelines for the management of inflammatory bowel disease in adults. Gut. 2011, 60: 571-607. 10.1136/gut.2010.224154.CrossRefPubMed
25.
go back to reference Polo D, Tipler S, Kirwan J, Hewlett S: Implementing a patient-led, nurse-supported service in a long-term condition. Nurs Times. 2005, 101 (49): 28-31. Polo D, Tipler S, Kirwan J, Hewlett S: Implementing a patient-led, nurse-supported service in a long-term condition. Nurs Times. 2005, 101 (49): 28-31.
26.
go back to reference Whear R, Abdul-Rahman A, Thompson-Coon J, Boddy K, Perry M, Stein K: The clinical effectiveness and resource use of patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review. Plos One. 2013, 8 (10): Epub e74774. doi:10.1371/journal.pone.0074774 Whear R, Abdul-Rahman A, Thompson-Coon J, Boddy K, Perry M, Stein K: The clinical effectiveness and resource use of patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review. Plos One. 2013, 8 (10): Epub e74774. doi:10.1371/journal.pone.0074774
Metadata
Title
Patient initiated clinics for patients with chronic or recurrent conditions managed in secondary care: a systematic review of patient reported outcomes and patient and clinician satisfaction
Authors
Rebecca Whear
Abdul-Kareem Abdul-Rahman
Jo Thompson-Coon
Kate Boddy
Mark G Perry
Ken Stein
Publication date
01-12-2013
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2013
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/1472-6963-13-501

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