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Published in: BMC Psychiatry 1/2003

Open Access 01-12-2003 | Research article

Cross-sectional survey of users of Internet depression communities

Authors: John Powell, Noel McCarthy, Gunther Eysenbach

Published in: BMC Psychiatry | Issue 1/2003

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Abstract

Background

Internet-based depression communities provide a forum for individuals to communicate and share information and ideas. There has been little research into the health status and other characteristics of users of these communities.

Methods

Online cross-sectional survey of Internet depression communities to identify depressive morbidity among users of Internet depression communities in six European countries; to investigate whether users were in contact with health services and receiving treatment; and to identify user perceived effects of the communities.

Results

Major depression was highly prevalent among respondents (varying by country from 40% to 64%). Forty-nine percent of users meeting criteria for major depression were not receiving treatment, and 35% had no consultation with health services in the previous year. Thirty-six percent of repeat community users who had consulted a health professional in the previous year felt that the Internet community had been an important factor in deciding to seek professional help.

Conclusions

There are high levels of untreated and undiagnosed depression in users of Internet depression communities. This group represents a target for intervention. Internet communities can provide information and support for stigmatizing conditions that inhibit more traditional modes of information seeking.
Literature
2.
go back to reference Fox S, Rainie L: Vital Decisions: How internet users decide what information to trust when they or their loved ones are sick. Washington, DC: The Pew Internet & American Life Project. 2002 Fox S, Rainie L: Vital Decisions: How internet users decide what information to trust when they or their loved ones are sick. Washington, DC: The Pew Internet & American Life Project. 2002
3.
go back to reference Pleace N, Burrows R, Loader B, Muncer S, Nettleton S: On-Line With the Friends of Bill W: Social Support and the Net. Sociological Research Online. 2000, 5: U134-U148.CrossRef Pleace N, Burrows R, Loader B, Muncer S, Nettleton S: On-Line With the Friends of Bill W: Social Support and the Net. Sociological Research Online. 2000, 5: U134-U148.CrossRef
4.
go back to reference Glasgow RE, Barrera M, Mckay HG, Boles SM: Social Support and Health Among Participants in an Internet-Based Diabetes Support Program: a Multi-Dimensional Investigation. Diabetes. 1998, 47: 1263- Glasgow RE, Barrera M, Mckay HG, Boles SM: Social Support and Health Among Participants in an Internet-Based Diabetes Support Program: a Multi-Dimensional Investigation. Diabetes. 1998, 47: 1263-
5.
go back to reference White H, Mcconnell E, Clipp E, Bynum L, Teague C, Navas L, et al: Surfing the Net in Later Life: a Review of the Literature and Pilot Study of Computer Use and Quality of Life. Journal of Applied Gerontology. 1999, 18: 358-378.CrossRef White H, Mcconnell E, Clipp E, Bynum L, Teague C, Navas L, et al: Surfing the Net in Later Life: a Review of the Literature and Pilot Study of Computer Use and Quality of Life. Journal of Applied Gerontology. 1999, 18: 358-378.CrossRef
6.
go back to reference Klemm P, Bunnell D, Cullen M, Soneji R, Gibbons P, Holecek A: Online cancer support groups: a review of the research literature. Comput Inform Nurs. 2003, 21: 136-142. 10.1097/00024665-200305000-00010.CrossRefPubMed Klemm P, Bunnell D, Cullen M, Soneji R, Gibbons P, Holecek A: Online cancer support groups: a review of the research literature. Comput Inform Nurs. 2003, 21: 136-142. 10.1097/00024665-200305000-00010.CrossRefPubMed
7.
go back to reference White M, Dorman SM: Receiving social support online: implications for health education. Health Educ Res. 2001, 16: 693-707. 10.1093/her/16.6.693.CrossRefPubMed White M, Dorman SM: Receiving social support online: implications for health education. Health Educ Res. 2001, 16: 693-707. 10.1093/her/16.6.693.CrossRefPubMed
8.
go back to reference Agrell H, Walinder J: Halsotjanst pa Internet kan ge deprimerade stod [Internet health-care service can provide support for depressed individuals]. Läkartidningen. 2002, 99: 4152-7.PubMed Agrell H, Walinder J: Halsotjanst pa Internet kan ge deprimerade stod [Internet health-care service can provide support for depressed individuals]. Läkartidningen. 2002, 99: 4152-7.PubMed
9.
go back to reference Houston T, Cooper L, Ford D: Internet support groups for depression: a 1-year prospective cohort study. Am J Psychiatry. 2002, 159: 2062-2068. 10.1176/appi.ajp.159.12.2062.CrossRefPubMed Houston T, Cooper L, Ford D: Internet support groups for depression: a 1-year prospective cohort study. Am J Psychiatry. 2002, 159: 2062-2068. 10.1176/appi.ajp.159.12.2062.CrossRefPubMed
10.
go back to reference Kummervold PE, Gammon D, Bergvik S, Johnsen JA, Hasvold T, Rosenvinge JH: Social support in a wired world: use of online mental health forums in Norway. Nord J Psychiatry. 2002, 56: 59-65. 10.1080/08039480252803945.CrossRefPubMed Kummervold PE, Gammon D, Bergvik S, Johnsen JA, Hasvold T, Rosenvinge JH: Social support in a wired world: use of online mental health forums in Norway. Nord J Psychiatry. 2002, 56: 59-65. 10.1080/08039480252803945.CrossRefPubMed
11.
go back to reference Bech P, Rasmussen NA, Olsen LR, Noerholm V, Abildgaard W: The sensitivity and specificity of the Major Depression Inventory, using the Present State Examination as the index of diagnostic validity. J Affect Disord. 2001, 66: 159-64. 10.1016/S0165-0327(00)00309-8.CrossRefPubMed Bech P, Rasmussen NA, Olsen LR, Noerholm V, Abildgaard W: The sensitivity and specificity of the Major Depression Inventory, using the Present State Examination as the index of diagnostic validity. J Affect Disord. 2001, 66: 159-64. 10.1016/S0165-0327(00)00309-8.CrossRefPubMed
12.
go back to reference US Preventive Services Task Force: Screening for depression: recommendations and rationale. Ann Intern Med. 2002, 136: 760-4.CrossRef US Preventive Services Task Force: Screening for depression: recommendations and rationale. Ann Intern Med. 2002, 136: 760-4.CrossRef
13.
go back to reference Magnusson A: An overview of epidemiological studies on seasonal affective disorder. Acta Psychiatr Scand. 2000, 101: 176-184. 10.1046/j.0902-4441.2000..x.CrossRefPubMed Magnusson A: An overview of epidemiological studies on seasonal affective disorder. Acta Psychiatr Scand. 2000, 101: 176-184. 10.1046/j.0902-4441.2000..x.CrossRefPubMed
14.
go back to reference Piccinelli M, Wilkinson G: Gender differences in depression. Critical review. Brit J Psychiatry. 2000, 177: 486-492. 10.1192/bjp.177.6.486.CrossRef Piccinelli M, Wilkinson G: Gender differences in depression. Critical review. Brit J Psychiatry. 2000, 177: 486-492. 10.1192/bjp.177.6.486.CrossRef
15.
go back to reference Fox S, Rainie L: The online health care revolution: how the Web helps Americans take better care of themselves. Washington, DC, The Pew Internet & American Life Project. 2000 Fox S, Rainie L: The online health care revolution: how the Web helps Americans take better care of themselves. Washington, DC, The Pew Internet & American Life Project. 2000
17.
go back to reference Schonlau M, Fricker R, Elliott M: Conducting Research Surveys via E-mail and the Web. California, Rand Corporation. 2002 Schonlau M, Fricker R, Elliott M: Conducting Research Surveys via E-mail and the Web. California, Rand Corporation. 2002
18.
go back to reference Patten SB: International differences in major depression prevalence: what do they mean?. J Clin Epidemiol. 2003, 56: 711-716. 10.1016/S0895-4356(03)00090-8.CrossRefPubMed Patten SB: International differences in major depression prevalence: what do they mean?. J Clin Epidemiol. 2003, 56: 711-716. 10.1016/S0895-4356(03)00090-8.CrossRefPubMed
19.
go back to reference Weissman MM, Bland RC, Canino GJ, Faravelli C, Greenwald S, Hwu HG, et al: Cross-national epidemiology of major depression and bipolar disorder. JAMA. 1996, 276: 293-299. 10.1001/jama.276.4.293.CrossRefPubMed Weissman MM, Bland RC, Canino GJ, Faravelli C, Greenwald S, Hwu HG, et al: Cross-national epidemiology of major depression and bipolar disorder. JAMA. 1996, 276: 293-299. 10.1001/jama.276.4.293.CrossRefPubMed
20.
go back to reference Department of Mental Health and Substance Dependence: Mental Health Resources in the World. Project ATLAS. Geneva, World Health Organization. 2002 Department of Mental Health and Substance Dependence: Mental Health Resources in the World. Project ATLAS. Geneva, World Health Organization. 2002
21.
go back to reference Christensen H, Griffiths KM, Korten A: Web-based cognitive behavior therapy: analysis of site usage and changes in depression and anxiety scores. J Med Internet Res. 2002, 4: e3-CrossRefPubMedPubMedCentral Christensen H, Griffiths KM, Korten A: Web-based cognitive behavior therapy: analysis of site usage and changes in depression and anxiety scores. J Med Internet Res. 2002, 4: e3-CrossRefPubMedPubMedCentral
23.
go back to reference Feldman M: Munchausen by Internet: detecting factitious illness and crisis on the Internet. South Med J. 2000, 93: 669-672.CrossRefPubMed Feldman M: Munchausen by Internet: detecting factitious illness and crisis on the Internet. South Med J. 2000, 93: 669-672.CrossRefPubMed
24.
go back to reference Desai S, Dole E, Yeatman S, Troutman W: Evaluation of drug information in an Internet newsgroup. J Am Pharm Assoc. 1997, NS37: 391-394.CrossRef Desai S, Dole E, Yeatman S, Troutman W: Evaluation of drug information in an Internet newsgroup. J Am Pharm Assoc. 1997, NS37: 391-394.CrossRef
25.
go back to reference Kraut R, Patterson M, Lundmark V, Kiesler S, Mukopadhyay T, Scherlis W: Internet paradox. A social technology that reduces social involvement and psychological well-being?. Am Psychol. 1998, 53: 1017-31. 10.1037//0003-066X.53.9.1017.CrossRefPubMed Kraut R, Patterson M, Lundmark V, Kiesler S, Mukopadhyay T, Scherlis W: Internet paradox. A social technology that reduces social involvement and psychological well-being?. Am Psychol. 1998, 53: 1017-31. 10.1037//0003-066X.53.9.1017.CrossRefPubMed
Metadata
Title
Cross-sectional survey of users of Internet depression communities
Authors
John Powell
Noel McCarthy
Gunther Eysenbach
Publication date
01-12-2003
Publisher
BioMed Central
Published in
BMC Psychiatry / Issue 1/2003
Electronic ISSN: 1471-244X
DOI
https://doi.org/10.1186/1471-244X-3-19

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