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Published in: Journal of Cancer Education 6/2018

01-12-2018

Is Cancer Information Exchanged on Social Media Scientifically Accurate?

Authors: Elizabeth A. Gage-Bouchard, Susan LaValley, Molli Warunek, Lynda Kwon Beaupin, Michelle Mollica

Published in: Journal of Cancer Education | Issue 6/2018

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Abstract

Cancer patients and their caregivers are increasingly using social media as a platform to share cancer experiences, connect with support, and exchange cancer-related information. Yet, little is known about the nature and scientific accuracy of cancer-related information exchanged on social media. We conducted a content analysis of 12 months of data from 18 publically available Facebook Pages hosted by parents of children with acute lymphoblastic leukemia (N = 15,852 posts) and extracted all exchanges of medically-oriented cancer information. We systematically coded for themes in the nature of cancer-related information exchanged on personal Facebook Pages and two oncology experts independently evaluated the scientific accuracy of each post. Of the 15,852 total posts, 171 posts contained medically-oriented cancer information. The most frequent type of cancer information exchanged was information related to treatment protocols and health services use (35%) followed by information related to side effects and late effects (26%), medication (16%), medical caregiving strategies (13%), alternative and complementary therapies (8%), and other (2%). Overall, 67% of all cancer information exchanged was deemed medically/scientifically accurate, 19% was not medically/scientifically accurate, and 14% described unproven treatment modalities. These findings highlight the potential utility of social media as a cancer-related resource, but also indicate that providers should focus on recommending reliable, evidence-based sources to patients and caregivers.
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Metadata
Title
Is Cancer Information Exchanged on Social Media Scientifically Accurate?
Authors
Elizabeth A. Gage-Bouchard
Susan LaValley
Molli Warunek
Lynda Kwon Beaupin
Michelle Mollica
Publication date
01-12-2018
Publisher
Springer US
Published in
Journal of Cancer Education / Issue 6/2018
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-017-1254-z

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