Skip to main content
Top
Published in: Journal of Cancer Education 3/2014

01-09-2014

Cancer, Adolescence, and Their Peers: “They’ll give you a Story”

Authors: Maurizio Mascarin, Ivana Truccolo, Elena Byther, Daniela Capone, Caterina Elia

Published in: Journal of Cancer Education | Issue 3/2014

Login to get access

Abstract

Following the model of other international oncology units, a framework was developed to create a special unit for adolescents and young adults (Youth Area) within a cancer research hospital in Italy by defining relevant parameters to improve personalized healthcare delivery and the reduction of the impact of the disease on 14–24 year old patients. The intervention became fully operational in 2007 and allows patients and their families to make decisions on their own care. The concept of “Youth Area” denotes an open model for society to put the patient back into the center of clinical care. We directly want to involve our adolescent and young adult (AYA) patients in participating in conferences so they themselves can send out a positive message to their healthy peers. Furthermore, activities centered on the normal development of AYA patients are encouraged. To highlight this innovative concept, the Youth Area has sponsored various published books. We believe that this intervention may represent an effective new tool for cancer patient care in young Italians.
Literature
1.
go back to reference Bleyer A, Barr R, Hayes-Lattin B, Thomas D, Ellis C, Anderson B, Biology and Clinical Trials Subgroups of the US National Cancer Institute Progress Review Group in Adolescent and Young Adult Oncology (2008) The distinctive biology of cancer in adolescents and young adults. Nat Rev Cancer 8(4):288–298CrossRefPubMed Bleyer A, Barr R, Hayes-Lattin B, Thomas D, Ellis C, Anderson B, Biology and Clinical Trials Subgroups of the US National Cancer Institute Progress Review Group in Adolescent and Young Adult Oncology (2008) The distinctive biology of cancer in adolescents and young adults. Nat Rev Cancer 8(4):288–298CrossRefPubMed
2.
go back to reference Bleyer A (2007) Young adult oncology: the patients and their survival challenges. CA Cancer J Clin 57(4):242–255CrossRefPubMed Bleyer A (2007) Young adult oncology: the patients and their survival challenges. CA Cancer J Clin 57(4):242–255CrossRefPubMed
3.
go back to reference Bleyer A, O’Leary M, Barr R, Ries L, eds (2006) Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival: 1975–2000. National Cancer Institute, NIH Pub. No. 06-5767. Bethesda Bleyer A, O’Leary M, Barr R, Ries L, eds (2006) Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival: 1975–2000. National Cancer Institute, NIH Pub. No. 06-5767. Bethesda
4.
go back to reference Burke ME, Albritton K, Marina N (2007) Challenges in the recruitment of adolescents and young adults to cancer clinical trials. Cancer 110(11):2385–2393CrossRefPubMed Burke ME, Albritton K, Marina N (2007) Challenges in the recruitment of adolescents and young adults to cancer clinical trials. Cancer 110(11):2385–2393CrossRefPubMed
5.
go back to reference Ramphal R, Meyer R, Schacter B, Rogers P, Pinkerton R (2011) Active therapy and models of care for adolescents and young adults with cancer. Cancer 117(10):S2316–S2322CrossRef Ramphal R, Meyer R, Schacter B, Rogers P, Pinkerton R (2011) Active therapy and models of care for adolescents and young adults with cancer. Cancer 117(10):S2316–S2322CrossRef
6.
go back to reference Zebrack B, Isaacson S (2012) Psychosocial care of adolescent and young adult patients with cancer and survivors. J Clin Oncol 30(11):1221–1226CrossRefPubMed Zebrack B, Isaacson S (2012) Psychosocial care of adolescent and young adult patients with cancer and survivors. J Clin Oncol 30(11):1221–1226CrossRefPubMed
7.
go back to reference Morgan S, Davies S, Palmer S, Plaster M (2010) Sex, drugs, and rock ‘n’ roll: caring for adolescents and young adults with cancer. J Clin Oncol 28(32):4825–4830CrossRefPubMed Morgan S, Davies S, Palmer S, Plaster M (2010) Sex, drugs, and rock ‘n’ roll: caring for adolescents and young adults with cancer. J Clin Oncol 28(32):4825–4830CrossRefPubMed
8.
go back to reference Suzuki LK, Kato PM (2003) Psychosocial support for patients in pediatric oncology: the influences of parents, schools, peers and technology. J Pediatr Oncol Nurs 20(4):159–174CrossRefPubMed Suzuki LK, Kato PM (2003) Psychosocial support for patients in pediatric oncology: the influences of parents, schools, peers and technology. J Pediatr Oncol Nurs 20(4):159–174CrossRefPubMed
9.
go back to reference Woodgate RL (2006) The importance of being there: perspectives of social support by adolescents with cancer. J Pediatr Oncol Nurs 23(3):122–134CrossRefPubMed Woodgate RL (2006) The importance of being there: perspectives of social support by adolescents with cancer. J Pediatr Oncol Nurs 23(3):122–134CrossRefPubMed
10.
go back to reference Zebrack BJ (2011) Psychological, social, and behavioral issues for young adults with cancer. Cancer 117(10):S2289–S2294CrossRef Zebrack BJ (2011) Psychological, social, and behavioral issues for young adults with cancer. Cancer 117(10):S2289–S2294CrossRef
11.
go back to reference Hollis R, Morgan S (2001) The adolescent with cancer—at the edge of no-man’s land. Lancet Oncol 2(1):43–48CrossRefPubMed Hollis R, Morgan S (2001) The adolescent with cancer—at the edge of no-man’s land. Lancet Oncol 2(1):43–48CrossRefPubMed
12.
go back to reference Birch JM1, Pang D, Alston RD, Rowan S, Geraci M, Moran A, Eden TO (2008) Survival from cancer in teenagers and young adults in England, 1979–2003. Br J Cancer 99(5):830–835PubMedCentralCrossRefPubMed Birch JM1, Pang D, Alston RD, Rowan S, Geraci M, Moran A, Eden TO (2008) Survival from cancer in teenagers and young adults in England, 1979–2003. Br J Cancer 99(5):830–835PubMedCentralCrossRefPubMed
13.
go back to reference Ferrari A, Thomas D, Franklin AR, Hayes-Lattin BM, Mascarin M, van der Graaf W, Albritton KH (2010) Starting an adolescent and young adult program: some success stories and some obstacles to overcome. J Clin Oncol 28(32):4850–4857CrossRefPubMed Ferrari A, Thomas D, Franklin AR, Hayes-Lattin BM, Mascarin M, van der Graaf W, Albritton KH (2010) Starting an adolescent and young adult program: some success stories and some obstacles to overcome. J Clin Oncol 28(32):4850–4857CrossRefPubMed
14.
go back to reference Treadgold CL, Kuperberg A (2010) Been there, done that, wrote the blog: the choices and challenges of supporting adolescents and young adults with cancer. J Clin Oncol 28(32):4842–4849CrossRefPubMed Treadgold CL, Kuperberg A (2010) Been there, done that, wrote the blog: the choices and challenges of supporting adolescents and young adults with cancer. J Clin Oncol 28(32):4842–4849CrossRefPubMed
19.
go back to reference Zebrack B1, Bleyer A, Albritton K, Medearis S, Tang J (2006) Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer 107(12):2915–2923CrossRefPubMed Zebrack B1, Bleyer A, Albritton K, Medearis S, Tang J (2006) Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer 107(12):2915–2923CrossRefPubMed
20.
go back to reference Cassano J, Nagel K, O'Mara L (2008) Talking with others who “just know”: perceptions of adolescents with cancer who participate in a teen group. J Pediatr Oncol Nurs 25(4):193–199CrossRefPubMed Cassano J, Nagel K, O'Mara L (2008) Talking with others who “just know”: perceptions of adolescents with cancer who participate in a teen group. J Pediatr Oncol Nurs 25(4):193–199CrossRefPubMed
21.
go back to reference Schultz KA, Ness KK, Whitton J, Recklitis C, Zebrack B, Robison LL, Zeltzer L, Mertens AC (2007) Behavioral and social outcomes in adolescent survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol 25(24):3649–3656CrossRefPubMed Schultz KA, Ness KK, Whitton J, Recklitis C, Zebrack B, Robison LL, Zeltzer L, Mertens AC (2007) Behavioral and social outcomes in adolescent survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol 25(24):3649–3656CrossRefPubMed
22.
go back to reference Zwaanswijk M, Tates K, van Dulmen S, Hoogerbrugge PM, Kamps WA, Bensing JM (2007) Young patients’, parents’, and survivors’ communication preferences in pediatric oncology: results of online focus groups. BMC Pediatr 7:35PubMedCentralCrossRefPubMed Zwaanswijk M, Tates K, van Dulmen S, Hoogerbrugge PM, Kamps WA, Bensing JM (2007) Young patients’, parents’, and survivors’ communication preferences in pediatric oncology: results of online focus groups. BMC Pediatr 7:35PubMedCentralCrossRefPubMed
23.
go back to reference Montori VM, Brito JP, Murad MH (2013) The optimal practice of evidence-based medicine: incorporating patient preferences in practice guidelines. JAMA 310(23):2503–2504CrossRefPubMed Montori VM, Brito JP, Murad MH (2013) The optimal practice of evidence-based medicine: incorporating patient preferences in practice guidelines. JAMA 310(23):2503–2504CrossRefPubMed
24.
go back to reference Korczak Janusz (1899) Development of the love-thy-neighbour ideal in the nineteenth century. Czytelnia dla Wszystkich [Universal Reader] Korczak Janusz (1899) Development of the love-thy-neighbour ideal in the nineteenth century. Czytelnia dla Wszystkich [Universal Reader]
25.
go back to reference Ferrari A, Clerici CA, Casanova M, Luksch R, Terenziani M, Spreafico F, Polastri D, Meazza C, Veneroni L, Catania S, Schiavello E, Biassoni V, Podda M, Massimino M (2012) The Youth Project at the Istituto Nazionale Tumori in Milan. Tumori 98(4):399–407PubMed Ferrari A, Clerici CA, Casanova M, Luksch R, Terenziani M, Spreafico F, Polastri D, Meazza C, Veneroni L, Catania S, Schiavello E, Biassoni V, Podda M, Massimino M (2012) The Youth Project at the Istituto Nazionale Tumori in Milan. Tumori 98(4):399–407PubMed
Metadata
Title
Cancer, Adolescence, and Their Peers: “They’ll give you a Story”
Authors
Maurizio Mascarin
Ivana Truccolo
Elena Byther
Daniela Capone
Caterina Elia
Publication date
01-09-2014
Publisher
Springer US
Published in
Journal of Cancer Education / Issue 3/2014
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-014-0635-9

Other articles of this Issue 3/2014

Journal of Cancer Education 3/2014 Go to the issue
Webinar | 19-02-2024 | 17:30 (CET)

Keynote webinar | Spotlight on antibody–drug conjugates in cancer

Antibody–drug conjugates (ADCs) are novel agents that have shown promise across multiple tumor types. Explore the current landscape of ADCs in breast and lung cancer with our experts, and gain insights into the mechanism of action, key clinical trials data, existing challenges, and future directions.

Dr. Véronique Diéras
Prof. Fabrice Barlesi
Developed by: Springer Medicine