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Published in: Canadian Journal of Anesthesia/Journal canadien d'anesthésie 12/2022

07-11-2022 | Care | Reports of Original Investigations

Patient and family engagement in patient care and research in Canadian intensive care units: a national survey

Authors: Karen E. A. Burns, MD, FRCPC, MSc, Ellen McDonald, BScN, Sylvie Debigaré, MA, Nasim Zamir, MD, FRCPC, Moises Vasquez, MD, Mikael Piche-Ayotte, BSc, Simon Oczkowski, MD, FRCPC, for the Canadian Critical Care Trials Group

Published in: Canadian Journal of Anesthesia/Journal canadien d'anesthésie | Issue 12/2022

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Abstract

Purpose

While patient and family engagement may improve clinical care and research, current practices for engagement in Canadian intensive care units (ICUs) are unknown.

Methods

We developed and administered a cross-sectional questionnaire to ICU leaders of current engagement practices, facilitators, and barriers to engagement, and whether engagement was a priority, using to an ordinal Likert scale from 1 to 10.

Results

The response rate was 53.4% (124/232). Respondents were from 11 provinces and territories, mainly from medical surgical ICUs (76%) and community hospitals (70%). Engagement in patient care included bedside care (84%) and bedside rounds (66%), presence during procedures/crises (65%), and survey completion (77%). Research engagement included ethics committees (36%), protocol review (31%), and knowledge translation (30%). Facilitators of engagement in patient care included family meetings (87%), open visitation policies (81%), and engagement as an institutional priority (74%). Support from departmental (43%) and hospital (33%) leadership was facilitator of research engagement. Time was the main barrier to engagement in any capacity. Engagement was a higher priority in patient care vs research (median [interquartile range], 8 [7–9] vs 3 [1–7]; P < 0.001) and in pediatric vs adult ICUs (10 [9–10] vs 8 [7–9]; P = 0.003). Research engagement was significantly higher in academic vs other ICUs (7 [5–8] vs 2 [1–4]; P < 0.001), and pediatric vs adult ICUs (7 [5–8] vs 3 [1–6]; P = 0.01).

Conclusions

Organizational strategies and institutional support were key facilitators of engagement. Engagement in patient care was a higher priority than engagement in research.
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Metadata
Title
Patient and family engagement in patient care and research in Canadian intensive care units: a national survey
Authors
Karen E. A. Burns, MD, FRCPC, MSc
Ellen McDonald, BScN
Sylvie Debigaré, MA
Nasim Zamir, MD, FRCPC
Moises Vasquez, MD
Mikael Piche-Ayotte, BSc
Simon Oczkowski, MD, FRCPC
for the Canadian Critical Care Trials Group
Publication date
07-11-2022
Publisher
Springer International Publishing
Keyword
Care
Published in
Canadian Journal of Anesthesia/Journal canadien d'anesthésie / Issue 12/2022
Print ISSN: 0832-610X
Electronic ISSN: 1496-8975
DOI
https://doi.org/10.1007/s12630-022-02342-w

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