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Open Access 01-04-2020

Cancer-related cognitive problems at work: experiences of survivors and professionals

Authors: Kete M. Klaver, Saskia F. A. Duijts, Ellen G. Engelhardt, Chantal A. V. Geusgens, Maureen J. B. Aarts, Rudolf W. H. M. Ponds, Allard J. van der Beek, Sanne B. Schagen

Published in: Journal of Cancer Survivorship | Issue 2/2020

Abstract

Purpose

Cancer-related cognitive problems (cancer-related cognitive problems) in working cancer survivors are found to affect work outcomes. We aimed to generate in-depth information regarding cancer-related cognitive problems in working cancer survivors, strategies used to cope with cancer-related cognitive problems at work, and needs of cancer survivors and professionals regarding cancer-related cognitive problems at work.

Methods

Five focus groups were formed, amongst which three focus groups with cancer survivors (n = 8, n = 7, and n = 8) and two focus groups with professionals (n = 7, n = 8). Thematic analysis of the transcripts was performed to create concepts.

Results

Both cancer survivors and professionals confirmed that cancer-related cognitive problems, which occurred in several domains of neurocognitive functioning, affect work functioning. Cancer survivors used several strategies (e.g., applying practical adjustments, re-organization of work, and accepting limitations) to cope with cancer-related cognitive problems at work, as did professionals in their attempt at supporting cancer survivors facing these problems. Various needs of cancer survivors (e.g., supportive care options, acknowledgment by others) and professionals (e.g., improvement of expertise, clarity about referral pathways) regarding cancer-related cognitive problems at work were mentioned.

Conclusions

Due to the growing number of working cancer survivors dealing with cancer-related cognitive problems, it is essential to sustain their employability. Therefore, cognitive rehabilitation interventions should be developed, taking functioning at work into account. Knowledge amongst professionals regarding cancer-related cognitive problems, as well as coordination of care for cancer-related cognitive problems, should be improved. Ensuring professional education regarding cancer-related cognitive problems, within both the healthcare and occupational setting, is of utmost importance.

Implications for cancer survivors

Support for working cancer survivors who experience cancer-related cognitive problems might increase their employability in the longer term.

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Title: Cancer-related cognitive problems at work: experiences of survivors and professionals
Authors: Kete M. Klaver
Saskia F. A. Duijts
Ellen G. Engelhardt
Chantal A. V. Geusgens
Maureen J. B. Aarts
Rudolf W. H. M. Ponds
Allard J. van der Beek
Sanne B. Schagen
Publication date: 01-04-2020
Publisher: Springer US
Published in: Journal of Cancer Survivorship / Issue 2/2020
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI: https://doi.org/10.1007/s11764-019-00830-5

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Abstract

Purpose

Methods

Results

Conclusions

Implications for cancer survivors

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