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Quality of Life Research
Published in: Quality of Life Research 8/2018

Open Access 01-08-2018 | Review

Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments

Authors: Janneke van Roij, Heidi Fransen, Lonneke van de Poll-Franse, Myrte Zijlstra, Natasja Raijmakers

Published in: Quality of Life Research | Issue 8/2018

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Abstract

Purpose

Patient-reported outcome measures (PROMs) are becoming increasingly important in clinical practice. The implementation of PROMS in routine practice is challenging because information regarding psychometric quality of measurement instruments is fragmented and standardization is lacking. The aim of this study is to evaluate the quality of self-administered HRQoL measurement instruments for use in patients with advanced cancer in clinical practice.

Methods

A systematic literature search was performed in PubMed, Embase, PsycINFO, and CINAHL to identify studies concerning self-administered HRQoL measurement instruments in patients with advanced cancer between January 1990 and September 2016. Quality of the measurement instruments was assessed by predefined criteria derived from the COSMIN checklist.

Results

Sixty-nine articles relating to 39 measurement instruments met the inclusion criteria. Information regarding important measurement properties was often incomplete. None of the instruments performed sufficient on all measurement properties. Considering available information, the EORTC QLQ-C15-PAL appeared to have adequate psychometric properties, together with the EORTC QLQ-BM22.

Conclusions

Many of the existing HRQoL measurement instruments have not yet been evaluated in an adequate manner. Validation of self-administered HRQoL measurement instruments is an ongoing development and should be prioritized. This review contributes to improved clarity regarding the availability and quality of HRQoL measurement instruments for patients with advanced cancer and supports health care professionals in an adequate selection of suitable PROMs in clinical practice.
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Metadata
Title
Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments
Authors
Janneke van Roij
Heidi Fransen
Lonneke van de Poll-Franse
Myrte Zijlstra
Natasja Raijmakers
Publication date
01-08-2018
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 8/2018
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-1809-4

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