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Quality of Life Research
Published in: Quality of Life Research 5/2010

01-06-2010

The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome

Authors: Morag Farquhar, Gail Ewing, Irene J. Higginson, Sara Booth

Published in: Quality of Life Research | Issue 5/2010

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Abstract

Purpose

To report the experience of using the SEIQoL-DW for the measurement of quality of life with patients with advanced COPD and consider its feasibility, acceptability and appropriateness for a Phase III randomised controlled trial (RCT).

Methods

The SEIQoL-DW was administered according to its instructions within a Phase II RCT 3–5 times per patient, across 13 patients and the process audio-recorded. Quantitative and qualitative criteria were used to assess feasibility, acceptability and appropriateness. Qualitative analysis of the transcripts and fieldwork notes was conducted using Framework Analysis.

Results

The SEIQoL-DW steps (of identifying five quality of life cues, rating their functioning and importance) were completed at 48/51 interviews. However, some respondents were overwhelmed by the scripted introduction, experienced difficulty with cue identification, and focused only on certain types of cues (Step 1); some had difficulty interpreting and rating the concept of Step 2; and some had difficulty interpreting ‘importance’ and manipulating the SEIQoL-DW disc (Step 3).

Conclusions

Patients with advanced COPD were able to complete the SEIQoL-DW but analysis of its administration identified practical and conceptual concerns which question the validity of the results obtained. Suggestions for the development of the SEIQoL-DW and future feasibility studies are given.
Appendix
Available only for authorised users
Footnotes
1
SEIQoL-DW scripts reproduced with kind permission of Dr. Anne Hickey.
 
Literature
1.
Kaasa, S., & DeLonno, F. (2001). Palliative care research. European Journal of Cancer, 37, S153–S159.CrossRefPubMed
2.
Gill, T. M., & Feinstein, A. R. (1994). A critical appraisal of the quality of life measurements. Journal of the American Association, 272, 619–626.CrossRef
3.
Farquhar, M. (1995). Definitions of quality of life: A taxonomy. Journal of Advanced Nursing, 22(3), 502–508.CrossRefPubMed
4.
Farquhar, M. (1995). Elderly people’s definitions of quality of life. Social Science and Medicine, 41(10), 1439–1446.CrossRefPubMed
5.
Cella, D. F. (1995). Measuring quality of life in palliative care. Seminars in Oncology, 22(2 Suppl 3), 73–81.PubMed
6.
7.
Carr, A. J., & Higginson, I. J. (2001). Are quality of life measures patient centred? BMJ, 322, 1357–1360.CrossRefPubMed
8.
Hickey, A. M., Bury, G., O’Boyle, C. A., Bradley, F., O’Kelly, F. D., & Shannon, W. (1996). A new short form individual quality of life measure (SEIQoL-DW): Application in a cohort of individuals with HIV/AIDS. BMJ, 313, 29–33.PubMed
9.
Browne, J., O’Boyle, C., McGee, H., McDonald, N., & Joyce, C. (1997). Development of a direct weighting procedure for quality of life domains. Quality of Life Research, 6, 301–309.CrossRefPubMed
10.
Waldron, D., O’Boyle, C. A., Kearney, M., Moriarty, M., & Carney, D. (1999). Quality-of-life measurement in advanced cancer: Assessing the individual. Journal of Clinical Oncology, 17(11), 3603–3611.PubMed
11.
Campbell, S., & Whyte, F. (1999). The quality of life of cancer patients participating in phase I clinical trials using SEIQoL-DW. Journal of Advanced Nursing, 30(2), 335–343.CrossRefPubMed
12.
Montgomery, C., Pocock, M., Titley, K., & Lloyd, K. (2002). Individual quality of life in patients with leukaemia and lymphoma. Psycho-Oncology, 11, 239–243.CrossRefPubMed
13.
Frick, E., Borasio, G. D., Zehentner, H., Fischer, N., & Bumeder, I. (2004). Individual quality of life of patients undergoing autologous peripheral blood stem cell transplantation. Psycho-Oncology, 13(2), 116–124.CrossRefPubMed
14.
Carlson, L. E., Bultz, B. D., & Morris, D. G. (2005). Individualized quality of life, standardized quality of life, and distress in patients undergoing a phase I trial of the novel therapeutic Reolysin (reovirus). Health and Quality of Life Outcomes, 3, 7.CrossRefPubMed
15.
Sharpe, L., Butow, P., Smith, C., McConnell, D., & Clarke, S. (2005). Changes in quality of life in patients with advanced cancer. Evidence of response shift and response restriction. Journal of Psychosomatic Research, 58, 497–504.CrossRefPubMed
16.
Westerman, M. J., Hak, T., The, A.-M., Echteld, M. A., Groen, H. J. M., & van der Wal, G. (2006). Problems eliciting cues in SEIQoL-DW: Quality of life areas in small-cell lung cancer patients. Quality of Life Research, 15, 441–449.CrossRefPubMed
17.
Westerman, M. J., Hak, T., The, A.-M., Echteld, M. A., Groen, H. J. M., & van der Wal, G. (2007). Change in what matters to palliative patients: Eliciting information about adaptation with SEIQoL-DW. Palliative Medicine, 21, 581–586.CrossRefPubMed
18.
Echteld, M. A., van Zuylen, L., Bannink, M., Witkamp, E., & Van der Rijt, C. C. (2007). Changes in and correlates of individual quality of life in advanced cancer patients admitted to an academic unit for palliative care. Palliative Medicine, 21(3), 199–205.CrossRefPubMed
19.
Fegg, M. J., Wasner, M., Neudert, C., & Borasio, G. D. (2005). Personal values and individual quality of life in palliative care patients. Journal of Pain and Symptom Management, 30, 154–159.CrossRefPubMed
20.
Frick, E., Tyroller, M., & Panzer, M. (2006). Anxiety, depression and quality of life of cancer patients undergoing radiation therapy: A cross-sectional study in a community hospital outpatient centre. European Journal of Cancer Care, 16, 130–136.CrossRef
21.
Lintern, T. C., Beaumont, J. G., Kenealy, P. M., & Murrell, R. C. (2001). Quality of life (QoL) in severely disabled multiple sclerosis patients: Comparisons of three QoL measures using multidimensional scaling. Quality of Life Research, 10, 371–378.CrossRefPubMed
22.
Ramström, H., Erwander, I., Mared, L., Kornfält, R., & Seiving, B. (2000). Pharmaceutical intervention in the care of cystic fibrosis patients. Journal of Clinical Pharmacy & Therapeutics, 25(6), 427–434.CrossRef
23.
LeVasseur, S. A., Green, S., & Talman, P. (2005). The SEIQoL-DW is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic. Quality of Life Research, 14(3), 779–788.CrossRefPubMed
24.
Lee, M. A., Walker, R. W., Hildreth, A. J., & Prentice, W. M. (2006). Individualized assessment of quality of life in idiopathic Parkinson’s disease. Movement Disorders, 21(11), 1929–1934.CrossRefPubMed
25.
Echteld, M. A., Deliens, L., Ooms, M. E., Ribbe, M. W., & van der Wal, G. (2005). Quality of life change and response shift in patients admitted to palliative care units: A pilot study. Palliative Medicine, 19(5), 381–388.CrossRefPubMed
26.
Crang, C., & Muncey, T. (2008). Quality of life in palliative care: Being at ease in the here and now. International Journal of palliative Nursing, 14(2), 90–95.PubMed
27.
Smith, H. J., Taylor, R., & Mitchell, A. (2000). A comparison of four quality of life instruments in cardiac patients: SF-36, QLI, QLMI, and SEIQoL. Heart, 84, 390–394.CrossRefPubMed
28.
Moons, P., Marquet, K., Budts, W., & De Geest, S. (2004). Validity, reliability and responsiveness of the “Schedule for the Evaluation of Individual Quality of Life–Direct Weighting” (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes, 2, 27.CrossRefPubMed
29.
Macduff, C. (2000). Respondent-generated quality of life measures: Useful tools for nursing or more fool’s gold? Journal of Advanced Nursing, 32(2), 375–382.CrossRefPubMed
30.
Stiggelbout, A. M., de Vogel-Voogt, E., Noordijk, E. M., & Vliet Vlieland, T. P. M. (2008). Individual quality of life: Adaptive conjoint analysis as an alternative for direct weighting? Quality of Life Research, 17, 641–649.CrossRefPubMed
31.
Mountain, L. A., Campbell, S. E., Seymour, D. G., Primrose, W. R., & Whyte, M. I. (2004). Assessment of individual quality of life using the SEIQoL-DW in older medical patients. QJM, 97(8), 519–524.CrossRefPubMed
32.
Farquhar, M., Higginson, I. J., Fagan, P., & Booth, S. (2009). The feasibility of a single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease. BMC Palliative Care, 8, 9.CrossRefPubMed
33.
Farquhar, M. C., Higginson, I. J., Fagan, P., Booth, S. (2009). Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): Brief report. Palliative and Supportive Care, 8(2) (in press).
34.
O’Boyle, C. A., Browne, J., Hickey, A., McGee, H., Joyce, C. R.B. (1995). Schedule for the evaluation of individual quality of life (SEIQoL): A direct weighting procedure for quality of life domains (SEIQoL-DW). Administration manual. Dept of Psychology, Royal College of Surgeons in Ireland.
35.
Ritchie, J., & Spencer, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & R. G. Burgess (Eds.), Analyzing qualitative data (pp. 173–194). London: Routledge.CrossRef
36.
Ring, L., Lindblad, A. K., Bendsten, P., Viklund, E., Jansson, R., & Glimelius, B. (2006). Feasibility and validity of a computer administered version of SEIQoL-DW. Quality of Life Research, 15, 1173–1177.CrossRefPubMed
37.
Seymour, D. G., Starr, J. M., Fox, H. C., Lemmon, H. A., Deary, I. J., Prescott, G. J., et al. (2008). Quality of life, its correlates in octogenarians. Use of the SEIQoL-DW in Wave 5 of the Aberdeen Birth Cohort 1921 Study (ABC1921). Quality of Life Research, 17, 11–20.CrossRefPubMed
38.
Mallinson, S. (2002). Listening to respondents: A qualitative assessment of the Short-Form 36 Health Status Questionnaire. Social Science and Medicine, 54(1), 11–21.CrossRefPubMed
39.
Murtagh, F. E., Addington-Hall, J. M., & Higginson, I. J. (2007). The value of cognitive interviewing techniques in palliative care research. Palliative Medicine, 21(2), 87–93.CrossRefPubMed
Metadata
Title
The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome
Authors
Morag Farquhar
Gail Ewing
Irene J. Higginson
Sara Booth
Publication date
01-06-2010
Publisher
Springer Netherlands
Published in
Quality of Life Research / Issue 5/2010
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9631-7

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