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Quality of Life Research
Published in: Quality of Life Research 1/2010

Open Access 01-02-2010

Caregiver education in Parkinson’s disease: formative evaluation of a standardized program in seven European countries

Authors: L. E. I. A’Campo, N. G. A. Spliethoff-Kamminga, M. Macht, R. A. C. Roos, The EduPark Consortium

Published in: Quality of Life Research | Issue 1/2010

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Abstract

Purpose

The formative evaluation of a standardized psychosocial education program for patients with Parkinson’s disease (PD) and their caregivers. The results of the participation of the caregivers are presented next to the data of the patients.

Methods

Caregivers (n = 137) and patients with PD (n = 151) participated in the 8-week program in separate groups. Measurements were performed on psychosocial problems (BELA-P/A-k), health state (EQ-5D VAS), quality of life (PDQ-39) and depression (SDS) 1 week before and 1 week after the program. Participants rated their mood on a visual analogue scale before and after each session, and they filled in an evaluation questionnaire after the last session.

Results

Scores on the BELA-P/A-k improved significantly on the ‘bothered by scale’ as well as the ‘need for help scale’. No improvements were found on EQ-5D VAS, PDQ-39 and SDS. Mood ratings improved significantly after each session. Most participants evaluated the program as positive. Feedback led to improvements in the program, which are incorporated in a final manual.

Conclusions

The program was feasible to run in the different countries. This exploratory study led to improvements in the program and recommendations for further research. A study on the effectiveness of the program is the next step.
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Metadata
Title
Caregiver education in Parkinson’s disease: formative evaluation of a standardized program in seven European countries
Authors
L. E. I. A’Campo
N. G. A. Spliethoff-Kamminga
M. Macht
R. A. C. Roos
The EduPark Consortium
Publication date
01-02-2010
Publisher
Springer Netherlands
Published in
Quality of Life Research / Issue 1/2010
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-009-9559-y

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